Calling all TNs
Comments
-
Mccrimmon- sorry you had to go through that! I told my husband that dealing with the infection and the IV antibiotics was worse than chemo ever was. At least I dealt with it after chemo, not during like you did. I will be very happy if I never have to have either antibiotic again!!
0 -
Tif - I had a breakdown in the middle of the IV Anti-biotics, which led to a little breakdown from my hubby too. I got so scared that all of this crap they were pumping in me was going to kill my kidneys, one thing led to another and the two of us ended up sobbing on our kitchen floor cuddled up with our dogs. It was just terrible, but we do laugh at ourselves now.
I was luckier than you that my cancer center was only 15-20 min away though. I can't imagine! They loaded me up with benedryl too so I would never had been able to drive that far. I went in the mornings and hung around afterward until it wore off and I could drive.
0 -
Thankfully, benadryl doesn't make me sleepy. I was able to take it before I left the house and that way didn't have to get the shot of it at the center or hospital.
This was the second time I had to do antibiotics. 10 days after my first chemo I developed a fever and had to go 5 days in row for Levaquin. At least then I had the port and didn't have to endure being stuck a million times. I have very small veins and can only use the left arm. It usually takes at least 2 pokes just to get blood!
Hey, if you're going to have a breakdown- have a big one!! I don't think I ever had a true breakdown, but I cried all the time. I am finally statring to feel "normal".
0 -
I did have my port and I'm very thankful for that. My fever delayed my last chemo about 4 days. I was pretty upset. I'm soooooo glad I don't get poked as frequently as before I've had enough of that!
I cried all the time before chemo started. Then the day of my first treatment I woke up and felt like everything was going to be ok, I didn't cry again until our little breakdown. Haven't really cried since but I'm still fresh out of treatment. Next week is my first followup treatment and I think about it all the time, I don't obsess over it, it just pops in my head. I guess I just need more time. Physically, I'm pretty much back to normal except for the aches and pains.
0 -
Patti thanks for sharing. And I hope you and all of us have many, many more years!
0 -
I remember my hubby and I sobbing on the kitchen floor with our pups too. It was the Christmas following my diagnosis, and we both wondered if I was going to be around for the next.
0 -
Heidi, There's something so special about the unconditional love you get from your pets
0 -
Our beloved Golden Retriever passed away 2 months before I was diagnosed. I miss him. I have had 4 follow up appts since chemo. I wasn't even concerned when I went on Dec. 30th. I felt good and had no complaints!
I wanted to just hold my kids and cry, but didn't want to scare them. They are 9 and 6.
0 -
Just wanted to let y'all know that there is a facebook group that is CLOSED to the public and is for us TN ladies. It is called Breast Cancer Sisters. This forum is great, but for those that don't want everyone to see their business and want a place to connect to other TNers, that place is pretty cool. I highly recommend it for us TN FBers. I want us to all connect and share information, concerns, etc. I wish all of you a Happy and Healthy 2012!
0 -
Yikes, Rocephin is rough stuff. I had to take it after I was exposed at work to a patient with something nasty. Nobody bothered to warn me it turns your pee neon orange! It made my stomach hurt every time I took a pill, too. I've never had Vancomycin. I just finished 2 weeks of Levaquin for a kidney infection, and didn't have any problems with it.
0 -
Riley- I only had Rocephin by IV and it doesn't turn your pee orange- I would have freaked out!! While I was taking the Levaquin I saw one of those TV ads that said "if you have taken Levaquin and suffered a tendon rupture...". I thought, crap not only do I feel like sh*t from chemo, but i have to worry if my ankle is going to explode?? LOL!! I don't think there is a medicine out there that some some law firm doesn't have a case against!
0 -
Hi ladies, home again after 2 1/2 weeks up north, skiing and hosting friends and family for the holidays. Happily, whole days went by (several, in fact, in a row! - lol) when I never gave cancer a single thought. Anxiety improves with time. I felt truly fortunate to be healthy, enjoying the outdoors and sharing precious moments with my husband and 2 sons - it all flew by a little too fast.
I've been catching up on posts because, although I don't post as much anymore, I do read this board and like to stay in touch with you all. The metformin discussion is interesting. I have a follow-up MRI and onc appointment scheduled for this month - and I too will ask about metformin.
So good to hear from you LJ, Suze and inmate. Your resilience and determination are such an inspiration... and your contribution and insights on this board are invaluable. I wish you all a good response to your treatments in 2012. You ladies deserve it!
A happy, healthy New Year to all.
0 -
Kymn: Nice to hear from you too. I can imagine that the holidays were a bit rough, hope 2012 brings much better things for you!
0 -
A magician worked on a cruise ship. The audience was different each week, so the magician did the same tricks over and over again.
There was one problem. The captain's parrot saw the shows each week and began to understand how the magician did every trick. Once he understood, he started shouting in the middle of the show "Look, it's not the same hat!" or, "Look, he's hiding the flowers under the table," or "Hey, why are all the cards the ace of spades?"
The magician was furious, but couldn't do anything. It was, after all, the captain's parrot. Then the ship sank. The magician found himself on a piece of wood in the middle of the sea with, as fate would have it, the parrot.
They stared at each other with hatred, but did not utter a word. This went on for a day and then another and then another.
Finally on the fourth day, the parrot could not hold back and said,
"OK, I give up. Where's the F***//g ship?"0 -
Very Funny Bernie!
How's the leg pain? When was your scan again?
0 -
Hi Honey. Scan Jan 11. Hope you are keeping well
0 -
I'm doing well, I go for bloodwork for my first follow up onc appt next week. Breast is sore but I think it's from Rads. Has been since middle to end of treatment, not painfull just occasional soreness and of course its got my anxiety up.
How's your leg feeling?
0 -
Bernie- I use to tell that joke *years* ago. Thanks for reminding me of it; it was always one of my favorites!
0 -
Luah......Congrats to you on feeling healthy and energetic! I am hoping to get over to Sun Valley in February. It has been awhile since I've been up but I can't wait to play in the snow
I will be finishing treatment for the third time on Jan 12. Hoping this treatment will be my last. Everyone on this board is so supportive. Without that the last year and a 1/2 would have been much more difficult. Thanks!
0 -
3's the charm, right? Good luck, I'll be praying for you.
0 -
Just went for my bloodwork, next week is my first follow up appt. I can feel my anxiety kicking in. Guess I have to dig the xanax out of my medicine cabinet
0 -
I met with MO today for the 1st time. She's recommending 4 treatments of Adriamycin + Cytoxan and then 4 of Taxol. She said that because of the TN status and my age (47) and the fact that I'm in good health otherwise and I have young kids (11 & 13), she's recommending 8 treatment (1 every 2 weeks). "We need to go at it with everything we've got." She said this is what is done at Dana Farber, Penn (where she was trained), and Sloan Kettering. Getting a MUGA scan on Mon 12/9, then getting the port put in (waiting to hear back from BS on date for placement), and MO wants to start 1st treatment on Thurs. 1/12. Personally, give me my 1st infusion while I'm under the twilight from the port! (I wish). Does any of this sound familiar to anyone else??
0 -
Hello CharB - dose dense AC/T is very typical chemo protocol. There are lots of us here who did chemo like this, including me. I am 2 years out from the end of treatment - rads followed chemo -and doing fine. You will get lots of support here as you go through tx.
0 -
Friends, Today I went for a bone scan because of pain in my back that has persisted since October. I've been too scared to talk about it, too scared to post about it, and too scared to find out what it was. The fear cast a shadow over Christmas and finally I knew I had to face it because the fear was darkening my life. It was good news, osteoarthritis!
It was reading the brave posts of the women on here who are dealing with metasteses that finally gave me the courage to go for the test. Ladies (you know who you are) thank you for sharing your wisdom and grace in the face of your great trials. You helped me.
0 -
Great news Mity!!!! Isn't it weird to be "happy" for osteoarthritis???
I guess only we can understand........ 0 -
mitymuffin - stepping away from the fog of my "flu" to say how happy I am that your scan came back clean!! It IS so scary to have aches and pains, always worried, thinking maybe you are better off just now knowing. But getting the scan was the right thing to do, and now you can once again move forward. I'm just sorry it cast such a shadow over your holidays. F-in cancer, grr.
Back to my bed... (I have some bug I think, as 1/2 my family is sick. Yuck.)0 -
Yay!!! Mity
0 -
Mitymuffin - Yay!!!!!!!!!!!!!!!
Char - That is exactly what I did. My last chemo was 12/30/10. It is very managable. I was able to work through chemo. To me the hardest part was waiting for the "plan". You can do it!!
Kathy
0 -
Mity: Good to hear! Also, nicely put about the ladies here sharing their grace and wisdom in the face of their own trials... I agree 100%.
0 -
Great news Mity!!
0
