Calling all TNs
Comments
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Crap, am in the hospital. My fever went over 101, and my resting heart rate is 157 (quite tachycardic). So, I'm sure I'll be getting lots of scans, blood draws (thankfully I prepared my port with EMLA) and probably a crappy nights sleep, blah.
I'll keep you posted.
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Suze, sorry to hear you are in the hospital. Tachycardia can be scary-perhaps it is your fever causing it? Hope you feel better quickly and can go home.
Laura, I think about you a lot and I am sorry you have been feeling lousy, I hope tomorrow is a better day for you.
Welcome new friends, too.0 -
Suze - sending healing thoughts your way and hoping your stay is short. (((Hugs)))
Michelle
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Suze- I'm so sorry you are in the hospital. For sure that low WBC and the flu don't go well together! Praying that you will be better fast. Hang in there. (((BIG HUGS)))
Isabelle xx
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I, too, don't know if I am triple neg. because original path report said ER+ but doc called yesterday and said Oncotype test results were in and score was a 53! and that it said I was triple negative. I had a bilateral mastectomy with tissue expanders put in place at that time, does anyone know if I will likely need radiation now too, originally told no when ER+ was reported. I am afraid they will have to remove the expanders now. I don't have a treatment plan yet, just know for sure I will need chemo now. I am frightened by the high oncotype score!!
Rhondalee
surgery on Dec. 5, bilateral mastectomy, stage 1, grade 3, clear nodes....
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Suze- wishing you a speedy recovery!
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Oh Suze...sending healing thoughts and prayers your way.
Maggie
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Suze, I am sorry to hear you are in the hospital , you will be in my prayers.
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Thinking of you Suze.
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Suze- my first response was "call your doc" but I see you did. So sorry you're in the hospital but at the same time glad they didn't procrastinate. Heal quick, sweetie.
Titan- thank you. Also your description of your biopsy was hilarious!
Hi Lynn - how are you?
Rhonda- sorry you are going through this. I think radiation is standard with TNBC but I could be wrong.
Hope everyone has a great day. The sun is shining here as I hope it is for all of you.0 -
Suze:
Sending all my love, strength and good wishes and vibes to you - that this shall quickly pass with good resolution. Going through a bit of my own right now, so haven't been on the boards posting, but always read. Stay strong, sweet sister, and look forward to that cruise. I am thinking of you, and use you as my own personal inspiration.
Much love,
Linda
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rhondalee,
I went through treatment for Stage IIb TNBC in 2010 with tissue expanders at the time of bmx. It was determined that the expanders would not interfere with the rads so they did not have to be removed. The rest of the reconstruction wen't relatively well.
Ask the RO and PS if it is possible to keep them.
kc
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Titan - you're hilarious! Your description of your biopsy gave me the first laugh I've had in a few days...thanks for that! They didn't do mine that way, probably because they were aiming for the top of my breast. I was lying on my side in this awkward position with my breast in the mammo machine....kind of like doing having a mammo while doing yoga. I've also been Googling this stuff like a maniac, even though I know better.... "Dr. Google" has scared the hell out of me in the past, so I'm going to stop now. It's a nice day here and I'm going to take my poor mangled boob outside for a walk in the sunshine.
Suze - Wishing you a speedy recovery!
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Thanks for the welcome!
Wishing all of you a Happy New Year and hope treatments and all are going well.
ATeamNana (Marsha)
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Suze,
I'm so sorry you are in the hospital! Are you anemic? My heart rate has run a little high from time to time with the eribulin but not over 100. I hope you are better and get to go home soon. I've been on a Disney cruise years ago to the Bahamas. I think that will be a lot of fun for your family - your kids are great ages for it as they will have lots of available activities if it is still like it was back in the mid 90s.
Rhonda, I had radiation but I chose to do it because i had 2 positive nodes. I wish in retrospect that I had done the rads with the tissue expanders in- seems to me that that is often done. I know the methods differ between the staining type of test typically done in the pathology department at the hospitals and the onconotype tests.
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Hello to all - I realize there is probably a more specific thread for this topic, but since I am trip. neg., I decided to post this here. I had chemo, lumpectomy and just completed rads. I am, of course, concerned about mets. Due to this, I have decided to become proactive. I have an appointment for my yearly exam with my gyn on the 31st. I have already advised her that due to my "incomplete" response to chemo, per my post-op path report, and possibility of cancer being metaplastic, I would like to discuss a preventative removal of my ovaries. (I had a hyster in 1997, but they left the darn ovaries in!). A lot, unfortunately, depends on weather or not my insurance will pay. Based on the path report and gyn recommendation they may pay due to the aggressive nature of my cancer cells.
Have any of you had or considered having a preventative oophorectomy? Am I being extreme?
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Suze, wishing you a speedy recovery!!
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Anandagram,
I am having an ooph as a preventative measure mainly because I'm BRCA1 positive. I just need to decide whether it will be done at the same time as BMX w/ TEs. When it comes to this hateful disease, what is "extreme"? All of it!
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Thanks, lisajcj - Yes, All of it is extreme!!! My gyn is very progressive, so I am hoping she agrees with my ideas on the preventative ooph. Best wishes for a speedy recovery from you BMX. My thoughts are with you,
Sher
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Anandagram, I had a preventative ooph this summer when I had my TE put in and my port taken out...I am also BRCA 2 , I was going to have a preventive double MX but than my husband lost his job and we lost insurance and I found out I had cancer later on.......
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Thanks for sharing tracie - Oh, I am so sorry you lost your insurance. I lost my teaching job two years ago, but, thank goodness, was given the opportunity to take early retirement. The retirement monthly benefit is half of what it would been in five years, but at least I have my insurance until I am 65. OMG - I just feel so badly for you - I also note that you are triple negative - just as I am and IIa - so sorry to see you have mets.....
Sher
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Anandagram, I don't have mets, do I ? someone else said that to me one day... does my diagnoses mean something I don't know?
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tracie- It's because it's written "mets" in your diagnostic..................
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OH MY GOSH I JUST SAW THAT... I don't know how that got there... uuuuggghhhhhh
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I just fixed it....
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Oh Tracie - So glad you do not have mets!!!! Whew! So sorry if I scared you. I was glad to see you had 0 positive nodes and surprised to see mets - but we can have mets without node involvement - so glad you do not!
Sher
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I almost sh$% myself.... I was like why do people keep saying this to me... must have been the chemo brain affecting me while I was filling it out LOL ... I am so glad not to have mets either whew!!! thank you for careing.
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Here's a big hug, tracie!
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Wow...what a busy thread.
LauraJane so good to see you posting again. Hope you're feeling better after your last treatment and that it kicks your FC out of the park!
Suze - I was so glad to read your posts of your trip over Christmas. Hopefully your current hospital stay is short and you can get back on your feet to get ready for the cruise in Feb. You'll love it. I hear the Disney cruises are fabulous.
Welcome all the new ladies. Sorry you had to be here but you will get a lot of support from the wonderful ladies on this thread.
Happy New Year to all of you. I"ve been away for a week on vacation and have a lot of catching up to do on this thread. We went to Cancun and our flight home was scheduled to arrive in Toronto last night at 2:00 a.m. but it was delayed and we didn't get home until 4:00 a.m. I'm zonked! I see my Medical Onc on Wednesday for a check up and now have to get back in to cancer patient mode
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Tracie - i know the idea of mets is anything but funny but I had to laugh at the exchange of posts. I pretty well always look at people's signatures and often see mets in there along with things like stage 0 or stage 1 no node involvement. I think it's because when we first become a member we are so new, we don't know how to fill in the info and half of us don't even know what mets means!!!
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