Calling all TNs
Comments
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Hello mtnbiker.....I've actually just joined this site this Month. As far as my treatment plan, I had a recent PetScan two weeks ago which came back clean.....whew. I can breathe again!
I was bad and didn't finish my Chemo. treatments back in 2008. Only completed two A/C's then chose to have the Port removed and didn't finish. I was supposed to have four A/C's (every two weeks) then onto 12 weeks of Taxol followed by 33 rounds of Rads. I'm happy to say that I finished the Radiation treatments.
Having other Female issues (Bloodwork # came back at "36" - GYN advised it should be "30" or less). So, due to have a Pelvic Ultrasound/Endometrial Biopsy back-to-back on February 6th.
Other than that, just going through the motions in keeping up with my Doctor visits and tests. Truth-be-told, should the Cancer begin to rear it's ugly head again, I sincerely doubt that I'll entertain the thought of Chemo. again, although my Doctor has been having this conversation with me each time we see each other.
I moved to Florida a few months ago and have been completing things (albeit slowly but surely) on my Bucket List. Can't remember when I've had this much fun and "peace of mind" as I've had in these past four months. No fooling!
Finally have the type of Dog I've always wanted (Pembroke Welsh Corgi).....Car I love to drive (Jaguar).....living where I want to live (Florida).....and the icing on the Cake is that I've met a wonderful man who treats me with respect.
I honestly couldn't ask for anything more! Always lived "my life" making everyone else happy.....worrying about everybody else's needs BUT MY OWN! Once I became sick, I saw exactly how much "I mean't", or shall I say, "didn't mean" to several people.
Hence, my attitude is now "me first". And for once in "my life", I call the shots. No more explaining myself and the choices I make. Not to my Doctors nor anyone else. I'm not saying people have to like it, I simply ask that they respect it.
I hope I didn't come across as rude, because that was not my intent. It's just that Cancer has taught me so many lessons. Some good.....some bad.
But I wish all of the Women on this site the very best in their choices about their Health. We all have our own Cross to Bare.
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Heather- I think you're right! The girls will be more fun! My husband is very cheap (frugal in his words). So, it will be nice to take a vacation and not hear how expensive everything is!!
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Suze: So sorry to hear about your recent virus - and all the medications -yuk! But soooo glad to hear you're home and feeling better and resting up for that fab trip.
1Candle - I think we all change and have certain revelations following a cancer diagnosis. I know I am working big-time on my bucket list, cherish a lot of things I once took for granted, and refuse to spend time with people who bring me down.
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1candleburningbright,
WOW. I am so glad you are living for yourself..I must say bc does make you rethink your life. I often wonder about not finishing chemo but honestly, I think Im just talking sh t....LOL
You sound awesome
. I'm so glad for you!!!!I WOW.... happy about your scan......I must say, I told my hubby if chemo didn't fix this the first time, I don't really think It will fix the second.. that's my thoughts . I dont think, I would do again either, ??????.....I was so against chemo, but I did.it.... 4 to go....Love your new Jayuar (what color) , I mentioned a new car to my husband he looked at me like I was crazy, i think i am crazy now ...lol .....I just feel like I need change.. I guess ,I want to be in control...LOL
happy for you and your new love...you go girl...
have an awesome night.........
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tifJ.
I went to New York the week after ,I was diagnosed with bc..I had a trip planned with the girls...It was awesome. We were so busy, I never had time to think.Some trips are better without the husbands....like NEW YORK...
Have a super time. Watch out for the martini's on the roof top in the rain they get very expensive...LOL
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1candle: You ROCK girl! Go for it!
Suze..have fun in Florida..I know you will! I think this is what you need.
And wishing everyone a good week...even though I have BC I still hate Mondays..lol
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Susan,
I'm so sorry you went through all that last week. I am very glad to hear the words stable and regression! The tumor markers decrease is great, too! Glad you are feeling better and I hope you have a great time on your cruise and have fantastic weather.
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Luah: I totally agree with you about ditching the people that bring you down. What's "UP" with that anyway?!?! I'm so glad I moved away from the State I was living in. That in and of itself was a HUGE part of my problem and I didn't do myself or my Health any favors by staying there. Problem resolved.....moved away.....NEXT!!!! As for the "Bucket List", I wish I were smart enough to come to that conclusion long before my Cancer diagnosis came along. But again, just happy that my feet hit the floor this morning and I'm still able to do something about it.
Mtnbiker: As for the Jaguar, it is a "used" one, but mine nonetheless, and it's White with Tan interior. I bought it one month before I left Rhode Island to ensure a comfortable ride with my Dog down to Florida. You couldn't wipe the smile off of my face with a shovel if you had to. Can you say "Happy"?!
And "thank you" for the well wishes with my new beau. I've received more compliments, the most awesome birthday a few weeks back, doors being opened for me, rides to Doctor appointments, etc., from a Man I've only known a few months. I left behind a Man I was with for 14 longggg years who barely knew I existed and once I said the words, "I have Breast Cancer" in 2008, he advised me that I was a "burden" to him and his lifestyle. The relationship went from "bad" to worse".....but I've got the BEST of all World's now. I told my new beau about my Breast Cancer as soon as he made it known that he was interested in me. I thought, he's NEVER going to call me back. Well, he did, and we've been together ever since. No alterior motives.....he's a hard worker.....always looking out for me.....doesn't want me to go without. I have to pinch myself sometimes because I can't believe how lucky I am that he has come into my life. The best part is that I wasn't even looking!
Titan: Thank you for your well wishes also. LIFE IS GOOD! The best to all of you lovely ladies.
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Susan-glad to hear that treatment is working for you! Sorry to hear that you were in the hospital again, glad you were tested for c-diff. They originally thought I had norro virus before I was tested for c-diff and I tested positive. I know what you mean about being on all the antibiotics! I am on 2 right now, one for the infection and one to prevent the c-diff from coming back! I just want off of them! Have a wonderful vacation!!
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Hello Suze35,
I was so sorry to read that you have been having such an awful time in hospital, but glad to know that you are a bit better now. I had no idea that these hospital bugs were a problem in the US. They are an absolute plague here in the UK. We have MRSA, C-difficle, Norovirus (called the vomiting bug) and who knows what else! We have bugs that are becoming resisitant to treatment.
I do hope you will have a great time with your family in Florida.
You are such a strong woman.
Best wishes
Sylvia
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Sylvia - thank you so much for your thoughts and wonderfully kind words. I haven't been keeping up with your thread as much as I'd like too, it is a struggle sometimes to even come here...
Those diseases are starting to hit us hard here in the states also! Bak struggled with both Staph and C-Diff, and I was "lucky" just to have the Norwalk virus. It is scary how these bugs are becoming drug-resistant!
I never really see myself as strong, just doing what I need to do so my kids have as many memories as I can give them. That is my ultimate goal, so I put all of my energy there. I hope it pays off!
Best to you Sylvia. I'll try and pop over to the UK thread and update on my trip as well :-).
And thank you to everyone here for the well wishes! You guys are just awesome!
Susan0 -
Hello Susan,
Thank you for taking the time to reply. With all that is going on in your life I really appreciated it.
I do hope that you will have a wonderful time with your husband and children and I know that you will all treasure every moment of it. You will be in my thoughts. I look forward to hearing about your adventures.
Take great care of yourself,
Warm wishes to you and to all the great people on this thread.
Sylvia.
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Hi Everyone. Sorry I have not been here for a while.... last week I went into surgery again to revove 3 lumps from my breast muscle. The doctor had been monitoring for about 6 months and finally decided to take it out . Well, it turns out that 2 of the lumps were actually 2 small clamps forgotten inside me from my Open Heart Surgery. And the other lump .. I just got the news it was benign.... I cannot express in words how relieved i am feeling right now... I was panicking because I am approaching the so dreaded 2 year mark next month! Just felt i needed to share the good news before i go to work! Have a great day ladies.... XOXO Monika
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Monika- that's great news!!
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Monika - that is fantastic news! Celebrate in a special way tonight.
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Monica - Whoa! clamps left inside of you? I thought that was only in the movies! So glad you have all of the foreign stuff out :-) What a relief for you.0
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Susan:
Can't say much more any better than all of the others already have. But know that you always remain in my thoughts and prayers, and am so hoping you are amassing massive amounts of strength to enjoy this Disney trip. It will be so wondrous for you and the kids. Enjoy, enjoy, enjoy. Never forget how loved you are on this forum, and all the arms encircling you.
Love,
Linda
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Monika:
OMG, poor baby - how unbelievable that must have been to find out - two clamps - geez, thank goodness he decided to go in now and not later! Hope recovery is totally uneventful for you, and quick!
Hugs,
Linda
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Monika,,
WOOHOO for you!!!!
1candleburningbright,
Again you sound Awesome! Sounds to me that it is a pay it forward for you!
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Monika..hurray for forgotten clamps and benign things..Yay!
We get excited about that kinda stuff here..can you tell?
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Monika, Good to hear from you, and sorry to hear you had to go through some more surgery. Glad everything looks good now. How strange about the clamps.
Susan, I am glad you received some good news ie your scans and markers, and good to hear your energy levels are better. Have a great trip!
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Good evening beautiful ladies.
1candle- loved reading you post. How inspiring. You have to close 1 door before a new one can open you've done that in so many ways. Love it and so happy for you.
Suze- I can't put in to words how happy that the Halavan has you stable. That is fabulous news.do you get the neuprogen shots after the 2nd week? What cycle are you on. I started it again about 2 weeks ago and it has shrunk my tumors so fast even my skin mets. I hope so much it continues. Id be so happy if i could even stabalize for a bit. Im in the hospital now , have been for a few days. I had a slight fever and killer sore throat so my son took me to the hospital and they shipped me up here to Indy after talking to my onc she wanted me up here. Im feeling a lot better today the past few days it hurt everything just to move. As you are so familiar with they are pumping me full of antibiotics through my port. Hoping my counts continue to go up yesterday they went up to 100 finally and 200 today once they get to 500 im out of the scary zone. I'm hoping you have a fabulous
time on your trip. You've had your fill of scary times, Suze. Hope you can relax and feel good.
Monika- - what a freaky time you've gone through. Sounds like a scary movie. So glad everything is going to be ok.
I meant to write more. I'll try and touch base again tomoorrwb.0 -
Monika,
I'm so glad you had good news - we definitely celebrate every kind of benign result around here from arthritis to a new category - forgotten clamps!! You must feel so relieved. I hate waiting for any kind of scan or "watching" something now.
Laurajane, I'm sorry to hear you are in the hospital.Your son sounds so wonderful and seems like he is watching out for you- good that you got in to the hospital and got antibiotics before your fever got higher. Sending you my best for a quick rebound and fast trip back home!
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Laurajane, I am so sorry that you are in the hospital. We are all praying and hoping that you are out of the scary zone by now. Our bodies are very resilient and you are such a young woman, you can fight this crap. We stand by you so proud of you, as you fight this monster. So glad to hear that halavan has shrunk your tumors and the skin mets. Thanks for writing to us even in the midst of all that you are going through.
Suze - It is always a pleasure to hear from you, we have a lot to learn from you. So glad to hear that Halavan has made things stable for you.
Monika - Wow, what? Clamps? Glad it was benign. Celebrate.
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LauraJane and Suze, I hope everyone around you is kind and loving and sweet and very competent. You deserve the best!
Monika, so scary for you, and I know you are relieved.
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LJ - thinking of you today and hoping the halavan keeps working and you can enjoy some well-deserved stability and further regression. Sorry to hear about your hospitalization - hopefully those antibiotics are doing their job and your counts are back up very soon.
Suze - can't remember the exact dates of your trip...but wishing you loads of fun and happy memories with your family. My husband calls them "imprint" days, when moments are so special they leave an imprint in your heart and mind forever.
Monika: So happy for you - that must have been frightening!
Have a nice day, everyone.
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LJ - I am sorry you are in the hospital, I know how much that sucks. The longer you stay, the more you worry you won't ever get out
. But better safe than sorry, and they can help you fast if need be. My doctor finally got fed up with all the antibiotics and put an end to them. Have you seen an infection specialist? They finally brought one in for me, and he helped. I hope the Halaven continues its magic on you!Monika - scary, but so glad it is nothing!!!
We are leaving this evening for Florida, it will be a 2.5 day drive, and I want to get started! We will do Legoland either Friday or Saturday, then cruise Sun-Thurs. Yay!
I'm a bit concerned about when we return, as I will be getting a brain MRI when I get back. I am having some issues, particularly typing, with right hand. Some weakness, a litte loss of control. I think I'm on the right key, but no. I wont be surprised to find something in the brain, I just don't want to ruin my vacation, so I don't plan on finding out until after. Fingers crossed it is nothing, but I'm prepared, and have a general idea as to what I would do depending on the cirucumstances.
Have a great two weeks everyone - I plan to - regardless!!
Best,
Susan
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KHS-this is an answer to your post last week. I am from Buffalo and was treated at Roswell Park where the vaccine is starting Phase I trials. I guess they are starting with 20 brave patients to test for safety, then who knows? If it works, it could be the answer! For those of you who haven't read yet, they have a cancer vaccine in the works at Roswell Park Cancer Institute that quite ingeniously manages to boost a patient's immune response to cancer cells and at the same time shuts off this response in order to target those specific cells. I guess one Stage IV ovarian cancer patient has been put in remission by the drug.
Needless to say, we here in Buffalo are soo excited and hopeful! This could be the breakthrough that is needed...
Hope everyone is well. Haven't posted here in forever. Been concentrating on diet and exercise threads for obvious reasons
Just celebrated my one year cancerversary and am 8 months post-rads (finally healed from my breast lymphadema and working out like a storm trying to lose those last pounds) Susan
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Suze35 - Have an incredible vacation in Florida and on the cruise.I admire your strength in trying not to think about tests that await when you get back. It's the right attitude to have, but very difficult. I've followed you on this string because our original dx are so similar. You just have the time of your life with your family and live in the moment. I hope the weather is great and you feel well throughout your vacation and that your tests show good news when you return. Take lots of pictures! Tell Mickey hi!
Kathy
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Hi Monika---Glad you had a good outcome. My friend in risk management at a hospital here said at the very least your surgery to remove the clamps should be on the house and maybe even your hospital stay.
SusanHG---Good hearing from someone in Buffalo about the vaccine. I was surprised that the national news people did not grab onto that info. Sounds very hopeful.
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