Calling all TNs
Comments
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Im home. Yeah! It feels so nice. I slept 11 hours straight last night. Woke up in pain. Its kind of nice having the nurses wake you up to take the pain pills. I even had set my alarm but slept right through it. Im going to walk out in my gardens today and refill my birdfeeders. That is my goal anyway. They sent me home with bookoo antibiotics so i should be fine. I get rescanned on monday and hoping the bc hasnt traveled anywhere else. Ill get the results on tuesday. I heard from MBJ and she has been in the hospital she had high temps from the flu but also scans showed lesions on her shoulder and possibly her liver. She is in incredible pain. She doesnt have her laptop anymore and i asked if she wanted me to let all of you know and she said yes. Lets all send her healing vibes. She has been such a positive inspiration to so many of us on this thread.
OBXK- sounds like you had a wonderful day sitting at an outdoor cafe. The weather here is beautiful
too. Almost 60 degrees. I love it.
Eva57- I hope chemo number 2 goes smoothly for you. Look forward to your good days. I always tell myself that with every chemo I've done there are always a few maybe just one good day before the next one. I had pain when I first start loosing my hair too. Having it shaved really helped the pain go away. I hope it helps you too.
Tis thyme- wonderful news. Thanks for sharing. My philosophy has been to go after the BC with all the guns we have but cat whisperer has a valid point.
I hope you all can do something for yourselves that will put a smile on your face today. I am going to go out and have dinner with friends and listen to some nice jazz. It always makes me feel better to fix myself up and get out of the house for a bit. Sometimes it seems like to much energy but it's always worth it. I think I'll even paint my nails. I still have them which is nice.0 -
tisthytime go go for it!!! I had the same response after my chemo and surgery , but just in case there is one little cancer cell floating it will get it. Dont take chances. Radiation was not bad at all, t he drive to and there was the worst part.
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LJ: sending lots of healing love and thoughts to you and am so happy to hear that you are home. I am wishing you nothing but the best. Sure wish I lived a lot closer to you, I'd be filling those bird feeders with you!
Also, thanks so much for filling us in on MBJ. I am not happy hearing this, as I had my own scares just recently (all is well, thank God, at least for now!) so I can well imagine the fear she is experiencing. I pray that it is nothing cancer related. She's had that damned frozen shoulder for so long and it's given her so many problems, I am sure hoping that is all it is. Should you talk with her again, send her my love and tell her we are all here for her and wishing her well.
Hugs,
Linda
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lovelyface; thinking good thoughts:)
Eve57 just think about shaving your head maybe to a 3.... then you will do it soon..i felt that after I did it, I could move on ..bc makes your plate seem huge.. which it is..so one step at a time..I agree with a cap if needed...my chemo is once a week X12 wks Taxel,Carbo X12 wks and Avastin X5 I am in a study ..
tisthyme, AWESOME NEWS !!!! I hope, I can look over that moon with ya soon...thanks for the info. as far radiation..I tried to talk my Ono out of it if all margins and nodes were clear..she said we need to hit this will the big guns now!!! cause if it comes back well we all know that answer..just sharing..again it is your choice....doesn't much seem like a choice does it lol.......sorry got crazy for a moment..lol
catwhispurr; questions questions question, seems like that's all we do for 1yr during BC.:(
LauraJane,
glad your home...do the birds look and sound lovely:)
have a wonderful day Ladies,
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Hi Laurajane-So glad you are back home. Nothing better then your own bed to have a goood rest!
Thanks for the update on MBJ. I miss her here. Please give her our best wishes and that we are all thinking of her. Hugs.
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Laurajane, If you talk with MBJ, please tell her we are sending her best wishes and hoping further investigation will show benign findings. I've missed her posts but knew she had recently moved so I thought she was busy from moving.
Tisthyme, this is such a personal decision regarding rads when it isn't a decision already made for us but I can only say I'm glad I had radiation even though it has possibly limited my reconstruction choices. I fell into the gray category - 2+ nodes and 2 cm tumor after unilateral MX. My breast surgeon didn't push for it, & even the RO said an argument could be made either way for it in my case. I had left sided breast cancer, too, and adriamycin, but it is my understanding that with the CT modeling they do prior to the treatment, the potential damage to the heart is much reduced over the way they used to do it.
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LJ - so glad you are going out with friends. Sounds like a wonderful evening, sending you all my spare energy
Thanks for the MBJ update.
I'm making chicken and dumplings for dinner. It's not on my diet - but I need the comfort food.
Wishing you all a bit of comfort today.0 -
I must have missed a prior post or something, as this is the first time I am hearing about MBJ's recurrence (?). I also thought that she was busy due to her move. I am so so very sorry to hear this, as she I think was almost past two years and doing well except for that frozen shoulder. What kind of a monstor of a disease is this? I am sending love and lots of good thoughts and prayers towards MBJ.
LJ - So good to hear that you are back home and will be going out to enjoy with your friends.
Mtnbiker - Great news regarding the shrinkage. None of us ever want to do this bullshit ever again in our lives.
Ladies, regarding myself, I am not sure how I am spending my day at work today. I am shivering all day long, so scared. My daughter in law went to the temple to pray. We are all sitting on pins and needles, as tomorrow morning I face the Rad who told me he is watching me like a hawk. He will do mammo magnifications and see what this enhancement is. The one thing which is freaking me out is the Birads4 on the MRI. I have a CD of my MRI, my goodness, they take a lot of slides, lots and lots. They know what they are reporting, it is amost true what they say. I am so scared, I have had feelings like this before, but maybe not as bad. If they can't find any calcifications through the mammo, then they will send me for a biopsy. I will then see my Surgeon next Tues and ask her if she can do a surgery very soon to take these two areas out, and of course at that point, the pathology will tell me everything. I am just afraid she will not give me a soon enough date, in which case, I will have to opt for the biopsy, which is not the route I want to take. I just dont know how to control myself, control my shivering, as I have never felt this kind of fear in my life before.
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Oh lovelyface,
I am sending as much calming positive energy I can muster your way. Do you have Xanax . It will help a little. I wish I had a magic eraser to take this all away. I know it sounds silly but deep breathing not so deep and fast you pass out, just deep, 1234 in then 1234 out slow and easy, and when your mind starts to drift that's ok, just go back to concentrating on your breathing, feel your lungs expand and then as you exhale, concentrate on any negative thoughts being expelled, with each breath in think calm positive thoughts. This helps me and I hope it helps you.
I'm text forwarding all messages to MBJ that each of you post. She is still in the hospital and will be ding chemo and rads. I'll keep you all posted too.0 -
LJ - please send my heartfelt best wishes to MBJ and let her know I have her in my thoughts. I know what a scary time this is for her, hugs to her. If there are any words of comfort or advice I can offer her, please let me know. I am in utter dismay that she is facing this recurrence.
Lovelyface - hold yourself gently, breathe deeply, and treat yourself well. You are going to be okay, I really believe that.
Best,
Susan0 -
Laurajane- please send my prayers and good vibes to MBJ. I am truly sorry she is having to deal with the beast again. We miss you MBJ!!
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Well crap. This news just s*cks. Please tell MBJ she is in my thoughts.
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I agree with you Heidi, this news sucks.
MBJ, thinking of you and hoping for the best for you.
LJ, glad you are home.0 -
Lovelyface - sending calming vibes your way. I'm so sorry you are facing this.
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MBJ - you are in my thoughts. I really don't know what to say except I'm so very sorry you are dealing with this.
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,Lovelyface, i do believe in what Laurajane said , breathe slowly and if you can get out of work...you cannot function....I know I tryied....call your doc and ask for xanax something ....My heart feels for you ! I wish I could give you hugs and you could let it out!!!!! i will ck back often in cause you need to chat.......
I really wish I could say what I really feel about BC, we probably all do......
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Please let MBJ know that she's in my thoughts.
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Well dang..MBJ...thinking of you...dang...I hate cancer
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Mtnbiker..feel free to say what you want...Heidi swears all the time..it's ok to swear as long as you don't swear at anyone...saying FUCK YOU to cancer (there I said it)..is certainly allowed.
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Lovelyface. Please try to relax, I know it's nearly impossible now but the added stress is not helping you. Please just breathe in and out slowly. You can do this.
I hope I don't sound too weird but I really wish we could all just get together for one really big group hug right about now. I think we could all use it.
Thinking of us all ((((TNS))))
FUCK YOU CANCER!!!!!!!!!
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Messages forwarded to MBJ. I was wondering if anyone else would consider pitching in on a laptop for MBJ. I would be willing to throw in a buck ($100) anyone else. A PC couldn't cost much. I could find a ride and take it down to Kentucky for her. I just think it would be nice if she had a way to connect with all of us other than me just forwarding the text messages to her while she is going through all of this. I hope that no one is offended by this. I thought I'd just throw it out there. I don't really have the finances to just run out and buy one. But, please know that I don't mind forwarding the messages either. Hope you all have had a great night.
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LJ...I could meet you in Cincy
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LJ - count me in. I heard of something called a Kindle Fire. It's not available in Canada but it sounded like a tablet of some sort. Maybe that could be an idea as these are very portable. I have no clue what a laptop or one of these tablet thingys cost.
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I could send a little something
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I just got a kindle fire. It's great for reading posts on this site, but I don't think you can type in a reply. It's mainly a reading and media consumption device. iPad would be ideal, but much more expensive. Maybe an old, refurbished one? Also, pc based net books are cheap.
Annie0 -
Hello All, Thanks so much for this TNS posting. I am unsure of what my next step is and so will approach my MO and ask. I am one of the unusual ones, in that I am 72. WAs diagnosed with DCIS and am Grade 3 high nuclear with 4.9CM. Lumpectomy and nodes (surgery performed 11/28/11) came back all clear - thanks be to God. Am in the end of 16 days of Rad Th with one treatment left but we are having a blizzard here in Colorado so will have to postpone the last one. This is a great way to do RT as the 16 days (chose not to have the boost as I have other diseases which will be hindered by the boost concentration) is clearly much better than 6 to 7 weeks. My question is this: Neither my BS nor my RAd Onc nor the Med Onc said anything about future treatment for Triple Negative. I live near Denver and have very good access of great doctors. Am I missing something? Are they failing to offer treatment? I am not worried, but want to make certain that I am doing all that I can to manage this disease. YOu all are TERRIFIC support gals and I am really amazed by all the knowledge and information that is shared on this web site. Thanks again to each and every one of you for baring your souls so that those of us who need input, will get it.
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I could send a little something, too - notebooks aren't too much anymore. Do you have paypal account, LJ?
Hello, pcollins! I'm sorry you have to join us here, but it sounds like this was discovered early in the DCIS stage before it had become invasive? I don't know much about DCIS -although my IDC was mixed in with DCIS - you may find something on the DCIS threads on here, too.
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McCrimmon, a virtual big group hug sounds great! I'm so weary of the fear this stuff brings.
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Laurajane, I would like to help with a laptop for MBJ. The Kindle Fires are nice and so are the little netbooks. Great idea.
Yes, a big group hug would be nice right now.0 -
Laurajane, Suze and each and everyone of you - thanks so much for giving me your loving and positive thoughts, I am doing the breathing exercise right now and yes, it is helping. I have taken a lorazapam tonight, need it really badly. Tomorrow is a really big day.
Laurajane - please count me in, I can add at least $40 towards a laptop for MBJ, just let me know the paypal account or where to send maybe a money order. She needs to be connected with us, as this is the time she needs the most help.
pcollins - we Triple Negatives don't really have any other treatment after chemo and rads is finished. They have anti-hormone therapies for hormone positive patients, but nothing for Triple Negatives. Chemo is the best thing for us as it is systematic therapy, since our cancer is supposedly not triggered by hormones - I hope I said this correctly.
Christina - my IDC was also mixed in with DCIS.
Two beautiful poems written by my daughter in law when I first had the diagnosis in 2010.
The Six Letter Word
Could you stop visiting because here you are not welcome?
And please shut the door on your way out.
Never think twice of coming back again to invade my kingdom.
Considering I have pushed you out of my life for good, you cannot ever be let in.
Every time I think of you, I will laugh at your weakness.
Remember, I own my body and you were just an uninvited guest.
A Plan to Win
You are nothing but a sneaky little cell.
In less than four months, time will tell.
I will Not let you conquer.
I will Not let you strive.
I will Not let you multiply.
I certainly will Not let you divide.
I fight to preserve my joy, and I fight to keep my pride.
Oh, you sneaky cell, my prerogative is to fight the hardest fight.
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