Calling all TNs
Comments
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Inmate, Glad to see your post and know your gonna kick cancer's ass! Can you take metformin while going thru treatment?
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Love your attitude, Inmate! Kick cancers ass!
Kitty, where the heck you been??? Glad to hear from you.
Best thing for today: Drove my Mom 3 hrs round trip to see her friend in a nursing home. Made everybody happy.
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Congrat to finishing chemo,PHGraham. Doing the happy dance for you. And good for you Cocker sp. for carrying on. hang in there.
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Inmate- f*ck the big shoes... let me know when you want me to send you my *boots*!
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I took metformin during my chemo, also had intermammary node involvement and was NED after chemo. Good luck, Inmate!!!
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Wishing you the best inmate on this new chemo! Kick it to the curb!
Maggie
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Inmate - Babyheart (sorry, I say this to all I love so dearly), I love your attitude but I know it is difficult. I hope you know we are all with you in spirit all the time and understand what you are going through. I am not sure about myself, how I will manage any type of news, last time I shrieked loudly on the phone while the doctor was trying to give me my petscan results. Since then he calls me a highly anxious woman. It seems like you are another of our "very strong" women on this board. My hats off to you for being so strong and again, babyheart, we all are standing right behind you as you go through another chemo. Are you trying metformin also? If not, why not? I want to ask my Onc. next time I visit him next week. I just want something to protect me.
Did I ever mention that about 6 months prior to my diagnosis, as I was preparing for bed, I had a really really really bad sensation, something which I can't describe. It just felt really bad in my body, brain, something. And then 6 mos. later, I got the diagnosis. You know last night I had that same sensation, which woke me up at 2:30 a.m. When I woke up, I realized that I had had that same sensation, that ugly ugly feeling, a collapse of my brain or something, honestly I can't describe it. I can never forget that feeling, it is out of this world. Now I am freaking out. I wrote down in my journal that if I get a recurrence in the future, I will know what date exactly the cell multiplied or recurred ...... April 18. Sorry to put this ugly thing here, but I just wanted to share this special note. I hope it is just low hormones or something. This has truly scared the hell out of me. Could it just be an overload of a certain hormone and unrelated to cancer? I don't know.
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lovelyface, that has to be scary!
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SEnding my size 12 shit kickers your way Inmate..
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Inmate,
Sending love, and buckets of wishes that this crap you have to go through kicks it to the curb once and for all.
Linda
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Annie, I'm so glad you finished your AC! I know, having struggled with some of the same fears, how hard that must have been for you and I'm so glad you have it behind you. I had all my chemo together but from what I've heard, the taxane drugs don't cause nausea, so you should be much better. I got a tiny bit of neuropathy in my left hand that I attribute from the taxotere, but it seems to be a little better and I can still button shirts, type fast, and put earrings in, so it isn't very bad.
Inmate, please don't fear eribulin - that what I had for 12 doses (6 cycles) right after I finished rads. It wasn't bad at all. My counts dipped down the second week but were always back up after the week off. I never had neulasta or neupogen during it. I worked throughout, usually taking just a couple days off after each infusion. It was NOTHING compared to the primary chemo. I was slightly anemic and tired - and got pale but I also kept my head hair (but my eyebrows are just now looking somewhat normal.) I did have bone and muscle aches and depended on painkillers some for that, mainly because I had to work long hours. Not everyone gets the muscle aches. They gave me anti nausea stuff, but I toyed with the idea of avoiding it because I really don't think I needed it. I also cut the steroids down to about half the dose they gave me initially because I get wired from prednisone.
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Hi Hope - I'm not sure what your previous chemo treatments have been, but I just wanted to share with you some of the success that I have had as it may be of some benefit for you. I was diagnosed Nov '11 with tripl neg mets to lungs, liver, sternum, internal nodes and soft tissue -not even 1 year after my initial DBMX and chemo / rads treatment. My onc wanted to do Xeloda and gave me only months, but after researching this site, and other sites such as the triple negative BC foundation, and the no surrender site, I found great advice and direction and I challenged my ONC's opinion for Xeloda - we ended up going on Cisplatin, Gemcetabine, Avastin combination every 3 weeks. So far many tumours have disappeared, I no longer cough blood, my bloods read normal, and the small tumors that are left continue to decrease at +50%. Continued prayer and a few more rounds of this might even get me to NED. Perhaps this could be something you could talk to your ONC about as it may be suitable for you???? Worth a discussion maybe. Wishing you all the best. xxoo
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inmate I love your personality and you will kick cancer's ass!
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Inmate - This sucks. But I think you're a very strong person, and I know you'll find your "big shoes." Yup, I think cancer's about to have its ass kicked.
Lovelyface - I'm sorry you're feeling scared right now. I dunno.....I've had some very strong "intuitions" about things that never came to pass....hopefully that's what's going on for you.
Hugs to all.
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Inmate...this has to be tough but you are amazing and sound like you are ready to go. Kudos to you. Kick this thing as hard as you can.
PHgraham...congrats on finishing...Yea!!!
Lovelyface...so sorry that you woke with that scary yucky feeling. Let's truly hope it was jsuta blip but I know it can put one off for weeks.
I had my oncologist visit today, just about a month short of diagnosis. Said all looks OK. Will wait to see labs. Said my immune system is low...low GLOB on last test but that could jsut be the chemo. Have had daily headaches so will try some funny suggesstions...add plants to my room, use blinds and try this for a week, if headaches decrease, no worries, if not, she still is not worried but will do a CAT scan. She suggested an annual MRI. So SO SOO glad I am at Mass General and not Mt. Auburn anymore.
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Inmate, how about some steel toed boots to kick ass with? Some pointy toed, steel tip boots.
I'm on your team!
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Hey everyone..Im getting used to a new laptop...and well I'm stupid sometimes.
Inmate crap...but hope this chemo works for you...gah...it has too...
Hey Kitty..missed you gut glad you are back to talk...!
cocker..knew you could do it..it so hard but you will be glad you finished..we tn's just have to take all the treatment we can get..we just have too
Lovelyface..I hear you, I hear you...i am 3 years out now but no way do I feel that this is over..I know too much..if you know what I mean.
I dunno...I'm hoping this apathy I'm feeling right now is just mental ..not physical...I'm just pissed off about everything...not sure why...can't seem to find any joy in anything right now...physically I feel good...mentally...I'm just out there some where
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Hello ladies!!! Haven't posted in a while. I am a creeper though haha! I check in an read the posts here ofter. Titan you have stayed so faithful to this thread and I think that is wonderful. I can always come here when I need to feel like I'm not alone in this. Hiedi I swear you crack me up!!!! As far as the beast goes.....well I am still NED and hoping to stay that way. I sometimes feel overwhelmed by the effects of the chemo and radiation and all that it has done to my body. However, I am so thankful it killed the beast. I understand how you feel Titan I feel like I'm just somewhere out there and not real sure what to do about it.
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Titan, yes thanks for being so faithful to this blog.
HAs anyone had low GLOB on your blood work?
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Do you mean hemoglobin? During or after treatment?
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Riley..I think it is this: "Globulin- Globulins are proteins that can be measured in blood serum. High levels may indicate liver disease, chronic inflammation, and autoimmune diseases. Low levels may be related to immune deficiency kidney problems or bowel related disease."
The oncologist said it indicated my immune system was not functioning well and I am susceptible to pneumonias and other bacterial infections. This was done in October about a month after I finished chemo. She said if it comes back low they will do an "assay panel" to evaluate.
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Everyone, thanks for your well wishes on my dilemma. I just want to remind everyone that most of us are not only going through the after effects of the treatments we have each had, but a lot of us are also going through menopause, premenopause and medication induced menopause in our late 40's or 50's and even 60's. Please remember this. I did read somewhere that doctors truly believe breast cancers are caused by or related to hormones, they just don't know exactly how it plays the role in forming tumors. These days I don't jump to the cancer conclusion right away, actually, I think I am running away from it and that too is not okay. Lately, I have been feeling extremely lethargic, but not once have I allowed my mind to think that it could be that. Instead I think that my hormones are low again or something to that effect.
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Hi All
I have no doubt that Inmate will kick the arse of this cancer. With a few blasphemes in there (well quite a few!!) she will show this cancer she is made of sterner stuff than that is. So you go Girl and do some swearing and kicking and show it who's boss.
Thank you all for your kind words after I found the courage yesterday to go through with the last one but the thanks is all yours. You helped me through and for that I am forever grateful. I will carry on with treatment because like all of you we have to throw everything at this cancer, its all we have got and I don't want to go anywhere else just yet awhile.
Lovelyface maybe you had been thinking a lot about cancer or had some stress in your life at that particular time. Lets hope so. Pretty darn scary for you. You will come throught this.
Thinking of you all and sending lots of luv and hugs. Annie
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I'm from Nebraska too! (hence my screen name-lol) My mother is from North Platte and my daughter just moved from there yesterday, literally. She is a law clerk for a court of appeals judge there but will now be working in Lincoln.
I'm in Central City, just a few hours down Hwy 30. Did my chemo in Grand Island and my rads in Lincoln and had my surgery in Omaha. Long story...
Kristy
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Had Taxol 8/12, can't believe I only have 4 left, then on to surgery 5/25, then radiation
Welcome to the new folks, congrats to those who r done
Cocker, if u made it through AC, u can make it through Taxol, so much easier for me since I had no nausea0 -
Morning Ladies,
Well today could be my more accurate one year cancerversary, one year ago today I had my surgery. I remember being absolutely fine until we pulled up then I went into complete panic mode and cried until they knocked me out in the waiting room. LOL, had to edit , I meant operating room, I'm sure with all the crying they wanted to knock me out in the waiting room.
On another note. My hubby is making me CRAZY, well he's crazy. We decided long before my diagnosis that WE wanted to move back home. He was pushing and pushing for us to get the ball rolling right after vacation so that's what I did. We got the apt, I did all the paperwork, contacting people, set up apts for cable.... Gave notice at work.... I'm ready to go. NOW he says to me "I"m having a freak out moment and remembering why I wanted to move in the first place" "maybe this isn't such a good idea" " I know it would make you happy so that's why I wanted to move" OMG!!! Let me just say I've got several choice words going thru my head. Please please please tell me this is just a momentary freak out and he'll be fine!!! How can I be compassionate while telling him tuff sh*t - Cause I'm going!
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Well, I got some somewhat good news. Just heard back from my onc. He does think the MUC1 vaccine trial would be good for me. Unfortunately the email was rather vague and I don't know if he plans on looking for me some more??? I guess I'll just make myself sound stupid and email him again asking for more details.
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Hi all I don't post often either. I just read the posts:).
Navy mom. How is the new meds going???
Have a great day everyone!0 -
Heather - great news on the MUC1 Vaccine trial! I need to talk to my MO to see what my options are after I finish treatment.
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Heather - great news on the MUC1 Vaccine trial! I need to talk to my MO to see what my options are after I finish treatment.
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