Calling all TNs
Comments
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Great photo, Heidi. Have a great trip, BTS.
Got my Metformin in the mail today. I cut an 850mg tablet in half and will take my first one tonight. I usually have a cast iron stomach, so fingers crossed that any SE's will be minimal.
Hoping all are safe during this crazy weather.
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Heidi - you are one heck of a beautiful woman, yes you look very healthy and happy and gorgeous! And red looks very good on you.
Christina - I hope you are doing okay, you are in my thoughts. Hope you are getting used to the new reality that your MIL is now in heaven! I am so sorry for yours and your daughter's loss.
TifJ - Hello there! Nice to hear from you.
Kathyrnn - So sorry to hear of your back pain, I know what its like. What are you taking for the pain?
Annie - thanks for all the love.
Becky (Hugs!!!!)
mccrimmon - I don't think we will ever be like we were b4-bc. I don't think this will ever go away.
Bak - I honestly wish I could share your pain with you this week while you have the drains. We are all here, just tell us everything to get it off your chest. You are handling a whole lot, my friend. It is not fair. And please don't be so hard on yourself, you are beautiful no matter what. Why or how could God make anything that is not beautiful. You are a human being, and that is the greatest gift of all, out of all the creatures, you were created the best, endowed with a mind. I am certain everyone in this world has something which is very beautiful about them. It is normal for you to feel all these feelings as you are trying to get used to a slightly different body. You are stronger than I am, let me tell you that, so my hats off to you.
Everyone else - Hope you all have a wonderful Sunday! I hope it doesn't rain, I want to soak in the sun, get some Vitamin D.
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Good morning ladies! i guess when you go to bed at 9pm getting up at 4.30 is normal? UGH! Oh well I see several naps in my future today. Today is day 4 after treatment #2 and last time it was my crash day, so expecting the same things.
Hoping to get some vit D in today and maybe a little zumba to get that blood flowing!
Have a great day!
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Hi guys; thanks for the compliments on the photo. I typically take *awful* pics, so it's nice to get a decent one every 50 years or so....
I'm coughing like crazy (probably my first experience with allegies) and it makes my neck and head *ache*. I'm biting the bullet and having the more tricky C1 spinal injection on Thursday. Then it's off to Northern CA for a solo visit with a friend.
I'm hoping the coughing will be gone by then, so I don't appear to be Typhoid Mary. If the injection does not give me relief I will be looking into fusing the joints, as the chronic ache and resulting headache are a real impediment to my typically active hobbies. Going carriage driving tomorrow and sailing season is just around the corner.
Oh yeah... f*ck cancer...
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Wishing you all the best, Heidi, with the shot. I hope it's the magic bullet for you.
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Hi, ladies!
I hope this finds you all doing well. I have a question and I thought I'd post it here since I've seen chemopause questions here before. If there's a better place for it, please feel free to direct me.
I started chemo on June 23, 2011 at age 34 and did 4 rounds of Taxotere and Cytoxan. After some heavy hemorrhaging akin to post-partum, I finally went into chemopause before the third round. I finished chemo on August 25th and my periods did not return until close to Christmas and only remained monthly until February. Now, I'm back without a period again. Has anyone heard of someone coming out of chemopause for a couple of months and then going back into a menopausal-like situation?
Thank you for any help or insight.
Betty
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Lint- yes my cycle plays peek-a-boo with me as well. You are not alone.
HeidI-You are BEAUTIFUL!!!
Lovelyface-sometime people don't know what to say. So they avoid the situation. As time goes on people will come around and things will go back to normal. ((Hugs))) Just start living again and embracing life and watch what happens. Do you have a hobby?
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Heidi, You look fantastic and I love the family picture
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mccrimmon324 - is that a new avatar picture? Look at all your hair! It looks great!
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Thanks Char - I took this the other day at work. I swear I never thought I'd have this much hair again. It's no where near as long as I have always worn it but I sort of like it like this and will enjoy growing it out.
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mccrimmon - your hair looks great. I always had long hair before chemo but am enjoying it short and plan to keep it this way.
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I like your avatar Sugar, I think I'd be happy with the length of your hair. Have to admit, its alot quicker in the mornings.
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I get it cut every six weeks (I go this Thursday) and have had it this length for the past year and a half. The only downfall is it's more expensive because I'm getting it cut so often. When it was long, I could go every three months or so for a trim because I didn't have bangs. Now I often need a bang trim at three weeks in between cuts but my stylists does that for free, thank goodness!
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I am 38, just diagnosised with TN. I haven't begun treatment, I am in the testing stage. I have completed the echo, the genetic marker testing, and I have a MRI and PET scan on Wednesday. Tenative plans are to do Ariomycin(sp) and Cytoxin every other week for eight weeks total of 4 treatments followed by 12 weeks of Toxol weekly. My oncologist feels a masectomy will be my best option possibly dual due to my use of immune suppressors to control my Lupus and RA (those drugs increase my risk for lymphoma and other cancers) so I am planning on agreeing to the dual and that will most likely take place in September. I am apprehensive and worried I am a mom I have a 19, 17 and 15 yr old and a 15 yr old stepdaughter who all live with me and depend on me. I am married to a wonderful man, he is a paramedic, and he works so hard to be positive but he has seen the worst of this disease on an almost weekly basis in his line of work. I look forward to getting to know some of you and forming friendships.
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Heather and Sugar - Your hair looks great! I'm keeping mine short, too. I couldn't stand the growing out phase, and I also got used to the ease of short hair. Plus.... I've been told it makes me look younger, and that's all I needed to hear!!!
Selena1973 - Welcome. Sorry you have to be here, but the women on this board are great and you will find a lot of support.
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Selena welcome and sorry you have to be here..
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Welcome, Selena. Come here often for support and information. My DH was helped by a book called something like "the breast cancer Husband" Not sure of the exact title, but it was good for him to read and was a mini guide to how to help me. Someone elase here may know the title and author.
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Selena - sorry you have to be here, but as others have said, this is a very supportive group, and not sure I could get through all of this without this board!
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Hi everyone........ Im trying to get that attitude of " ask me if I care ".... Im trying to think of myself for once and slowly learning the word " no ". its not easy for me.
I've been having so much stress in my life , actually 1 year now..scares me that the cancer may return, and everyone else here just brusches it off... most dont know why i am having the stress factor..for the simple reason that I cant really tell anyone.... that makes it rougher... Does anyone else have those fears that stress... personal, financial, existance stress.. will make the cancer come back ?Sorry gals for rambeling..just read what i wrote and it even confuses me LOL
I hoope yal have a fantastic .... non-stressfull day
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Monisch,
I have the fear that stress will bring it back. I have many stresses, including stressful relationship, plus my profession is very stressful. I am taking a free workshop from the hospital that lasts ten weeks that teaches relaxation methods. Some things I used to stress over that cancer just banished from my personal stress load - I don't worry about gaining 5 pounds anymore or getting a new wrinkle. Amazing how living with one breast and six months bald will take some of the smaller concerns away!
Welcome, Selena!
Heather, your hair looks great! I was so excited to use a curling iron yesterday (to try to straighten it, actually.)
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Welcome Selena, sorry you have to be here but I think you'll find these ladies are awesome.
Monisch, I'm starting the get the "why are you so worried about it?" questions from the people in my life, I suppose it's normal for everyone who has NOT gone thru this. Stick to this thread and you'll find out most of us are experiencing the same thing in one way or another.
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Welcome Selena, so sorry to hear your story. You have your hands full - teenagers and than this that you have to deal with. Great that you have a great husband, though. You may be freaking out about being TN as we all were at first, but many of us do survive this ordeal. Always be on this board, it is a great way to get very strong as you see and learn from others how each one deals with their issues, all these very strong, amazing women.
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Welcome Selena-as others have stated sorry you have to be here. Most of us are moms, and wifes as well. We understand your fears and concerns. I must admit once you get on a routine you will feel much better. Gentle hugs and take care of yourself.
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Heather, I am getting that now. I just started rads, and my youngest boy said "it's gone, don't worry abut it". I feel as though others think because I had chemo, surgery and now rads I will never have cancer again and I should not be worrying about it. It's very hard to explain the thought process we go through to someone that does not have cancer.
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Lory, I feel like the worst offender is my hubby sometimes. I completely understand that his way of dealing with it is to ignore it and think its never coming back but at the same time he's my other half, I need him understand and communicate with me his fears and listen to mine. I guess it's the whole men are from Mars, women are from Venus thing. However, when other people blow off my worry, that really pisses me off!! Sorry, but honestly it's how I feel, I get very annoyed when my worries are belittled like that.
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Hi everyone - I'm new to this site. I just figured out what it means to be TN. I had a lumpectomy in jand and I am half way through chemo tx with TAC as my drugs then I will have 6 weeks rads. I am told there is no way to test if this chemo worked or not, I don't really get that. I read about other people saying it didn't work, is that before surgery then? I feel so stupid that I don't even know what's going on with my own tx. Have any of you looked into clinical trials for hormone therapy?
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Jag, I had chemo prior to surgery. I had an MRI to see what the tumor did prior to surgery as well. Then when they removed nodes during surgery everything showed the chemo did it's job. I am not sure how they would know that chemo is doing it's job other than an MRI.
I have a 3 month post chemo followup with my onco, I am asking him about the cancer vaccine that has been sent to the FDA for approval. I saw someone post it here. Itseems to be promising for triple negative BC patients.
Heather, Yeap DH does not wish to talk about anything negative regardign my treatment, or my fears. I totally agree with the anger I feel when others seem to not even regard my fears as MY fears. I feel as though they pat me on the head and walk away. I know my DH is just fighting his fears, through trying to stear clear of my conversations.. I have so many what if's..
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I didn't hear of anything being approved by the FDA. Where can I find info on this?
Nevermind, I just read it's been SENT FOR APPROVAL. Still want more info though!! Let us know what your dr says.
Poor hubby, I do feel bad for him, I can see the fear in him, just wish he would talk to me sometimes.
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I knew my chemo worked because I could feel my tumor melting away. When I had surgery it confirmed, there was NED.! I too want to hear more about the vaccine.
I agree people who have never had cancer just don't get it. It is part of my daily life one way or another and I like the rest of you feel like my family thinks it is gone and I am cured. I hope they are right, but the fear lingers in my mind. Especially with every hurt and ache. Also the past few days I have been so tired and just really feel like laying in bed. So this scares me beause right before dx I had no energy at all and had been going to dr to find out what was wrong. I truely believe it was the cancer. So say a little prayer for me that the low energy is just from fighting spring allergies and the rush of my life right now. Work, ball practices and everything else a mom deals with...
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I can relate to what everyone is saying...wish my DH and family and friends could understand. I am one year out but my WBC has dropped lower than when I had tx. Current fatigue and mouth ulcers have me scared to death. Put myself on the Budwig Diet and it has helped, but it makes me wonder...is the f**king cancer back and is this diet is trying to fight it? DH thinks I am nuts and that I should be healthy...he doesn't want to believe that the BC can return. Prayers to all and stay strong!
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