Calling all TNs
Comments
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rsinorlando - is this a decision you have made by yourself or with medical input?
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Good morning Ladies......I'm here. Just having a real bear of a time these days. Not only does this chemo suck big ones but my family has fallen apart in the past week. I can do one or the other but both seems a bit much right now. The good news, this is my week off of chemo and today I feel a more like my old self. Whew! Now to take that deep breath of fresh air and go enjoy life.
Michelle ......thinking about you in Paris makes me smile. I can't wait to hear about all your adventures when you return.
Titan....I am so sorry to hear of your friend's daughter. So young. It just isn't fair!
Think of you all every day and hope life is treating you with love and kindness.
I have a lot to catch up on and will check back this evening. Off to help a friend out today in her store. Here's hoping for consistent energy!
Have a wonderful day! Love to you all.
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Hi everyone. I'm still working like a dog, getting my house ready for my new "roommate". I've managed to at least keep up with reading all your posts.
Welcome to all our new members. This board is a wonderful source of support, knowledge and fun.
Titan, I'm so sorry for your young friend. As others have said, when you're older, you can accept that you've lived a life, but someone this young has been robbed! Prayers for her.
NavyMom - I always make a point to thank people who served for their sacrifice. I especially like this weekend because all the old-timers usually wear something denoting their service and I kiss them all!
Teka - I remember reading an article by a reporter that had TN, that said "cancer hates cabbage" so keep eating those dogs!
I'm back to the salt mines. Everyone have a wonderful weekend!0 -
I made the decision myself - against my onocologist recommendations. I have lost a dear family member to this hideous disease and saw for myself during her chemo treatment and knew then and there that I would never do it even if I developed breast cancer myself. I understand that it is not a decision that many chose...just wondering if anyone else has done the same.
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I just updated my surgery info as I missed that somehow earlier.
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Let's try that again....sorry! This is the first discussion group/blog I have been involved in.
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Thanks, Teka.
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Titan:
26, so very young. She should just be starting her life, actually, instead of having it end because of this beast of a disease. My heart breaks for both her, and her family and all those that love her. I am so very sorry.
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rsinorlando - we all respect your decision not to do chemo, though I think you will find very few who are TN would make the same choice. Can you tell us what it was about your family member going through chemo made you so adamant about not doing chemo?
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Titan - today I woke up with a purpose in my heart (took some doing I can tell you). Usually I test the waters with one big toe on getting out of bed but no today I am inspired by you. I will stride it out just as you do with hope and inspiration, I will imagine I am walking a marathon, everybody will be there to cheer me on and say OMG she can do it, they will clap and get me to the finishing line and when that little tick comes that says 'exercise exercise ugh' I will push it aside and bravely carry on. You are my hero.
I will walk around the block at least (all of ten mins) and hopefully nobody will have to help me home. I can do this, I will do this. (how many years will it take me to do 5kms) You are an inspiration to me. I can DO this. Annie
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GO ANNIE!!!!! Titan- 26......it's just too sad. My heart goes out to her and to her family and friends.
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One step at a time - Annie! Do what you can, it's all good!
Happy Memorial Day weekend to our American sisters!
Doreen
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Hi to ye all I didnt get to read all posts but ust logging on to tell ye I am starting my Chemo On Tuesday I thought I would never see the day I know since the 19th April but my god they done so many test on me I will get all my results on Monday my chemo treatment is called Taxol TC for short can any one tell me something about it and how it works and were ye sick etc for a few days after it I presume this is an american site I live in Ireland all help and ideas will be gladly appreciated Oh ya I am having my right breast off also very painful since sunday just on painkillers at the moment Thank you Carolibe xxxx
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fighter I love Virginia Beach, we are actually going the last week of July! I cannot wait.
luv you have a blast in Paris!
Can't remember who posted about not doing chemo. I understand your fear and respect your decision, but just know that TN is very responsive to chemo and chemo is very doable. So make sure you are making the right choice for you.
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Go Annie!!!!
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Orlando- I"m in otown too...wondering who you've seen here...I opted for no chemo or surgery and a month later, my children had talked me into it. Wish I had never done it. I have permanent 'damage' that really interfers with all my activities. Yeah, I"m alive, but only to put in 10 hrs a day at work to make the mortgage payment and recouperate on the sofa for the rest of the time. Flipping Boring!! Oh, and my daughter decided not to take care of me halfway thru my chemo because she said 'I was too needy'. GIVE ME A BREAK!
I totally respect your decision. Chemo is not for everyone.
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cocker..I love your posts...I swear I can "hear" your voice...
Inmate..good to hear from you my friend....hang in there..not easy is it.
not doing chemo for triple negative....it is very unusual for tn's to NOT do chemo...but it is OUR choice whether or not we do it....I think that is what got me through...knowing that I could quit any time...I didn't quit but the thought got me through anyway....I do respect your decision though...no judgments here....
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Welcome to all the newcomers! Caroline, the BCO board is based in the US, but there are people posting from all over the world. Somebody is always awake somewhere. LOL
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Hi ladies - I haven't posted in forever but I do try to stop in and read.
Inmate - I am sorry that you have to go through all of the chemo crap again.
Luv - Paris sounds soooooo wonderful!
Annie - I also love your posts.
I finished my T/FAC chemo on 4/17 and had my re-lumpectomy and sentinel node biopsy last Friday. I got the biopsy results back - all clear! Happy, happy, joy, joy! I have a month before I start radiation. It will be like a vacation!
Phyllis
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(((Inmate))) - wishing you a good week off from chemo, and sending positive energy to solve the family issues. You're right, it's hard to handle both.
17.5 hours to "wheels up"!
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rsinorlando - I was dx in March 2011. Had a lumpectomy and radiation. Against my Drs advisement, I chose NOT to do Chemo as I saw what it did to my sister in law. She is however, 5 years out and now doing very well. She is NOT TN. I have a friend who chose to do what you did. Dbl MX and Diep flap..no chemo, no radiation. She is also doing very well and she is 5 years out. Do not know if she was TN or not. Doing Chemo is a very personal choice...I am 65 and just one year out. Reading all these posts of what these strong ladies have gone thru makes me comfortable with my decision. I am not good at being sick. Radiation was a breeze for me, as was the surgery. It may all come back to bite me in the butt and I will still refuse chemo.
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rsinorlando - I was dx in March 2011. Had a lumpectomy and radiation. Against my Drs advisement, I chose NOT to do Chemo as I saw what it did to my sister in law. She is however, 5 years out and now doing very well. She is NOT TN. I have a friend who chose to do what you did. Dbl MX and Diep flap..no chemo, no radiation. She is also doing very well and she is 5 years out. Do not know if she was TN or not. Doing Chemo is a very personal choice...I am 65 and just one year out. Reading all these posts of what these strong ladies have gone thru makes me comfortable with my decision. I am not good at being sick. Radiation was a breeze for me, as was the surgery. It may all come back to bite me in the butt and I will still refuse chemo.
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Hello ladies. Just started getting into these forums and excited to see this one specifically for TN! Diagnosed at 33, three days before my 34th birthday. Completed chemo and rads and approaching the 1 year mark in a few weeks. This year's birthday seems like it will be much happier 0
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Hi all, I had my surgery today. They removed the tumor, the implant, and some muscle. They were able to close the wound and PS said I could think about TRAM flap down the road if I wanted.
It really hurts on that side, especially moving or taking a deep breath. I've mostly been sleeping.
From Saturday until the day before the surgery I was at a beach that felt like paradise. I was able to keep this horrible reality away most of the time, so was great swimming, walking, sunning. Wish I was still there now and this wasn't happening!
Have to try and catch up with whats going on with you all - hope things have been well!
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minxie - I could use some beach time myself, I am glad you experienced paradise before your surgery. I hope you heal fast.
Annie - I agree with Titan, I also can almost hear you talk. Thanks for your uplifting posts. My mom and sister live in New Zealand, they and their kids also sort of talk like you. I guess each place has its own culture, own way of talking. Annie, I like your idea of a bigger picture on the left side where all the space is being wasted.
Inmate - Sorry to hear you are going through a tough time. Get yourself better and everything else will fall in place. When you feel good, everything feels great, isn't it?
Ladies, tomorrow I will most probably hear the results of my thyroid biopsy. I wish one of you could be here taking my news for me and then quietly relaying that to me.
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Hi Ladies
Well I finally made it and even walked for 15 mins but when I finally staggered home there was no welcoming committee to cheer me on and even the dogs weren't on the drive way to clap for me. So my moment of glory went pear shaped. But I'm not a giver upper I will think of my hero Titan and stagger on regardless of the pain and suffering (small blister). I'll be out there tomorrow morning come rain or shine (well shine anyway).
Titan - my old fellar swears he can hear my voice a lot as well. lol
LuvRVing - 17.5 hrs. Woo hoo. If you need me to come and carry your bags just call me. Have a great time.
Inmate - you are really going through it with your chemo and family issues. But it will all come right. Just hang in there as you have told me to do before. Sending you my hand to hold hoping it will help you cope. Thinking of you lots.
Phgraham - wonderful news. All clear. Nothing beats that. I too am looking forward to my month off before radiation. Will be nice to have a break before the next lot of treatment.
Caroline71 - Welcome. You will be fine just listen to these wise, kind ladies on here they will help you through it. Taxol is a lot easier in a lot of respects than the AC. I didn't get sick at all thank goodness. You will get through this.
To the ladies who decided against chemo. This is a very personal choice and you must do what you feel is best for you alone. No judgement here either. Looking back I am very glad I did it as I feel it has given me the best chance of beating cancer. There were many times that I felt I wanted to give up and I would come on here and the posts would pull me through. Sometimes if I felt ill I would tell myself that I wouldn't go for the next one and the next day I would feel ten times better and I would feel I could cope again. Really the time has flown by quicker than I thought it would. But I am 100% sure that I could not have done it without the support of all the ladies on here. You have all been my saving grace and I love everyone of you for it. I hope I don't but if I ever have to have it again I dare say I will even if its just for my beloved girls and my old fellar again. Look at Inmate she has found the courage to go through it all again. I feels sure that at times she wants to give up but I know she won't.
Oh I have a beautiful sunset out of my office window. It's made my day. Glorious colors. It must be for Inmate.
Well I went to the Doc's this afternoon to get my heart checked because of my puffy feet. She told me I had a heart (Bonus) and it was beating strongly but I had to cut down on my salt. So I smothered my dinner in tomato sauce. Was quite nice with half a bottle on it.
Enjoy your holiday weekend ladies and your hot dogs. I will just be sitting here slogging away as usual at typing cause I haven't done much today while you are all out enjoying yourselves or in Paris. Nobody to talk to cause you have all gone to the beach. No really have a great weekend and enjoy your lovely weather.
Annie
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This is for you Inmate
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Well Done on your walk Annie!!!
LuvRVing - All excited for you. I really hope you have the weather we did, absolutely beautiful. And, keep meaning to recommend. Alice's Pizza. Or some Zebra restaurant. Both or tiny, crowded and worth every second. I'll check with hubby shortly and get the addresses for you.
Inmate - happy to hear from you but wish you were feeling better. Glad at least you feel like your old self for this week.
Think my fingers are getting sore from all of this online job application summission. Still can't complain, can't express how wonderful it is to be home. Tonight is the first night I actually have no plans. Trying to decide if I'd like to invite my Mum over for a glass of wine or veg out with a good book. Currently reading Fifty Shades of Grey. Very popular and VERY adult. Think I'm gonna opt for wine with Mum though.
Enjoy your day ladies!
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McCrimmon-I am too I have just started with the book, but I keep getting interrupted by Word w/ Friends. I love beating my aunt and nephew. This gives me JOY! LOLOL I know I am bad family member.
Smile ladies it's almost the weekend....
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Luv- Hope I caught you before you leave- just wanted to wish you a wonderful time in Paris! Please take lots of pictures to post!! Oh, hope your daughter is doing better!!
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