Calling all TNs
Comments
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Hi ladies. It has been a long time since I posted here. I hope you are all doing well. I am on the board for the first time in while and I noticed that jenn3 has not been around for a while. Does anyone know how she is doing? I know she has been getting progressively worse. She is so sweet. I hope she is okay.
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Hi Ladies,
Sort of tried to take a break from the site for a little while. Felt like my anxiety is getting worse.
I don't think I'll be able to get caught up, just know that I think about all of you every day and I don't really think I can stay away for too long.
Hope and Inmate I'm praying for you. And I'm sorry that all of you new ladies have to be here but you'll get the best support and guidance from these wonderfull ladies.
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brower1 - I am on the same chemo your on the Doc told me my hair would fall out but you are never prepared for it, but the thing that got me was on the 12 day I went to the bathroom pulled down my drawers and found a rats nest in my underware that took me by surprize,they didnot mention that in all the papers they gave me. Then i go home brush my hair and it started falling out slowly over 3 days till i got mad and cut it off, had my hubbie shave what was left off with the dog clippers it was all i had in the house to get it close enough to wear my wig. I know it will grow back but I liked my hair.
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For the newbies losing their hair...here's a picture of my bald head last year at this time (July 27):
And my hair as of a couple days ago (10 months after finishing chemo)...
I hope this helps - to know that it will grow back pretty fast once you're finished with chemo. And I agree with keeping a journal, or a blog, or whatever means that allows you to express your feelings as you go through this. My blog has been cathartic for me, helpful for others including people I don't even know, and it keeps all our family and friends informed without me having to rehash stuff too often.
And I didn't take any meds prior to showing up for chemo (I had DD AC/T). I got all my anti-nausea meds and just 6 mg of Decadron about an hour before my AC push. I also had an hour of IV hydration, which points out the importance of drinking enough fluids. My goal was at least 96 ounces every single day. Drink anything, just make sure you do it. And juicy fruits like melon, grapes, oranges, whatever tastes good. They all count towards that fluid goal.
Kathy is right on about eating small meals. I couldn't eat much at a time, then I'd get hungry. It wasn't unusual for me to have two or three breakfasts. The nausea seemed to be a little like pregnancy morning sickness. Being hungry made it worse, so eat frequently and get at least 90 grams of protein to keep your blood counts up.
Inmate - sending lots of love and luck for success with Ixempra! You are overdue for a successful long ride on one chemo! Do you still have a port? I think this is an IV drug.
Hope - glad you were able to check in, hope things improve daily for you!
Lory - I am hoping your liver CT shows "all clear!"
For those of you finishing rads, I think you'll be surprised how much better everything will look after two weeks. I don't know about salt water too soon afterwards, be sure you don't have any open wounds.
Oh, did I mention...I bought a bike on Sunday, and now DH and I are going for rides together. So far I've done two 6-mile rides. There is a nice paved trail very close to us and it's a beautiful shaded route. The trees form an almost complete canopy over the trail, there are all kinds of wetlands along the route, and it's nice to see families out together. Tonight's ride kind of kicked my butt, I'm not exactly in shape and I don't have much stamina and we did a different part of the trail that had a bit more elevation. I think this will really help me to stay strong.
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bak......yes, please feel free to send her on over. i would be more than happy to help in any way.
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irr...yeah..I'm worried also...about our Jenn3...I don't think it is too good.
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Is anyone FB friends with her or on her carebridge page? I don't think it is good either. Makes me so sad.
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Jenn3 posted last on July 20th. Haven't seen her since on the boards.
There have been WAY to many sisters in the last few weeks. 0 -
I am a FB friend of Jenn's. She hasn't posted for a few days. Things are pretty tough, but she always has an awesome attitude.
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I have not heard from Jenn3 for sometime. I know that she had taken a fall at home a little while back and was spending much of her time in bed. She is a real sweetheart and one tough cookie.
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june 2011 0 -
Christmas 2011 0 -
A fireman is at the station house working outside on the fire truck when he notices a little boy next door. The little boy is in a little red wagon with little ladders hung off the side. He is wearing a fireman's hat and has the wagon tied to a dog.
The fireman says "Hey little boy. What are you doing?"
The little boy says I'm pretending to be a fireman and this is my fire truck!"
The fireman walks over to take a closer look. "Little boy that sure is a nice fire truck!" the fireman says.
"Thanks mister", says the little boy.
The fireman looks a little closer and notices the little boy has tied the dog to the wagon by its testicles. "Little boy", says the fireman, "I don't want to tell you how to run your fire truck, but if you were to tie that rope around the dog's neck I think you could go faster."
The little boy says, "You're probably right mister, but then I wouldn't have a siren!"0 -
Losing my hair semed okay, but losing my eyebrows and lashes was a bit more traumatic. A warning to you all, frisk your friends and family for any contraband markers or you may end up looking like this.......
It's all fun and games until someone ends up looking like Spock.
Love to you all!
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Bernie, you look so cute without your hair....you too Luv. What beautiful ladies!
Karen I just love your idea for the horn on Hope's walker. Make some noise!
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Bernie, you look so cute without your hair....you too Luv. What beautiful ladies!
Kathy I love your idea bout the horn for Hope's walker. Make some noise!
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OMG Inmate! It's a good thing I had finished my coffee or I would have spewed all over my keyboard. ROFL!!! Those eyebrows are something out of this world!!
Same thing to you Bernie! That story is just too funny!
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Walked my three miles this a.m. . . . first chemo starts at 9:30 this morning . . . THANKS LORETTA for the posts . . and thanks to you STRONG girls . . . PEACE to you all.
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Fern..thinking of ya this am..the dread of first..anything..is worse than the actual....drink lots and lots of water....
LOL..love the spock eyebrows..still got mine..and half leg hair..clean is splotches...
and my head hair is growing...enuf even my Hubby noticed it..at least it is out of the scratchy buzz cut stage..if I had known..would have cut it maybe to the half inch stage...waited and waited for it to all fall out..didn't..just dribbled every where..
all you lovely ladies going topless..took a pic but haven't uploaded here yet..might just do that..
day 6 from tx..feeling much better this morn..coffee is almost good..LOL..day of and day after..feel purty good..then fatigue and metal mouth for a few days..eating is a challenge..who woulda thunk rice and gravy(southern staple) would taste sooo gacky?
best wishes for all today..
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Hi all!!! Just came back from a 2 weeks vacation in sunny and very hot Daytona Beach Florida. Met a woman there who is Her2+ with 9 positive nodes and 4 years out!!!! She is doing great. She saw me with my LE sleeve so she knew I have had BC so she came to talk to me one night. She also has LE but much worst then mine but it doesn't stop her in any way.
Just catching up with everyone. Welcome to all newbies. You found a great place for infos and comfort.
Hope60 and Inmate- My thoughts are with you. Hang in there. (((hugs)))
Minxie- Last year, I finished rads 3 weeks before my Florida vacation. I was pretty burnt. The worse week was the week after rads. I couldn't get dressed. But I was suprised to see how fast I healed after that and was OK for my vacation. Like Inmate said, don't know about the salt water if you still have blisters or raw skin then so be vey careful. You don't want any infections there. Have a great vacation!
I read every posts but can't answer everyone personally like some of you can. But I am always happy to read news/posts from all of you guys and sending everyone of you big hugs.
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Hello all, think of you ladies everyday. So glad for this site to come too and feel this kinship.Bernie, i so look forward to your posts,starts my day off with a laugh! Inmate, i watch for your posts think of you and pray for those damn mets to disappear.Hope,i think of you and pray for you and send hugs! It has been 16 days since my 1st chemo,always surprised when i wake up and still have a full head oh hair. I know it will come out,had a dream last night that my oncologist said i didn't have enough chemo since i still had my hair so they had to give me more chemo.Woke up this morning tugging on my hair and yep,still there! Yesterday i went shopping and got new earrings,scarves,head covering,preparing myself!
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Fern: It's now 9:57am so hoping all is going well for you today in Chemo. Get that first one under your belt and you're 1 closer to the end. Thinking of you xo
Inmate: I am peeing my pants laughing. It's all fun and games until someone loses an eyebrow!!! You have great friends. I to had a harder time losing my eyebrows then my hair. Weird how we are all attached to things and don't even know it. Thanks for the laugh.
Bernie: You never fail to come through with a morning laugh. Thank you!!! Your jokes are good for my soul. I often share them with my DH and he and I laugh together.
Happy Tuesday ladies. Wishing you all a great day of energy, peace and minimal SE's.
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Inmate- girl you crack me up!! I always love coming in here and reading yall's posts, it really makes me feel "normal". Still no word from the docs office, which really pisses me off. DH has an appt this afternoon (he has a suspicious spot on his shoulder) I am going with him to raise some hell. Imean really, 2 voice mails-4 phone calls and no call back.. Speaking of hair- if I could figure out how to insert pics I would show yall my pics?
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Bernie and Luv- I admire anyone that can show pictures of their bald head. I couldn't even stand to look at myself let alone take pictures!! You both look looked lovely!
Inmate- someone would have surely died had that been done to me!!! LOL!! Thinking of you and your first Ixempra-hope it is easy on you!
Fern- Sending good thoughts to you today!!
Babs- Glad you had a good vacation!
Doris- happy that the SEs are lighnting up a bit!!
Fish- just remember your dream was just a dream- my MO made it very clear that a lack of SEs (like hair loss) doesn't mean the chemo isn't working!
I have 2 very bored kids! Trying to think of something fun to do everyday is wearing me down. We have spent too much time at home because of the darn hot weather. I can say that I am (almost) anxious for school to start! Although, that means that I go back to work!! Have a great Tuesday all!
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Good morning ladies...
I posted this in another forum specifically about bone mets but wanted to see what, if anything, y'all might know about the funky stuff going on in my crazy body!
So, after requesting a PET or CT scan to determine what the pain in my ribs, femur and hips was about, I wound up getting a bone scan and though several areas (right shoulder, both hips, right knee) showed "uptake", they think it is "PROBABLY" degenerative joint process. So i am to be okay with the assumption that in a year's time, I have developed degenerative disease at 38 years old when there was no evidence of it last September? Has anyone else encountered this?
My onc doesn't check tumor markers unless someone is diagnosed Stage IV so I didn't have any reassurance from that either. I am not quite sure how I feel about the whole thing. The pain isn't really local to my joints - it is in the middle of my right femur and no amount of rubbing or massaging will relieve it. This has been going on for several months now and is starting to get frustrating because by the end of the day, my feet and legs make it almost unbearable to even walk to my bedroom. The spot under my right breast on the ribs is so tender that I won't even touch it and am extremely careful putting a bra on. Due to the aggressiveness of my cancer (TNBC; grade III; Ki-67 of 75%) I get checked out every 3 months so I guess I will wait until the October 26th visit and see if anything is better by then.
I apologize for whining as I am the type who doesn't acknowledge pain unless it is really bad but this is just getting exhausting and I don't want to find out down the road that there is something going on that needed to be addressed.
xoxoxo to y'all...
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mmizerak.....My doc uses a two week rule. If something is an issue for 2 weeks he will look at it and so far has scanned when I had a problem. I get scanned every three months as it is. Perhaps he will do a CT scan in the interim. None of my scan have shown bone mets, however I have had bone pain in my ribs from the radiation and frankly all the surgeries. I am still numb in spots from my mastectomy last year. When the numbness wears off I get pain ( some sharp some more throbbing) for awhile.
In regards to the degeneration. I have a friend, your age that now has to get both hips worked on because of the destructive nature of her chemo drugs. She tried to excercise through it and made it worse. Mind you she is +++ and took Tamoxifin and that appeared to be the culprit. If it continues to cause you pain for two more weeks, rattle his cage. It is your health. If you can get the okay from your insurance your doc should follow suit.
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Inmate - I'm surprised, knowing your family tree, that they didn't throw Spock ears on you to complete the picture. Too funny!!!
Bernie - you're pictures look very regal. Maybe we can use your "siren" for Hope's walker?
Fern - we're all sending our positive power at you today.
Babs - glad to hear you had such a wonderful vacation.
Good to see you McCrimmon - wander in when you feel like it and let us know how you are.
Tifj - *waves magic wand - sends jolt of energy*. I hate my bald photo, but if I was near my computer I'd post it. The one good thing about CA is I don't much give a shit what I look like, as long as I feel good.
Lory - go get em, girl! I really wish docs had to experience being patients, but I bet when they call for results the get them right away.
Mmizerak - I understand both your frustration and your fear. I would say that it is good news that the femur and rib showed no uptake. I know that my hips have not been the same since chemo and they were one of the few places that didn't hurt prior to chemo. Maybe you should see an orthopedic to see what he feels it is. (specifically the femur and the rib). Maybe you've developed sciatica and he can tell with some testing?0 -
This is fun....a couple more pics and then i'm off. As kathy said, looking at our new selves has not been easy, but sadly I'm a bit of a picker and my house is filled with vintage mirrors. This was the reaction when i looked after my first shave......
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