Calling all TNs
Comments
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My hair started to grow back in earnest right around halloween so I decided to channel dracula to highlight my fresh crop.......I promise no more pics for awhile, but thanks ladies for indulging me..........
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Love the pictures, ladies! I strictly forbade any to be taken of me in my bald state - me head turned out to be a lot smaller and lumpier than I had imagined
Thanks all for the rads advice. I've been appling petrolatum and guaze taped down (my own version of the burn bandages) and it's really helped - skin is not so tight, doesn't hurt as much. Thanks for the help, you guys are awesome!
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Good for Minxie....I hope your home remedy continues to give you relief.
Have a great day ladies!
Love to you all...........dawn
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Inmate - those pictures are fabulous...don't think you need to stop!
TifJ - have you taken the kiddies to Powell Gardens? It's almost time for the Butterfly Festival, I'm been before and it's fabulous. They always have great craft projects (free) for children. And of course, there is Crown Center and Union Station.
http://www.powellgardens.org/page.aspx?pid=428
Here's are two pictures that I took a couple years ago:
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I had professional pictures done of my bald head. I wanted to capture the moment of my life. Kinda like my pregnancy pics. I just don't know how to post pictures here. Inmate maybe you can help me?!
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Born - are those pictures online somewhere? They need to be on one of the many photo storage sites (like Flickr, Picasaweb, etc) or Facebook. If so, just open the picture, click inside it, then right click with your mouse and select "copy" from the dropdown menu. Come back here, click in the text box, right click with your mouse and select "paste" from the dropdown menu. It will ask you (maybe a couple times) if you want to allow the content and you just accept it. This process works if you're using Internet Explorer as your browser. For Firefox or Chrome, you have to click on the little tree icon next to the smiley face in the grey bar above. Then provide the link to the picture. And if you're using an iPad with Safari, I have yet to see anyone post a picture using that device.
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Thanks Michelle, here is a test photo- my little yellow girl in her new hunting vest
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wow that is big.. LOL sorry about that
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Thank you all for your reassurance. I think I will talk to my PCP and see what direction he thinks I should take. It is so strange to go from someone who hardly ever acknowledged illness and trucked through everything to someone who shudders at every new, long-lasting pain. It is so nice to have a group who understands as opposed to trying to explain things to people who think its all in your head. Most just think, "Okay, chemo & radiation are over. Cancer is gone. Get back to normal & stop complaining."
Blessings to all of you!0 -
One dark night outside a small town, a fire started inside the local chemical plant. Before long it exploded into flames and an alarm went out to fire departments from miles around.
After fighting the fire for over an hour, the chemical company president approached the fire chief and said, "All of our secret formulas are in the vault in the center of the plant. They must be saved! I will give $50,000 to the engine company that brings them out safely!"
As soon as the chief heard this, he ordered the firemen to strengthen their attack on the blaze. After two more hours of attacking the fire, the president of the company offered $100,000 to the engine company that could bring out the company's secret files.
From the distance a long siren was heard and another fire truck came into sight. It was a local volunteer fire company composed entirely of men over 65. To everyone's amazement the little fire engine raced through the Chemical plant gates and drove straight into the middle of the inferno. In the distance the other firemen watched as the old timers hopped off of their rig and began to fight the fire with an effort that they had never seen before.
After an hour of intense fighting the volunteer company had extinguished the fire and saved the secret formulas. Joyous, the chemical company president announced that he would double the reward to $200,000 and walked over to personally thank each of the volunteers. After thanking each of the old men individually, the president asked the group what they intended to do with the reward money.
The fire truck driver looked him right in the eye and said, "The first thing we're going to do is fix the dang brakes on that truck!"0 -
LOL, Bernie!
Lory - glad that worked. Once you see the picture has posted, you can click on it, then click on the tree icon and change the size. But I wouldn't worry too much about it being big, and your doggie is beautiful!
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Michelle- I feel like we have been everywhere! They are bored with Science City at Union Station. We have done Crown Center ( for the new Legoland) and went to Powell Gardens for their Bloom and Boom show for the 4th of July. It's just so darn hot, even the kids complain about being outside for too long! We are going to a hot air balloon festival in Olathe next month. I give up!!
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Cocker - Where are you? You didn't forget your computer again, now did you? Hoping the Dragon Lady let you in after your late night encounter. Miss hearing from you.
Minxie - Glad you tried the homemade version of the gauze burn pads. Even happier that they seem to be helping.
Bernie - Keep the laughs coming, PLEASE. All my Irish relatives seem to totally lack your sense of humor. You are a breath of fresh air everyday.
It's Tuesday and I know several of you are in treatment today. Sending you strength. My visit to Lymph PT today went better than I had feared. She understands that irritation and discomfort from bra and exercises are not the intended outcome of PT. I need to lighten up and do what feels right to me. Bless her heart. Now I'll just worry about Thursday's US. The wind is blowing through the pine trees, whispering a calming message. Sigh....
Jan
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Got thru #1 treatment with no problems (so far)... the room and nurses were personal and not too clinical. I felt way younger than all others there. At 56 I guess I am young (not!) Love the picks and the drawn in eyebrows made me smile. Thanks all. Get the white cell booster tomorrow and hope to be well enough to go to work on Thursday.
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CT scan results- liver is clear, but they noted a 3mm spot (noncalcified nodule?) on my lung. Primary doc is goign to consult with my oncologist and see what he wants to do.
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Hey fern you start chemo at 9:30 tomorrow and I get my head shaved at 9:30 both traumatic steps that we have to take, at least we can do it together.
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Luck is not on my side here lately. Friday I had my 2nd chemo had a bad reaction throut closed up couldn't breath, a little benadryle cleared that up fast. Then this morning i woke up to numbness in my right hand as the morning went on it started to hurt then swell. Did not panic till it turned red then purple called nurse was sent to the ER. After waiting seems forever they did an ultrasound found a bloodclot in my neck and right arm from the port.
Out of work again was so glad to be back to work so my head would be filled with anything but my own thoughts.
More Doc apt. and more meds. Oh Joy.
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Luck is not on my side here lately. Friday I had my 2nd chemo had a bad reaction throut closed up couldn't breath, a little benadryle cleared that up fast. Then this morning i woke up to numbness in my right hand as the morning went on it started to hurt then swell. Did not panic till it turned red then purple called nurse was sent to the ER. After waiting seems forever they did an ultrasound found a bloodclot in my neck and right arm from the port.
Out of work again was so glad to be back to work so my head would be filled with anything but my own thoughts.
More Doc apt. and more meds. Oh Joy.
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Luck is not on my side here lately. Friday I had my 2nd chemo had a bad reaction throut closed up couldn't breath, a little benadryle cleared that up fast. Then this morning i woke up to numbness in my right hand as the morning went on it started to hurt then swell. Did not panic till it turned red then purple called nurse was sent to the ER. After waiting seems forever they did an ultrasound found a bloodclot in my neck and right arm from the port.
Out of work again was so glad to be back to work so my head would be filled with anything but my own thoughts.
More Doc apt. and more meds. Oh Joy.
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dgcote - ((((HUGS))))
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Tif - do they like mini-golf? CoolCrest is pretty nice, it could be an evening thing. What you guys need is a break in the heat and some rain!
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mmizerak...if only it were that easy! get treatment, be done, cured, whatever......however, we all know too much about this crap..that sometimes...it isn't that easy....
I dunno...all I can say..is that once you are done with treatment...work on getting yourself back to somewhat normal..it takes awhile both mentally and phyiscally but yeah..it can be done...someone said it is like an elephant in the room...at first it is huge but as time goes on it gets smaller...and that is true....
at one year out I was excited ..at 2 I was thrilled..at 3 I was really excited..but now I just want it to be 4 years...it just never ends...lol
Hey Cocker...miss you girl..glad you checked it
And Bernie..you keep me laughing on a daily basis...love it..keep those jokes coming
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Wanted to check in and say hi to you all.
I'm not even going to try and respond to you all, leave that to Cocker - who's MIA again???
For those going through treatment I am sending you such positive vibes and hope you have minial SE's.
Inmate, Bernie - I love those pictures. Embrace what we are now and what we were eh?
So my time is almost here... surgery Thursday. In a very calm place today - was a total wreck yesterday. I keep telling myself that this time next week I'll be in recovery mode and that as each day, week passes this will be in my rearview mirror. then onto rads, but that's in the future. One day at a time eh?
Thinking of you all xxx
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Tazzy - best of luck with your surgery! Yes, one day at a time!
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Thanks Michelle.
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No Taz not MIA just quietly sittin here reading everyones posts. Not much happening in this paert of the world at the moment so not a lot to tell you but thinking of you ladies.
Went to my oncologists appointment before rads today. She said I had a 50/50 chance of a recurrence. What do you ladies think of that, excellent, great, good, ok, not bad, lousy, terrible or ugh. A bit like being pregnant and you wanting a girl and getting a boy.
Great pics Inmate. You take such a wonderful picture. Very photogenic.
Hope - glad to hear from you and sending a huge big hug.
Tazzy - will be thinking of you on Thursday. All will be well.
Heather at last. You were missing in action longer than me. Great to have you back with us.
Jan - I just don't know what to do with myself up here away from home. Once you have had your treatment the day just drags. I really want to be at home and see how my old fellars cafe is going although he tells me he does better and better every day. My daughter tells me the same so I know its true. He's working ten hour days though so hopefully he will be ok.
Thinking of you ladies and hoping side effects are minimal and everything is ok for you all. Oh yea my old fellar said that my Chloe hasn't been well and he thinks she is missing me. Not even chewing anything, must be sick lol. Bless her little heart, until I get home and see what she has done. Love to everyone. Annie
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Hi All! Just a quick note to check in. Had my fourth and last A/C today, YIPEE!!! Now on to Taxol. Thanks again to all who aided with the comforting tips including Claritin, Watermelon, shave the head early, etc... So much GREAT advise from caring people who know what it's really like!! Not a walk in the park, but manageable.
I got an extra bonus since my sister and very best friend from Chicago is visiting for Two weeks! Sheila and Hubby celebrated with a cold Ale with dinner .... I had Ice Water :-(
Inmate - You are a Rock Star! So full of spirit and life all around you!
Tazzy - Good luck on Thursday. Will be thinking about you...
Just wanted to check in to let you all know that you are in my heart and prayers. I continue to be so grateful with finding you all xoxoxox0 -
Cocker - I can understand how slow your days must pass. That, and wanting to be home to cheer the old feller on. How are your hands and fingers? Hope they are back to normal by now.
Tazzy - Holding your hand during surgery. All will be fine. Surgery was the easiest part for me.
dgcote - How frightening! Things can only get better!
OK ladies who are reading/have read those Shades of Gray: Heard on news tonight that there is an epidemic of pregancies since the books came out. Just sayin'
Hope all of you get some heat relief and much needed rain. Jan
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Cocker - Your oncologist said you had a 50/50 chance of a recurrence AFTER chemo and rads? That seems very high - I was told those odds if I didn't do chemo by my onc. Anyone else given odds? Hope she's not right.
Doreen
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Jan - I read the Fifty Shades book. Glad they weren't around when I was in my 30's...I might have ended up with a few more kids...lol! I'll never look at pink champagne the same way, ever!
Doreen and Annie - statistically, there is a higher risk of recurrence with stage 3 than with stage 1. That said, it either happens or it doesn't. It's all pretty much out of our control. There are women with DCIS who end up with distant mets and women who have stage 3 with lots of nodes involved who come out on the other end and go on to live out their lives. My RO from Dana Farber told me I had a 10% chance of recurrence after BMX, DD chemo and intense rads. And here I am with mets in less than four months after finishing treatment, and I've been on metformin the whole time. It's just so unpredictable.
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