Calling all TNs
Comments
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Christina - Check out their web site. The turtle pillow is very specific. It is cute, but I would rather make quilts. The Painted Turtle is such a great place for kids and their families that I immediately feel better when I work on quilts for them. I'd love to hear how it goes for you.
Luah - What a great summary of care options. I wish I had known all this before I started tx.
My heart goes out to you moms with children who worry about losing you. It must make dealing with this f'n tnbc all together that much harder. My best wishes to you and your children.
Wishing you all some joy today. Jan
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Sjayne - As everyone has already said, treatment choices are personal - do what YOU are comfortable with and don't regret your decisions. One thing that MAY influence the "chemo before surgery" option is if any of the nodes test positive. In that case, you would probably want to try killing the cancer cells before they have a chance to affect more nodes or other organs.
Luah - wow, you did a great job with that explanation - keep a copy handy for when this question comes up again!
Doreen
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Kathy....woot woot. yeah on 2 years!
Marianne........don't worry about letting those words hit you a bit hard. It sucks that any of us have to entertain the though. I look at it as an opportunity to "clean" house the way I want it done. no friends or family pawing over my things. Hey, nobody's getting anything today, mind you. But none of us get a pass on dying, or taxes, for that matter. This is my choice to think about the legacy I leave behind while I can sill think clearly. For all I know I could ge hit by a bus tomorrow or eaten by a crazed penguin at the zoo today. Yes, I get to go to the zoo again wih little Baker man and Mom and sis. I m one lucky person.
Things are looking pretty good for the trial. The skin mets look less angry. I do not like the SEs from Abraxane! I am coughing a l lo less. Still no appetite. Super headaches. In lots of pain, that sucks! Loose my breath a lot. That is the scary part. I get to Dr K on Monday for a follow up. Al in all I am very happy ith my deciion.
Have onderful day ladies!
Love to you all!
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Inmate - So nice to hear from you. I've always liked your attitude and the legacy part is pretty much spot on for me. (old underwear in bottom of drawer, bits of old make-up) It's wonderful the skin mets look to be clearing up. But, the SEs must certainly be hard to handle. Meanwhile, enjoy your day at the zoo with your little Baker man. As I recall from a picture, he's one cute squeeze. Sounds like good therapy. Jan
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Good to hear from you inmate!
Just got back from plastic surgeon, with some unhappy news
He wants to wait 6 months to do surgery because of the rads. Then he wants to put in a TE for 4 months before the implant! Argh! So I'm looking at almost another year before this breast done. I so wanted to wrap it up in 2012 and put it behind me. I've been living with this stupid cancer popping up and making trouble in my life for 4 years now. People tell me to look on the bright side, I'm still alive, etc. Yes, I appreciate that, but I am tired of dealing, tired of the pain and fears and tears.0 -
Surfing the web and I just noticed that my favorite childhood author is facing this beast as well. I wish Judy Blume all the best.
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Minxie...how frustrating....complain away. It is so hard to wait.
Inmate....love your attitude. Pouring here...zoo is great though.
Luah...great explanation
So all it is my 2 to the 5th power anniversary with my dearest sweet spouse. He is working all day though and I am enjoying the rain and the cats and my hair actually looking like a real hairdo.
Off to the post office to drop off some packages and then to the art store to pick up a print I had framed and to drop off one silly chicken for framing.
Tried to put it up but you have to go to this link:
http://dailypaintersofrhodeisland.blogspot.com/
2 titles...Sitting Pretty but for those of us on this blog:
No Sitting Ducks Here!
Have a super day.
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Inmate - so glad you weren't eaten at the zoo - although I hope to leave in a more dramatic style than FC - how pedestrian!
I hope the SE's subside - and that you are able to breathe better soon.
Painting - I love your chicks!
Minxie - I'm sorry you can't get everything behind you by the new year. How far out of rads are you so far? Maybe by Chinese New Year? We'll all order take out and toast with egg rolls!0 -
minxie - So sorry about yet another wait in your life. Frustration
Fighter - Not Judy Blume, too! My daughters loved her books and I love a couple of her adult books.
Susan - I absolutely love your art! When I grow up I want your skills. Has your style changed since your dx?
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Wooo Hooo,my hair was blowing in the wind today!!!!!!
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Hi everyone!
To the newbies-Just want you to now that I am a 9 year survivor of triple neg stage 2b, brca 1 pos. grade 3. I feel fortunate to have gone that long before I had a new primary in the opposite breast. Now I am one year and five months past my second diagnoses, this time I was stage 3C/4. Fingers crossed that I stay NED! I don't think the worry ever stops completely, but it certainly gets less. This time I don't seem to worry or obscess as much as the first time, but I do still worry and get very anxious before appointments, and scans! I have always suffered from anxiety and panic attacks.
Tomorrow I go to see the gyn. I am a bit nervous, the doctor is a man, I usually see women for that kind of stuff! He is a gyn oncologist and highly recommended by my mo. We will be talking about having my hysterectomy, and hopefully scheduling it to get it over with. Since I am brca 1 pos the sooner the better, even though I do not feel ready for another surgery!
Minxie-I get what you mean. I have to wait for reconstruction, probably until after march of 2013. My docs wanted me to wait a full year after rads. So I will have my hysterectomy, then reconstruction, and then I hope I am done with surgeries for awhile. I even consider no reconstruction, but I think I really do want to do it if I can stay healthy.
Hi Inmate! hope the zoo was fun! My house is a bit like a zoo:)
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OBXK...thanks
Jan69....no my painting hasn't changed much. the chicks are jsut a new phase as I am in a Birds of A Feather Exhibition opening Saturday. Also, they sell well at open studios. I never grew up- I think that is why my work looks the way it does. I did do a few creatures with tons of boobs hanging off them...one was entitled "Boobies for Sale" but I didn't tell many people about my cancer so I made up a story about buying boobs from the medical profession.
Belleeast...waiting for my hair to blow....it is growing though.
Bak94...hope you have ativan. You are amazing to me to have done this twice and seem to find a great way to manage. I love your attitude. Hugs and here is hoping and praying all will be NED tomorrow.
I just caught dinner for our anniversary.....bluefish babies..yes it is 2 to the 5th power number of years we are married-anyoen figure it out yet. Chemo brain gave me pause when my husband made a card with that inside.
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bak I too went to see a guy gyno onco and was uncomftorable, but I am so glad I did, he is great! I am debating a hysterectomy cause I have a 4 cm cyst on my left ovary. We are going to recheck it in 3 months to see if there are any changes. He strongly believes it is nothing. I trust him!
So happy to hear you are a 9 year survivor and now this go round are ned! I pray you stay that way too!
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Hi Ladies - Someone posted supplements they took for Neuroapathy. I thought they were L-Glutamine and Acytel L-Carnatine. Does this sound right to anyone? I took both for the first time about 11/2 hrs ago and feel wired and a slight tightness in my chest (gas I hope?). Any input?
Hope this note finds you well.... xoxoxo0 -
Sjayne-sorry you are hear. I chose to have chemo first mainly bc I wanted to know it was working and it has I have had 3 of 6 treatments. When I was dx my tumor was 1.9 cm by the time I fished all the test and got started it was over 2 very hard and noticeable, after my first treatment it had all ready shrunk below 1 cm, at my last visit my doc could not even find it. It does give me some peace of mind. Another good thing is that while I am home recovering from surgery my hair will be growing! I have also decided to have a total mx I would hate to think I did all this just to have it come back in a next year. But that is a personal choice. Good luck on whatever you choose but once you have a plan you will feel better no matter what it is
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Jazzy - My MO told me to take B 12 and Niacin. Jan
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Thanks Jan!! I take B12 but not Niacin. Have minimal SE's at the moment, but have noticed I am dropping things more often...Can't afford to lose use of my fingers since I spend most of my days on the computer and phone....
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Jazzy, I was told to take glutamine by my onco's PA.. little did I know I was allergic.. I spent the worst 8 days of my life swollen, covered in hives and itching beyond control. I have a few pics I took to remind me of how bad it was. I can honestly say it WAS worse than chemo.
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And probably never have been !!!
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Thanks Lori! I think I just took my first and last dose... The tightness seems to have let up but now I have a sore throat and am still wired.... at 11:20pm with only 3 hours sleep last night and a 10 hour work today. I should be sleeping :-(
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Love the cat.
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Cocker, thanks for the chuckle.. I can relate to that cat
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Thanks for the smile Cocker! Meow
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As I am trying to read all the posts, one by one - I come across Annie's cat singing, and I burst out laughing, ha! ha! ha! so funny! ha! ha! ha! ..... thanks for the chuckle. I will write once I finish laughing!!!!
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Painting - I still have "chemo brain" episodes, but I think you are celebrating your 32nd anniversary. Am I right? Congratulations! My DH and I will be celebrating our 39th next May.
Belleast - "Hair blowing in the wind", I seem to remember that feeling. Right now, I am happy that mine has grown long enough that it lays down. Unfortunately, it is growing in the wrong colour (is white a colour or a lack of colour?). It was brunette with blonde highlights (courtesy of my hairdresser) before the chemo!
Inmate - Really glad to hear that you are breathing better and the skin mets are improving. I hope you get your appetite back and the headaches go away real soon! {{{HUGS}}}
Cocker - love the cat.
I don't want to even remember the date I got my dx. I will celebrate my cancerversary on the anniversary of my last tx (June 19).
Hope everyone is having a good week!
Doreen
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Ladies somebody said to me today nothing is impossible, so you better watch out!!!!
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A small tourist hotel was all abuzz about an afternoon wedding where the groom was 95 and the bride was 23.
The groom looked pretty feeble and the feeling was that the wedding night might kill him, because his bride was a healthy, vivacious young woman.
But lo and behold, the next morning, the bride came down the main staircase slowly, step by step, hanging onto the banister for dear life.
She finally managed to get to the counter of the little shop in the hotel. The clerk looked really concerned, "Whatever happened to you, honey? You look like you've been wrestling an alligator!"
The bride groaned, hung on to the counter and managed to speak, "Ohhh God! He told me he'd been saving up for 75 years and I thought he meant his money!!"
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Too funny, Bernie!
Love the singing cat, Annie!
And I read those 50 Shades books...there will definitely be a baby boom!
Inmate - sending love and hugs, and hope that the clinical trial drug zaps those mets. Glad you are feeling a little bit better. I hope the headache is nothing serious. (((Hugs)))
I hope everyone has a fabulous day today!
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Painting-your works are always very pretty!! I wish I was artisitc. I can put on makeup very well. I so want my kids in the arts as well. My son will be playing the cello this year. We are very excited!!
Bak94-Fingers crossed as well for you and all our other sisters fighting including myself.
Bell- I know that feeling HAIR HAIR and MORE HAIR.
Inmate- sending comforting thoughts your way. Enough is enough.
Minxie-I know the process is long it took a year and a half for me, but I am pleased with the results. Patience. They want things to healing and take shape before attempting to start the process. I have a suggestion if you don't mind, see if they can position your surgery line under your implant it will give you a clearer more rounded smooth breast. Things are still settling out and softening up, but I am still in shock of how natural they look and feel. You can PM with any questions. I have had nipple reconstruction as well as tattooing.
Tazzy- HI!!!!!
Smiles to everyone we DESERVE IT!!!!
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