Calling all TNs
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On my way home! Surgery went well and chemo starts in few weeks!! In some pain but got meds!! Just wanted everyone to know now I'm going to sleep.
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the5 owens - Good news - Get lots of sleep.
Oh Cocker - At it again. Thanks for the laugh you silly lady.
I've been busy these days making lap quilts for a camp for medically fragile kids. Made 2 quilt tops today and one yesterday. I've got about 8 more lined up. I have a friend who will help me baste and quilt them into a finished quilt. The camp runs year-round with week-long camps during summer and family camps on weekends during the school year. Each camper gets a quilt to take home. Cheers me up doing this.
Cheers and joy to each of you, Jan
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I do Zumba two nights a week for an hour and then an hour long toning class two nights a week (but I am not super women) just trying to keep my regular schedule. I started these workout classes 2 years ago and I have made some really good friends, it is more fun than work, really it's my therapy mental and physical. The onco said that the more exercise I do the more energy I will have and she is correct I feel so much better after a class. The ironic thing is that I did drastically change my life 2 years ago (for the better) working out and eating right and then I got cancer:( Doesn't make sense. I am now half way done with chemo and plan on doing my classes as long as I can. Unfortunaly, I think when I have my double mx I will have to slow down but only for a short time then back at it!!!!!
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Bernie - I'm in a private women's group on FB, and nothing we post in there goes on the main page. Do you want me to message the woman who set it up to see how she achieved this?
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Brower1 - you put me to shame with your exercising. I'm more like below....
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cocker that is too funny, love it!
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hoppy-my mo suggested I remove everything, even before he put me on tamoxifen. He said there are cases where the tubes and ovaries have been removed and somehow ovarian cancer still showed up. I initially just wanted ovaries and tubes out because of quicker recovery but all my docs convinced me otherwise. So many different opinions!! Since I seem to be a cancer making factory I just want them to take it all! Also, I am 45 and I don't know if that makes a difference from being younger or older than that:)
Journey-sorry to cause panic! Every case is different. I would go with what your doc says, but I would ask the benefits and drawbacks of both. I would also make sure my doc was very familiar with brca and ovarian cancer. Ask for the percentage of women who have had their tubes and ovaries out and then got ovarian cancer, my doc told me but I can't remember! I do know it was a very low percentage, but something I did not want to take a chance on.
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BAK - how was it for you having your ovaries and tubes surgically removed. My breast surgeon has suggested both for me. Was it a long and painful surgery and what was the side effects. Annie
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Yes please Kathrynn. I only know that you can have friends in the group and not in your main friend list. Also you can go to friends and tick do not show in your news feed.
Any more help would be appreciated
Our group is secret
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Hello Gillyone,
I was very interested in your post and agree with you. We need to distinguish between fact and opinion otherwise everything becomes confusing.We are not doctors and have to be careful what we say. I was glad to see that you are still posting as I enjoy your posts.
Here in England, I think people are getting back to reality after months of general hysteria.The old country is in a mess and no one seems to know how to solve the problems.
I am glad all is well with you. I have now gone past the seven years since diagnosis, but take nothing for granted.
Greetings from back home.
Sylvia.
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Hello bak94
I just wanted to say that I hope all goes well when you have your surgery. I hope after that all will go well and that you will be able to get on with your life relatively from hospital visits.
Wishing you all the best.
Sylvia
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CS-I have not had surgery yet, so I will let you know after October 15th. The doc said it is a very easy recovery by doing the robotic method, most only miss a week of work!
Hi Sylvia! I need to visit your thread! I miss you:) You always post such good info!
Bernie-I think I am finally getting it:) Most of my peeps on facebook know about my cancer, so I don't care if it is mentioned, I just don't like my deepest darkest secrets known:) Not that I really have any, I am pretty much an open book. My poor clients at work have to listen to me when I am in a mood, and they get to see my crazy hotflash sweats! How emabarrising is that?! Just a note to those that are still friends on facebook, I will not give away your bco identity or speak of cancer unless it is brought up by you:) It is fun seeing all the non cancer stuff! We do all have other interests than cancer, thank goodness, even though the cancer likes to take up so much room in our thoughts.
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Bak, I am much less worried about any cancer stuff showing up on my page now that I am hopefully finished with active treatment. My big fear was that I would lose clients because they thought I would not be able to complete my work on time due to treatments. That's so funny - I'm pretty much an open book at work but it's my poor daughter who hears me rant and talk about hot flashes. We work outside together a lot and it has been a very hot summer.
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I am off to New York City tomorrow morning!! I am so excited I can barely stand it!! I will takes lots of pictures and try to post them when I return!
I wish a happy weekend to everyone!
Sending extra good thoughts and big hugs to Inmate and Hope!
If anyone has any good tips for NYC, please let me know!
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NYC is a wonderland! I highly recommend doing a structured tour allowing you to see as much as possible in a short amount of time without getting stuck in traffic everywhere.... If you like Italian (my fav!), I recommend Carmin's on 44th Street. Excellent pasta and wine menu! Have fun and dont talk to strangers :-)
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Hi everybody. I just got home from a few days in San Antonio. A trip there has been on my "to do" list for a few years now. Had a fun time but really tired tonight. And talk about HOT!! 102 degrees every day. When I was going through tx, my Onc told me I would not be able to tolerate the heat ever again. She was right. And put a hot flash on top of it all aaaccckkk!
Took me a long time to catch up on all the posts here on the TN thread. Sorry that I wont be joining in on the facebook thing. Hopefully you gals that are doing it won't leave us here BCO. I am also on the Illinois thread and what they do there is have an email list. One person on the thread started it by having the ladies PM her with email addresses and any other info they wished to share (full name, address, birthday, telephone number) Then a group email is sent so everyone has the contact info. IT is used only for sending info for the various get togethers/parties/lunches. And also to share news when a sister is not doing well and needs extra support. The contact list is NEVER used to send jokes or things of the like. Just an idea. I know having a mailing address is nice when you just want to send a hand written note of support and cheer. And sadly when a condolence card is needed.
I cannot remember who was posting about sewing things for kids....Could you please post it again? I can sew and would like to see what this project is about and decide if I have enough talent to do it.
Inmate, sorry this chemo is so hard on you, glad to hear that the skin mets seem to be responding.
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Tif....I am trying to talk a few gal pals into a trip to New York City! I will be listening to all the recommendations!
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NYC---how exciting for you TIFJ...have a blast!!
today I was a walking hot flash. Had to work today as my son was on a cruise with his wife ( they worked it all out finally so stress level has gone way down on that front
) It was unbelievably busy and I have to wear a compression sleeve on both of my arms as well as a crazy knit compression glove on my hand and I could barely stand it all day. I will be sooooo mad if my period comes back and I have to do this all over again. I worked 10 hours on my feet and my whole body is sore now. Not like the old days when I could go forever and not feel it. Guess the chemo and everything else has just taken it's toll on me for sure. Not to mention getting older just stinks. It is hard to manage 23 employees and keep morale up when you have no time to breathe the entire day. love what i do though so that makes it all worth it.Maggie
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Navy Mom - I believe you are referring to me and sewing for kids. The kids camp is called The Painted Turtle. You can get the pillow and quilt requirements from their web site. I'm making quilts similar to ones I found on maryquilts.com. called "My favorite quick donation quilt." Mine are slightly smaller to comply with the camp's needs. The camp is a Paul Newman camp for medically fragile kids and their families. I hope you find this endeavor as worthy and fun as I do. Jan
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Thanks, Jan. I just checked out that website. I think i can handle it! And I will be forwarding the info to a gal pal who has a wonderful talent with a sewing machine to see if she wants to whip up some turtles and quilts with me.
Have a wonderful Sunday, everyone. First Sunday for Football. Go Packers!
Thinking Of Jenn 3 today...She just loved her team..The Saints.
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Hello bak 94,
Thank you for your kind words. I miss you as well. You made quite an impression on me.You have been through such a lot. Do pop in and see us from time to time. You can offer a lot of hope and encouragement.
Fond thought are coming your way.
Sylvia.
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Hi everyone anyone 12 years out with local recurrence?
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Hi anyone had local recurrence after 12 years or more tnbc?
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Hi to you too, Sylvia. I haven't been on your thread for a while. In fact I don't post very much any more, but can't quite break away entirely.
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Maggie: I JUST got my period back after not having it since January 1st and having ALL the symptoms of menopause - including the terrible hot flashes. I won't tell you how exciting this is.........GGRRRRRR.
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Hello gillyone,
It was nice to hear from you. I can understand that you do not post as much, but cannot quite break away!
Please pop in and say hello on our UK thread from time to time. I was rereading the earlier pages of the thread and you and I, along with a few others had quite a dialogue going. We are discussing some important issues at the moment.
Wishing you all the very best
Sylvia.
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I have to share something that was asked of me the other day. I was getting my nails done by a friend at her shop. I was talking about my upcoming mammo, then she asked this question. If my cancer were to come back would I go through treatment again. I was really taken aback. I said of course I would.. I would fight until, I could not fight anymore. I wonder why she asked this? Seemed an odd question.
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Maybe she has heard of people that to them the treatment was worse than the disease...or she just was curious..
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Lory - Or maybe it was just one of those stupid, insensitive questions friends sometimes ask. I'm sorry it has stuck with you. I can recall off-the-wall questions friends have asked me. Grrr ...... I hope I haven't said insensitive things to people in the past. But I probably have, just not called on it. Jan
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I think y'all are both right. I have heard people say "they heard treatment is worse than the disease".. my comment, death would be worse. I will fight like hell! People just blink back.. no words, just quick blinking.. lol
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