Calling all TNs

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  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited November 2012

  • CatWhispurrer
    CatWhispurrer Member Posts: 193
    edited November 2012

    For those prone to yeast infections, try Caprylic Acid capsules that you find in a health food store.   I used to be very prone to yeast infections until my PCP told me about this supplement.   It used to be that I could not take an antibiotic without getting a yeast infection, even if eating yogurt every day.  Now, when I feel one coming on, or when I am on antibiotics, I take the Caprylic Acid every day and it staves it off.   None of my other doctors have ever heard about it, but it works.

    Reality - have you looked for trials that have new drugs?   If you don't think the current drugs will work, maybe try something else....  Praying for you.   ((((Hugs))))

  • Hopex3
    Hopex3 Member Posts: 142
    edited November 2012

    Thanks everyone for advice on the yeast infection. Really appreciate all of you! I really don't know who I could go too with all these questions and thoughts!



    Reality: Big hug to you!



    Bernie: great laugh, thank you!



    DH and I are going to buy the turkey now. Hope I can walk around the store without waddling. Hurts to wear pants...hmmm...

  • gillyone
    gillyone Member Posts: 495
    edited November 2012

    Bernie - the Christmas gift post is a timely one. Something for us all to think about.

  • Luah
    Luah Member Posts: 626
    edited November 2012

    Netty: Minxie has provided an excellent explanation. Hope it helps. One thing I would add is that, yes, generally with TNBC the longer between first diagnosis and recurrence the better... as it suggests the chemo may have done some good and the cancer is somewhat less aggressive.  

    Reality: Thinking of you and hoping the new drugs work their magic.

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 987
    edited April 2014

    Hi Everyone!

    I got this and just had to post it for you all as well!

    FREE Nutrition and Recipe Book:

    There is an amazing 330 page book you can download about nutrition that has some fabulous easy recipes.  It is 330 pages, and all you have to do is supply your e-mail address.  The book retails at $24.95 and you can opt to have it downloaded to your kindle, ipad, pdf file, etc.  Here is the link.  I've just learned how to use up all the veggies in the fridge with sweet potatoes!

    Recipes start on page 262.  

    http://www.integrativenutrition.com

  • OBXK
    OBXK Member Posts: 689
    edited November 2012

    Debra - thanks for the heads up!

    I just started a new cookbook "Eating well through cancer"

    It has recipes for chemo days, constipation, low RBC, etc.

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 987
    edited November 2012

    OBXK - I have the same book as you!  My insurance company is contracted with a wellness group, and when they found out my diagnosis they mailed me this book.  My husband and I took it to every chemo treatment and it gave us something to do and we would plan which recipes we would use!  I still refer to it for ideas.  

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited November 2012

    Anyone heard of this??

    Keeping the pH of our blood around 7.4 is one of the primary secrets to longevity.

  • queenkong
    queenkong Member Posts: 48
    edited November 2012

    Cocker Spaniel - I've seen the baking soda thing around the net. I add it to my water and drink it sometimes. The flushing directly I read about too. It seems hoaxy but could be effective. I know of no one oersonally that has tried it.

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited November 2012

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited November 2012

    Hi Ladies

    On reading the posts this freckin cancer causes so many problems. My heart goes out to all of you going through treament.  There always seems to be so much to be concerned about  whether you are having treatment or have gone through it,  in some cases more than once.  I am so over the big 'C'.  It steals your body, your mind and your life and leaves you with hardly any hope. When will we get a cure, a proper freakin cure and not half hearted attempts at it.  So many trials go on but nothing for us at the moment or in the near future.   I am so sick of it.  

    On the home front I am back at the office, have been for two weeks but have still got the what if's.  So scared to plan and scared not to plan.  Off for a mammo on the right breast tomorrow and my stomach is already in knots.  When will this end so that we can pick up the pieces with confidence and start to live without worry again. It seems to be never ending.

    Love to all you ladies and hope your treatments and side effects are few.  Annie     

          

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited November 2012

    Love to you all

    <3 @[408379455885205:274:Info at Internet] <img class=" width="398" height="308" />

  • navymom
    navymom Member Posts: 842
    edited November 2012

    BERNIE!!!!!  Have you been peeking in my kitchen window????  I was laughing so loud that my DH wanted to know what all the noise was about!  Thank you, ladie, for starting my day in such a funny way.

    Been off the boards for several days.  I am trying to read and carcth up.  So sorry to hear that so many are stuggling.  Saying prayers for all of you.

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited November 2012

    Bernie - LOL!  It seems so true!

  • christina1961
    christina1961 Member Posts: 450
    edited November 2012

    http://www.cleveland.com/metro/index.ssf/2012/11/breast_cancer_vaccine_research.html

    Some good news - I've read about this doctor and his research. I'm glad to see he received more funding. 

    Annie, I understand.  I'm starting to get anxious because my three month oncologist visit is coming up the last week of this month.  I just saw my breast surgeon last week. I haven't had my port flushed in three months which is terrible but I avoid going to the chemo room.  I'll get it flushed next week when they draw blood for my tumor marker tests which I wish I had gotten already.  I hate waiting after the appointment to get the results.  They went up a point or two last time but still well within normal range.

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 987
    edited November 2012

    Sanjay Gupta, MD Medical Correspondent for CNN, said that with the Moonshot Project they expect to be able to cut the death rate in half from TNBC within a couple years.  It's a 10 year project, so it was nice to see that perhaps the TNBC community could see some real advances within the next 24 months.  Let's pray for that!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited November 2012

    CS - good luck with your mammo.  Thoughts with you.  

    Yes Bernie - thanks for starting the day with a chuckle.

    Hugs to all xxx

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited November 2012

    Hi all my check up is next monday.  Hoping the can do something about the truncal lymphedema.  

  • onvacation
    onvacation Member Posts: 521
    edited November 2012

    Good evening ladies!  I have my first mammogram tomorrow since diagnosis.  I am a bit nervous!  I hope they don't make me wait too long for the results!  Also have my port removal scheduled for Dec 7th.  Live goes on I guess!

    Gearing up for cooking for Thanksgiving!  I am thankful to be here, and thankful for this board and all the support!

    HUGS!

  • 5thSib
    5thSib Member Posts: 119
    edited November 2012

    I really appreciate all the posts -- the advice, the encouragement, and the frustration. Everyone is real and that is important. I'm a little frustrated with hearing "oh, breast cancer is so curable now." It doesn't feel that way when it happens to you especially with TN.



    Got my port in today. It is pretty sore. Prescription pain meds make me sick so I won't take them. it may be a long night. Maybe a Tylenol PM will help.

  • onvacation
    onvacation Member Posts: 521
    edited November 2012

    Shirley - hope the tylenol help with the port pain!

  • Babs37
    Babs37 Member Posts: 320
    edited November 2012

    Stuff you didn't know, you didn't know!

































     

    Men can read smaller print than women can; women can hear better.

    Coca-Cola was originally green.

    It is impossible to lick your elbow.

    The State with the highest percentage of people who walk to work:Alaska.

    The percentage of Africa that is wilderness: 28% (now get this...) 

    The percentage of North America that is wilderness: 38%

    The cost of raising a medium-size dog to the age of eleven: $ 16,400 

    The average number of people airborne over the U.S. in any given hour:61,000

    Intelligent people have more zinc and copper in their hair.

    The first novel ever written on a typewriter, Tom Sawyer.

    The San Francisco Cable cars are the only mobile National Monuments.

    Each king in a deck of playing cards represents a great king from history:
    Spades - King David Hearts - Charlemagne Clubs -Alexander, the Great Diamonds -Julius Caesar

    111,111,111 x 111,111,111 = 12,345,678,987, 654,321

    If a statue in the park of a person on a horse has both front legs in the air, the person died in battle. If the horse has one front leg in the air, the person died because of wounds received in battle. If the horsehas all four legs on the ground, the person died of natural causes.

    Only two people signed the Declaration of Independence on July 4,

    John Hancock andCharles Thomson.

    Most of the rest signed on August 2, but the last signature wasn't added until 5 years later.

    Q. Half of all Americans live within 50 miles of what?A. Their birthplace

    Q. Most boat owners name their boats.

    What is the most popular boat name requested? A. Obsession 

    Q. If you were to spell out numbers,

    how far would you have to go until you would find the letter 'A'?
    A. One thousand

    Q. What do bulletproof vests,fire escapes,

    windshield wipers and laser printers have in common?
    A. All were invented by women.

    Q. What is the only food that doesn't spoil?
    A. Honey

    Q. Which day are there more collect calls

    than any other day of the year?
    A. Father's Day

    In Shakespeare's time, mattresses were secured on bed frames by ropes. When you pulled on the ropes, the mattress tightened, making the bed firmer to sleep on. Hence the phrase...'Goodnight , sleep tight'.

    It was the accepted practice in Babylon 4,000 years ago that for a month after the wedding, the bride's father would supply his son-in-law with all themead he could drink. Mead is a honey beer and because their calendar was lunar based, this period was called the honey month,which we know today as the honeymoon.

    In English pubs, ale is ordered by pints and quarts... So in old England , when customers got unruly, the bartender would yell at them 'Mind your pints and quarts, and settle down.' . . .It's where we get the phrase 'mind your P's and Q's'.

    Many years ago in England , pub frequenters had a whistle bakedinto the rim, or handle,of their ceramic cups.When they needed a refill , they used the whistle to get some service. 'Wet your whistle' is the phrase inspired by this practice.

    At least 75% of people who read this will tryto lick their elbow!

    YOU KNOW YOU ARE LIVING

    IN 2012 when...


    1. You accidentally enter your PIN on the microwave.

    2. You haven't played solitaire with real cards in years.


    3. You have a list of 15 phone numbersto reach yourfamily of three.


    4. You e-mail the person whoworks at the desk next to you.


    5. Your reason for not staying in touch with friends and family is that they don't have   e-mail addresses.

    6. You pull up in your own driveway and use your cell phone to seeif anyone is home to help you carry in the groceries...


    7. Every commercial on television has a web site at the bottom of the screen.

    8. Leaving the house without your cell phone, which you didn't even have the first 20 or 30 (or 60) years of your life, is now a cause for panic and you turn around to go and get it.


    10. You get up in the morning and go on line before getting your coffee.


    11. You start tilting your head sideways to smile. <wlEmoticon-smile[1].png>:)

     

    12 You're reading this and nodding and laughing.


    13. Even worse, you know exactly to whom you are going to forward this message.


    14. You are too busy to notice there was no #9 on this list.


    15. You actually scrolled back up to check that there wasn't a #9 on this list
    .


    ~~~~~~~~AND FINALLY~~~~~~~~


    NOW you’re LAUGHING at yourself!

    Blessed are they who can laugh at themselves, for they shall never cease to be amused!"

     

































  • OBXK
    OBXK Member Posts: 689
    edited November 2012

    Good luck to all of you having tests. Remember the odds are in your favor.



    Bernie, thanks for the smiles.



    Annie - Make plans!!! And plan to visit me!



    I ordered a mattress topper for my new deluxe bed. I needed a little padding for my shoulder pain. It arrived today. I thought the sewn pockets would keep the foam fill from shifting. It felt like pockets of rocks! So I stole the foam egg crate from DH's bed, added it to mine and gave him the new lumpy one ;)



    Tomorrow is my last day to feel good for a couple of weeks - I wish the weather was nicer - cold wind and rain here.



    Take good care...



  • Hopex3
    Hopex3 Member Posts: 142
    edited November 2012

    Onvacation: good luck with your mammo tomorrow. Will be thinking of you.



    5thsib: funny, someone just told me today, oh, you will be fine, breast cancer is curable.

    And just kinda waved it off. They have no idea.



    Take care everyone. Your all in my thoughts and prayers as we travel this road together.



    Erin

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited November 2012

    A couple had been married for 50 years.
    They were sitting at the breakfast table one morning when the wife says, 'Just think, fifty years ago
    we were sitting here at this breakfast table together.'
    'I know,' the old man said. 'We were probably sitting here naked as a jaybird fifty years ago.'
    'Well,' Granny snickered. 'Let's relive some old times.'
    Where upon, the two stripped to the buff and sat down at the table.
    'You know, honey,' the little old lady breathlessly replied, 'My nipples are as hot for you today as they were fifty years ago.'
    'I wouldn't be surprised,' replied Gramps. 'One's in your coffee and the other is in your oatmeal

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited November 2012

    Hi Ladies

    Good one Bernie.

    Karen had my mammo today. They even took one of under the arm on the breast cancer side so I was quite pleased about that.  The radiologist said he can't see anything but it still has to go to the big guns for checking so I hope this means good news, keeping my fingers crossed.  Re my plans I won't have any leave again now until the middle of next year (June) when I get another four weeks as I took the five weeks I had left for my radiation. But I haven't forgotten my visit and will be aiming to come sometime next year, god willing.  Re your hubby losing his egg crate, I would do exactly the same and the old feller probably wouldn't even notice or say anything if he did notice.  I would have told him off if he did that to me lol. You do realize you won't ever get out of that lovely new bed now and will be  in your jammies all day, lucky sod.  I have to get into my uniform every day now I had forgotten what it felt like.  Going down to work is making me tired by the end of the week and I go to bed now at a ridiculous time, early evening, but it is good to talk to all my work mates again.

    Yep ladies people do think cancer is something you easily get over and are cured by especially if you are looking well but they have no idea at all what people suffer through. 

    I just cannot for the life of me drum up any enthusiasm for anything at the moment.  I'm supposed to be making lots of christmas cakes but have only done two. Until I get these tests out of the way everything seems too hard.  I go for my ultrasound of the ovaries and liver this coming Friday and I'm already like a cat on a hot tin roof, so jumpy and can't seem to settle to anything.

    But still thinking of you all and sending lots of love and big hugs.  Catch you later. Annie   

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    edited November 2012

    Hello Babs37

    I really enjoyed all that information on your recent post and I hope you will not mind that I have pasted it onto the UK TN thread for their enjoyment.

    It was nice to see someone posting from Quebec. My husband and I lived in Montreal for three years in Pointe Claire and Dollard des Ormeaux on the West Island. Montreal was very interesting. We also liked Quebec City.

    I hope you are doing well since your treatment finished.

    Wishing you well.

    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    edited November 2012

    Hello Cocker_Spaniel

    I was interested in your post about combating cancer with baking soda. Sometime ago I posted information about this on the TNBC UK thread. I read about it on the CANCERactive site and I have faith their information. I do take a teaspoon of baking soda (in the UK we call it bicarbonate of soda) with a little warm water. I figure it cannot do any harm. There are theories about fungal problems and breast cancer. When I was first diagnosed and reluctant to have orthodox treatment, I got in touch with a well known herbalist here and he believed that there was a connection between breast cancer and the yeast infection candida. He prescribed wormwood tablets and the immune boosting astragalus capsules. I think they helped, although I did have orthodox treatment in the end.

    I wish you well and if it is of any encouragement to you, I was diagnosed seven years and five months ago with a large 6cm+ TNBC and had a mastectomy of the right breast, six months of chemotherapy before this and three weeks of radiotherapy. I am sti;l alive to tell the tale.

    Warm greetings to you in New Zealand from the UK.

    Sylvia

  • Luah
    Luah Member Posts: 626
    edited November 2012

    Sylvia, Babs: I was born and raised in Montreal. Lived in Rosemere then Beaconsfield on the West Island. Cheers to you both.