Calling all TNs
Comments
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Really glad to hear from you, Hope60. No power or heat for 13 days must have been terrible - as if you weren't going through enough. Glad everything is back on. Good luck with your chemo tomorrow - thinking of you and everyone undergoing treatments or dealing with SEs this week.
Doreen
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Fickel...glad you found us....and yeah we are all scared at some point....glad you are having that surgery soon...you will feel so much better once that crap is out of there...
Bernie..thanks again for the info....my mom's b-day is today...she is 78! and doing very well I may add
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I have arrived home from our super fun, energy packed weekend at the waterpark. If only I have half of my boys' energy......I had SO much fun as did my DH and the boys. We just had a blast and I woke up this morning, on my 1 year cancerversary of diagnosis, snuggling my youngest son. Today has been perfect, a great reminder of why I kept fighting through my SE's and all my tears over this last year. My reasons for living. Thank you ladies for helping me through this first year. You're all very special and dear to my heart xo
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Hope..ugh...13 days...wow...I think I would have been hysterical....
Born..I hear ya with the "moments" with the family...very sweet...enjoy them...they grow up way too fast!
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Hope: On top of chemo, how awful to deal with 13 days of no power, and not being settled. Glad to hear things are looking up.
Kymn: So good to hear from you again. I remember your earlier posts here and on the Calling all Canadians thread. Hope the personal sh#t you've gone through is getting sorted out, and you're feeling better about things. Congrats on the all-clear.
A warm welcome to all the newbies.
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Also, Born, what a great weekend. I have 3 boys too -- though my sons are more grown up than yours (23 and 20). Nothing I like better than an evening, day or weekend with my men.
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hope--errrrr 13 days is aweful...I understand it too well..2004 Frances and jeanne hit us 3 weeks apart. We had power for 2 days after 2 1/2 wks without it only for jeanne to come and knock it out for 2 more weeks. But--I was not in the middle of fighting the beast then so i only hope that this can settle down for you and you get some relief soon!! May your chemo go well and kick this crap out to the curb!
I am resting great at home. have to go to hyperbaric wound care for the left side where the flap failed. 'the doc had to pull it so tight that she is worried that it will open up so need to get it healed quickly. Off my pain meds for 3 days now and feeling pretty good. My rightie looks and feels amazing...a very pretty boobie if I say so myself. My stomach is going to be so flat now too!..Just gotta get strong and heal before March when she can try again with another "donor" site!
I really do not know what I would do without all your love and support throughout this whole ordeal. To have such strong women behind me has made it so much better to cope with. I love you all
Maggie
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I have a question only you ladies can answer - how do they do a mammogram (on the "no boob" side) when one has had a mastectomy ?
Doreen
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DorMac- They don't do mammograms on the mx side. For me, they do an US on that side and I do an mri once a year.
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Hope60 - good to see you post! So sorry you have had such a rough go. So glad you can get back to your own bed.
Maggie - glad you like your "good" boob. Where will they get the tissue for the do-over! Speedy recovery wishes.
Bornto - your holiday sounds like fun. Wishing you many happy returns of the day.
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I am trying to recover from my neulasta shot. Bone pain from hell.
Taking 2 vicodin every 4 hours. It feels like back labor and every tooth in my head is throbbing. The clariton does nothing for me. I'll have to remember to start pain meds earlier, next go round.
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OBXK - Hugs and comforting thoughts!!!
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obxk...neulasta sucks!! I would take emsom salts baths to help a little bit...would take any relief I could get! Hang in there my dear. They will use my big ol butt for the next flap. SGap is the name of the procedure. she will take it from the top of both sides of my buttocks. i am gonna be one hot mamma when she gets done with me. i chose diep to maybe get some relief from my LE and so far that has definitely helped.
Maggie
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I just had a mammo last week and had a BMX. I didn't feel a thing and it was super easy. I do have a bit to skin there and they just had me lean forward and I did whatever she said and it was fine.
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Babs37 - The requisition I have says "bilateral mammogram" and, according to borntosurvive, in some cases they do seem to try a mammogram. I would certainly prefer an ultrasound and MRI as I don't trust mammos at all to find TN. A lot of women on this site have had mammos within 6 months to a year before they find the tumours themselves.
My younger sister had a mammo 7 months before she found her own tumour and, unfortunately, it was too late and she passed away from TNBC. Because of our family history (tested negative for BRCA gene mutation), I volunteered for a clinical trial for examastane. Being on a clinical trial meant that I had very intense follow-ups including MRIs and that's how mine was found at a very early stage. Now, having actually had TNBC, a mastectomy and chemo - I no longer qualify for MRIs. I practically begged my oncologist for MRIs but, apparently the "new and improved" Ontario Breast Screening Program has determined that I am NOT at high enough risk! Screw 'em! I am going to PAY for MRIs myself 'cause I am sure that if it recurs, by the time they find it, it will be my death sentence.
Sorry for the rant. I have, for the most part, stayed positive throughout this whole experience - mainly because it was found so early and I'm pretty sure they got it all with the surgery and chemo. But I really feel abandoned by this Ontario Breast Screening Program. Luckily, I can afford MRIs but what about those who can't?
Doreen
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DorMac- My oncologist told me at my last visit in september that an US is as effective as an mri for BC. Maybe you could ask for an US. I have to say that I am VERY happy they don't make me do a mammogram on my mx side. Just thinking about it makes my knees weak...
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Bernie, Poppy Day is a wonderful tradition. I always think of my father and his older two brothers on this day. My oldest uncle was in a horrible tank battle in France in WWII and would never talk about it. They lost many that day. My parents were married during a weekend leave; Dad and his other brother served in the Navy in WWII.
Hope, very good to hear from you. I have a friend on Long Island. We know she is ok, but not sure if she has power back or not.
I just get a mammogram on the remaining side - no ultrasound on the MX side, wonder why? I see the BS tomorrow, then have my oncologist appointment next week. Starting to get a little antsy.
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OBX...feel your pain on the neulasta shot.....I hated that freaking thing..hated it hated it hated it...did I say I hated it...??? too afraid to refuse it though dang it...had a reaction to a flu shot a couple of weeks ago and I felt that same pain...brought back those freaking memories of that shot..my skin hurt, my bones hurt..nasty stuff
I still am very uneasy having just mammos and not mris on my breasts...even though they have been fine..I don't trust them...but I do count on the manual exam...my boobs have been felt up so much I'm sure the docs know them better than my husband...!
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Babs - I will ask my oncologist about an US but I doubt the OBSP will approve it either. I might feel better about a mammogram if we weren't talking TN. I guess they figure if I got it once, what are the chances that I will get it again? I'm sorry, 1% is too much for me.
Doreen
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Today's giggle. I can remember when I was young enough to do this!!
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Nothing like waking up to morning giggles. Thanks for the wakeup smiles!
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Dormac: For the past 2 years, I've been able to get annnual MRIs based on my onc's requisition. Last year, she warned me I might not meet new criteria, but I got the appointment. This year, now three years out, I'm not so sure.
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Thanks for the giggles ladies - as Michelle said great way to wake up to morning giggles.
Michelle - happy to see you posting - think of you often.
hugs to all xxxx
I am off for rad #27/28 today - nearly done... and that would be well done - pretty sunburned but its OK.
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I forgot to mention that my mastectomy bathing suit came in handy for our room key/card.....I just slipped it right in the pocket
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For born -
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I was discharged from the hospital today. I'm having such a hard time. I'm feeling somewhat better but the leg pain is killing me. I had Abraxane alone (same as taxol but no steroids) last Wedesday. It was my first of 4 of this after 4 of AC. I don't know if the leg pain is from the neulasta shot or the chemo. I have to go get my daughter for school more info later.
Pain is like an 8 or 9 on that scale they keep asking me where I used to say 2 or 3.
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Tazzy - woo hoo! One more day. I remember how wonderful it felt not to have my days, interrupted by that appointment.
DorMac - I bought my PET scan. If you need peace of mind, it's worth the cost.
QueenKong - I hope you get some relief soon.
Bernie &Annie - thanks for the smiles.
Feeling better today. A NP friend, suggested that I ask for a 72 hour patch, for the neulasta shot, next go round.0 -
Obxk...I hated neulata....the pain kept me up at night.....they didn't give me vicodin...I should have asked....hope it will be gone in a few days......take good care.
Hope...how awful...2 1/2 days was enough for me....couldn't wait to get water back and shower. So sorry.....
Ladies I had an anxiety attack this AM. Not sure why. Today is the anniversary of my last bit of treatment, radiation, don't know if that played any role and today my dear and close friend is starting chemo for pancreatic cancer. Going to paint as I have to get work to 5 different galleries in the next 3 days....and I have NO TIME!!!!!
Hoping everyone finds a small glimmer of joy in their day.
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Susan I sometimes get anxiety attacks too, I think after everything we have been through its inevatable that it will come out here and there. Good luck with your painting.
Have a great wednesday girls
hugs Kymn
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