Take our poll: Caregivers, what do you find most difficult about caregiving?
Weigh in: What are the best and worst gifts for people with breast cancer?

Calling all TNs

1…642643645647648…1190

Comments

  • Loafer
    Loafer Member Posts: 56
    edited January 2013

    Great to hear your story Lovelace! I think we would all put off an appointment to go to Fiji!! Living vicariously through you! Hugs!

  • Lovelyface
    Lovelyface Member Posts: 563
    edited January 2013

    Fiji - Oh! I love you!  I feel like I just came back from paradise.  We stayed at a 2-star hotel for a week as the beach there was mostly untouched by humans, just as it was when I was there.  It is my motherland.

  • SherylB
    SherylB Member Posts: 147
    edited January 2013

    Hi all, reading and listening to TV video/music and heard this song. While I already enjoyed the song I hadn't really heard the lyrics until this am. Hope it brings you positive feelings and peace as it did me.

    Phillip Phillips was the American Idol 11 season winner and these are the lyrics for his song “Home”

    I felt it said what we are feeling so clearly.

    Hold on, to me as we go
    As we roll down this unfamiliar road
    And although this wave is stringing us along
    Just know you’re not alone
    Cause I’m going to make this place your home

    Settle down, it'll all be clear
    Don't pay no mind to the demons
    They fill you with fear
    The trouble it might drag you down
    If you get lost, you can always be found

    Just know you’re not alone
    Cause I’m going to make this place your home

    Settle down, it'll all be clear
    Don't pay no mind to the demons
    They fill you with fear
    The trouble it might drag you down
    If you get lost, you can always be found

    Just know you’re not alone
    Cause I’m going to make this place your home

    Hang tough, Sheryl

  • purple32
    purple32 Member Posts: 1,767
    edited January 2013

    RE: BREAST BLEND

    http://www.dreliaz.org/recommended-product/for-breast-cancer/

    Just an FYI for TN.
    It is being touted for use for triple negatives ( FEB 2013 Prevention mag) as a Medical breakthrough.

    Claims that it supresses Triple Negative cancer and also reduces spread to lungs by 70%. I know it contains DIM, as well as other ingredients.

    Pls do your own careful/thorough research.

    Hope this helps someone !

  • netty46
    netty46 Member Posts: 68
    edited January 2013

    minxie my drain was horrible it was pressing on my rib.  That was my only pain not even the breast hurt but they placed that thing in a bad spot and it pressed on my rib.  Horrible

  • Titan
    Titan Member Posts: 1,313
    edited January 2013

    Hey Lovelyface!  so good to hear from you and that you are doing well....agree 100% to postpone your dr visits until you come back from vacation....

    January 19 was my 4th year anniversary of finding the f''ng lump...ya know..I did think it about it some..but then I just forgot about it...my daughter has had some health concerns..nothing major but I feel so bad that she freaks out about what is probably nothing because of ME!  I hate that....she had a lump in her jaw area which turned out to be a lipoma...now she has the flu....plus she had a sinus infection and with the antiobitics got a yeast infection...one thing after another..poor kid...

    Minxie..woo hoo on getting out the drain.

    Thanks purple on the info...I still don't take curcurmin...but I'm thinking about it.

    And to the rest of you..have a good week...January almost over...enough of the snow and cold already

  • Lauren15
    Lauren15 Member Posts: 52
    edited January 2013

    Hi all, I'm still in the hospital since Saturday, and I think they will keep me here for a while.  I think they will take the port out.  Ive been holding a 102 fever (without tylenol).  I'm scared shit though, I am short of breath, and they did labs on me and think I may have a blood clot causing it.  I'm getting another CT scan soon.  Of course I googled it, and it's so scary, especially for cancer patients.  I'm going to try to find another group that may know more, when is the bad news going to stop!  If anyone knows anything about this, please let me know.

  • minxie
    minxie Member Posts: 239
    edited January 2013

    Down to 2 nits yesterday, progress...

    Did I tell you guys about my cruise? I've put 1/4 of my 401 K into a Roth so I can take from it without penalty, just taxes. I booked a polar exploration cruise for my oldest son and I this summer. I've always wanted to visit the Arctic, and since I'm not sure if I'm making it to retirement, why not have fun now? It should be pretty amazing. Fiji does sound nice though, Lovelyface!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2013

    Minxie been waiting for this news for ages.   I am so glad you are doing something just for you. Forget everything and just enjoy.

    Lovelyface was wondering where you were.  Just living it up in Fiji you lucky girl.  Glad everything is going well for you. Nobody could think of appointments while you are in Fiji,   so glad you put it on one side  and had a great relaxing time.

    Titan four years, yay but sorry to hear about your girl being poorly.  And so glad the lump was a lipoma.  Great news.

    Its so hot here all we feel like doing is lazing around and drinking lots but gotta bath my little Chloe so she looks beautiful again cause she dug a big hole, probably to bury everything she steals!! 

    Got an appointment tomorrow with my breast surgeon and due for my poor defunct port removal on the 5th. So nice to have something to look forward to!! 

    Have a good day lady and those with snow, don't get too cold. Annie

  • Titan
    Titan Member Posts: 1,313
    edited January 2013

    Hallelujah on getting that port out Annie...that is awesome! 

  • navymom
    navymom Member Posts: 842
    edited January 2013

    (((Lauren)))  I did not know you were having such troubles.  Will hold a good thought for you to get past this quickly.

    Nice to see you again Lovelyface.  I am liking your style, Minxie.

    Good Morning and hello to all of you!  I am feeling happy today.  Finally skyped with Navyson after 17 days of no communication.  He has been working anywhere from 14 to 20 hour days.  His comment was that there is alot going on all over the world that needs military monitoring.   OH GEEZ.  Anyway, He is Tired but OK and just doing his "job"  

    Love that kid. 

    Hugs to all of you.

  • Luah
    Luah Member Posts: 626
    edited January 2013

    Titan: Big congrats on the 4 years!

  • liv-
    liv- Member Posts: 272
    edited January 2013

    beach walking for over an hour, deluxe.

    lauren how are you going?

  • bak94
    bak94 Member Posts: 652
    edited January 2013

    Hi everyone! Good to "see" you lovelyface, glad you are able to get out of cancerland.

    Minxie-good for you! Go have fun.

    Titan-Congrats on 4 years!!!! You are truly an inspiration, with all your running, keeping at it!

    CS-I know it was posted awhile back but that photo made me miss my boobs! Not that mine ever looked like that:) I wasa told I could do reconstruction a year after radiation and that time is coming up but I just do not feel ready to go through a major surgery. My hysterectomy knocked me down quite a bit.

    I am having mental issues:) I can't seem to book my appointment with my oncologist. I am due for Zometa and an exam. I know he will want to scan me and I just don't want the anxiety. Has anyone told their onc that they won't do a scan? Mine seems to like to scan way more than I want to. I understand his thinking, but it is just too much for me emotionally. I still have my port, how long can you keep it? Doesn't really bother me, but does make the skin a bit sensitive where it protrudes. 

    I also have other issues, like really not taking anything seriously. It makes my hubby mad! I don't do what I don't want to do anymore, and sometimes that means a messy house and laziness. I am thinking I need a dose reduction in anti depressant, as I just don't care enough about certain things! I had an accounting exam the other day and it got too difficult, I still had an hour left to finish it and I just quit, turned it in and didn't really care. Anybody else feel like this after treatment?

    Hi Navymom!

    Lauren, it does sound scary, but it is good you are being looked over, as they can treat it. I hope you are feeling better and found more information.

    Ugg, drains!!! Mine were terrible and I had to have them reinseted two more times after surgery! Drains may be the reason I decide not to have teconstruction!

  • christina1961
    christina1961 Member Posts: 450
    edited January 2013

    Lovelyface, I'm glad to hear you are doing well!  I have missed your posts.

    Brenda, It's great to hear from you, too.  I am also struggling with a sense of apathy.  I don't want to do anything right now that involves much effort and am really sick of working.  I can also relate with the scans. My onc doesn't do follow up scans but he does chest xrays and I have put mine off since the middle of December so far.  I hate the scan anxiety so much.  I think I will have time this week to finally get it done.

  • kathyrnn
    kathyrnn Member Posts: 366
    edited January 2013

    Finally at my house, so I have a real computer

    Lovelyface - wonderful to see you.

    Thanks for that info Purple.

    Congrats Minxie and you go girl and take that trip!

    Lauren - hope you have answers soon.  Feel better!

    NavyMom - Skype is the greatest.

    Bak - " I don't do what I don't want to anymore".  Sounds pretty healthy to me.

    Cocker - yay to Port going bye-bye.

    Titan - congrats on 4 years.

    Now, remember I'm poor with my computer skills, but I'll see if I can post the "poker Slut".  There's something in the picture that all my CA sisters will appreciate.  Before chemo, I had the most wonderful hair.  It was wavy, which allowed me to either force it to be straight, or force it to be curly.  (Curly was really easy.) When my hair grew back it was bone straight.  (No complaints, it was good to have hair). This week I was able to make it curl for the first time!  Sounds like a small thing, but it was a reminder of returning to normal!

    This my pre-chemo picture:

    This is the "Poker Slut" (nowhere as racy as Cocker thought) Damn, after seeing the picture, I REALLY can't wait till I can have a face lift.  Starting to do the "turkey wattle" look!

     

    And here is what I really look like!  Bets on who figures out who I am in the picture.

    Kathy I can choose to cry, or I can choose to laugh. I choose to laugh!
    Dx 5/10/2011, IDC, 2cm, Stage IIa, Grade 3, 0/2 nodes, ER-/PR-, HER2-Surgery 11/08/2011 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)

  • liv-
    liv- Member Posts: 272
    edited January 2013

    gorgeous pic and you look great now and before.

    good on you looking forward to face lift  and saying it..

    xx

  • kathyrnn
    kathyrnn Member Posts: 366
    edited January 2013

    liv, the only reason I haven't done it already is that I care for my elderly Mom, and don't feel I should take a risk on surgery that is unessesary while she is alive.  When Mom's gone, I'm getting my boobs fixed and getting me a facelift.  Mom, laughs and tells me to make sure she's buried properly before I rush off to the surgeon!

  • jenjenl
    jenjenl Member Posts: 409
    edited January 2013

    Tomorrow is treatment #3 for me - the 1/2 way point of chemo.  I have a nasty cold that I am fighting so hard.  I have a feeling they might postpone tomorrow by a few days.  My DH is making a wonderful dinner either way - I love being married to a chef :)  He made me homemade chicken noodle soup on sunday.  I have about 4 containters left!

    Any feedback on eyes watering?  I suspect just a SE. 

    Have a good night.

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2013

    jenjen:  taxo-tears... yep just another SE.

  • mags20487
    mags20487 Member Posts: 1,092
    edited January 2013

    jenjenl...yes the tears are normal...mine lasted over a month after chemo was done.  hang in there

    Mags

  • bak94
    bak94 Member Posts: 652
    edited January 2013

    Oh yeah, the tears! Mine also lasted months after finishing chemo!

  • bak94
    bak94 Member Posts: 652
    edited January 2013

    Kathy-you look great! I love the darker hair. Sounds like you mom has a great sense of humor:)

  • Hopex3
    Hopex3 Member Posts: 142
    edited January 2013

    Jenjen..I had watery eyes all the way through chemo. Usually my left side. Chicken soup sounds great. My DH is not a chef but an excellent cook and is making me all kinds of foods.



  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2013

    Hi Ladies

    Titan - another three months and our snow will come.  Not looking forward to it at all except from a picture post card aspect from the window. When does your spring start. I will envy you again.  

    Lauren - hoping you are feeling a lot better now and will soon be home again. Just hang in there. Sending huge big hugs.

    NavyMom - glad to hear you have finally caught up with your son.  He works such long days bless him no wonder he is tired. Know exactly how much you love and miss  that young man but hopefully it won't be long before he is home again. 

    Bak - I can't miss those boobs cause unfortunately mine was never like that in the first place but I am beginning to miss my lefty a bit now. The prosthesis is so heavy and uncomfortable in this hot weather.  I also go through those depressive days such a lot now where I can't be bothered about things and don't want to plan anything.  Just scared I guess of it returning.  I used to love my job but I just don't care about it any more. I'm sick of typing about sick people.  I find I read the cancer ones right back to when they were diagnosed to see how long they have gone with it.  Not healthy I know but I can't seem to stop doing it.  I guess I just want to see if I will last as long as them.  I am dreading winter cause its so bloody depressing and sometimes nothing seems to make sense any more.  I also hate the scans not that my onco does them very often. 

    Kathy - great pictures, great lacy top and great hair.  Jeez I wish I looked like you.  My hair is short still, straight except for the ends at the back which curl  and silver.  I used to have wavy aubumn hair so god knows what happened. I don't suppose you were fats domino in that picture.  I don't know many american artists. 

    Jenjen - yep taxol tears. I still have mine even after all this time.  The only reason I like the lingering side effects is I keep thinking that the treatment is still working for me at least hopefully.

    Where is my OBXK lately.  Hope you are ok Karen.

    Have a great day ladies.  Hope I haven't depressed any of you.  Sending big hugs. Annie

       

         

  • OBXK
    OBXK Member Posts: 689
    edited January 2013

    Annie - hugs.

  • christina1961
    christina1961 Member Posts: 450
    edited January 2013

    Sending you hugs, too, Annie!  Smile

  • bak94
    bak94 Member Posts: 652
    edited January 2013

    Oh Annie, your job sounds rough, probably does just bring you back to everything you went through, and are going through. I don't think I could do that. I also get tired of wearing my fakes, I never thought I would do this, but I just throw on a baggy sweatshirt and leave the house. I run around the house and yard without them and I just don't really care. What is really sad is that since I quit my job I don't think I have put on any make up, even to go out of the house! There was a time that I would not step out the front door unless my hair was perfect, clothing good, and makeup on!

    Hi Christina! I really do need to make an appointment.....Just can't pick up the phone. I have been seeing my primary doc, so that counts a bit right?

  • Loafer
    Loafer Member Posts: 56
    edited January 2013

    Hi ladies -



    Finished chemo 4 weeks ago and still experiencing muscle ache is thighs and arms. Seems to get worse by end of day. How long does this SE last?

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2013

    Annie:  hugs

    xx

Categories

Join Us on Zoom: Upcoming virtual meetups. Read more...
Give your account some personality! Add a profile photo.