Calling all TNs

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  • DorMac
    DorMac Member Posts: 153
    edited January 2013

    This one's a bit long but worth it:

    After 37 years of marriage. Jake dumped his wife for his Young secretary.

    His new girlfriend demanded that they live in Jake and Edith's multi-million dollar home and since the man's lawyers were a little better he prevailed. He gave Edith, his now ex-wife, just 3 days to move out. She spent the 1st day packing her belongings into boxes crates and suitcases. On the 2nd day she had to movers come and collect her things. On the 3rd day she sat down for the last time at their beautiful dining room table by candlelight put on some soft background music and feasted on a pound of shrimp, a jar of caviar and a bottle of Chardonnay.

    When she had finished she went into each and every room and stuffed half-eaten shrimp shells dipped in caviar into the hollow of all of the curtain rods. She then cleaned up the kitchen and left.

    When the husband returned with his new girlfriend all was bliss for the first few days. Then slowly the house began to smell. They tried everything: cleaning, mopping and airing the place out. Vents were checked for dead rodents and carpets were cleaned. Air fresheners were hung everywhere. Exterminators were brought in to set off gas canisters during which they had to move out for a few days and in the end they even replaced the expensive wool carpeting. NOTHING WORKED. People stopped coming over to visit. Repairman refused to work in the house. The Maid quit.

    Finally they could not take the stench any longer and decided to move. A month later even through they had cut their price in half they could not find a buyer for their stinky house. Word got out and eventually even the local realtors refused to return their calls. Finally they had to borrow a huge sum of money from the bank to purchase a new place.

    The ex-wife called the man and asked how things were going. He told her the saga of the rotting house. She listened politely and said that she missed her old home terribly and would be willing to reduce her divorce settlement in exchange for getting the house back. Knowing his ex-wife had no idea how bad the smell was he agreed on a price that was about 1/10th of what the house had been worth, but only if she were to sign the papers that very day. She agreed and within the hour his lawyers delivered the paperwork.

    A week later the man and his girlfriend stood smiling as they watched the moving company pack everything to take to their new home.

    INCLUDING THE CURTAIN RODS.:)

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2013

    Priceless dormac.... never try and get one over a scorned woman - ha ha !!

  • kathyrnn
    kathyrnn Member Posts: 366
    edited January 2013

    "Remission or cure whichever it is its the waiting that kills for me". Cocker, I feel exactly the same. ((Hug))



    Lol @ Nat...very wise advice.



    Karen & Minxie - good to hear you're both doing well.



    DorMac ......PRICELESS!! I am so stealing that!



    Laying here with pre appointment jitters (6 mo appt with rad onc tomorrow). Have 2 lumps I want checked out. One is on my surgical side, so I think it's just scar tissue. The other is in my non-affected breast, but my breasts are so lumpy I should name them tapioca. Hopefully nothing. My weight loss has continued so my primary has ordered CAT scans just to be sure nothing is going on. (He said that the oncologist can work under their theory of not doing unnecessary scans, but he'll order whatever the hell he wants!).



    Congrats and thanks to those who have stopped by to celebrate their milestones. Titan you always inspire me.



    I enjoyed the discussions of change vs no change in lifestyle. I have made changes in my life. This disease has made me realize that life is short and a crapshoot. I now do what I want, whether it be eating chocolate or exercising. (Okay, okay, there's a lot more chocolate going on than exercising, lol)



    LuvRV - hope you're having a great time.

  • kathyrnn
    kathyrnn Member Posts: 366
    edited January 2013

    Titan - I forgot to tell you I was laughing about your "ho boots" and the old fella's at the casino. Great minds must think alike. This week I bought what I refer to as my "poker slut" shirt for my next trip to the casino. (Black lace shirt with a black bustier underneath!)

  • minxie
    minxie Member Posts: 239
    edited January 2013

    Hey guys, checking back in... I had my TE expander surgery on Monday. I forgot how uncomfortable these stupid things are! Pain's pretty bad at times when I move - like a knife in the ribs, I should stay still more, I know, but that's not possible as a mom!

    When I was admitted to the hospital, they wanted 2400$ up front!!! My new deductible plus 20% of surgery. My insurance is getting worse and worse every year. I could not pay it all, so they're going to bill me every month. I couldn't believe it. That ObamaCare or something has to kick in soon because this is insane. I don't know how I'm going to pay for the second surgery in April!

    And the fates continue to rain down crap upon me - yesterday kept my oldest son home to help me out since it was only day 1 after surgery. Instead, after listening to his compliants about an itchy head, I took a close look and found... LICE!!! So instead of resting in bed I was running around buying lice treatment and combing out his hair. Youngest son comes home with dad, one quick look shows he is teeming with lice. I get hubby to look me over, and I have them too! I cannot catch a break. We shaved both the boys down to a 1/4 inch crewcut. But my hair, my beautiful hair that finally 4 years after chemo and baldness is down to my shoulders, lush, thick... I can't bear the thought of cutting it off. So here I am, in pain, can't use right arm, and I'm trying everything to get these miserable buggers off me.

    Someone said I'd laugh about this one day. But today is not that day.

    :(

  • willy5js5
    willy5js5 Member Posts: 122
    edited January 2013

    Head lice is evil. Went through that a couple times when kids were in baseball. Best product I used to get rid of it was tea tree oil. Saturate the hair and leave it on until all the eggs are gone. Wear a shower cap in between picking. You can leave it in for days as it is all natural and non toxic. If the eggs hatch in between picking, the bug dies and cannot continue the cycle. Another helpful tip is to trash bag the laundry and bedding until you are up for all that washing. Gosh the timing is terrible.

  • OBXK
    OBXK Member Posts: 689
    edited January 2013

    Minxie - I wish I could come help you! Lice are a freaking nightmare. Go wash a pain pill down with a nice glass of wine ;)



    Kathy - wishing you the best concerning your lumpy boobs. I love your doctor's attitude! We need a photo of you in your poker slut shirt!



    DorMac - thanks for the funnies!



    Getting a sinus infection. Lucky I was having a shopping / lunch day with a friend with a Rx pad. Started an antibiotic. When I called my onco, it went to triage nurse voice mail. My WBC is super low. Glad I've escaped getting sick until now.

  • Titan
    Titan Member Posts: 1,313
    edited January 2013

    Kathy...love the poker shirt...may it bring you lots of luck..I still admire you playing poker...I just don't have the patience...we are going to the new Columbus casino this weekend.and visiting the son at OSU...I think he is wondering if we are really visiting him or visiting him so we can go the casino..I wonder that myself...lol.

    Oh Minxie..yikes on the lice...don't cut your hair..just kill the buggers...and have the glass of wine

    OBX..blah on the sinus infection...this flu stuff going around is just nasty...I've escaped so far but freaking out about it.

  • kathyrnn
    kathyrnn Member Posts: 366
    edited January 2013

    Minx - nothing laughable about the insurance or the lice. Got a good friend or family member who can help you with your hair and the laundry? (Real friends are glad to be able to help in some way)



    Karen - bless friends with RX pads and booo to triage nurse not calling back. Pt. with a low WBC and an infection is a priority call.



    Titan - I'll see if I can get my friend to snap a shot. ( when I described my poker shirt to her, she did do some serious laughing)



    Good news, doc thinks lumps are just lumpy breasts, but to keep an eye on them. ( at least my breasts have frequent feel ups in my future, even if it's just self breast exam!)

  • gillyone
    gillyone Member Posts: 495
    edited January 2013

    Someone on another thread just told me she visited my website. I am thrilled! If you have little kids or grandkids here is something to listen to together. It is called "A Winter's Day" and has 18 minutes of songs, activities and a story all about winter (of course). A quick link for anyone interested - it is in a public folder at dropbox.

  • 5thSib
    5thSib Member Posts: 119
    edited January 2013

    I start my first of 12 weekly Taxol treatments tomorrow. I have been on the weekly taxol thread and most everyone is saying that this will be so much better than AC. I really am hoping so because AC has been really, really rough.

    I check out the TN foundation site occasionally for the news articles. I haven't tried any of the discussion boards though. They some resources you can download. I also purchased the "100 Questions and Answers about TN Breast Cancer" booklet they were advertising. It has some good information.

    I do recommend the book "Surviving Triple Negative Breast Cancer" by Pat Prijatel. The author is a researcher by profession and has done a ton of research on TN since being diagnosed with it herself. She also has a blog where you can find good information: http://hormonenegative.blogspot.com/. Here is a specific blog to read that gives some very encouraging statistics: http://hormonenegative.blogspot.com/2011/10/tnbc-statistics-of-survival_20.html

  • minxie
    minxie Member Posts: 239
    edited January 2013

    Thanks for all the lice advice, friends! So far today I have tried isopropyl alcohol, tea tree oil, and mayonnaise. And lots of combing. I'm finding finding fewer nits each time, but I know there's no way I can get them all myself. All bedding, pillows and stuffed animals washed. Towels tomorrow, and coats.



    I am soooo sore and tired. What a nightmare. My mom kept offering to come down and help with this surgery but I told her no, it was a minor thing, no need... Looks like the lice had other plans for my recovery!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2013

    Hi Ladies

    what a time you are all having. 

    Dormac that was just so funny. Nothing like a woman scorned.

    OBXK fancy getting sick girl.  How on earth did your friend give you an RX  script.  Here in NZ only doctors or professionals can issue them and the pharmacy would only accept them from those people.  Hope you feel better soon and kick the arse of that flu.  

    Minx my granddaughter had nits once.  My daughter washed her hair and put in and left on a heap of condition then went through her hair with a special comb before washing the conditioner out.  It worked a treat and it wasn't sore for my little one with the comb going through her long hair.  Luckily and unbelieveable nobody else got them.  Hopefully you will get that longed for rest very soon. Yep don't foget the wine!

    Kath whatever next.  Getting your breasts felt up (often), a black poker slut shirt.  I knew you had your eye on someone at that casino.  I might just have to come over and check him out. I'm all for seeing the photo too.

    Annie

    Titan

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2013

    Hey Kath do you look like this in your black bustier.  Just gotta see that photo now lol. May be we all need a wine. 

    Photo

  • SherylB
    SherylB Member Posts: 147
    edited January 2013

    DorMac,

    Thank you so much for putting a smile on my face first thing this am. I love the story, revenge as they say is a dish better served cold.

    Sheryl

  • SherylB
    SherylB Member Posts: 147
    edited January 2013

    minxie,

    I am so sorry, I wish I was close to you I would help you out as one wounded warrior for another. I don't have kids but I have watched my siblings deal with lice on their kids.

    Hang tough, Sheryl

  • kathyrnn
    kathyrnn Member Posts: 366
    edited January 2013

    Cocker - very close, but picture the right one being 2 sizes smaller than her sister. ;-)



    Dormac - I've put your Bible reading of the day all over the place!

  • liv-
    liv- Member Posts: 272
    edited January 2013

    cocker  - i wish

    xx

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2013

    Liv I wish too.

    Titan meant to say to you on my last post but pressed send instead  we have a holiday this Monday so we have a  nice long weekend and lovely weather.  So will be thinking of you every minute whilst you are working on Monday, yea right!  Might even go for a 5 mile run !!!!

  • DorMac
    DorMac Member Posts: 153
    edited January 2013

    I had my first post-chemo haircut last week - she cut off about 1/2 an inch. It grew in white (no more haircolouring for me) but curly - never had a curl or wave in my life - now I look like a poodle ;-)

  • Titan
    Titan Member Posts: 1,313
    edited January 2013

    Cocker...how did you get that pic of me???

    You go girl!   You can run 5k..I know it!

  • 5thSib
    5thSib Member Posts: 119
    edited January 2013

    My first Taxol treatment went pretty well today. I don't feel anywhere near as bad as I did on the day of my AC treatments, so feeling hopeful. I slept most of the afternoon after I got home from the Benadryl. They did have to pause the treatment at one point for about 15 minutes because I started feeling some tingling in my arms and my BP went up. They gave me more Benadryl and then continued the treatment. It went fine after that.

    DorMac -- I've read your hair will eventually get back to your original texture. I've been turning gray since 20's and coloring it. I'm sure it's going to be all or mostly gray when it comes back in. I'm thinking I'll just leave it and not worry about coloring. I'm 55 and was beginning to wonder how I was going to stop coloring, so this took care of it for me.

  • MonikaV
    MonikaV Member Posts: 148
    edited January 2013

    Hi Lauren15- sorry just now i saw your post. As OBxk explained ... my doctor said they considered remission until you pass the 5 year mark . I am BRCA positive .  At first i saw my doctor every 2 months, then every 3 months and now every 6 months. I feel well and honestly love my new boobs better than my original ones :) I think my doc did an incredible job . I had a NSM (Nipple sparing mastectomy) and eventhough I do not feel the nipples ... they react to cold or touch .... Have you had your surgery yet?  :)

  • minxie
    minxie Member Posts: 239
    edited January 2013

    Ah, just got my drain out today. That's much better! PS is saying everything is looking great, much better than he expected after radiation and everything else this boob has been through.



    My scalp is SORE. I have slathered it in everything, combed it over and over, and I still keep finding nits. I'm considering hiring a professional nitpicker ( yes they do exist) because I am in no shape to keep doing this . Lice have just topped yellow jackets as my most hated insect!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2013
    Vaseline

    A man doing market research for the Vaseline Company knocked at the door and was greeted by a young woman with three small children running around at her feet. "I'm doing some research for Vaseline. Have you ever used the product?" She said, "Yes. My husband and I use it all the time." ... "If you don't mind my asking," he said, "what do you use it for?" "We use it for sex," she said.

    The researcher was a little taken aback. "Usually people lie to me and say they use it on a child's bicycle chain or to help with a gate hinge. But, in fact, I know that most people do use it for sex. I admire you for your honesty. Since you've been so frank so far, can you tell me exactly HOW you use it for sex?"

    The woman said, "I don't mind telling you at all. My husband and I put it on the doorknob and it keeps the kids out."
  • Luah
    Luah Member Posts: 626
    edited January 2013

    minxie: glad to hear the drain's gone - what a relief. I think hiring a professional nit-picker is an awesome idea. You really don't need to be picking nits on top of everything!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2013

    Cocker:   ha ha ha ha !!

  • queenkong
    queenkong Member Posts: 48
    edited January 2013

    Oh my the lice! I feel so bad for you. Lice suck!!! literally. 

    I've had to deal with them twice in the past with both my own and my daughter's long hair and we survived. I found the best thing was to use a ton of cheap conditioner on the hair and comb it out once a day for several days using a lice comb. You've also got to to find the source. Both times my daughter's locker mates in pre-school had them before she did and I only found out when I called the parents. No one notified me, so annoying. I also used a combination of oils after the conditioner and a plastic cap at night to kill everything. I wanted to do it totally natural with no chemicals. It worked but was tedious. I sprayed around the tea tree rosemary oil on couches and things like that too. Such a pain in the ass when you need to rest! 

    Both tea tree and rosemary are deterents I use those in her hair now on school days. 

    YOu don't have to wash everything, a long hot ride in the dryer will kill off much. 

    If you lived nearby I'd come and comb out your hair! A really good magnifying glass helps with these things too. Oh good luck. 

    I'm so upset thinking about the lice, I completely forgot anything I was going to write about the TN. 

  • Lovelyface
    Lovelyface Member Posts: 563
    edited January 2013

    Hello everyone!  I am sorry I have not posted for a while.  I was on vacation in December and just came back on Jan. 16th, however, prior to that, I was lazy and kind of drifted away.  Anyway, I am happy to find many of you and even read somewhere that Inmate had posted on facebook.  How nice that she is doing well.  I just had a blood test done for tumor markers and thank God all the tumor markers are really low.  I am seeing the Onc. next week for my 3 monthly appointment.  So far so good, ladies.  My left breast would never let me totally forget this experience because of its appearance, and that is a good thing.  I would never want to forget this experience as long as I live.  But I want to tell the newcomers that life does become normal and you do start to live again.  For me, psychologically something is not right, as I think I am denying that this happened to me and I try not to think about it.  I try to even move my appointment dates so that I can avoid dealing with it, which is not a good thing.  I canceled my Oncologist appointment before leaving for vacation in December, as I just did not want to deal with it. I decided I will deal with a mammogram and blood tests when I get back from my glorious vacation in Fiji, and that is exactly what I did.  I am acting this way, maybe because I have convinced myself that this is not going to happen to me ever again and I totally believe in this conviction 100%.  Is anyone else dealing with this like me?

    I was diag. in July 2010, finished all my treatments on March 31, 2011.  Counting from July, 2010, I am 2 years 6 months out.  If I count from the treatment finish date, then I am 1 year 10 months out.  I know I am still very much in the danger zone.  My Onco. had told me that 1 year 9 months is a dangerous time, that's when it strikes the second time.  Love to all you courageous, lovely ladies.  You all and I have walked together in this lifetime and share very deep feelings and very scary emotions together.

  • queenkong
    queenkong Member Posts: 48
    edited January 2013

    Good to hear from you LovelyFace, I can understand wanting to go to Fiji and forget about it all. Letting your mind and body be at peace without the TN in the forefront could only be healthy. Don't be hard on yourself. Be healthy in mind, body & spirit I want to hear more about Fiji trip. I need a place to fantasize about goingto once I am more out of treatment. It's a tough Winter.

    I would say work on the exrecise & all those good things they sat stave off the reoccurance as best you can. One day at a time. <3