Calling all TNs
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((((minxie))))
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Late to post - but Annie - so sorry for your loss - sending HUGS and Prayers.
Luv - have a wonderful time in Hawaii.0 -
Hi Jodi,
Here is the link, you can click the drop down and choose what your topic is and then submit your question. They will e-mail you when your question has been answered. Please PM me and let me know if you got through (I sometimes miss notes on the forum).
http://www.hopkinsbreastcenter.org/services/ask_ex...
Wishing you the best!
Breast Cancer Questions: Ask An Expert - John Hopkins Breast Center
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I'm here just Dx with TN last Friday. I finally got over the shock and I've had a good cry. I met with my surgeon on Tuesday for my post-op consultation. He absolutely does not recommend a Mx. He said I should prepare to have chemo and radiation even though the tumor size is 8mm. He said I am right on the border of chemo vs no chemo. They automatically recommend it at 1cm tumor size. I have accepted the fact that I will be having both.
I am working on giving up processed foods (day 2) so that my diet is filled with healthy foods. I figure I'll throw everything at it. I started taking calcium viactive chews and drinking a ton of water.
I'm sure I'm just having a good day and there will be many more crappy days to follow but I'll take it. Monday is the big day, the visit to the oncologist. Then Thursday the visit with the Radiation oncologist.
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Minxie - Lawd, that's a large pocket of fluid. Hope tying down the wing helps, so that you can get on with life!
Mumtobe - kudos on finishing chemo!
Just started my 5th round of carbo/gemzar. Stayed in the bed all day reading. Only got up to make myself some matzo ball
soup
Anyone in line for the nor'easter blizzard this weekend? Warm wishes.0 -
Minxie, Sorry your having a rough time. I hope you get your exchange soon and be done with it all. I just had my expanders put in two weeks ago and hate them. They hurt. I'm thinking I should be wearing some sort of a bra. Seeing PS tomorrow and will ask him.
Shady..sounds like you are right on track. I did the same as you and gave up processed foods. Drinking lots of water during chemo really helps. I would have to drink about 16'glasses of water during that time cause I would get so dehydrated! My onc put me on Vitamin D as my levels were low and that has been shown to be a factor in BC! Best of luck to you!0 -
shadytrake,
Welcome to the place no one wants to be but I promise it will be the most informative, supportive, encouraging place you ever visit. You will find more compassion, empathy, and support from this group than you can imagine. The worst part is waiting to know the plan and getting started. It sucks but as so many others will tell you it is doable. Hang tough and stay tight with these boards.
Hugs,
Sheryl
By the way I lived in Mississippi for 10 years and absolutely love Memphis, it is a great city.
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Young people have theirs,now Seniors have their own texting codes:*ATD- At the Doctor'*BFF- Best Friends Funeral *BTW- Bring the Wheelchair *BYOT-Bring Your Own Teeth *CBM- Covered by Medicare *CUATSC- See You at the Senior Citizens *DWI- Driving While Incontinent *FWIW-Forgot Where I Was*GGLKI-Gotta Go, Laxative Kicking in*GGPBL- Gotta Go, Pacemaker Battery Low *GHA- Got Heartburn Again *LMDO- Laughing My Dentures Out *LOL- Living on Lipitor *TOT-Texting on Toilet0
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Thanks all. I'm hanging in there. I was pleasantly surprised that the new Kroger expansion has a whole wing of organic food choices and very reasonably priced compared to "Whole Paycheck" Whole Foods LOL. I got some cage free grain fed eggs, almond milk, and a new gluten free cereal. The rest of my basket was filled with fresh fruits and veggies. My hubby, who is the best cook, made stuffed yellow bell peppers for dinner. Tasted better than anything on the Taco Bell menu.
I know I can do this. Today's goal - walk 20 mins during lunch break. Monday can't come soon enough.
Anyone obsess about self testing? I'm constantly thinking any pain is more cancer (I discovered mine because it was extremely painful - apparently not the norm).0 -
shadytrake- I found my cancer because it was painful too. And I think most of us 'go there' with any ache or pain. Perhaps less often the further we get out from treatment, but I know that I still obsess 1 year out from chemo. Good luck at your appointments next week.
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shadytrake, tisthyme - my cancer was also extremely painful and the pain was present long before any lump was felt! Perhaps pain is not so uncommon! I vaguely recall reading somewhere that many women with triple negative experienced pain.
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adagio, tisthyme - all I can say is that it hurt like h$ll. I about wanted to kill the resident who did my biopsy. After that, I requested only trained Drs and Nurses to stick me. Maybe this is one of the symptoms of TNBC. I'm surprised that an 8mm tumor could cause that much pain. It felt like a hot poker.
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Shadytrake - Agree with you regarding the pain - brought me to tears many times. The biopsy was a killer even with the most experienced radiologist doing it!! Will never forget that pain. Thank God since surgery - no more pain.
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shadytrake -- I don't think the tumor size matters when you are TN -- chemo is the recommended treatment. Sorry you are having to go through this, but you will find a lot of support here. This board has been so helpful to me. Everyone is so supportive, but honest too.
I had my 3rd Taxol treatment yesterday. A few SE's but nothing like AC. I am so thankful to be through with AC. I feel so much better than I did.
You know it may be strange but I really haven't missed my hair. I think losing it was a blessing in disguise because there were mornings during AC that it was all I could do to get in the shower, and I sure didn't feel like having to wash and fix my hair or shave. Putting on a hat or scarf is so much quicker.
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Shady..My tumor hurt as well. That is how I found it. Then my armpit hurt all the way through chemo.
5thsib...You are right about the hair. There was no way I could dry and curl my hair every day going through treatment. It is nice to be able to pop on a wig or hat and go. I may stay with shorter hair. Jamie Lee Curtis style. It's coming in salt and pepper. I've been told we can't color our hair for at least 6 months after chemo or it will turn orange.0 -
I had pain, too. But not until after routine yearly mammo Then I had a walnut sized lump that ended up BC. Who ever said that BC does not hurt is wrong. It can hurt. I wonder if there has been any studies about BC pain and TN being related???
Lauren where are you?? Last you posted you were in the hospital. Would love to see a post from you.
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Hopex,
The MO called today and said be prepared to start chemo on Monday so I guess I'm getting a haircut on Monday afternoon. I got a flu shot today and I made a list of all medications and supplements that I take.
I like that all the Drs are moving fast, but it is a little overwhelming.0 -
It's interesting to see that so many of you had pain in your breast where the tumor was. I had the exact same thing. Went to my ob/gyn twice about it. He did not diagnose my cancer. Mine was found during a routine CT Scan for follow-up of ovarian cancer. The breast biopsy hurt like hell! It continued to hurt until they removed the tumor. Maybe pain can be associated with some triple negative cancers.
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I found my tumor while showering....my hand brushed up against the outside of my breast and Ouch, there was this 2cm lump. It was NOT there the day before nor was the pain. The lump and pain appeared overnight. They say cancer doesn't hurt...I am here to say Yes it does. I have friends with BC, they are not TN and their lumps did not hurt.
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Shady...Yes, it is overwhelming at first but you will settle in with your chemo routine.
I wrote a daily journal to keep track of how I felt during chemo. I would constantly refer back to it. It was so helpful to compare treatments. Good luck to you!
Wrenwood..I notice your avatar is of you golfing. I too am a golfer....nothing serious, just fun with the DH and other couples. Did you have surgery? I'm wondering what it will be like to golf again. My PS told me today I can golf in 6 weeks. But then I will have exchange surgery end of May, so I won't be able to do anything again for a long while! Ugh!0 -
Hopex3 -- I think my hair will be salt and pepper too or maybe more gray. I'm tired of coloring so I may just leave it natural. DH doesn't like short hair but after seeing me bald he may love any hair!
My tumor did not hurt but it did seem to come up overnight. Since my sister was diagnosed with BC 5 years ago, I had kept a close check and I found it myself.0 -
Hi Ladies!
I'm just dropping in to say hello! Lots of familiar names as well as new members to our support 'club'. This was the best place for information and understanding, as my friends seemed frightened by my diagnosis and treatment. Anyway, I finished treatment 10/10/10, so you do the math!
I have had horrible Right jaw pain with lymph node swelling, neck pain and 'something' caught in the back of my throat. I went to the hospital twice with uncontrolled pain, and 3 months later, I have had every test and scan imaginable with 13 doctors. No diagnosis. I'm trying Neurontin (hate it), been on Lyrica and back on hydrocodone. Boo Hiss.
First it was my back, then hip, jaw, now my neck...horrific pain comes...then 2-3 months later, it goes...so other than the roaming 'devil' in my body, I am cancer free! I passed the 16 month 'higher than normal possibility of recurrence', to the 'same ratio of recurrence' and at almost 2 1/2 years NED, I am done with this Bitch! So hang in there, do your treatment, be kind to yourself, and look forward to the day you will not think about this 24/7.
I have fabulous hair, about the same weight, back at work and reconstruction went very very well! I am switching out to the new teardrop shape (at no cost, yay) when my current pain situation takes a break.
I love you all! (((((HUGS)))))) to old and new TNBC buddies!
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My new Rescue dog I ended up adopting. Scooter helped me re-focus on being normal! He's a Cairn terrier mix, 8yrs old, 12lbs and loves his raw diet! (shhh, he doesn't know I had cancer)
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My new Rescue dog I ended up adopting. Scooter helped me re-focus on being normal! He's a Cairn terrier mix, 8yrs old, 12lbs and loves his raw diet! (shhh, he doesn't know I had cancer)
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Aaawww...Now he is so cute!
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Hi tnbc Ruth...I have a condition called trigeminal neuropathy and it causes episoded of extreme pain in my face. I am not sure if it could affect the jaw and neck but maybe worth looking into. Kinda rare so they may not be looking at it.
Maggie
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Ruth - So glad to hear you are doing well, with the exception of your pain devil. I hope that ends soon. Your dog is so cute! Continue to be well...
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Love your post Ruth....but dang on the roving pain...!
Someone has to be the weird one and it may as well be me..but my lump didn't hurt....except... when my son played basketball in high school I was one of those..well...bleacher moms that screamed alot at the refs...it hurt then..dang refs anyway.
Shadyrake...good luck with your first chemo....I agree with getting things started...why wait if you are ready for the chemo....my dr's wanted me to wait 6 weeks after my lx to heal...I didn't want to wait at all...didn't want to wait for rads either...
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Hopex3 Yes I am a golfer, not very serious about it, just enjoy the game with DH and a nine hole ladies group. I had a lumpectomy to remove a 2cm tumor in my right breast and then Rads. When I finished tx it was just too hot to golf. So I actually took about 6 months off. My first time back out went well.....was gentle with my swing and had no problems at all.
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