Calling all TNs
Comments
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Oh dear god ladies so many with recurrence. I'm praying for you all. I am so sick of this train and what it does to all my friends on here. I had to take a break before I went crazy with the what ifs. Just when you think things will be okay something else turns up.
Kathy you will work things out for your mum you are always so organised. What was your tumour markers, how much did they go up. My last one was higher than the previous one too so I'm keeping my fingers crossed. Will this never end for us.
Warm hugs and prayers to everyone.
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Kath I see you never fail to have a sense of humour. Have missed it greatly lately.
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stupidboob,
so sorry that you have to go through this again. Prayers for you.
Hugs, Sheryl
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Phyllis, Kathy, Stupidboob,
My heart goes out to you all. Once should be enough and I am praying for good treatment and minimal SEs. Hang tough. Sheryl
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Yikes! So sorry to hear about all the reoccurrences! I have a question though..... I still have one of my drains from my mastectomy 2 1/2 weeks ago and I have to get my port put in on Tuesday so the dr said drain has to come out Monday..... It is still draining a lot! (120 ml a day) any suggestions to reduce the fluid? I am drinking so much water I must know where every bathroom is in town.... Lol
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Karie.....Stop drinking so much water!. After my BMX I was so frustrated with the final drain. It just didn't want to slow down. When my PS asked about my fluid intake, it made me realize that I had water with me ALL the time. She told me to cut back on the fluids and just take it easy. Just sit and relax. The drainage slowed way down and the drain came out in a few days. Good Luck with your port.
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An article just posted about Omega-3 being very beneficial for TNBC.
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An article just posted about Omega-3 being very beneficial for TNBC.
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GREAT...just started taking it this week LOL
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I'm increasing my dose! LOL I add 2 tablespoons into smoothie every AM, but will also try to eat more fish. I'm googling the Mediterranean Diet now. I think the only issue with it is, the amount of fat grams in a Mediterranean Diet, but I'll limit the nuts involved.
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I wish I had been taking the pills for years now...I HATE salmon or any oily fish.
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But they are good fats!
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I've been catching up on all the posts - HUGS to all going through this crap again. Cancer SUCKS.
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You may want to run this by your MO as I was under the impression that omega's have antioxidant properties and may contravene chemo. I plan on incorporating this as soon as chemo is done! Thanks for article, anything to keep us healthy!
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Thanks for sharing the Omega-3 info, Debra.
Anyone have some suggestions for lowering cholesterol? Other than the obvious....I go to the gym 4 times a week and keep active on my off days. Also, have fairly good eating habits (not perfect, but decent) I really do not want to start on the statin drugs, but I just can't seem to get the labs to improve. ACK!
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Kathy I sure will schooch over on the couch...........wouldn't it be nice if we really could go it together. I am sorry that you are dealing with it again as well. The not being able to remove it is scary and that whole hard to get to....that is what they told me too.
Phyllis come on and get on the couch with us........I don't want to go through this again either.I just had chemo yesterday and already feel like the flu is coming on. I did not get the Neulasta shot so can't blame that this time. I HATED that crap. She said she will let me try this one time and if numbers are not good next time I get it. I did not have nausea with the Taxol but I had it alone. The Cytoxan and Taxotere is hitting me with it all. I just hope I can get through tomorrow when we walk our babies.....I have taken the Zofran but I really hate taking anything and then I read it can cause temporary blindness.....OH GREAT and other issues. Did you all know it is a seratonin thing and just blocks the brain from getting the signals? I will take it though if I can't stand it....I have taken 2 so far today. I get home from Chemo yesterday and had a message from my primary care docs nurse that they need to talk to me about my pap results, then today one of my dogs has a hard lump that has appeared on her surgical area (to remove a sarcoma) hoping it is scar tissue but after the cancer coming back, losing my older dog if ONE MORE THING GOES WRONG I just don't know if I can handle it. I am so CANCERED OUT!!!
Thank you Sheryl and to the others thinking of all of us going through this.
Debra thanks for the article on the Omega 3
I hope I got everyone, but I don't have to tell you all how easy it is to miss something
Welcome to the new members and I am SORRY you have a need to be here
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I want to add my new diagnoses but it looks like it will over-ride what I have already. Will it?
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Stupidboob, I am so, so sorry you got dealt such a crappy hand, for you and for your dog. That is just the pits. "Cancered out" says it perfectly.
On your profile, the new diagnosis will add to, not overwrite. At least that is how mine worked.
I'm thinking about you and hoping you don't need the Neulasta.
Phyllis0 -
Stupidboob, kathyrnn, and phgraham -- so sorry you are having to go through this again. As soon as I post this I will be saying a special prayer for each of you.
I'm not feeling well this weekend but hopefully it will be my last weekend to feel crappy since I'm through with treatments. Neuropathy has really hit in the last two weeks. Doing anything with my fingers is getting difficult. One little toe is numb and both big toes very sore. I'm still taking the B6 daily.0 -
Navy: Cholesterol can be lowered by cutting out eggs and reducing all saturated fats, and exercise of course. But some people are just genetically prone to high cholesterol, and there's not much you can do about it, except medication. Does it run in your family?
Hugs Phyllis and stupidboob, so sorry you're dealing with this again. You'll kick it to the curb this time.
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5thSib, I think I know how you feel, I developed neuropathy within days of my first docetaxol. And to think I have 2 more to go
I have been taking 100 mg. of B6 and 5 grams of L glutamine 3 x day. Not sure if it is helping because I have that numb, tingling and burning sensation intermittently. I'm hoping that it is temporary and will lessen after chemo is done. Things like undoing my jeans is getting more difficult, my fingers don't seem to have the dexterity they use to and they hurt. I've also experienced a lot of bone pain mostly in my thighs, but MO has me on gabapentin which at least allows me to have a good nights sleep. I seem to be able to function during the day without taking anything after that first horrible week. Hoping my beasty cancer hates this treatment more than me-I can visualize every cell writhing in tortuous shrinking pain! I hope you find relief as time passes and congrats on finishing treatment! Will you be doing rads? Shari0 -
So sorry to read of all these recurrances
You all were so helpful last year when I came to you for answers for my Mom. I pray that everyone facing a recurrance kills this beast once and for all, and for everyone else to stay NED! xoxoxo0 -
A little bit of laughter to hopefully cheer everyone up.
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Does anyone else have a problem with itching under their tissue expander? It itches like crazy but it's just like having a very long cast on your leg and having an itch waaaaay down there that you just can't get at, no matter how hard you try! I'm taking benedryl but it's not working as well as it should. Makes me feel like ripping the expander off to get at it!!
And I'm stuck with this expander until after I've finished chemo and I can get my surgery scheduled, so in other words, for months. This itching has occurred off and on and right now it's on and driving me nuts!0 -
LOL Cocker! I love it!
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Teresa- yes, I have had the itching and still sometimes do even with the implant. I was told it was nerves repairing themselves. My episodes only last a few minutes now. but it is really aggravating!!
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Thank you so much for responding. It can last for hours for me. It usually starts in the late afternoon and will keep itching until I take something for it. I was told the same thing from my bs. Just another thing we can just put up with, I guess.
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Slv58 -- yes I will be doing rads -- probably will start the 2nd week of May.
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I hope the bastards who did the bombing at the Boston Marathon rots in hell. They are the ones who should be getting F.... cancer.
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Ditto Cocker spaniel
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