Calling all TNs
Comments
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5th sib - after tomorrow's treatment, you will be able to relax and know that you don't have to go for any more chemo!! Then it will all seem like one bad dream. You will be fine. Be easy with yourself and take time to pamper yourself when you get those side effects. Almost there!!
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Bone scan was today..... The tech said nothing jumped out at her but she did ask if I have problems with my kidneys...... No but now I have to wait to for a week to find out if there is something wrong with my kidneys too.... Lol. CT is monday
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Thank you all for all the wonderful comments!
Stupidboob-I must have missed something, did you have a recurrence? I had a new primary after 8 years and in some ways it was so much more difficult the second time around, but some how we push through. Thinking of you.
5thsib-I am a 5th sibling also! Working through treatment is rough. Part of me thinks it helped keep my mind off of cancer, but the other part of me was just plain miserable putting on the fake smile and repeating how I was doing over and over again (I saw many clients in a day). And I only worked part time. After all was said and done I quit my job after treatment because of too many lasting side effects. I am now so happy that I don't have to worry about being presentable when I don't feel good. I do miss the interaction though.
Mags-I would love to go to NOLA, I am just such a bad traveller though! I hate flying and being away from home. I even have a friend that said she would go with me to help out. Hubby can't go because of work.
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Oh Bak, Congrats on the new 2 year mark, and we are sending positive vibes to you for excellent news on your next visit! It sounds like things are going well so far for you!
Can you share with us your background? What was your original TN dx 8 years ago, what treatment did you have? And, how did you find your recurrence, or is this a new primary?
Many hugs!
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Almost finished with last chemo treatment. They had to reduce Taxol today by 25% because of neuropathy. Can't believe it's almost over. This better have done its job. I never want to do this again.
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5th sib - yeah!!! I also never want to do chemo again!! Glad you got the dose reduced - you will notice a difference!!
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Yikes just the thought of doing it again makes me shake!
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schatzi - I hear you!!
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Shirley I hope you do not have to do it again either..............I am starting over tomorrow and I am terrified all over again
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Hey Gang,
Please send me out a prayer, good vibes whatever you believe in......I am starting over tomorrow and I am terrified. To an insult to injury we lost our 16 years old furbaby this week and my heart is broken.....Thanks ahead of time
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bak94 yes I have a recurrance and a regional spread........:( Yes, the second round is harder emotionally anyways...........there is a new fear plus the knowing of some things that will occur without surprise.................
thanks
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congrats............what you had sounds like what mine came back as. I am glad that you are doing well. Thanks for sharing your story........gives me some hope
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Stupidboob - I'm sending my best thoughts to you. I hate that you have to do this over again.
Phyllis0 -
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thanks Phyllis
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How do I add an avatar?
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Stupidboob, it's in My Profile and Settings.
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thanks Phyllis.............now I just have to find a way to resize......:)
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I'm on my tablet so I can't see all of the features to upload. Sorry I'm too lazy to fire up the desktop. I suck.
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I totally understand............when it comes to the computer I am not that smart with all the sizing things and our computer has a mind of its own
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http://www.envita.com/cancer/finally-chemotherapy-game-changer-for-stage-cancer/
I have not read this yet but heard it was a great article
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Belated birthday wishes to jenjen, Phylis and Wasingtonwoman.
Mags - wonderful to hear everything is going well this time.
Karie, Jenn230 and Sunny-Welcome. Sad you've had to join us but the support and advice on here are wonderful.
Cocker - I'm right in that litter box with you.
Minxie - I'm so happy to hear everything went so well this time.
Bak - congrats on the 2 year anniversary.
Stupidboob - could you schooch over on the seat a little bit, it appears we will be sharing this ride again.
I went to my new MO last Wed with the CAT my Primary had ordered (taken 5 days after RO told me to relax, everything looked fine). MO wasn't overly concerned, but they hadn't had radiology look at the disc. (Thanks for wasting my time). Got a call the next day, radiologist very concerned and tumor markers up. Do not pass go, do not collect $200, immediate trip to PET scan land. Have a lymph node deep in the axillary pectoral wall that lit up like a Chinese firecracker. (Also two smaller nodes that didn't uptake, but they feel are CA. ). I still have to have a CT guided biopsy (apparently it is so deep it's gonna be a real bitch to get to) then after confirmation they'll discuss Tx with me. Already told me to start planning for chemo etc.
It's been a very hard month. I've managed to keep this a secret so far from Mom. (She doesn't need to worry any sooner than needed) Also from my friends except for one. When it's confirmed and I know the plans, then I'll tell everyone. I think having to tell everyone is almost worse than getting the news.
I'm really discouraged and sad tonight, but coming here has reminded me I'm not alone. I'm a little overwhelmed right now. I have to figure out how to make sure I can continue to provide Mom's care and I still have my home with a patch in the roof and and insurance company that's been dicking around for 6 mo now. Too many battles to fight and not enough energy. My girlfriend has found a wonderful therapist for me to talk with, but I'm not sure if I have time to fit a nervous breakdown into my schedule right now. ;-)0 -
Kathy and SB, is there room on the bench for me? I saw the surgeon today to schedule the new port placement. Got home and had a sobby, blubbering phone call with my best friend. I so do not want to do this again.
Kathy, I'm sorry you're feeling overwhelmed. How could you not?
Right now my eyelids are irritated from crying and that always makes me crabby. I'm a mess.
I hope tomorrow looks better for all of us.0 -
*slides over a bit*. Of course there's room Phyllis. Don't forget to fasten your seatbelt. *leans over, whispers to Superboob, we did tell her it's a roller coaster didn't we???*
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Kathy - I'm thinking of you and hoping for a gentle but effective treatment. Hugs to you, Phyllis and Superboob!
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Oh dear ladies, I am so sad to hear all of this news. I pray for strength for all of you having to do "it" all over again. Wishing all of you minimal SE and results that kick BC to the curb for good.
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Once through the chemo routine should be enough! My thoughts are with you, Kathynm and Phyllis...and any others of this group who are facing another round of therapy.
My sister found out last month that she had lung cancer...but her MO is not hurrying to get her into radiation or chemo. I don't know why not...and (this doesn't come naturally to me) I'm keeping my mouth shut. They'll make the best decisions together for her, and I'll try to be there for support.
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Just changed my picture ... have hair again, no longer medium length brown, but 1" greay and white. Trivial, but important to me. Nat
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Congratulations, Nat! My hair is growing in, but it's a strange pattern so I am wearing hats for now. I'll be glad when I can shed it.
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Sending hugs and prayers to all those ladies on the bench and those going through treatments or SE's now. Once is more than enough! Hoping that you will all be able to get through it with minimal SE's and will be done with it!
Doreen
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