Calling all TNs
Comments
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Checking in to say that Gemzar is fabulous - my tumor markers have dropped from 2000 to 275 over three cycles!
Wishing everyone good days and good treatments! And don't give up - I thought I was doomed in November and now my brain mets are gone and my cancer is responding well to treatment. It's a beautiful thing!
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LuRVing....best news ever...congrats!
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Luv, Woohoo! Happy dance for you!
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LuRVing that is fantastic news. Dawn so glad we heard from you this week.
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Think of you often, Mity - and will continue! Be well.
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Adding to the gemzar related tumor number congrats! How was the treatment itself in terms of SEs?
Don't revisit SEs if it rains on your parade though.
So happy for you!
Peggy0 -
Luv: Wonderful, terrific news. I am so happy for you. You are so right - never, never give up!
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Oh you all lovely ladies, all of you, thank you so much for sending me such wonderful posts, and each and every one, incuding the PM from schatzi14, are very informative and may be able to solve my fears and problems. Inmate, honey, you are still fighting so hard, I love you so much. You are one heck of a beautiful woman!!! Inside, out. I am so proud of you! Peggysull - your post contained soooo much good info. As soon as I finish writing this, I am going to check out the Pink Ribbon Diet by Lynn & Barr. I bet that's where my anwer lies. This weekend I will go and buy a real good olive oil. I saw Dr. Oz show regarding Olive oils, and became really grossed with it. He said they had done a research on thousands of store shelf olive oils and found many that were not olive oils. They found things such as garbage, diapers, poop, etc. when they analyzed some of the olive oils. Earlier regarding fish, when the revelation had come that when fish came from China, they were breeding the fish in sewer water. Having heard about olive oil, I totally decided I was not buying any imported food items anymore. I don't know what crap they send us here to USA. We are the largest consumers, and they have to meet our demands, so they send us crap. Dr. Oz says that if you put your olive oil in the fridge, and it does not become solid, then it is not olive oil. I tried, the one from Trader Joe, and it did not solidify, ever since then, I stopped using olive oil. I just got something from Costco, just a regular oil, and am using that since. Dr. Oz also said that if olive oil is real, it will be highly priced. I will pay for a highly priced one and check it out by putting in the fridge.
I wouldn't doubt it if I got diagnosed with PTSD, it sounds like it. LuvRVing - good to see you here again. I see that you are still your very strong self. I am so happy for you, girl, I am certain you will get out of this, you and Dawn both will one day have survived this. Linda - hello!!!! All of us oldies on this topic, still here, eh? Tazzy, OBXX..... anyone that I have missed, sorry. Lovely finding everyone here.
Schatzi14 - I will PM you. Thanks so much.
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Peggy - no problem asking about the SEs. Honestly they are not too bad. I have plenty of anti-nausea meds and I take them all to avoid puking. The chemo is rough on my RBC and WBC, they had to cut the dose in half and I had one transfusion. I've been able to do most anything I want, even the same night as treatment I've gotten on an airplane and headed to a resort.
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Wow, you are amazing!
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Luv....I think I am speechless....soo good to hear the Gemzar worked for you...this is awesome news...we all need to hear this....proud of you sister!
Peg..hear you on the ptsd....I picked up a book on it at the library but it was basically about soldiers....I wanted more....I still have those "shaky" feelings at times...and yes..certain things trigger them....the weird thing...coming on here doesn't bother me at all....I think it just makes me stronger.
I can't just go on living my life without coming on here and checking up on you guys...
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Thanks Nat - for liking my moniker .... I hope it doesn't sound too proudful to name oneself "lovelyface", but at the time I was having chemo, I told myself that I had in fact a lovelyface, therefore, chose that moniker. Positive reinforcement when everything else was not so great.
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Titan - I feel the same way about being here with everyone on this thread, and several others. I have been depressed at times, to the point where I thought I just did not even want to acknowledge that I need support. The last time I "disappeared" from "our community", I was "gone" for four months. I missed everyone so very much, and was welcomed back with open arms.
Thanks to all
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Luv - so glad the Gemzar is working. I wanted to stay on Gemzar as se's were very tolerable - except for the one I could not feel - very low white count. I had to self-inject neupogen in order to continue Gemzar. My body hated neupogen and fought back with lots of se's. One scan showed that Carboplatin with Gemzar was working for me - lesions in my lungs actually shrunk! In fact, before the scan, I was considering stopping treatment, but decided to continue as I was so excited about the significant shrinkage. But, my body could not handle carbo. I had to do neulasta and have blood transfusions on that combo. My onc was hoping the Gemzar alone would help me - but recent scans show increase in lesion sizes and new ones....oh well, on to Xeloda.
Best wishes for continued Gemzar success!
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Sorry for the mix-up, Luah. I actually meant to tell Leanna that I sent her a p.m.
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LUV!!!! You go Girl! Your good news made my day. Keep on keepin on,
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Luv - so pleased you have good news to share!
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Inmate - good to see you here.
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Sherry - I tried carbo for two full cycles and my tumor markers went from 1000 to 1850! So I am really glad the Gemzar is working!!! Did they try cutting the doze of Gemzar? That was the magic for me.
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I went to a wedding tonight and got totally shit faced...awesome!
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Happy birthday Karen......happy happy joy joy!
Luv....I cannot say how happy I am for you. Gemzar was an easy (side effects) drug for me too but not as effective. So so very happy....just can't stop smiling for you.
Mity.......so sweet of you. I missed all of you wonderful ladies on the board and now feel so silly to have been away for so long. That won't happen again.
Lovely......This is a tremendous board for support. Losing a supportive friend and fellow fighter is always a heartbreaking reality check. Just remember we are here for you. Give us your best shot, good and bad. we can take it. Feel free to pm me ANY time.
Titan.....thanks mama bear.
Love to you all.......d
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Ladies,
I had a friend (whom had "fallen" off the face of the earth for a time) call me the other day so apologetic about her absence. She admitted that she just didn't know what to say. I reminded her that there are a lot of other subjects we can talk about. I am still living and doing other things that have nothing to do with cancer. She can ask me about my garden, my jewelry, my family, so many other fun things to discuss. That broke the ice and we had a wonderful conversation.
I don't know why I had to share that but it seems so easy for me to lose sight of my life through all of this, but today was a good day and I know tomorrow will be too. Monday I have a brain scan. But I will make it a good day. That's what we ladies do so well. WE LIVE!
Love to you all again and always...........d
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Hi Gilly..........:)
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Lovely, I can the shakes from time to time and I find that small amounts of protein help. I also keep Luna bars (lemon zest) handy for a sweet energy boost. Give that a try and let me know if it works for you. Mostly all my food tastes buttery these days, even water. Very disappointing side effect of chemo.
Love you tons!
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Last night I let loose! I went to a wedding (wore my stupid wig), drank too much and had a blast. Seriously the most fun I have had since I started this journey. The only bad part was that my thighs gave out in the middle of dancing and I fell...thanks chemo. My friend helped me up and i said please tell me no one saw my underware. I really needed a night of a lot of laughs
Now I have to get ready to take the kids to church....back to reality!
Let's make it a good day.
xoxo
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Luv- so glad the Gem is working for you - so very glad. Hopefully the X will work for me!
Jen - sounds like you had a great time - It made me happy just reading your posts!
Inmate - thanks for sharing and for your support. I will be thinking of you tomorrow. Here's a big hug scoming your way - not that it helps much, but it is on the way!
Yesterday was a good day with X se's. My grandc. kept me busy.
My best to all.
Sherry
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Inmate: You rock, girl. Nice that your friend was honest about her discomfort and you guys had a good conversation. Fingers crossed for a good scan tomorrow.
Jen: I bet it felt fabulous to break loose of all the BC crap for an evening. Well done!
Luv: Best news about the gemzar! Very happy for you.
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Inmate (Dawn): Thanks for the tip on protein, I am going to try making some great shakes with fruits and protein powder. I will say tons of mantras (prayers) tomorrow for a very positive outcome for your brain scan. My hats off to you for your strength and courage at this time. I know hearing the results takes a whole lot of courage, my friend. My very best wishes tomorrow. Love, love, love.
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Inmate...best of luck with the scan...we are here for you.
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Inmate..it is wonderful to see you back
Luv-- your post brought tears to my eyes...I am happy dancing for you!
Maggie0
