Calling all TNs
Comments
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Inmate..so glad you are back...I am a mama bear..worry when my cubs don't check in..just ask my kids...who are 22 and 24..lol.
jenjen...good for you at the wedding...we NEED that fun...like Inmate said..we have to live! I love weddings..have 2 good ones coming up in June...will need a taxi home from one..the other one we will be transported back to our hotel..so all is well...
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Good luck tomorrow with the scan Inmate. Will be thinking of you. Yep we have to LIVE.
LUV so glad the Gemzar is working. Keep going girl you will get there.
Jenjen thank goodness for those fun times. I'm glad you had a ball.
Lovelyface I hope those fruit shakes work wonders for you and you start to feel better.
Huge hugs ladies.
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Luv....Very happy for you!! Great news!
Inmate..so glad to hear from you. Sending prayers your way for clean scan today! Love your attitude!
Jenjen....must be in the water or wine. Lol. I did the same thing nite.
Have a great day Ladies. The Pacific Northwest is having the most awesome weather now. Makes the mood brighten up a bit0 -
Thanks for my birthday wishes. I had a lovely weekend. Friends drove in, wore silly, flowery frocks and the flower crowns I made and attended a Wildflower Festival with me. We were all former child May pole dancers, so we hijacked the pole and laughed and laughed.
I rented a campsite, where I put up a kitchen tent and set a lavish picnic out, including Chpagne. A lovely memory.0 -
OBX -
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Jen,
Good for you. I am jealous.
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I just realized that I have passed my final "one year ago today" milestone! One year ago I quit wearing my wig to work. My hair had only been growing in for about 6 weeks or so and was maybe 1/2" long and actually a beautiful white/silver (I had always dyed it a light brown/blondish color). I was scared as I work in a professional setting (not sure that makes a difference), but got lots of what seemed to be genuine compliments (the color is so pretty; it opens up your face, and my personal favorite "you look like a young Judi Dench," etc.)
So if any of you are at this stage and were like me, where you wanted to be conservative and look as "normal" as possible with a wig that closely matched your natural hair - be brave and go for it! It is very freeing.
One year out my hair is about the same thickness (thick, yay!) and soft natural wave as before BC, though still shorter than my preferred style.
Jen - how fun for you
OBXK - what a wonderful birthday
Inmate - anxious to hear about your scan results
I pray for you all daily, if not all by "name" as "the TN ladies".
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An anxious day. Just had my first mammogram since diagnosis. It was clear. :-)
My surgeon actually said I should try and put 'it' behind me, and get on with my life.
That is so much easier said than done, isn't it? Especially, since I still see the MO for follow up and blood work every 3 mos, for tumor markers, that may--or may not--be accurate. She asked about lingering SE from chemo, and didn't seem surprised when I mentioned brain fog (she actually nodded, and said, yes, chemo brain). Said it will get better, but I am still concerned, when I can't seem to find the right words. Makes me go to a dark place.
But, I had a brain MRI for headaches a few months ago, and was good. So hard to know when to be concerned, and when to assume my symptoms might just be normal aging. I am 64 years old.
Hugs to all who are still in treatment. It really does get better.0 -
Joyce/luv - I go through the same thing; I am 60 now, 58++ at dx and wonder if various symptoms are residual chemo effects, mets, or normal aging aches and pains!
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Karen - so glad you had a nice b-day. Best wishes.
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To my good supportive online friends: My sister (with lung cancer) had a biopsy Friday. We were to meet with her MO next Tuesday to hear the plan of attack. However, she started coughing and coughing blood, so she is back in the hospital. They don't think the blood is from the biopsy, but don't know from where it comes. They've taken her off the Coumadin she was taking (because she has had a heart valve replaced) and I'm waiting to hear what they are finding. Please keep her in your thoughts. I have a DH and 2 adult children, but she's all that's left of my birth family.
Inmate - hoping your brain scan was clear. You are in MY thoughts. Nat
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Thinking of you and your sister today, NatL.
Pretty sure that the waiting room is getting pretty full as we wait to hear how things went, Inmate. Sending good vibes your way, too.
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natL...keeping good thoughts for your sister..
Grammy...our DXs are almost identical (forget the ER+ because it is only 2%) but I am 69 and wonder the same things. Are the aches and pains just normal old age but the memory lapses (can't remember familiar words) are scary. Was it the chemo?
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natL - you are in my thoughts!
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Schatzi - yes, we are almost identical in dx, stage, tx and timing! I do believe the forgetfulness is chemo related as I had no problem before. I have a friend at work who is 8 years post TN and is just now 40 years old and while I think she is really smart and funny, she says she never got back that sharp edge she had before. Actually, I kind of like having an "excuse." Somehow, it is easier to joke about and not as scary as worrying about dementia!
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I'm certain I have chemo brain SEs too. The fogginess has definitely passed, and my memory seems better each year out, but there are several times when I simply can't recall the whole gist of a conversation or something I read from 5 minutes or 5 days ago... I will lose the thread, or be unable to recount a situation in the precise language I used to use. Or a word will suddenly escape me - it's as if it's floating out there somewhere, slightly beyond my cognitive reach. Very frustrating, especially for a writer who earns a living by putting words together.
Inmate, hoping hoping all is well.
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Good morning ladies! Today is my week off of Zelda! Yippee!! I'm hoping I can have a few days of not having my behind kicked before I start all over again next Monday.
How are kathryn and Stupidboob doing?
I've had a hard time keeping up here. Obviously! LOL I read it then can't remember what I read so I apologize for having NFI what is going on.
Except! I know that there are some of you waiting on test results. Hope all goes well and you get the best news!
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Schatzi,
My main symptom of chemo brain is the inability to remember common words. I am almost two months post chemo. You're not imagining this very real symptom. Hope it goes away soon for all of us recent post chemo.
Peggyu0 -
Luah - Interesting reading about your slight memory issues. I myself am seeing a Neurologist on May 15th. I feel chemo brain a lot these days, and I know that when my 83 old year mom can remember a lot more than me, that is not normal. I am forgetting words, it just won't come to me at all, even after some hours. I am waiting to see what they can do for this, whether there are any tests they can do to give a medical reason. I have read that sleep apnea can cause memory problems and I do have mild sleep apnea. I know that chemo definitely changed my beautiful wavy hair into straight hair. Those nice natural waves are no more.
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Good morning Ladies,
Lots of talk about chemo brain. Im sorry to say it never really comes back to pre cancer/chemo. I read an article some time ago that showed it is actually the cancer that effects your brain and not just the chemo. Most of our memory and smarts will return, but alas we will always have the excuse to have forgotten or messed up on a word, sentence or thought. Now, that can't be all that bad, right?
Update on my scan. Well it turns out the the chemo and WBR did not do the job we had hoped. Last September my brain showed 3 spots. Two in back and one at the front. It appears the one at the back of my brain may be slightly larger and the other two appear unchanged. Disappointing news. This in addition to the skin mets on my chest (still there, but better) we are going with Doxil for two rounds to see if that is effective. Doxil is part of the Adriamycin family and it was a little creepy seeing that red color again. Oh, well, let's just hope this one works. I really am running on fumes here. With that said. I just had an edible and weather be damned I am going out into my garden today. Housework can wait until tomorrow. Clean underwear is highly overrated. There's two sides to everything!
Love to you all ladies. Have a great a wonderful day.
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Oh Inmate, So your news was disappointing. I hope your garden is good therapy and gives you a boost to keep up with things you want to do, not just housework. My best to you.
Phyl-Up, I hope you are up to being normal for a week. Best to you, too
Michelle, Yipee for your improvements!
Best to all, just can't remember who you are and stuff like that. Chemo brain +/- old age. Jan
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OOps Inmate - I meant to say so sorry your news was disappointing. So Sorry Jan
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Inmate - (((Hugs))) you must be hugely disappointed. I hope Doxil is your magic potion!
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Inmate ((Hugs)) to you. I'm so sorry you're having to deal with this bad situation. Nat
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Inmate: Well crappitty crap - I am so sorry those mets are still there. We are all here for you, hoping with all our hearts that the Red Devil does his job.
(Even in the face of disappointment, your amazing spirit shines through... and you had me chuckling with that underwear comment!)
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Inmate, sorry the scan results and about needing new chemo. I'm glad you have some edible although I was confused for a minute since you mentioned it in the same paragraph with the underwear comment.
Jan, evidently I can't have my week off. Although I get away from Zelda, my counts are down so I get neupogen shots for the next 3 days.
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Inmate - so sorry about your scan news. I am also running on fumes, so I am right there with you - I hope the new chemo works for you!
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Inmate, well, crap. I am so sorry for your news. sending postive thoughts for this next tx to work. holding you close to my heart.
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Inmate- I think of you often and hope like hell that the Doxil knocks the crap back. Hope you were able to get out and garden!!
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Phyllis......that made me laugh and laugh. No my underwear was not edible and dirty to boot so, ewwwwwww!
Did a little yard work today but moved on to jewelry as I forgot that I'm doing an artwalk this weekend. Good news from the store, I sold 8 pieces over the weekend. Pressure is on. Thankfully I have a few pieces stashed at another store I can pull for the walk. Whew! I also came up with a couple more fun designs today so I am jazzed for a good show. I always take vintage boxes for those who buy and this weekend is Mom's day so hopefully that will help out my buyers.
Thanks everyone for the well wishes. I'll get through this, one way or another. Hope everyone had a great day.
Love, love, love..........d
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