Calling all TNs
Comments
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Lisa - that is wonderful news!
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Lisa, that is incredible news. So are you planning to do the lumpectomy? Really in my opinion, lumpectomy is not that complicated, pretty simple, really! In my case, the surgeon took out quite a bit tissue, so my left has become smaller than the right, but still it does not make much difference at all. And I am really glad to get very good margins.
Feeling bad all the time is NEVER the new normal, no way ladies. I am almost 3 years out, and sure enough I have had lots of ups and downs, many seems to be related to just the normal body changes at age 50. I think a huge part of it all is FEAR.
I feel great ever since I have been using my CPAP machine and getting good night sleeps. I thought it was all thyroid related or even cancer come back, but I don't think so, not anymore. I scrubbed my kitchen floor today and have lots of energy again, just from sleeping the last 3 or 4 nights. From now on, my new motivation is to get lots and lots of sleep, with that CPAP machine, in order to relax all my sleep-starved cells. I will report back to let you know if this good energetic health continues.
Good Luck and Best Wishes, Lisa
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Lovelyface, et al regarding hair - It is so interesting how varied our bodies respond to virtually identical treatment. I had thick mildly wavy hair before chemo. It came back in about the same, after some super kinky areas around my neck that shaped up after a few months. I think my hair is a bit finer now, but just as thick. My hair started coming back about 2 1/2 months post chemo and now I am 17 months out and it is about 4 inches long with a few trim shapings by my stylist along the way. As others commented, the eyelashes and eyebrows tend to fall out post chemo, but in my case they grew back in as quickly as other lashes were falling out so I was never completely without, though very sparse, for sure. Big benefit
is not having to shave legs and underarms! For me now underarm hair is rare and very sparse on non-rad side and non-existent on rad, affected breast side, and legs are just now starting to need more attention if I want them perfectly smooth.0 -
There was a recent comment about applying moisture to breast with rads. This is important and there is only one product that has been developed specifically for this situation and it is called Miaderm. Your rad onc should be able to provide free samples for you. I had some redness, like a mild sunburn (it turned to a "tan") but no blistering or serious discomfort. Warm saline soaks to the affected breast should also help. You can make your own solution and apply with a washcloth or get your rad onc to provide a 10% saline solution for you.
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Today we are taking the kids to the zoo, I am sure I will be asleep like the kids on the way home. I had a breast MRI on Thursday no results yet. I was confident going in but now starting to worry...only a teeny tiny bit. Yesterday I cleaned my house top to bottom. When I went to bed it looked like a magazine now it's destroyed.
I am really starting to get into my groove at work - while working during chemo I was unfocused and nervous bc of my lack of memory. Now I am busting chops and getting stuff done....fast and good! They see it and I'm getting the bigger projects again, thank goodness doing skunk work was killing me. This months will make it 10 years working there.
I hope everyone has a great weekend.
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Jenjen- Awesome news! Glad to hear that things return to normal eventually.
Im recoverying from left msx surgery and should get path report on Monday. They took three nodes also in the surgery. If I get the all clear then I have right msx and diep for both sides next friday. Woohoo, hoping to get this all behind me soon.0 -
Hey Gang,
Can you all tell me how much your radiation cost? I know it will be different everywhere but just a ballpark. My chemo is ridiculous at this new place and I think I am going to have to go elsewhere.0 -
** Townsend Antioxidant Organic Berry Blend at Costco - Recall - Linked to Heptatis A Outbreak **
Hi Everyone,
Has anyone seen this story on the news, and have any of you been eating these? The Townsend Antioxidant Blend from Costco. I use this brand a few times a week in my morning smoothie. The CDC is recommending either a vaccine or a short-term shot for those who may have been infected within the last 14 days of receiving the shot.
Is anyone in this position, and if so, what are you doing? Are you calling your Onc or Family Physician?
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SBoob - Oh that sounds like a scary question and I don't know the answer. I'm sure it is shockingly expensive, as is every medical thing. I wish you luck, and hopefully someone will come along soon with some helpful information.
Debra - I've bought that brand many times, too. I haven't been to Costco in a long time. I think I'd call my PCP first thing Monday morning. But your oncologist should be able to help you, too. What about your county health department? Good luck and keep us posted. J
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Awww, so cute!
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Hello everyone, long time no post! 5/22/13 was my 1 yr since my last chemo. Just cking in to say all is good. Finished radiation last year Oct and am under observation every 3-6 months by onc/surgeon. Hope everyone is doing well. Needed to take some time off from here and just enjoy life with friends and family. I never forgot u all though, always in my thoughts and prayers! Bless u all, and hope u all who r mothers had an awesome Mother's Day! I did, my youngest had her First Communion on the day, was so precious and I was so thankful to be here to be part of this special time in her young life!
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This article is long but I believe worth the read. Interesting perspective on the BRCA gene and mastectomy.
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Good article, Wrenwood. I've had mixed feelings about Angelina J. PBMX. This helped clarify what I couldn't put into words.
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Hi Jan69 - the local news said that the 3 health clinics in town will be giving free Hep A vaccinations this week, and so I'm calling the Onc's office right at 8:30 AM! I will keep you posted.
Congrats Julie on such a wonderful update for us!
Hope everyone is doing well today - sending everyone a big hello!
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Thank you for the article Wrenwood. Very interesting. I do wonder whether if we have or are thinking we will have all the extra surgery whether it is really neccessary because it doesn't mean you won't get cancer will it and we might put ourselves through this for nothing. I was thinking of having the other breast off and an oophorectomy to avoid getting it somewhere else in the future, but because I'm a coward I'm only thinking about it!!.
Inspired a big hello to you too but why are you having a Hep.A vaccination?
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Angelina Jolie was seen with Brad Pitt in a concert yesterday. She was wearing a thin strepped dress, looking great. Apparently, she doesn't seem to have much scars from the surgery, at least what could be visible around the neck, arms, etc. Wrenwood - yes, that artile is something, it has a lot to say. I am gonna have to read it again, as I just glanced at it for now. The whole country, the whole world, all the experts everywhere have yet to learn so much about this dreadful disease. But yes, it is pretty shocking to hear on the news, how they talk about the exact percentages, in the case of Ms. Jolie. How can they be so damn sure of the exact percentages? That doesn't make much sense.
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Greetings ladies! So good to log in and catch up with familiar faces.
Lovelyface-most of the scars would be around the center of the breast so unless she flashed you; you can't see them. Welcome back it is nice catching up with you. We all have fears but I hope you can get to the bottom of your concerns.
Titan I can run up to at least 2.5 miles in one sitting. Yeah me!!!
LvRving-good to read your good news!
Cocker, Navymom, Innmate and everyone else hello. Sending my encouragement to those going through treatment at this time.
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Hey Fighter - So good to hear from you. 2.5 miles, wow!!!!! That is awesome. The most I had done was 0.5 miles in one sitting. Keep up the good work! You have me inspired.
Yeah, Jolie is not flashing, but I am sure everyone is wondering. She has no puffiness on her face, no visible after-effects of surgery, my goodness, what are celebrities made of? I think I had puffiness and visible signs that I had had surgery, even with my lumpectomy. Maybe it has been a while, I am not sure when she had the surgery.
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I wanna say I read the surgery was in March... I am sure she had nipple/skin sparing so they would look pretty good. Mine are a royal mess but more surgeries in the future to perfect the canvas of my flaps that are now in place. Can't wait to see how my 1 butt boob and 1 belly boob end up looking
maggie
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Babs - am I the only one who never got their eyelashes totally back? LOL Mine are still very short, and can't wear mascara yet, as the brush would probably hit me in the eye.
I am 16 months post treatment and not much happening there. My eyebrows are also the same. I don't mind, (thank goodness for Revlon and wigs), but right before treatment I plucked my brows in a hurry, and kind of have them a little uneven. They have just remained in this same position, so when I brush them on, I have to adjust for the slight difference between the two. I got my Hep A Vaccine shot today. The second shot comes in 6 months. My Onc is on vacation out of the country, but the Nurse told me to go get it done. I ate those recalled berries from Costco. Well, I ate them, but not after the recall. LOL
Stay cool ladies - it's 108 here today!
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Has anyone had heart issues with Taxotere.............my doctors are saying it is not the drug but I was doing ok until I started this regimine. I had a few issues but nothing like this. Here is an update. Also, has anyone due to heart issues not been able to get radiation?
date on me: The Heart Monitor revealed that my heart is all over the place (long story short). Seen the Cardiologist today and have to start Bystolic (Beta Blocker) and have an Echo and a Stress test. All this week. Depending on what they reveal we will do further testing but definately will redo another monitor. He is getting the strips from my doctor and not just the report, he wants to read it himself. He knows I will fail the stress test but he said that if I can maintain (he will be present) and he is satisfied we will put off doing the medical one for the time being. If he does not like what he see we will move on to many other test. Please pray that I can get this all taken care of with little effort and none or very minimal side-effects from the drug. They all swear I will feel alot better as my heart is just way to over worked.
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SBoob - So sorry for your heart issues. It sounds like you have a very thoughtful cardiologist who will watch you carefully. Prayers
Inspired Debra - Glad you were able to get that vaccine today. Who would have guessed we could get sick from berries -- from Costco!
Hair ------ I never had much to call eye lashes or eye brows. But my hair came back in on time, but now my hair is falling out again... I'm doing a Donald Trump comb-over now. This f'n BC just never gives up!
Shout out to Cocker, Fighter, Mags, Lovelyface, NavyMom, and everyone else on previous pages that I can't remember. Jan
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To all those ladies doing the 2.5 miles in one sitting - I'm very very good at the sitting!! I think my bum is the biggest bit on me.
Stupidboob praying that you get all your heart issues sorted out and nothing is wrong.
Mags your boob is a mess and mine isn't there. What a great pair we make lol. Am I missing something what berries did you eat?
Fighter hello to you too. Good to see you posting and hope you are doing well.
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belly..not berry cocker LOL. I had bilat diep(belly tissue made to breasts) in Nov and leftie did not survive so in March I had tissue from my bum made into leftie. My last surgery was May 22 for a lymph node transfer to help my LE. Next go around will be in Aug when she starts on symmetry of new breasts and perfects them
stupidboob...sorry about your heart problems. may the docs find something to help
maggie
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I had a local recurrence and I don't know what believe when I read these post. I recently saw my doc and she said 5 percent chance of coming back to breast and less than 5 in rest of body. I questioned her cause those numbers sound way off but she said she does nit throw out words to her patients just like that. I also sent for my records and there were her clinical notes with exactly the same numbers. I'm tn . It was 3 cm. Nodes were clean. I had 6 ct and 25 rads. She specializes in tn. Still my husband had to convince me too believe her. The stories here make me wonder.
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Hi All, I've been lurking in the backgroun learning from your great wisdom, laughing at the good stuff, and praying for those that need it. I just rec'd my pathology report after by BMX (neoadjuvant chemo). My MO had said during one of my visits with him while on chemo that it was extremely important for me to have a pathological complete response. If not the chances of recurrence were much higher. Unfortunately, I rec'd a report that showed I had clean margins, no lymph node issues, but still had a residual tumor of 2mm (very small). I keep thinking one more chemo treatment may have gotten it. Would any of you knowledgeable women help me understand what to do next. I'm so scared of a recurrence. Should I be sending the pathology report to a well-known center; if so who. Has anyone had a situation like mine? Thanks so much!!!! Lauren
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I can't help you bc I had surgery before chemo and now I will never know if chemo responded. So pissed.
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Lauren - Same here: surgery before chemo or rads. Maybe not so pissed as jen. Good luck no matter what.
J
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Lauren, that is exactly what happened to me. I started with two tumors in my right breast, each 2cm+, and by the end of my A/C chemo, all that was left was a 3mm residual carcinoma of one of them -- not even visible on a mammo -- which the surgeon removed. My margins are clear, my nodes now are clear (there was cancer in one or two of them originally). I thought the same thing: one more chemo might have done it!
Monday, I will be starting rads and according to my RO, that should take care of any cancer which may be hidden. However, for years to come I will have to keep an eye on the situation, being a triple-negative.
Good luck to you!
Carol
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