Calling all TNs
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I'm tn as well and start chemo in one week!!!! Act.
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Lauren- I've not had my surgery yet, had 4 rounds of CT. My MRI with contrast showed no biological activity to the tumor. My clip was placed after chemo as my original drs didn't leave one. The surgeon said there is a possibility that some cancer remains, but its gasping for breath and dying. As long as the margins are clear, and no large blood sucking mass remains, we must be good!!!!!! Right????
Lisa0 -
Surgery then chemo then rads...sorry cannot help with advice except to say if you are not comfortable with the docs approach then definitely get a second and even third opinion. Check out tnbcfoundation.org too for tn specific advice and info
Maggie0 -
Ladies- I am having the worst hot flashes you can imagine. I saw my onc today and FORGOT to ask what to do......
Can anyone share some success stories on controlling or stopping them?0 -
Lauren...I had neoadjuvent chemo 4xdose dense/ac every two weeks followed by 12 taxol. Fortunately I am an ultrasound tech and was able to watch my tumor shrink to nothing. My path report showed clear margins after Bmx...but did show very early stages of DCIS. Did they say if the residual tumor was IDC?
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ldawson- I kept several ice packs in my fridge and slept with them either on top of my head or I put them in my pillow case and laid on them. Hot flashes are the worst! Hope it passes soon for you.
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Lauren- Even with PCR as a triple negative you will still have a risk of recurrance just by the aggressive nature of the cancer. I just got my path report back after neoadjut. and I did get a complete pathological response. No sign of cancer in original tumor site, lymph nodes or skin. While I am thrilled with this news, my surgeon was quick to point out that I have to stay vigilant the rest of my life just because I'm triple neg. So now I will be checked every three months for two years and then we move to every six months. Hopefully I'm done with cancer but there are no gaurantees. I plan to live like I'm cured until someone tells me different. Try not to get to caught up in worrying about the future, it will drive you crazy.
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Sorry Lauren, I can't help because I had surgery before chemo. That is a tough one. Good Luck!
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Lauren like everyone it seems, I had surgery before chemo and rads. Never thought to ask if I had a pathological response though after chemo.
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Lauren, that sounds like a great response to chemo. I had a PCR, and I can tell you my surgeon was very surprised when he got the pathology report after surgery. We knew it had shrunk to where it couldn't be found on ultrasound, but he still expected something there.
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sweetpickle - " So now I will be checked every three months for two years and then we move to every six months."
What does checked look like for you?
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Jen-- I saw you got your ovaries out. Is it horrible!!!
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Also, did everyone get steroids with the ac portion of chemo??
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I had a lumpectomy first and then AC and 12 weekly taxols. Yes there were steroids with AC. Actually they helped with the pain I have from herniated discs in my neck. A plus for chemo other than the intended use.
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Alibeths, I have no idea what was in my iv, but I was given oral stereoids to take for several days after chemo.
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Thanks everyone for your responses. They were very helpful, and I'm calming down. Based on the path report (which I have not yet gone over with my MO), it was too small to test, but they do refer to it as IDC. With a BXM, I'm hoping they are all gone now and none of those killer cells got in my blood stream. I do not have an ongoing testing plan yet. I hear the 3 year marker is important. What is everyone doing for monitoring (blood tests, mammos, scans, etc.). I have implants - I wonder how they would see anything, but I hear it usually pops back up in lungs, brain, etc. - SCARY.
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Hi Lauren! I see your from WESTON! That is whereI will be having my treatment!!!
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Jen- He didn't say that I would get a CT scan but I will definately be seen in the office for palpatation checks. I don't think I want to be scanned that often even if it was an option.
Alibeths- Yes, I got steriods with AC and then also with Taxotere because I had a bad reaction to the Taxol and Taxotere but was able to manage the Taxotere with the steriods.
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Hi Ladies,
This morning I had the great honor of greeting my son after a 6 month deployment overseas. He is safely back in the USA. I would like to thank all of you for your support while I waited for his return. He is very tired, a bit thin and it is wonderful to see his beautiful face.
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Navy Mom - Hugs all-around. Hugs for his service. His sweet face, indeed! I'm sure you are breathing easier now. PS. Painted Turtle camp was partially burned in that Powerline fire and they've had to cancel camps all summer. So sorry for all the kids. Jan
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YAY NAVY MOM!!!!
Thanks for the info Jen!
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Lauren are you doing RADS? I fell in a grey area when it came to that but in doing so my risk of reoccurence dropped from 15% to 5%. Microscopic cancer cells are not detectable and RADS is supposed to kill it. All is well so far...will finish 10/33 tomorrow. Best wishes!
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Lauren, Did you do RADS before mastectomy?? I was told before that if nodes are clear, no RADS.. Is it a better to be safe then sorry thing?
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Navymom- big congrats to you!
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NavyMom everything is alright in your world again. I wish I could see his beautiful face too. I hope if he ever has to go away again he comes to NZ. xx
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Navymom - how wonderful you must be feeling!!
I am so happy you can clap eyes on your boy and enjoy his company. My 18 year old son is planning to join the Marines - I am a wreck! He's been accepted to college, but doesn't want to go right now. He graduates from HS, next Saturday.0 -
Congrats Navymom!
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NavyMom and OBX I know you miss your son Navy and you will miss yours as well Karen but they have both chosen excellent, distinguished careers and their own paths in life, just the way it should be . They could both be bumming it all day long, smoking pot, never holding down a good job, drinking alcohol or getting in trouble with the law or trouble in other ways. But both of them have chosen to use the greatest gift you as parents could give them, independence to stand on their own two feet with pride. I know you are proud of them but both of them will also be proud of the parents that have allowed them to do in life what they know in their hearts they want to do and to live their lives the way they want to. It won't be forever even though it may seem like that but one day they will stand proudly beside the parents who have brought them up to do their own things. You both have my heartfelt admiration in bringing up your son's so well adjusted, steadfast, honest and true. Luv you both. Annie
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Annie - does this mean I have to cancel the bars for his Windows?
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