Calling all TNs
Comments
-
Oh crap Fighter. Was so sure it was the kitten. What is the plan now, more chemo. When will this stop. All those frecken trials and still no cure. Thinking of you and sending huge big hugs and holding your hand. I know you can do this. xx
Jan 69 congrats on being 3 years out. You go girl. xx
0 -
Oh Fighter, No!! I am so, so sorry this is happening to you. I too was so sure it had to be something else. I hope it is considered a local or regional recurrence and they can get it under control. Will you be having any further testing? My heart is so heavy for you and I pray this is just a setback. Sending a huge hug to my diagnosis buddy.
Tiffany
0 -
Fighter - so very, very sorry to hear your news! You know what this site is about - feel free to vent, swear, rage, whatever you need to do to get through this. We are all beside you with positive thoughts, prayers and {{HUGS}}.
Doreen
0 -
Fighter as a man, and someone who has never battled this first hand, I often feel like I have no right to speak, and maybe I don't. But, I want you to know that while I don't claim to know what it is to have this dread disease, my wife does. I DO, however, know what the fear associated with it is like. I've been there right alongside my wife, and never been so scared before in all my life. And I DO know that fear, as unavoidable as it is, has never, ever helped any situation. Please know that you have INCREDIBLE support here and many, many people praying for you and pulling for you. Further, know that YOU CAN defeat this!
0 -
They are thinking local, but I have more test set up for Friday Bone and Cat Scan. I had no warning ladies my tumor markers were normal 18. TNBC is sneaky and comes w/o a warning. Stay on top of things ladies!!!!!!
0 -
I had a BMX with six cycles of TC. ONC followed up with tumor markers and I had no issues until just now. I am hopeful, because it doesn't seem real.
0 -
Craig, Karen's husband posted this, this morning ladies.
Karen Estey
Sorry for the delay:
I am sorry to inform you that Karen passed away on 12/29/2013 at 2:00AM.
Your love, friendship and support meant the world to her. Remember her humor and let your heart smile.
Craig Colombo -
Husband0 -
fighter...no words except I am so sorry.
Mags
0 -
Fighter, you're in my prayers. This triple neg is truly a nasty beast.
0 -
Fighter - sometimes there are just no words....... I hope you can tell from all of the postings that everyone on this board is here for you, and will be praying for you, sending hugs and supporting you in this battle. Those CANCER SUCKS buttons and t-shirts really do say it all. I wish we would find a cure so none of us would have to deal with this ever again. You've fought the battle once, and we know you can do it again! Try to stay positive - I really believe it helps to fight this beast! Stay strong, fight like a girl - and kick some cancer A__'!
0 -
I don't post often these days but read lots.
Fighter: Keep fighting honey - so sorry. Sending you positive vibes.
Hugs to you all xxxxxxxxxxxxxx
0 -
Fighter - You are living the nightmare that we all fear. I pray it is a local reoccurrence and your treatment plan kicks its ass! Your in such a tough place right now, learning that its back but needing results of more tests before figuring out next steps. How tough it must be for you. I wish we could all take some of the stress and anxiety of your shoulders, but instead we will just be with you every step of the way. Please keep us posted. I'll be anxiously looking for your updates. I hope you can feel our arms around you.
Kathy
0 -
Fighter,(((hugs))) KSteve,you said it perfectly,how we all feel and care!
0 -
Fighter so sorry!
And yes I am done with surgery, had a lumpectomy 2 1/2 years ago and nothing else since.
0 -
Fighter-I am sorry this happened to you.
I had local recurrence last April and did bmx and chemo. All clear now and feel great. You can get through it again. You already know its not fun but you can do it.
Once I got over the shock of recurrence, I was just plain old bored with having cancer. I did what I had to and tried to ignore it. After I cried for about a week first.
Locoregional recurrence has a 67 percent disease free survival at 5 years. The CALOR study says its "highly treatable"
Stay strong and ask for Xanax if you need it. Facing this beast twice sure qualifies as PTSD to me. Hugs and prayers.
0 -
Fighter, we are all here for you. I was so hoping it was just the cat. I hope all your other tests come back negative.
CRS319, thank you for sharing your own recurrance history. It's important to know that it's possible to get past a recurrence and get own with life.
0 -
Having mouse p roblems and don't know who I am responding to. I am a stage II. The other was a type. Thank y ou for asking, because it pointed out the mistake. I am a stage II because of the size of the tumor.
0 -
CRS319, you made my day!!!. What I need is seeing people like you that made it to the other side safe. Please keep in touch.
I am here at work and I am going to press forward!!
0 -
CRS - thanks for posting the survival rates for local regional. And in the event that this is considered a local recurrence, the survival rate goes up from there, right? And if this is a survival rate of with treatment only, and Fighter_34 continues her amazing complementary lifestyle afterwards, those stats could even be higher. I also think KSteve posted so wonderfully.
0 -
fighter, so sorry for your news, but i wanted to add that i read somewhere, not sure where, that when they tell us triple negatives we have a disease free survival say of 75% in five years for early stage...some doctors say its more skewed than other cancers because us triple negatives have more "noise". The way I understood it was that we may have more recurrences, but then they are treated and the ultimate survival rates are greater than the statistics say. We are all here for you and praying right along.0 -
Fighter - I agree with Worrywart, and I have an article, discussing the "noise" in TNBC statistics, as Worrywart referenced. This article is a conversation with Lisa Carey, MD (leader in TNBC research) and she discusses the noise in estimating the outcome of very small tumors and proposes that a better metric in decision-making is looking at a 10-year survival rate. Here is the quote and a link to the article:
"We don’t do as well in estimating the outcome of very small tumors (T1a, N0 triple-negative breast cancer). The decision-making models come up with a 19% risk of relapse at 5 years, but you cannot rely on this. The truth is, relapse in these models includes outcomes that from a prognostic standpoint are “noise,” such as in-breast and local recurrences, as well as new primaries and true relapse. Since these tumors relapse early, the better metric for decision-making in triple-negative breast cancer is the 10-year mortality risk, which is about 8%. It is a more useful number for you and your patient in decision-making."
http://www.ascopost.com/issues/december-15-2012/current-perspectives-on-triple-negative-breast-cancers.aspx - A Conversation with Dr. Lisa Carey, MD
0 -
The CALOR study says 67 percent disease free at 5 years. My oncologist says three hours of exercise per week will reduce this by 1/3rd. So sweet sister, AFTER chemo, eat low fat and exercise.
During chemo, it's best to eat what you can. I had taxotere and carboplatin second time around. Made food taste bad.I ate what I could. Now I'm paleo diet, walking and low weights for exercise. I'm sick of worrying about dying. Going to live out loud for the next 2 or 50. So far, so good:)
0 -
thats the one area I am sucking at - exercise. After my upcoming DIEP i am changing my ways.
0 -
It took me a while to hit my stride with exercise. I had the bmx 1/2012 and chemo ended in 4/12 and then implants 5/12. I didn't start exercising until June. I started slowly with only 1 mile a day and kept a chart on the fridge. I had read somewhere that 45 minutes a day reduces risk of developing bc 40% and 75 minutes a day approx / 8 hours a week reduces risk 60%. Those stats may be related to before any bc develops - see link with info below. I have read lots of information that exercise may help reduce recurrence, and a TNBC nutrition guide from a nutrition expert who specializes in TNBC diets had exercise info on her sheet.
My challenge is the kitchen. I make it through with good choices, but it's not as easy for me to stay on my goal there as the exercise. I did have two servings of brussel sprouts for breakfast though.
) Followed up with a piece of dark chocolate. <sigh>Here is a link to the reduction risk I mentioned, and the article is called:
Practical Principles of Some Lifestyle-Oriented Breast Cancer Risk Reduction http://nosurrenderbreastcancerhelp.org/page93/page100/page100.html. I found it on the No Surrender Breast Cancer Foundation Website.
TNBC and Exercise
0 -
Fighter_34:
I am so very sorry that it wasn't just "nothing." Please know that you are in my thoughts and that I wish you peace as you put those boxing gloves back on. Please know that you will not "press forward" alone, we will all be right there with you.
Hugs,
Linda
0 -
thank you ladies for posting the encouraging statistics. We are with you Fighter---fighting!
Inspired...I have missed you here....try not to beat yourself too much over the piece of dark chocolate...it is practically health food LOL! At least it is good for the soul.
Maggie
0 -
Maggie, thank you - and I love it ... "practically health food". HeHe
0 -
Just opened new food snack that I got at Trader Joe's. It's called: Whole Grain Rye Mini Toasts. They are little square shapes, larger than wheat thins but smaller than a cracker.
Nutrition info as follows:
Serving size is 24 crisps. Total Fat for 1 serving is 1.5 gram / 1 gram of sugar / 4 grams of protein / 3 g fiber
They are large enough where you could top it with something if you wanted. I'm eating them plain while I drink my kale smoothie. I have not Fooducated it yet for the grade. The party might be over with these once I do that.
0 -
Fooducate: B+ I also think if they were crushed up it would make a great topping for the brussel sprouts. They have a very unique flavor, and they're crunchy.
0 -
Fighter: We are with you. The silver lining is that it is a local recurrence and not a metastasis. I have a friend whose uncle got a lump right there on the neck below the ear ( around the area you mentioned your lump happened) Those days there was no chemo or radiation. He got it removed, doctors said it was cancer. Thats it. He was around 50 then and he lived till 92. please keep us updated. And did you get yourself tested for brca.
Inspired: so good to see you back after long. Had dropped in a message for you long ago in your inbox.
as for me, yesterday was my 5th chemo and my first paclitaxel. 3 more taxols to go and then 4dd Ac and 4 DD taxol will be over.
today i feel ok.. i guess from tomorrow side effects will start kicking in. as long as its not nausea again like Ac.
0
