Calling all TNs
Comments
-
Hello Ladies, I've been off line for almost a week. Trying to catch up now.Fighter, sorry to hear your news but glad scans came back clear. Please check in when you can.
Inspired, glad to see you back!
Welcome to anyone new here. Hugs to all from one of "the old ones"
0 -
Hi All,
Just checking in. I have my last neoadjuvant chemo tomorrow (Tuesday). The next day I meet with the surgeon and get an ultrasound and mammogram. I can no longer feel my tumor at all, so I'm really hoping nothing with show up on the ultrasound. I think mammo's are worthless for me because I have dense breasts, but they are doing it anyway.
Yesterday, after 5 months of chemo, I finally had a friend shave off what was left of my hair. I feel really strange when I look in the mirror, but I think it looks better than the small amount of hair I had. It seems to take a while before hair starts growing back after chemo, so I'm guessing I better get used to this "new look".
I'm guessing pretty much all of us on this thread have "been there, done that" when it comes to being bald.
I find I keep rubbing the top of my head....it feels so strange!
0 -
Hello ladies, its been a long time since I have been here. Just wanted to post that its been three years now since I was diagnosed and just had an MRI done and am happy to report I am still NED. I have spent the last couple of years just living life and maybe trying to forget that I had cancer but the truth is you just cant. I am a proud survivor
Have a wonderful dayKymn
0 -
Fighter -- Best news I've heard in a long time!!! As you can see from the responses, we're all with you on this journey and do understand that you need to take a break from the boards and concentrate on this latest fight. Just know that we're still all going to be thinking of you and sending positive thoughts your way. So happy for you (I know that sounds weird. Obviously not happy that your cancer is back, but soooooo relieved is localized reocorrence!). Made my day!
Kathy
0 -
So glad to hear the news Fighter. Go get em!
0 -
Kymn--thank you for checking back in with us. Congrats on 3 yrs!!!! Terrific news
Cocker---waiting here with you love.
Mags
0 -
Simplelife: When I saw my Onc in January, he told me that those who have a complete response to chemo they know they will do exceptionally well long-term, and then he said that those with even a partial response to chemo that they know those people will also do well. It sounds like this will be an excellent checkup for you! Congrats on how far you have come!
Cocker: Praying that this is something else unrelated to anything. Since it comes and goes, I'm thinking it will not be related to cancer but glad that you are getting it checked, because then you can return to not worry about it and have closure on the issue. I've read on here that some women had an itching at the point of a recurrence in the breast. My BS said a recurrence would look like a pencil eraser. Then I got to thinking ... what type of eraser? There are all sorts! Will be checking in to see what your results are - try not to analyze too much, but instead envision a happy phone call.
Kymm - Congrats on 3 years! If you log back in to say "hi", please tell us of any special things you have been doing for your health and nutrition post bc! It's nice to have a great model for us!
0 -
Hi all
I need your prayers for a good PET scan scheduled for Wednesday. Only 6 wks out from 2nd bmx, and these damn tumors showed up again! This time they are between my breasts, over the sternum. 3 times in 18 months... unbelievable! I'm starting chemo again on Friday, gemzar and a platinum (carbo or cisplatin). I know these lumps will show as cancer as they presented the same way as my first recurrence, but I hope there are no distant mets.
I know you will all offer prayers and statements of hope, but as of now I am so exhausted from crying, I'm almost numb. Please, just say a prayer for me that God gives me a few more years so I can see my girls graduate from high school and college.
Lori
0 -
Slowloris I am so sad that this has happened to you again. Praying that you are wrong and its not F... cancer again and that there are no distance mets. Sending lots of love and huge big hugs. Cancer sucks.
Mags/Inspired yep just a waiting game now. Really hate that part it, really seems to get to me as each day of waiting goes on.
So sorry to hear to hear about you ladies losing your beloved sisters. Must be so heartbreaking. There is nothing more lovely than having a wonderful sister in your life so it must be really really hard for you both. You will just have to adopt all of us. Hugs
0 -
I don't know you Lori, but I am so sorry. Prayers coming your way.
0 -
dear lori..
god will give you a few more years and within that time i hope they find a better solution, this is the hottest area of research anyway .. some 80 to 90 clinical trials going on, it seems one vaccine is also on its way. Who knows we might hear better news soon
0 -
Slowloris,I am so sorry you are dealing with this again. (((Hugs)))
In my thoughts and prayers,your chemo puts you Ned for lots and lots of years!!!
I pray the researchers/trials come up treatment options besides chemo for you and all the TNS who are going thru this nightmare!!! (((Hugs to all)))
0 -
Lori, thinking of you and sending lots of positive thoughts and prayers. This is so unfair, I hate this disease.
0 -
Dang it Lori! So unfair. I am here with you as well.
Good to hear from you Kymn! So happy you are doing well!
Cocker- were you given any idea when your results will be in? I'm in your pocket!
0 -
Lory48, Fighter and Slowloris, wishing you guys the best results with your treatments, NED!!! and low SE. Take good care. (((Hugs))) XX
0 -
Lori - A mountain of prayers are being sent your way. Big hug too.
0 -
Lori: Healing light and prayers going out to you. I am so very sorry that you have to go through this again. I hate this disease and its unfairness.
Cocker: Hoping beyond hope that you receive good news. Let it be anything but cancer related.
0 -
Certainly Slowloris, I am praying for good results. Thinking of you and feeling so sorry that you have to do this again, it is not an easy road. We are here for you and remember to put each of us in your pocket when you need us to hold your hand through a scan or while waiting for test results.
Fighter-I am sure you were devastated to find it was fc, I know I was pretty darn shocked when you told us. You were supposed to be past all this crap and moving on! I am so sorry you have to go through this again, but it sounds about as good as it can for a recurrence, or did you say it was a new primary? Just glad it was very local. This should be a sort time off track to get rid of it and you will be on your way again. Hope you are feeling ok, we are hear for you, rants and everything!
Yesterday I had an angry at cancer moment. Hubby dropped me off so he could go get gas while I ran to the bank. With my bad back nothing is easy and run is not in my vocabulary; I could barely walk back to the gas station, limping along and in severe pain almost in tears. Finally I saw hubby and got in the car. My first words to him were I hate cancer, look what it has done to me! I can't even walk across the parking lot! It has taken so much from me, my freedom, my work. my ability to keep a clean house! I was so mad at the moment. Hubby has had it too. Tired of doc appointments, he has been sick and he is being laid off in a few months. I just don't want to be in pain 24/7. So I finally got in for my back cortisone shot. Hurt like H*LL! Now it feels great, no pain! But they told me the numbness will wear off on it will start hurting again and take 2-4 days for relief from the cortisone, so it sounds like another fun few days!
Another rant by me!!!! Well, at least I am alive. I often wonder what after life is. Is it nothing? Is nothing better than all this pain and struggle? Is it joyous? I tend to think that it is nothing, and I do not want to go there, so I do my best to stay here, with the pain and all.
0 -
Oh yeah, Cocker! I used to have red spots and rashes pop up all the time, by the time I would call the doc they would disappear. They were never worried because by the time I got there they were gone. Hope it is just a simple rash;
Romi and bk photo is still on my phone. I will transfer it one of these days!
0 -
Slowloris, I'm wishing you the best.
Today is a big day for me. It's my last chemo....I hope forever! After this, I go onto surgery and radiation.
0 -
My bride has her exchange surgery on Friday. Anything she should be prepared for? How bad is this one? Pain? Incapacitated? Recovery time? Advice?
0 -
Exchange surgery easier, quicker, less painful. I had no drains instead of 4 and was generally recovered in a week (had been with drains for 3 weeks with BMX) although I still had to wait 4 weeks to exercise.
0 -
ALH- was not bad for me at all. I waited a week before driving and any lifting. Was sooo much easier than mx! Give her a hug for me!
0 -
Congrats Simplelife!!!!!! Hope it goes well! It is a big day for you, a great day! The rest of it will be a piece of cake after all that!
Unbelievable! Trying to get help for my pain from the shot wearing off. Hubby called the doc, no he won't prescribe anything, hubby says how his dentist had just prescribed pain meds for a procedure, so should I get something for my pain, and doc said his dentist should be reported!!! Really? Keeping a patient comfortable is now a crime? I am so irritated. ANYBODY ELSE IN PAIN FROM PAST TREATMENT????? What do your docs do for you? I am feeling alone, like I am the only one facing this 3 years after my diagnoses. Everyone seems to think that I should be fine even though my mri showed severe spinal stenosis and arthritis. Is my future one that consists of me sitting on the sofa 24/7? But I guess that is better than the alternative, or is it?
0 -
I had my first taxol on Monday. Neulasta shot on Tuesday. I felt fine so we went out to eat. I went to the restaurant restroom. After bowl movement, I was sweaty and short of breath. I fell in the restroom and was taken to ER by ambulance. Fractured my tailbone, lot of blood work, and was just released to home. what a night!
0 -
Jianchi, Wow! So very sorry for your fall and injury. What an awful start to treatment! And a broken tailbone?! That alone must be miserable. Take it easy, rest, rest, rest. Hugs and warm wishes for speedy recovery. Jan
0 -
Cocker, I had a biopsy yesterday on the good boob for a tiny red mark with a small bump underneath, so you and I are in that wait and see mode. The Dr. didn't seem too concerned, he should be a poker play because of his great game face, so I'll just keep busy and hope for the best for all of us.
Fighter, stay strong and remember we are here for you any time of the day or night.
Jianchi, How horrible for you, that must be so painful. Take good care and get lots of rest.
Inspired, I am so happy to see you back, I was telling my husband how much I missed you and when I got home, you were back. Sometimes I think the universe works in mysterious ways!
Best wishes to all newcomers and it is nice to see ladies that have been here since the beginning of this thread continuing to give ongoing support.
Hugs to all.
Kim
0 -
Goodness gracious Jianchi!! I'm so sorry that happened to you! I hope you heal quickly and the Taxol treats you nicely.
0 -
Jan, Kim and Tif: thank you very much! I never expected this kind of thing will happen to me ... I felt much better than did AC. My MO said that I must had a very low blood pressure after eating some food and the bowl movement. The ER found my white count was very high (from Neulasta), and they were very alarmed. I had a head CT as I bumped my head, tailbone X-ray and a chest X-ray... Luckily my head was not bleeding (some witness said that I bumped my head three times), I don't remember that many times but at least twice... Low blood pressure is so scary. You ladies take care!
0 -
Jianchi, I'm glad you are okay. What an unexpected thing to happen. I had really low BP for a week after my first AC so that had to bump the fluids up a liter for all the rest of them and that did the trick. The bowel movement may have produced the vasovagal response too. I'm really sorry to hear about that happening. It's hard enough going through chemo.
I had my last chemo on Tuesday. Hooray!!! It was AC, so I know I have at least a week of feeling like crap, before I start to feel better, but at least I'm done.
The next day, Wednesday, was filled with appointments. I had a mammo, ultrasound, breast surgeon and plastic surgeon appointments. I live a 2 hour's drive from where I get treatment, so we spent the night in Nashville Tuesday night for Wednesday's appointments.
The ultrasound showed that I still have a bit of cancer left. It was 14 mm at the widest point down from 2.3 cm at the time of diagnosis. I was initially really upset and crying because I was hoping I would be able get a pCR with chemo. It's still possible. The last AC infusion hasn't had time to do it's work yet. With triple negative, chemo is our best hope.
My appointments with the surgeons went okay. I'm getting a lumpectomy and lymph node dissection. Wednesday was just a long day to be sitting in the waiting room after AC yesterday and finding out I still have some cancer left. We finally got home around 7 pm. I had to give myself my last neulasta shot after I got home. After that, I just crawled in bed and was asleep in a matter of seconds.
Having cancer has taught me a lot about learning how to accept and get over "bad" news. I know the ultrasound results weren't exactly what I wanted to hear, but I refuse to waste a lot of time moping about this. Life is too short. I used to really dwell on the negative, but I just refuse to do that anymore. It doesn't do me any good. Now, I cry, get my tears out, let myself feel what I need to feel and try to move on. I want to spend whatever time I have (long or short) enjoying life as much as possible!
0
