Calling all TNs
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My wife's BS put her port in when he did her lumpectomy.
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I had my first treatment of TC today....no allergic reactions. Feeling a little off tonight, no much appetite, had chocolate pudding for dinner and drinking lots of liquids. I am pretty tired already from my reconstruction surgery in December and now adding chemo to the mix. I get my dreaded first Neulesta injection tomorrow...hopefully the bone pain isnt too bad. Have some meds in my arsenal to counteract including Claritin prescribed by my oncologist and tylenol #3 and percocet if needed.
I received the best news before I started my treatments today from my bone and CT scans last week - NO EVIDENCE OF METASTIC DISEASE...WOO HOO! I could have done a sommersault in my MO's office if I could, gave him a big hug and told him I would give him a kiss too....he just laughed and shook my hubby's hand......SO RELIEVED! It gives me motivation to keep on trucking and get through this chemo shit for now whatever it may bring!
Michele
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Congrats curlylocks that is good news indeed.
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curlylocks: CONGRATULTIONS!!!
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Curlylocks - Outstanding! I will try to do a somersault later tonight for you. Beaming with your excellent news!
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Great news Curllylocks!
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Curlylocks- the only thing that tasted good to me during my "yucky" days after each TC was ice cream- didn't seem to matter what flavor! It was difficult for me to drink water because it tasted awful- no matter what I put in it, it still was bad, but I drank it anyway-even made me gag a few times! So happy for no metastatic spread!!!! WOO HOO!!
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Wooooo Hooooo Curly!
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curlylocks...best news I have heard all day.....! so happy for you lady!
and Kathy...hope you can make it to a casino someday soon....we are going this weekend..it has been awhile...and I think of you every time I walk past the poker room...we went even when I was undergoing treatment...washed my hands alot but it just made me feel normal...it was nice to get away from it all....
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Thanks jenjen for update on fighter. I'm sorry I don't post here much. Just very busy trying to go on with life as a survivor.and caring of my grandchildren and elderly parents. My dad is 92 years old! Titan thanks so much for starting this thread and hanging in there for all of us!
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Jenjen I had surgery first as well then chemo and rads.
Curlylocks - woo hoooo, fantastic news. I ate a lot of melon during chemo because it not only freshened my mouth but I was able to taste it and it was so light. So glad things are going well for you and no sign of cancer yay. I wasn't much of a water drinker but I quickly learn't how to be even though it was hard to get down sometimes but it's funny because now I have to have at least a couple of glasses a day. Just try and eat whatever you feel like, anything is better than nothing because then you get a queasy tummy. You will go back to your normal diet after treatment.
Titan you enjoy yourself at the casino and put a bet on for me. But do you think Kathy should be encouraged!! besides she's busy playing with birds.
Came home from work today and the man was here to hang my new drapes. They look so nice and seem to let in a lot more light.
Have a good day ladies. Sending hugs to those having treatment.
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Michele, I am absolutely DELIGHTED for you!!! No mets!!! I was told by my MO at Vanderbilt to take two Claritins (yes...two) of the 24 hour variety, one at night and one in the morning starting the day before I got each Neulasta shot and continuing for a week. I had zero bone pain for all four shots while doing AC. I hope you get through the shots okay too.
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Curly I love, love, love hearing good news! Thank you for your post on your scan. Stay well.
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Tresjure - thanks for stopping by and let us know you're well.
Titan - I already warned "old woman" that she owes me a casino day! It's one of the places I can go and forget about everything but the fun.
I'm also seconding the Claritan treatment. Mine was Claritan, Zantac and Tylenol, starting the day before and for 4 days after. Zero bone pain!
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Curlylocks, fluids are very important. I too didn't like drinking water -- for me it was because I switched from Diet Coke and Coffee upon diagnosis, so now I only had water to drink (but have since added organic green tea - yummy!).
To help get fluids down during chemo, my Onc recommended Pediolyte Pops. These are frozen flavored pops, and have electrolytes in them. I think WalMart has them, but I bought mine at Walgreens.
A trick to get the water down, is eat something that makes you thirsty, like half a teaspoon of peanut butter or a salty pretzel or a bite of a granola bar. Then the water might go down easier. But for when you are on the couch, and not feeling really well, have a Pedioltye Pop!
Here is a photo of what they look like so you know if you go shopping for them! http://www.amazon.com/Pedialyte-Electrolyte-Maintenance-Solution-Assorted/dp/B000ARTNNI
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thats good news curly! kathy: do keep posting about your birds... 2 of them have become my constant companions, every morning, ever since my chemo journey began in Nov.
and thanks for updating us about fighter. and thanks for all the info you keep sharing ladies!
6 more days left for last taxol. Husband in Miami for work and its quite a challenge handling myself and managing my 5 year old daughter. She borrowed some money from me and filled up her small pink purse... said "I am going shopping"! My mom asked her if she wanted to buy a lovely dress for her birthday in May... she replied "No, I am not buying anything for me. I am going to buy some chemo medicines for my mom"
felt happy as well as sad..at the same time.
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Just checking in ladies all is well!!! I can feel my lump shrinking!! YES! I really had to adjust to being back in treatment. Not so bad this combo is doing the job with mild side effects. Maybe hair thinning, however either way it goes I can take it.
Local spread is what is going on I believe I said new primary. At either rate, we just love that little KITTY that sparked everything and got my attention.
Thanks for all your thoughts and concerns!!!
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BanR: talked to my MO on Monday about when to start chemo after surgery to receive the best outcome. He does not seem to think that within 21 days is necessarily better than within 30 days... He says ideally you should receive chemo within 12 weeks after surgery. My MO also says, for TNBC, of course you want to move everything as quick as possible, so for those had a delayed chemo treatment, sometimes they have other health concerns that made the delay, so that might contribute to the poorer outcome as well. Does that make sense to you? Anyway, I am convinced that my chemo started at a good schedule, and am not gonna let it bother me a bit. :-)
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Fighter: good to hear that your lump is shrinking!
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BanR that is priceless. She was only thinking of you bless her little heart but when exactly were you going to get the borrowed money back. lol Only six more to go and soon it will be over.
Kath hope you get your day at the casino soon. Tell mum to keep well then you can go.
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cocker: its priceless indeed! as for my money...i got it back the moment she slept!!
I have one more to go. It is scheduled for 19th feb. jianchi: thanks a ton. yes, even i am getting the chemo thing out of my mind.
we all are Her negative. I was Her borderline as per IHC. However FISH said its Her negative. I was just thinking what it means exactly. Does it mean that my tumor had few cells which were over expressing Her? What happens to those cells then? Since FISH was negative I didnt get treated for Her during chemo.
My Mo clarified, that my cells were expressing Her but not expressing it enough. Didn't understand him completely. What happens to that borderline expression of Her then. It remains untreated!
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BanR: my boy just turned 6 this month. Wish your daughter a great birthday in May! Also, all the best to your last chemo, mine will be just right after you :-). I am waiting for my genetic report, and hopefully I can see my second opinion of BS ASAP.
All the best to everybody!
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Putting my 2 cents in about chemo and when one should get it to get the best results. I was reading some of the posts yesterday and thought I would throw another rench on the subject. In case you didn't read my post 26 YEAR SURVIVOR, I never had chemo and back in 1986 if your nodes were clear no chemo was given. Wonder how many of those ladies were TN??? Again in 2003, with my second diagnosis in the other breast, I was stage 2 and refused the chemo. Well still here alive and kicking, so what that tells me is someday they will be able to test us and they will find that some do not need chemo, remember I told you this. Oh and btw I was grade 3 and I am brac 1 positive, so I am actually 27 almost 28, i think, survivor. It makes me so sad when I hear so much bad news about triple negative breast cancer, I am proof it is not all that bad. Sure back in 1986 you might say "how did you know it was TN, well my doctor told me I was not a candidate for tamoxifin because I was not hormone sensitive and it would not work for me, imagine way back then they must of known something. My daughter diagnosed 6 mo's after my second diagnosis, ya that was really something, nearly killed me, well back in 2004 they still didn't know to much about TN and she just had 4 treatments of chemo and a double mastectomy with tran flap. No other treatments, she had "not a very good speller" adrimicin, citoxin??? Well she is just doing fabulous and here is where I "Praise the Lord, Amen". I know I might be making light of a bad subject but I so wish more women would come back to give the ones who are overwhelmed by this diagnosis a bit of hope, because there is so much hope and please remember most women survive....that is a fact.
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Thank you so much Ms. Noni for reaching out to me!! And I am keeping the FAITH.....
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BanR: I am seeing my second opinion BS 3 weeks after my chemo. Before that, they ordered me a mammogram, an ultrasound, and a MRI. My MRI was clear after my lumpectomy, and before my chemo. I wonder how many of you who had surgery first, then chemo received another set of mammogram, ultrasound and MRI?
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nonijones: your story is very inspiring! Thank you for spending the time, and leaving some hope here!!!
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Noni thank you for that post. It was uplifting!
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Noni, Congrats and I've read your posts a long time ago and have posted to people about your amazing story! You are one of our role models for sure!
Fighter, Yipee - so awesome to see you post here. I have thought of you every day and so happy to see that your treatment is working!
Jianchi, my surveillance includes an ultrasound and MRI - each year and we flip flop each one at 6-month intervals, so that every 6 months I am getting some type of screening by one of those options. So since my bmx on 1/2012 I have had MRIs and ultrasounds each year. I don't have a mammo due to my BMX and because mammo did not show my tumor (even though it was palpable and I had very tiny breasts). I went on this protocol after reading some posts throughout the bc website, and my bs approved the protocol for me. His standard protocol would have been ultrasound 1x a year, because he doesn't place me in a high risk bracket.
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Inspiredbydolce, what section of the store do you find those pedialyte pops? I've never noticed them.
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Meg- you can find the Pedialyte Pops in the pharmacy area where regular children's medicines are.
Fighter- thanks for the update- glad to hear those nasty lumps are shrinking!! Keep up the good fight!
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