Calling all TNs
Comments
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Hey Fighter...good to hear from you! sucks you have to do this again but glad that things are working out for you....!
Hey noni...thanks for coming back here now and then....love you for that!
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I just finished reading all the posts since I was here last. I hope my chemo brain remembers what I read so I can make a few comments! Forgive me if I get something wrong or forget someone...
Congrats to curlylocks and fighter for their great news!
To the long term survivors - thanks for dropping in to encourage all of us. You inspire hope and we hope you visit often.
I had surgery, chemo and then radiation.
Cocker - you have such a way with words. I laugh out loud at some of the things you say! I'm so glad you're here to lighten things up a little. We all need laughter - thank you!
Kathy - I love the bird story! I think cocker is right about why you have a feathered friend! I hope you'll soon be gambling and, if you win more money than you know what to do with, pm me and I'll be happy to help you spend it!
When I was first diagnosed, I wanted to read all the stats I could find. Now? Not so much. I say, it is what it is, and survival is a crapshoot. Also, I'm not convinced a lack of Vitamin D is linked to cancer. I took 50,000 iu weekly for probably 10 years and I still got cancer.
Titan - if you win more money than you know what to do with, PM me and I'll help you out :-)
I am scheduled for an ultrasound of my kidney in hopes of finding the cause of the hydronephrosis. I'm hoping to get good results! My GynOnc will check CA-125 level in a week or so, and if the level is higher than the previous test, he's recommending laparoscopic surgery for a look see and abdominal/pelvic washing to test for cancer cells.
Cancer...the gift that just keeps on giving...
For those in treatment, stay strong and keep fighting! For everyone else, be vigilant and enjoy life! We can and will do this.
Hugs to all, Lisa
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thank you Inspired. I am just very worried about what the imagines will show. Anyway, I guess I will listen to the docs.
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Fighter - you just keep on fighting girl. We are all in your pocket. Big hugs
Noni - now yours are the stats I like reading about or hearing about. Gives me such a lot of hope. Keep going girl and your daughter.
Jianchi - I never had any further scans after surgery, then chemo then rads. We only get them if we have symptoms for more than two weeks but I do see my BS every three months and I'm not ready to give him up yet, anyway he's gorgeous looking and so gentle.
Titan - well did you win anything. After Journey, send me the left overs!!
Journey I've got a feeling that, that Kathy, is on her way to the casino right now. Wouldn't put it past her and how dare she call our mum an 'old woman'. (I lost my mum at 16 yrs so I have decided to share hers lol). Journey I hate those tests they cause me nothing but anxiety so I'd rather not have them but good on you for being strong, unlike me lol
Now ladies, (close your eyes AL Husband). I have another boil in a "you know where place". This is the second one since I had chemo. Never had them before that. It's so hard to walk I have to keep making out I have a bad back at work lol. Anyone got any ideas why I am getting them now and (no smart remarks from Kathy please). On top of that I have an ulcer on my tongue (Isn't that a sign of too much swearing lol). Probably about the bleeding boil.
Have a good day ladies. Friday for me tomorrow and am I waiting for it or what.
Hugs and love to you all.
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Jianchi, I know how you feel about the worrying. Last year I had an ultrasound, and a few weeks later thought I felt a pain, so I went and had another ultrasound done! It's natural to worry, especially early into this process. Over time, you will worry less about things. Your images will show you healthy!
I found the Pedialytes maybe in the baby aisle section? You can ask the Pharmacist to point to what aisle they are in, if you can't find them. They were on the bottom shelf.
I think $9.99 for the box.
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Oh Journey! I will be praying and hoping everything turns out great for you. Hang in there ... sending you a hug. ((hug)0
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Thanks noni for posting! I agree with you. I know someone who got diagnosed 10 years before. The doc didn't use the word triple negative, but he said that her tumor wouldn't respond to tamoxifin.
Jianchi: my onco said no mammograms immediately. But then post my rads he will plan my follow up schedule. I wonder how mammograms will feel now..all the stretching and pressing on a breast which has dried stitch scars on the lump area and axilla.
cocker: i love your sense of humor! you mentioned that you lost your mom when you were 16.. must have been difficult for you and her too..
journey: please keep us posted. I will pray for you.
warm wishes to everybody here..
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BanR my mum died of ovarian cancer. It was at a time when young girls needed their mum the most but it wasn't to be. Back then we were more cossetted I think, not told much about family illnesses. We weren't allowed out at night and my brothers would have to take me anywhere I wanted to go. Needless to say I adored my brothers. I think the girls of today are so much more confident and grown up than when I was at that age. I did go through the BRACA test but it came up inconclusive whatever that means. But cancer or not I wish she was here today to see my Alan and my daughters and my grandchildren. We adopted my eldest girl Cindy who came to me when she was 5 days old and I loved her on sight. Then when she was 9 months old I fell pregnant out of the blue and so my Mandy was born but I couldn't have anymore and have been more than content. We are very very close and I adore both of them but it would have been nice to have shared the times with my mum. So I envy ladies who still have their mums to love and I hate it when they call them a nuisance or don't have time for them. (not that my Kathy does cause she adores her mum). So I'm hoping she will share her cyber mum with me.
As for a sense of humour I have always loved to laugh it gets you through so many things and got me through cancer. I would laugh to see a pudding roll down the street. I love a good joke even the riskae (is that the right spelling ) ones. I am always drawn to someone with a sense of humour and I love to make people laugh if I can. I think living with cancer doesn't always have to be doom and gloom unless you are suffering or going through treatment then its different. Not to put anyone down on this site because everyone is different and everyone suffers in their own way but I really believe that for me personally there are people far worse off than me. I am well at the moment and that is a joy in itself and hopefully it will stay that way but I'm aware of and really feel for the people that are not well.
Well I'm going to take me boil to bed, probably not be able to sit down for a week, so have a good day ladies (nighttime here).
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Cocker: Thanks for sharing a small part of your life with us..about your mom and growing up without her. I hate children losing their moms and when I got diagnosed with cancer, I didnt fear my death even one bit but I feared my daughter losing me, growing up without her mom..even the thought of it scares me. Will fight, and keep on doing so... just to ensure that my daughter has her mom with her for as long as possible! And I agree, just adding a little humor to our problems, makes them a little more manageable!! Passing on warm wishes to you and your family.
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jianchi: what your doc says about chemo timing makes perfect sense. I am familiar with a study done showing that women given chemo within 1-12 weeks of surgery had better outcomes versus another group 12-24 weeks. While it's easy to get caught up worrying, a few weeks delay is not going to alter the course of things. (For the record, I waited 3 weeks for a diagnosis; 4 weeks to surgery #1, 3 weeks to surgery #2, 2 1/2 weeks to chemo start. While I sweated the lapsed time at the time, today I am fine... as are most other women diagnosed with TN.) The important thing is to be well-healed (so you are not overtaken by infection), rested and feeling well when chemo starts. Fighting weight, so to speak. Speaking of whom....
fighter: so glad to hear that things are going well for you.
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cocker, thank you! I guess I am getting all this because I am seeing another breast surgeon.
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luah, did you have a lumpectomy or mastectomy? Thx!
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Just noticed today...not finished my chemo yet, one taxol is left and lo behold! my hair has started growing back!!!!
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BanR- HAPPY for you!!!
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cocker - I hear you about losing a mother. My Mom died when she was 54 years old - she never got to see me become a mother and my children have grown up without her - many times I have cried and longed for my Mommy - mother daughter relationships have got to be one of the most special things in life! I cherish my 2 daughters immeasurably.
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BanR - you'll have a full head of hair before you know it!
I am so lucky to still have my mom. She was there for me throughout both cancer diagnoses, surgeries, chemo, doctors' appointments and tests. I don't know how I would have made it through without her.
Annie - I'm sorry you were robbed of being able to grow up and grow old with your mom. It concerns me that your mom had ovarian cancer, you are a BC survivor and your BRCA test was inconclusive. Did anyone mention repeating the test? Have you had an ooph?
Hugs to all,
Lisa
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Journey and Annie..I will be sure to send you any leftover $$$..you can count on that...lol
Annie..about your mom and the "old days"...my paternal grandmother died of BC....in her 70's.....it was so hard to get information from any family members about this...it's like they didnt want to talk about it...blah....on the other hand once they finally told ME...I told all my nieces about it....they talked to their obgyn's and now are having a little bit better monitoring than before...they are still very young..my daughter is 25, nieces are 28, 29 and 31 but they needed to have this information....it kind of shook them up a little..having an aunt and a great grandmother with bc but they all needed to know....
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Looks like several of us have lost our Moms. I was 33 when my Mom passed from cancer (started out as cervical and spread to the colon). She passed 6 months before I ever met my husband. I know she would have been a great grandmother to my kids- my Mother-in-Law certainly never makes time for them.
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Titan - I commend you for letting them know - it needs to be discussed
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After Reading the discussions on whether how much time passed between dx and tx affects the outcome or prognosis, I looked at my timeline and said "oh $h!t"! I was diagnosed early November, had surgery the end of January and didn't start chemo until mid March...that's a long time!
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OFF SUBJECT but I know there are a lot of people on this list that pray. I am asking for prayer.
Calling all prayer warriors out there. My brother is having open heart surgery tomorrow and I am asking for all the prayers we can get. For him to breeze through it, the doctors to be at their best and above all that God protects him through it all.
I LOVE YOU BUB His name is Bill Blankenshipthanks ahead of time............a real stressful time right now
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Prayers are on their way for Bill! Let us know how he does, okay?
Journey, the study was from surgery to start of chemo, so you will only need to count from your surgery date to chemo. That should help you a bit!
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Prayers for your brother coming this morning, both for you and your brother.
Huge,
Peggy
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Lots of Prayers for you and your family!
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Noni - thank you for the uplifting story
Fighter - great news! Fight on!
Journey - I'm sorry to hear you may need more surgery but I'm glad your doctor is being proactive.
Titan - win big girl!
Stupidboob - prayers sent for you and Bill.
TifJ, Adagio and Cocker - breaks my heart to hear you all lost your Moms at such young ages.
BanR - yeah to peach fuzz!
Nope Cocker - I'm not at the casino. Busy week getting my radiation set up. Mom has lots of adopted daughters and you're on the list. I often read your posts to her and she says with your wacky sense of humor that you must already be in our family tree somewhere. BTW, she says that since you couldn't make it to her recent surprise birthday......she'll be watching her mail for some of those cream cakes :-0. As to the boils......just ugh!!! I would see if the doctor can give you something. If not antibacterial soap, warm soaks and an antiseptic cream
Thanks everyone for your prayers, Mom is on the mend and being discharged back to the nursing home today.
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ohhh I forgot, Mom had I lovely surprise last night. As I was leaving the hospital I happened across my MO at the nurses station. She very graciously came down to meet my Mom. Made my Mom very happy to meet her. (Really, my new MO is one of the sweetest doctors I've ever had)
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journey4life, I was the same as you after reading the statistics! I was diagnosed in November, surgery in December, but didn't start chemo until March! I had several things interfere with getting started! So now, I'm also worried!
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Update on Bub: He is out of surgery, the doctor said it went very well. He is doing well and they did have to do the valve replacement (not repair) they did the ablation and removed the appendage, remove 4 liters of fluid from him. Should be able to see him in about an hour and half. Praising the Lord and thank you to all your prayer warriors, please keep them coming.
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JIanchi/Journey I had my surgery on the 23rd November 2011 and didn't start chemo until March 2012. Try not to worry (I know, I know) but I'm sure things will be ok for you. As Luah says stay well rested and away from any bugs and infections as much as you can. Sending Big hugs.
BanR congratulations on the incoming hair You will soon be going for your first trim. I have always had real wavy hair and now it's as straight as you can get, so maybe expect a change of some sort when it grows in.
Titan back in those days illnesses and gossip was sort of whispered behind closed doors. I'm so grateful that we are now so open about things, even men's problems, and can talk and discuss about what is going on.
Journey I am going to see my BS this coming Tuesday and I will discuss with him about having the BRAC test repeated. Being inconclusive it left me so much up in the air so I don't know whether further surgery is recommended or not.
Stupidboob - sending heaps of prayers for you and your brother Bill. He will be in god's hands so I am sure he will be ok. Try not to worry or get further stressed. Thinking of you and sending huge big hugs.
Fighter thinking of you and hoping all is going well. xxx
Kathy our mum is so sweet (and brave) to accept me as a daughter. I'm probably the black sheep of the family lol. I hope that nursing home is taking good care of her and not giving her too many crunchy (I call it raw) veges. All the restaurants must just dip them in water and out again cause they whip across your plate when you are trying to eat them. I just can't have that for our mum. After all if God had wanted us to have raw veges he wouldn't have sent us pots. As for the surprise birthday party I wasn't even invited (I cried for days!!) but I do hope she enjoyed the wonderful surprise bless her heart. You take good care of her now and you tell those little old men in the nursing home that she doesn't want to see their budgie's....................................in a cage. (Just in case you are wondering they are allowed budgie's in a cage! and cats in the nursing homes here. What a mixture though cats and budgies.)
I must tell you about last Thursday. An old gent from the nursing home just across the road from the surgery came wandering in. He had a shirt on that was done up all sqeuwiffy and no underpants on. The waiting room was packed as usual. I went up to him and said what are you here for darling, he said I thought I was missing morning tea. I said no you haven't missed it, got one of the girls to bring a towel to cover him and took him to the tea room and gave him a cup of tea and some biscuits until the nursing home could come and collect him. But shit I laughed afterwards at some of the expressions on the faces in the waiting room. Dear old sole.
Remember ladies smile if you can and even better laugh if you can. Have a good day.
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NONI thank you so much for posting such encouraging news. Next month I will be 3 years out and I can't wait till I can say 26 years!
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