Calling all TNs
Comments
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Hi Shorfi, I too am feeling the same way - it's hard to read things on the internet and try to walk away with a positive attitude. I've been learning a lot from this forum - a lot of knowledgeable and positive attitudes but even still it is hard to be optimistic when we've been through this twice. Hang in there and try to enjoy everyday - stay healthy and kick butt!
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Shorfi...if your onc tells you that you have an excellent prognosis...believe it...and remember those words every time you are feeling down....your onc wouldn't tell you that unless it was true!
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shorti: You don't see much about women surviving TN because it's not newsworthy. The vast majority of women who get TN survive it, and go on to lead healthy lives for years and years. Even on these boards, women who have been treated and are well, move on and, with few exceptions like titan, gilly etc., don't come back here to post. FWIW, I'm 4 1/2 years out now and doing fine. For me, the anxiety was the worst 1-2 years out; now I don't think about it much at all.
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Luah gives good advice as always. Titan and I are old timers on this thread and even though we still visit we don't post very much. We are way past the thick of treatment and worrying about bc all the time. It WILL get better - it just takes time. Look at my stats below - that was pretty scary at the time. But I am fine and smiling!!!
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Another "old timer" reporting in. I agree that the first 1 to 2 years after Dx/Tx were the scariest. At times I felt kinda crazy and disconnected because of the anxiety of recurrence. But as time goes by, things get better and returning to things that bring enjoyment will return. I do still think about cancer everyday, but now it does not consume me like it did early on.
Hugs to all...
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Hi everyone,
I haven't posted here before but I wanted to chime in on the carboplatin discussion. My MO mentioned at my first AC treatment that she wants to add it in with my Taxol. I think it's good that she is up on the lastest research especially since chemo is really the greatest defense against our little TN boogers! After my first AC my tumor has shrunk dramatically so I'm feeling optimistic
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Welcome Atiteca! That's great your tumor is being responsive to AC. AC really worked well for me too. Sounds like you have a great MO too.
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Thanks ladies for your encouragement. I am staying off the internet, only except to come here. I am feeling much better today. And I also think it helps that I am taking Lexapro to help with depression.
Again, thanks
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Hey...who are you calling an old timer...lol..yes..that is me, gilly, Luah, navy mom, Noni (She is really an old timer..)...and several others....
Oh yes..I remember the sheer terror of being diagnosed with bc...I remember the surgery, chemo, rads.....and the fear of going stage 4...saw many friends not make it..saw alot of us survive too...it is just something that individually you have to deal with...and rely in your friends here and "at home"...it took awhile but I really feel normal now.....I laugh out loud about stupid stuff...I enjoy my life...I worry about my kids, my husband, my parents who are aging my job, getting older..all that stuff...because it's not just about me anymore,,,,I have room for all the other stuff...and I'm glad
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Checking in here, too. I'm 3 years+1 month from DX. I just might be the oldest on this thread: 72 years+8 months. Living and loving my life. Shorfi: I know you can do this. Jan
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Titan - you always seem to know the right things to say! Until my OvCa dx, I was looking forward to a "normal" life, doing the things you talked about. Now I'm caught up in the worry whirlwind and hope there will come a time when I can enjoy and experience LIFE...
Has anyone heard from Fighter? If you're reading our posts Fighter, know that we are thinking of you! (((((hugs)))))
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shorfi, yes stay off the internet except for here. And when I was going through treatment I even had to take a break from here. It is scary and overwhelming. There are lot's of TNBC survivors. I hit my 3 year mark this month.
Well saw my bs and onc yesterday and neither were concerned about my headaches, both told me they were sinuses and to see my primary dr to get something to break it loose. They really didn't do much just asked me a few questions, did breast exam said I was doing great and to come back i 6 months. I will take that! Oh they did blood work too but they never tell me the results, just say they will call if something shows up. I am not even sure what they check.
Thank you all so much for support, I know when I am scared I can come here and you ladies will make me feel better! I love you all!
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titan: nice new avatar
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More good news about Curcumin. I have been taking it since my Dx in March of 2011. For all those who are not familiar with Curcumin, Google it and TNBC. I do believe it offers some degree of hope regarding recurrence and/or metastasis.
Food for Breast Cancer Newsletter Dear subscriber: Breast cancer stem cells (which have the ability to divide indefinitely) drive tumor metastasis in part by extending multiple microtentacles that assist in cell reattachment. In other words, tiny protrusions help tumor cells that have broken free of the primary tumor attach to distant tissues, thereby promoting metastasis. In a remarkable new study, researchers at the University of Maryland School of Medicine have demonstrated that curcumin (the main bioactive compound in turmeric) prevents reattachment by extinguishing such microtentacles. The authors suggest that curcumin could be an effective antimetastatic strategy. 0 -
ksmatthews - I checked back in right now just to see if there was an update from you. Yay! I'm so happy that they weren't concerned about your headaches. That must be a relief! You know if they were worried at all, they would have ordered you a scan. Made my day!
Kathy
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Shorfi…I found myself spending too much time on BCO after my most recent diagnosis. One of the TN ladies passed and it put me in a real funk, plus the SE of starting chemo was taking its toll. Therefore, I had to get my husband to create a block on my computer to keep me away for awhile. I just do not have the self control with some things. But now that I am finished with treatment, and my energy is returning, I have been able to post and read things without obsessing. Sometimes you just have to step away...
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I have been away for awhile. I couldn't bear any more bad news after losing Karen so had to take a break. If anyone remembers, last September I found some little lumps on my (good) breast that all the mammo's and US showed as nothing to worry about. I requested an MRI but decided not to get it because I was due for my yearly MRI this month and didn't want to use it for something that was "nothing." I was sure my insurance would not cover another one so decided to wait. Well, I had my MRI this morning and BS called me this afternoon that there are some suspicious areas. One area on my left side (LX side) of thickening on my breast bone. My cancer was down into my muscles of my chest so hoping this is just scarring but they did not see it on my MRI a year ago. The other spot is in my lung. This has me in fear. It also was not there last year. Both BS and Rad Dr are concerned and they immediately ordered a PET/CT scan for tomorrow. They say I should get results by Friday so that I don't have to wait over the weekend. I am scared shitless. I am literally shaking. I had a lot of weight loss last year too which also happened before my diagnosis in 9/2011. Please, can all of you gather up in my pocket and stay there with me the next two days? I need all of your strength right now.
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Catwhispurr, already praying for you, honey.
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cat...I wished I could hug you in person....but I can't, so what I can do is tell you in words how much I will pray for you. You are in the sisterhood of breast cancer survivors, and I truely care about you....please suround yourself with caring people to lean on....you are not alone my friend, please put me in your pocket. Lori
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With you Cat. We'll be with you whenever you need us. Jan
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Cat…I am not that far from you, a fellow Georgian. Put me in your pocket. I will keep you in my thoughts and so hope this is a scar. Deep breath…I am with you, ((HUGS))
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We are there with you Cat....thinking and praying for you..
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and thanks Luah...! I was the oldest of the group in that pic...and my time beat them all..lol...probably couldn't do it again..but I enjoyed the moment...
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Cat holding your hand all the way and saying lots of prayers. Hopefully it will be just scar tissue. I understand all of the shaking because I shake like mad when I am scared. Sending huge, huge, hugs. All of us are with you dear friend. xxxx
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cat - I will be with you in your pocket ,and prayers are already being sent upward for you. Your feelings are totally understandable - hugs!!
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Dear Cat, We are holding you close and surrounding you with hugs and prayers that all will be well. Feel our positive thoughts going your way. Doreen
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Cat--- You are in my thought. I'm praying for you.(((HUG)))
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Cat - make room in your pocket for me too! Sending thoughts and keeping you in my prayers. We're all hoping its nothing! I was going to say try not to worry, but I don't know that any of us could do that - just know you have all of us in your corner. Lana
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Cat- hope your pocket isn't too full because I'm jumping in too. Sending good thoughts!
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Cat...you are in my thoughts and prayers as well.0
