Calling all TNs
Comments
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CatWhispurrer - I will be thinking of you this week. Stay Strong!
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CatWhispurrer - Thinking of you this week and sending comforting thoughts your way!
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prnciss-so sorry that you are dealing with a recurrence. Where is Devine, TX? I live in Dripping Springs and do treatment in Lakeway and Austin
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Leealice- Hello fellow Texan! Devine is a tiny town about 30 minutes south of San Antonio, right down I-35.
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I know this isn't the BRCA group, but I am so happy to report that my uncle is NOT a BRCA carrier! It means my two cousins are not nearly at the same risk as I am! WHOOO YHOOOO!! I cannot tell you how grateful I am!
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stick one of those little kitties in the pocket for us to pet while we go with you!
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Hello all,
Been absent for a bit. Thank you Inspired for getting my head in the right area!
I have been getting out & doing. Anything & everything I can. Of course my yoga. Even went to a singing bowl meditation & cried the whole time. Major clean out of house, (Living too long at one address & all of a sudden it looks like hoarders living here.) gardening, trips with Grandson & Daughter. Doing volunteer work (not an organized group) for friends in the area. Us older broads need to stick together to help each other to get to doctors, therapy, etc. Friend going for back surgery next Monday. Supposed to be outpatient. I just don't understand doctors & hospitals anymore.
Anyone hear from Fighter?
CatWhispurr make more room in pocket I am squeezing in also.
Prnciss74 welcome. Lots of help here. Great ladies to cry with then get back up & move forward. Especially the motivation to move forward. We all need that.
I am going to a Cancer Survivors luncheon on Saturday.
Keep on keeping on!!!
Marsha
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lookingforward - sounds like you are doing much better. It is generally better to be busy with life - unfortunately for myself that has not been possible because I have had 2 bad falls within the last 5 weeks and I am in a lot of pain - basically just getting through each day. I love how you are doing a major clear out of your house - that is something on my to do list, but just don't seem to get around to it - however, I did manage to shred 3 years of older tax files just last week - so much paper clutter. I am also helping 2 daughters with wedding plans (both getting married this year) and have offered to make the invitations for them, so hopefully I will begin to feel better soon.
Hope everyone had a relaxing weekend and is making the most of each day. Off to physio today to see if I can get some relief .
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Just dropping in ladies. All is well. My lump has shrunk nothing to feel, I go for scans later this month, then a few more treatments, and then NED!!! Treatment was much easier to handle this time around no hair loss or side effects, but sleepiness a lot of sleepiness....
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Tek - I'll stick a couple of kitties in my pocket to keep you all company
Looking -Welcome to my pocket!
I wonder if hospital gowns have pockets? I hope so, otherwise you will all have to wait with my hubby out in the other room. I had my pre-surg workup today, so ready for the biopsy on Wednesday.
Fighter - so happy to hear the chemo wasn't too bad and YEAH for NED! Thanks for checking in with us, as I was just thinking of you today.
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Tina - Will be thinking of you all day on Wednesday. Post as soon as you know what is going on (unless you are too hung over from the medication).
Fighter - That is terrific news! So so so pleased to hear this. What chemo regimen did you have this time around?
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Fighter- so happy chemo has been easier! We will be anxiously waiting to hear of your NED scan results!!!!
Thinking of you Cat.
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Fighter - so glad things are going well. Sleepy? Get as much rest as you need. Your body's been through a lot.
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thanks for updating us Fighter! I'm glad things were easier for you, now rest and take care of yourself. Lots of positive thoughts and hugs
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Fighter, I'm delighted this round wasn't too difficult. Thanks for letting us know how it's going.
Cat, we are all in your pocket. Glad to hear you are getting what nurses call Milk of Amnesia! I had it when they put in my port and don't remember a thing. It works.
I'm about 4 weeks post surgery now and going for my first PT appointment tomorrow. I'm looking forward to it. I think I have some cording from my ALND. I have my first appointment with my local RO on Thursday. Not looking forward to rads, but I know I need to do it.
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Thanks for stopping in Fighter...!
Cat...I'm in your pocket too!
Welcome Princess....sucks to be here but it does help to be with your "own"..
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Great news Fighter! Get plenty of rest and take good care of you.
Simple - I also had PT for cording from ALND and also had PT for lymphedema. It worked wonders! Good luck.
Cocker - you okay?
Kathy - I hope you're at a casino in an exotic place, winning tons of money and flirting with Paco the bartender or Juan the cabana guy...Check in when you're able. Hope mom is okay...
Thinking of you all, Lisa
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praying for bluebird right now.
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Hi ladies.
Cat - now cats. Every Saturday my daughter and I take my little granddaughter and my little grandson up to the RSPCA. We don't feed the animals they have the people who work there to do that but we cuddle and stroke and brush all the cats and kittens. It's a good thing for my grandchildren to do because it teaches them to be kind and loving to animals and it's good for me and my daughter because we get to cuddle the older ones that seem to be left there longer because they are older. They are all so gorgeous and the kids have a great time with the kittens. We go on a roster with others and spend about 1½ hours there. We just love going.
Will be thinking of you having your treatment but no way will we be left in the waiting room, we'll be right by your side.
Curly - great news about the BRAC. Very happy for you and your cousins.
Lookingforw - so glad you are looking forward!! and filling up your day and keeping those cancer 'what ifs' away. Hope you enjoy your Cancer Survivors lunch. Just love that word 'survivor'.
Adagio - so sorry to hear about your falls. Hope you are feeling better by now. Tax files, I can certainly relate to that. We have heaps of boxes of them from the business. You will find them everywhere in boxes, in cupboards and in the garage. Pesky things.
Fighter - wonderful, wonderful news. NED, way to go girl. Glad treatment is easier on you this time. So glad you didn't lose that wonderful hair.
Simple - I still have a cord but I don't do a many exercises as I should do. The day just fills up with things to do and I forget my arm exercises.
Journey - I am fine girl. Had a bit of a tummy upset this week (so you can imagine where my mind went). Hope you are keeping well too.
Now Katherine, yep time she posted cause I need to know how my mum is. Your right, bet she is flirting!!.
Tekia - sending a multitude of prayers and big hugs to Bluebird and will keep hoping for the best for her.
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I don't know if you all saw the post from Bluebird, she had e-mailed me but it looks like she did post something publicly. She had headaches and vomiting for about a week, and now she is in the hospital waiting for surgery - they found a mass on her brain. Please everyone keep her in your thoughts. She is relatively new to our boards.
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Bluebird, thinking of you with positive thoughts and prayers, in your pocket!
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Hi Tif !!!
Hello to all of you wonderful ladies, and guy!
Cat-my node under my breastbone did turn out to be cancer, that is why some of the docs staged me as stage 4. It terrified me and still does. I guess I had about 5 nodes in the internal mammary/mediastinal area that were positive, and one report said that 2 of the nodes were connected by the cancer and amounted to a total of 5 cm! I don't talk about it much because it scared me so much. I had 6 rounds of ac, followed by 12 weekly abraxane with avastin. My doc insisted on the avastin, and I also had zometa, and have been on metformin after finishing chemo, but not during. I had scans often and by the time I finished treatment my scans were clear, I had ct, mri and pet scans regularly. Since I was basically stage 4, they did give me the option of no mastectomy and no radiation, but my main mo really recommended me to do both so I did, I couldn't live with my breasts that both had cancer. The pathology showed complete response with the tissue that they could get (couldn't get the nodes under the breast bone), so with the clean scans and good pathology reports, they said I was NED. I hope they can find a combo of drugs to put you there also, I truly believe it is possible. I believe if I had seen any other doctor, they may have not treated me so aggressively. Keep us posted on your biopsy results, still hoping for benign results.
So, I am coming up on 3 years from diagnoses, I was diagnosed March 31, 2011. I have a follow up appointment on the 18th and am getting my port out on April 1rst. I so hope they don't find anything odd at my check ups. I will have blood work and tumor markers done. I think it is the ca27-29.
Cat-my tumor markers were at 61 when first diagnosed, and now the lowest they have been is 28 and usually range from 28-32. Always worries me but the docs are ok with it.
Fighter-Glad to hear from you. It would be so nice if all chemo's did not take our hair.
Cocker-Hi! I have sad news:( Romi, my big boy in my avatar picture has cancer. He had a lump removed and she is pretty sure it is cancer, but sent it off to pathology. He is 14 years old and still acts like a puppy. While he was having surgery, my other dog, the black lab actually let my cat sleep by her. She is usually pretty grumpy and wants nothing to do with cats! So it was pretty sweet. Then when he came home I saw that the cat was laying in between the two dogs and was as happy as can be! Chickens were also hanging out by them, but not cuddling like before.
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Wow I am chatty tonight! I just wanted to ask those of you that have nerve pain/numbness if they have tried Gabapentin? I started it a few weeks ago and it is really helping my neuropathy, My back doc put me on it because I have a bulging disc that is causing sciatic type pain. She wanted to calm down the nerves. I am on a very low dose and it seems to be helping my numbness to, and helps me sleep (well, not tonight).
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bluebird-sending healing thoughts and prayers. Hope your surgery goes well, and that they take out a benign mass.
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Cat, holding hands down the bumpy road.
Thanks everyone for the positive wishes prayers and support.
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Prayers for everyone.
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Cat, Thinking of you. I'm sorry you are having to go through this. I do know the stuff Annie is talking about is wonderful - didn't remember a thing for my colonoscopy.
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Cat-I'm still praying for you and I'm added Bluebird to my daily prayers. My best friend had brain surgery to remove a tumor 3 years ago and is doing great now with nothing new recurring
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Bluebird...Sending warm, comforting hugs to you and your family. Please lean on us when you need to. Jan
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Bluebird - Holding your hand too. Hope surgery goes well and we hear from you soon that they got it all.
Bak - thanks for the info - so helpful. I see you had hormone therapy too even though you were TN?
Talked to my BS today about official reading of PET by a radiologist and it doesn't sound good. A lot of spots are lighting up. One lymph behind my clavicle, many behind my breastbone at the base of my neck, two nodules in my right lung ( 0.8 mm and 1.5 cm) and two in my left lung. I had a clean CT scan only 8 months ago. The BS and MO have a meeting every Wednesday with the tumor board and he said they are going to discuss my case even though the biopsy results won't be back until Friday. It sounds like they are pretty sure its mets.
I am starting to freak out. I was holding it together until now but think I should start researching my options as I might have to make some decisions fairly quickly. The biopsy results should be in by Friday, except Her2 (if it is cancer). Anyone have any good links? I have no knowledge about mets and never thought I would need to. Also, any good clinical trials? I am already on Metformin since after my chemo/rads. My mind is flying. I live near Atlanta.
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