Calling all TNs
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Save the bluebird pic to your device with a right click or holding down in the pic until you get the save option. Different for different devices. Go to your BCO.org profile, click settings, go to your avatar setting, click on choose existing option, then pick our sweet bluebird.
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Someone from another thread called Bluebird's DH. Tumor is 100% gone & she went home today! He said she should be back here in a couple of days. Praises!
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big group hug again this time with our beloved (((((((CAT)))))))in the middle You are consuming my thoughts and I am keeping you tight.
as far as the menopause thing goes....oh boy! Started chemo and had last period on my bad days after 2nd chemo...along with hair loss...what a great weekend that was. Then no period for 18months. Was told by MO that blood test shows 100% in menopause. Went for recon and got it when I woke up from surgery...seriously...you cannot make this stuff up. Then nothing for the next 6 months then BAM there is was again...more blood work and guess what....you are 100% NOT in menopause. Had another one a couple of months later and it was a doozy! Massive hemmorage (sp) so doc wanted to see what was up and ordered an endometrial biopsy which I ended up cancelling and glad I did as I have not had another period now since that last one in October. I do not miss it at this point but my hubby is just sure that it is safe and we do not need to try to prevent pregnancy....HAA! put a sock on it buddy or go get yourself snipped cause this girl has had enough! Hope I do not offend with my candor
Mags0 -
In addition to what Sharon posted, I have received the same info about Bluebird (Kristine) and they found no other cancer in her body as well!
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LOL I too got into menopause, but strangely happened right after bmx - must have been stress of dx with BMX surgery, then chemo started and periods never returned.
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Cat, thinking of you for your Friday MO appointment.
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Thanks for sharing that good news, Inspired! Several threads love Bluebirs!
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Cat, we're in your pocket as you go for your results today. (((hugs)))
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Hi, I was diagnosed with TNBC at 45 in September 2013, 2 lymph nodes positive, and have been through dose-dense ACT. I just had my last Taxol a few days ago and will be starting radiation in a month. I had a single mastectomy, and will probably have a bi-lateral and reconstruction after radiation. I am looking forward to sharing with other women going through this challenging experience. My Grandmother (89) was diagnosed around the same time with ER positive BC and tested negative for BRCA. Both of her sisters had BC but I don't know what type.
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Welcome clynn! This is a great group.
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Thinking of you, Cat.
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positive vibes being sent to you, cat
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Strangely enough...my wife had the opposite. She had gone into menopause. No periods for like 6 months prior to chemo. After her 2nd chemo treatment...she had her period.
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Cat, giving big positive hugs!
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I got my last period the day I started chemo- Oct. 2010. Haven't had one since, oh but the hot flashes and night sweats never let me forget I am a woman!
(((Cat)))
Welcome clynn.
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The horrible news I feared has been confirmed. TN mets to lungs, mediastinum, supraclavicle. I haven't gotten the HER2 test back yet but they expect it to be neg as the original tumor. I spent a lot of time talking to my MO, who I love, but he ran out of time since I was "squeezed into" his schedule. I will meet again with him next Wed. What we did decide is to go ahead with a trial. I am not crazy about the trial because the main chemo is Taxol and that was very hard on me last time but it is given weekly, plus a new drug (BKM120) or placebo. I want to get something going right away, so I signed up but I can always quit at any point. I have about 30 pages to read over and they said it will take a few weeks to get treatment started as there are a lot of tests/paperwork. There is another trial (CDX-011) I might be eligible for but it requires that you have a taxane drug in the last 12 months, so by doing the first trial, will make me eligible for the second if I have the right protein expression. Both trials look at certain expression of proteins so my tissue will be sent off for testing. I will have another CT scan and bone scan next week and find out results of the HER2 and proteins. MO also talked about Foundation One testing cancer mutations and I may be able to get my tissue tested for all mutations and see what chemos might best suit me.
I am really stressed out thinking the whole rest of my life is going to consist of chemos and tests. It is also so hard seeing what it is doing to my husband and family. I guess I need to change to mets forums.
Thank you everyone for your hugs and kind words. -Tina
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Oh Cat I am so, so sorry this is happening to you. I hope whatever trial or plain chemo you do knocks it down. Yes, visit the stage IV forums, but please don't leave us. You are in my thoughts and prayers.
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Cat,
I am so sorry! I also hope you will stay here and any of the other forums where you feel comfortable. Thinking of you as you get started with the trial.
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Cat, I'm heartbroken for you and your family. You've been through way too much to have to face this. Please remember that your sisters on this thread are always here to help you with all those treatments. Special hugs to your husband and the rest of your family. All the best to you. Jan
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Cat....I have no words except that I am so sorry for your news. Strength hugs and love to you
Mags
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So sorry for this bad news. Will continue to pray.
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Cat- I too am sorry you have this to deal with....so gad you like your MO.
My hope is that you do whatever it takes, to help you get through this hard time in your life. Stay strong but don't be afraid to cry or scream yell...venting is good........... Sending you a great big hug. Please know that you are cared about....
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Hello everybody! Just logged in to say hi. Sorry that I haven't been back for awhile. I haven't had time to review all the post yet, so forgive me if missed any big news. BanR, are you still having SEs from Taxol? Any meds can help? TifJ, thank you for thinking about me. I am doing fine generally. Still waiting for my genetic result which will not be out until the second week of April! I am trying to eat healthy and exercise daily. Life is busy again with family. Hope I do not need to have more surgery, just radiation. Fingers crossed! Wish everybody all the best!! Loves to you all.
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Cat:Tina, I am shocked to get this news. You did the best you could with your initial diagnosis in 2011. You can reach out to me whenever you want to. I am visiting my MO day after.. let me discuss your case with him and will ask him what are the best options in such a scenario.
Bak: I took Gabapentin along with Pregabalin ( Lyrica ), that is 2 tablets of Lyrica 75mg each and 100 Gebapentin. I talked to a neurologist and she said that if Gebentin helps then increase its dosage and gradually titrate Lyrica down. Basically both are neurosedatives. Having 100 Gabentin along with 75mg Lyrica a night made me a little drowsy at night which was good in a way for me. You can consult a neurologist for this.
Jianchi: Hope your Rads have begun. SEs from Taxol are much less now..I guess I completed 3 weeks post my last taxol hence the SEs went away.
Inspired, Cocker, TifJ, titan, mags, Fighter, Simple and all of you... warm hugs and love from my side.
I feel so helpless when I read posts of metastasis, specially in cases like Tina ( Cat), where inspite of having no spread and then going to a treatment as aggressive as possible ...from somewhere one cell escapes. Have any of you heard about Cancer Stem Cells. These are the cells which escape chemo. They do something like going to a hibernation or rest phase for a long time and the chemo bypasses it. Chemo has been around for so many years and cancer cells have learnt how to escape it.
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Cat/Tina - so sorry about the results. I hope and pray everything works out. As others have said, I hope you keep I touch with this board as well as joining other boards you find helpful. Remember that through anything you will always have the support of this great group of ladies! "You never know how strong you are until being strong is the only choice you have". Stay strong!
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Just a quick update to let you know I'm home and to thank each and every one of you for your positive thoughts and prayers. I'll know more once they biopsy the tumor, but dang this was fast. So unxpected even when you know there's a possibility.
Love to all. Havign some vision and headache issues from surgery but outcome was excellent! Inspired, thank you for your message which I luckily saw as I was gettig wheeled into surgery. #1 neuroscience hospital and #2 neuro doc in country! Am I lucky or what!
love to you all! Love the bluebird avatars and pics!
Kristine
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Tina- I am so sorry for your news. I will continue to pray for you and your family. I hope the trial gives you great results and is easy on the side effects
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Oh Tina, I am so sorry this is happening to you (and your loved ones). I am also very angry that FC has come back into your life...and everything it brings with it.
There's been ENOUGH ABOUT AWARENESS! IT'S TIME FOR A CURE!
Love, hugs, strength and courage to you, Cat.
I HATE FU€K1N' CANCER
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Oh Cat - Tina, I'm heartbroken to hear of your updated news. I can't imagine what you and your family are going through. I am so glad to see you are able to get into 1 or even 2 trials and hope that they can get the tests administered quickly to start getting you into remission. Please feel that you can continue to post here, in addition to the other forums. You've been a great source of information, support and comfort to all of us, and we'd like to be there for you as well. Much love and prayers to you --- will be thinking of you often.
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Bluebird - I must say it gave me a funny image to envision you being wheeled down the hall and still reading from your ipad or cell phone.
That just shows how much us girls reach out to each other on here for support. Thrilled to hear about your excellent results and will be looking forward to the additional updates. Please return when you can. 0
