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Calling all TNs

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Comments

  • greenae
    greenae Member Posts: 246
    edited February 2015

    Thank you, wrenn...I will look into all of your suggestions. I am trying to take myself out of this wait and worry mode.

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited February 2015

    Greenae, - what type of music does your son's band play? where are they performing?

    ENJOY the music, go shopping, eat brunch out, - whatever it takes to get out and think of things OTHER than cancer!!

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,940
    edited February 2015

    Hello Shari,

    If I were you I would get everything done as soon as possible to give you that peace of mind that we do not get when we are waiting and worrying about what might be.

    As far as I know the best way to find out about osteoporosis is to have a DEXA scan. Osteoporosis usually develops slowly over time. That is why in this country, the UK, we can usually only have a DEXA scan every three years. If you have developed hyperparathyroidism (over active parathyroid) just recently, I would not think there would be much in the way of osteoporosis. If you have high PTH you should be offered a sestamibi scan which will show up the usual four parathyroid glands and will show where the adenoma or adenomas are. The surgery to cure all is this is relatively straightforward.

    You should mention your problem with swallowing again, preferably getting an opinion from a consultant and getting it sorted out.

    I do remember all that snow! I lived in Ottawa for nearly nine years and in London, Ontario for nearly four. Before that I was in Montreal.

    Let me know how you get on and keep looking at the threads I mentioned.

    Best wishes.

    Sylvia

  • greenae
    greenae Member Posts: 246
    edited February 2015

    Hi Anothernycgirl

    My son plays lead guitar and vocals in a cover band. It's a great time! Seems like yesterday he was 3 and I gave him a light blue plastic guitar...and he's been playing ever since...lol. He plays in local bars (SI), and last summer played at The Bitter End.

    I put my new exercise bike together today, so I am ready to stay in shape for this battle! ( feeling a little better, I know I have no choice...so I AM REALLY TRYING to stay calm. :)

    Thank you!

    arlene

  • lisaj514
    lisaj514 Member Posts: 289
    edited February 2015

    http://www.huffingtonpost.com/peggy-nolan/11-invaluable-lessons-i-learned-from-having-breast-cancer_b_6435594.html

    Saw this on fb and had to share with all of you. You'll love it. Lessons for everyone. We do come out of this stronger and with a clearer eye for ourselves and the world around us. For all of us warriors in all stages of treatment, recovery and survivorship

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited February 2015


    Lisa that was great. Very informative.  I reckon I might be a quarter of the way through all of those lessons so a long way to go yet.  But it was very enlightening for me. Thank you.

       

  • BanR
    BanR Member Posts: 238
    edited February 2015

    Hi everyone..

    Logging in after a long time and so very glad to see everybody writing and talking as usual

    I will be relocating to Milwaukee very soon. Hardly know anybody there. Anybody living in or around pls pm me your contact.

    Dealing with a couple of new problems

    1. Cycles back but body unable to produce estrogen progesterone. As a result of which it continued for days n days and now progestrone is being pushed in synthetically now. Cant give esteogen since ot might trigger the cancer bavk. If it doesn't resolve in 2 months then maybe she would ask for an endometrial biopsy.

    2. Lightheadedness, palpitations every morning. Suspects some inner ear damage due to chemo resulting in vertigo. Again he will observe for a few more days post which he would need to scan me. Apparently brain Mets also shows up like this, is what i read about. I hope its plain vertigo or something like that and nothing else.

    Happy to hear that all r doing well!

    Sending warm wishes to u all.


  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited February 2015


    BAK good to hear from you after such a long break.  Glad to hear you are doing reasonably well apart from the vertigo and palpitations.  Will you be working in your new town.  It won't take you long to make friends especially if you start walking that gorgeous dog.   Hope you stay around on here for a bit before taking another break.

    Teka good to hear again from you. Just loved your picture of the Teddy's cuddling. 

  • slv58
    slv58 Member Posts: 486
    edited February 2015

    BanR so good to hear from you, but sorry your under stress and hope your issues resolve quickly. I hate the stress we can be under with new issues, havnt we all been through enough?

    Teka, I also loved that pic and want to thank you for that-I discovered it when feeling alone and really needed a reminder that none of us on this thread are ever alone {{{hugs back!}}}

  • simplelife4real
    simplelife4real Member Posts: 341
    edited February 2015

    Lisa, I loved that article. I just saw it this morning on FB and reposted it to my page. I feel like I can say "ditto" to every lesson learned. I live very differently than before bc on so many levels including how I refuse to let what I call "crazy makers" get to me.

    BanR, good to hear from you. I don't live in Milwaukee, but I'm up in that area at least once a year. We will probably be there in early June. Don't be surprised if I contact you! I hope your move goes smoothly. Moving is a lot of work! I did it a month before being diagnosed with BC. Take care of yourself during the process. You are worth it.

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited February 2015

    Thanks for checking in Ban! Sorry you're having some issues though. You're in my prayers. Keep us posted! HUGS!!!

    I have my three month checkup tomorrow afternoon with my Oncologist. I'm a nervous wreck as always before my checkup. Ugh... I'm going to mention my menstrual cycle still being screwed up. Although I don't know if he will order any tests such as ultrasound. I hope he does because I have off and on pelvic/lower abdominal pains. I haven't had a period since December though. Just wish there was a test to tell you if you're in permanent menopause or not.

    Two weeks ago, I did have a normal pelvic exam. Pap test and my CBC and Metabolic panel were also normal so at least there's some good news.

    Hope everyone has a good rest of the weekend!!

  • slv58
    slv58 Member Posts: 486
    edited February 2015

    Luvmydobies , I will be thinking of you tomorrow. Maybe just ask for an ultrasound and let him know your worried. If he doesn't think it's necessary, at least he will explain why which should reassure you. I guess I'm lucky, after having horribly heavy periods for probably 15 years, I went I to chemopause after my first tx! Yahoo - another benefit of chemo.

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited February 2015

    Thanks Shari! XOXO!! I'm still thinking of you and praying as well for your Wednesday appointment. Keep us posted. I'll post again tomorrow after my appointment.

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited February 2015

    Greenae, - sounds like your son has found his calling! Smile That's great! (It really is amazing how fast they grow up! My daughters are now around the age that I tend to think of myself at!! Winking)

    Lisa, - thanks for sharing that article!!

    Luv, Ban, and everyone else seeing their drs this week, - may all go WELL with GOOD updates!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited February 2015

    Luvmydobies I'm with you re appointment, mine's tomorrow (Tuesday) as well and stress is always lurking there somewhere. I just want to get it over with. I don't think I will ever miss periods. Every month was so painful and heavy. I was so glad to have a hysterectomy when I was 32.  Will be thinking of you and hoping he orders an ultrasound and puts your mind at rest.   

    BAN (Sorry called you BAK) have you sold your home.  I am interested in the American way of selling houses.  One of the girls at work's sister lives in  California. She sold her house months ago and the people are living in it but she won't get the money for the house for ages.  Is this normal  for the American housing market. Apparently her sister is living in a trailer until the money for the house comes through.  Hope your move goes smoothly and you don't over do it unpacking.  I had some ringing in my ears for a while after chemo which did go away but when I lay down in bed at night and turn off the light sometimes I get a spinning sensation which quickly goes off.  I guess these are the after effects we will have to put up with.

    Shari I have a wonderful hubby and family and really great friends but I too sometimes feel alone and wondering about how this cancer is going to pan out for me or just thinking I should keep all my worries to myself.   I do appreciate life more and all it has to offer  but I also feel I am a bit grumpier than I used to be.  I was always laughing or making someone laugh but now find myself quieter (which may be a good thing!!).  I will be thinking of you on Wednesday and hoping you also get some good answers.  

    greenae hope you are feeling better today and more positive with your warrior pants on.  Once things start to take off you might find you are able to cope a bit better.

    Cancer sux big time girls.

  • slv58
    slv58 Member Posts: 486
    edited February 2015

    Cocker_Spaniel, thank you so much and I'll be thinking of you tomorrow as well! Wishing a very quick uneventful appointment. Then go out and do something nice for yourself, maybe lunch? A bouquet of flowers or a big box of chocolates just for you!

  • slv58
    slv58 Member Posts: 486
    edited February 2015

    Luvmydobies the above goes for you as well!! We are a great group of women, aren't we!

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited February 2015

    Indeed we are Shari!

    Cocker, thinking of you too! May we all receive good news. Praying and holding everyone's hands and in your pocket too! XOXOXO!!

  • Tobycc
    Tobycc Member Posts: 578
    edited February 2015

    Please know I will be thinking of all of you with tests this week and are under stress! May you feel calm, and in peace.

    Gentle hugs

    Kath

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited February 2015

    Thank you Kath I think we all need your gentle hugs


     

  • greenae
    greenae Member Posts: 246
    edited February 2015

    Thank you, Kath...your hugs and thoughts are appreciated.

    arlene

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited February 2015

    Thanks Kath! Just got home from my checkup. My Onc thinks all is well!

  • breastcancerhusband
    breastcancerhusband Member Posts: 69
    edited February 2015

    A massive hug all round from me - I know all you love my English accent and charm! ;)

    Seriously, I hope everyone has a good week, thinking of you all. My wife is starting Taxol this week, so 12 more weeks of chemo to go, well with a three week break for baby to be born. Just like all of you she is being so brave.

    Hugs and prayers

    xxx

  • simplelife4real
    simplelife4real Member Posts: 341
    edited February 2015

    Luv, glad to hear your checkup went well! Isn't that a wonderful feeling?

  • slv58
    slv58 Member Posts: 486
    edited February 2015

    Luv, I'm so happy for you! Doin the happy dance, yahoo

    image
  • slv58
    slv58 Member Posts: 486
    edited February 2015

    breastcancerhusband, thinking of you and your wife, lots of positive thoughts and an extra big hug.

  • KSteve
    KSteve Member Posts: 190
    edited February 2015

    Greenae - My tumor was just over 6 cm, which seems huge, I know!    As soon as I started chemo, it started shrinking.  By the time I had my BMX (about 10 days post final chemo) there was no evidence of disease in my breast tissue or my lymph nodes.  I had a complete pathological response.  I'm 4-1/2 years out from diagnosis.  Just know, that no matter what they find, you can do this.  I think you need to tell them to quit poking and proding and get to treating!  Hopefully you will have answers soon.

    Hugs,

    Kathy

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited February 2015

    Simple, yes it is a good feeling!

    Shari, that pic is awesome! It actually looks exactly like one of my dobies, Hercules. Haha!

    Breastcancerhusband, hugs to you and your wife! Let us know how she does.

  • Tobycc
    Tobycc Member Posts: 578
    edited February 2015

    Praises Luvmydobies! I have a good feeling for all the rest too :)

    Kath


  • meadow
    meadow Member Posts: 998
    edited February 2015

    Yes bchusband that accent gets us every time! Please give the Mrs. a big hug from all of us.