Calling all TNs
Comments
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secondchance, this is exactly the kind of inspiration most of us come here for. Thank you for being a positive thinker and sharing that here. Good energy!!!
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Secondchance, your post really moved and inspired me as well. Thank you so much for sharing! Wishing you all the very best with your scan next week! Do please KUP!
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Secondchance
Thank you so much for sharing your story with all of us. Your words are so very true!!! Believing with you for continued success in your treatment and NED!!!!
Love, prayers & hugs
G
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Secondchance
Thank you for your story and your positive outlook. Thanks for sharing.
I am really working on trying to focus on positive.
Rosieo
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Second chance, you sound like an amazing woman. I really admire your spirit and will and courage in dealing with your cancer. I am originally from Raleigh and have family there. I live in Charlotte now and am being treated there. You are so right in how important it is to have a positive attitude in dealing with a cancer diagnosis. The minute you spend too much time focusing on the what ifs, what might have beens, or why me you are on the road to despair and hopeless and helpless worrying and fear and anxiety. Everyone dealing with cancer is going to have their times of sadness, sorrow and fear and feeling discouraged but then the time comes to move on past that and get back to dealing with it and fighting it as best you can with the tools at hand. There are so many strong, courageous, knowledgeable, inspiring women on these discussion boards doing just that!
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Hi Roiseo, I hope chemo is going ok and you're tolerating it well. Thinking of you.
Second chance. Thank you so much for sharing both your story and your positivity aswell. It was a wonderful reminder to me that we aren't our diagnosis and we aren't a statistic. I look forward to hearing your '5 years NED' posts in the future. You've got this under control!
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Hello!
Have been trying to keep up with all the stories on here! Such great information and support! Mom is currently in surgery to put her port in and then a trip to Mayo next week. I am going to try to go home next weekend before she officially starts chemo!
Hope all you ladies are doing well!!!
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TDaughter - I'm so glad your mom is starting her journey to getting well. It won't be easy - but it is doable. She is lucky to have you for support. Please stay strong around her - even if you break down when you are away. It would have killed me to have my kids - 24 and 26 - break down. They always stayed so strong - yet they listened and were concerned. They seemed to strike the right balance of taking it seriously - but having confidence that "we" could all beat this thing. And, I really do believe it's a team effort.I found out recently - that my husband had a talk with them in the beginning - and told them "no extra drama" - no B.S. - don't bother me with silly problems, etc.. I would have protested- had I known - that I could still deal with that stuff - but honestly - I'm glad I didn't have to. My daughter sent me a card which I love - it has a drawing of a girl in a superhero cape at the top of a hill - and all it says is "We've Got This!" I love that.
Second Chance - I'm so sorry you have to go through another round of chemo - but what a blessing that it was caught. I know you can get through this with your good attitude and that of your doctors. I like what he said - It's high risk - but not 100% risk. Very wise. I am getting frustrated with seeing all of you younger women here - and talk about pushing mammograms back! I would like to see them start much earlier - and maybe every other year until 40.
I'm just leaving town now - to head to SLC and hang out with my sweet daughter and have another TE fill. Happy Friday to all!
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Second chance- thank you 💛 I feel like being post-treatment has been so scary and I do keep wondering "what if" but you are so right we can't! We need to focus on ourbabies and stay positive! I started planning my daughters 1st birthday and I know I will be around to share a lot more birthdays with her! You will beat this and see your little boy grow! Us young moms have it hard because it's scary to think about your children... But they also give us a reason to fight harder! Sending hugs and well wishes for your upcoming scan!
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Thank you all for your kind words. My boy is so fragile but sweet...he has his days when I can tell he is fearful that something can happen to mommy, but he also steps up and helps me when I need it...like fanning me when I have hot flashes! LOL Ijust love him so much! I lost my mother at a young age and I don't want my son to grow up without his mother too. I will certainly keep you posted! By the way, I signed the petition at the end of the video and many of the folks I sent it to have also. Love and hugs to all of you and I hope you all enjoy your weekend!
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No posts for 4 days! Good! That means everybody is busy being happy and healthy and living their lives!
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Hi all
Ok, Alhusband, I will stir things up?!
Tomorrow is my first 3 month follow-up, and labs with MO, BS and PS. I am feeling pretty good physically, but I am nervous. Can I think of this as one down and 11 to go before I hit the magic 3 years?
Thinking of all of you! And hoping No News, is Good News!
Hugs!
Arlene
PS I have hair!
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Arlene...you are absolutely gorgeous!!! You will be in my pocket tomorrow for your visit. Wish you the best
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Awesome Arlene!!!! Beautiful. Prayers for you tomorrow. Counting down with you.
Xoxo
G
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Arlene, you are stunning! Sending you well wishes for tomorrow!
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Thank you, my friends!
My hair has never been this short or white, but it's hair! Lol.
I am wondering if there's anything I should be asking my docs? I feel almost back to normal...just want to do anything and everything I can to stay healthy.
Wishing everyone Strength!
Arlene
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Arlene! You look wonderful!!
Good luck with dr visits!
(I go to onc on Friday, - I know how you are feeling!)
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Hi, all. I thought I would let you know about a clinical trial I will be participating in. It's not specifically for TNs but many of us may qualify. Alas, anyone out from treatment more than 12 weeks is not eligible. The first main qualification is being HER2 neg but not being a zero expressor of the receptor; have to be +1 or +2. The second main qualification is being node positive, or if not, being ER and PR neg. Everyone in the trial will receive Herceptin for a year. Some will also randomly receive the BC vaccine NeuVax. You can read more about it at clinicaltrials.gov. The identifier is NCT01570036.
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Hi everyone,
I am hoping someone can help me out. I have just had an appt with my oncologist. I was supposed to get my chemo on Thursday, but he told me that my AST is over 200. It was 15 last time. He said I will not be getting chemo and will need to wait 1 more week. If my AST levels come down by 50% I can get chemo next week.
This is not the news I was hoping for. I hate missing 1 week of chemo. As well, what if my levels don't come down. What happens then?TNBC is aggressive and I am scared. Has this happened to anyone else?
Cindy
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I forgot to mention that the trial is being conducted at 24 sites throughout the U.S. You would need to live close to a site, as lots of visits are required.0
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Thank you Bluedog for this information, and good luck with the trial and keep us posted.
Murphy, Is the AST test related to liver function?
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Hi Meadow,
Yes, sorry, it is one of my liver enzymes. Thanks for responding.
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Have you been ever been told that you have compromised liver function? I hope some of our more knowlegeable members post soon. I do not know enough about this to be of help...but I am sure others do and will respond soon. Do not be discouraged...liver enzymes can be off for many reasons...I know diet contributes so much to these tests...did your onc say anything about diet, or fasting? Fasting is something I would not suggest to anyone, but I have read that the liver does dump impurities fairly quickly and that fasting does contribute to that cleanse...again, I am not medical and do not do something without consulting your team. Just hoping to be of some help.
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Never. My blood tests have been normal up to this point. Last week when they did the ultrasound to diagnose the blood clot in my arm, they did an abdominal ultrasound which included my liver. That liver ultrasound was normal
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Murphy read my above post I edited it with another topic too
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Murphy43, I had a number like that one week too, just postponed one week and then carried on. The maximum for that one at my doctor is 150. Chemo is hard on the liver, and some people are more sensitive than others, so sometimes it takes a little while to get the enzymes back down to a safe level.
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Try drinking 100 oz of fluids each day to flush and hydrate, watch fat intake, too. Hopefully, numbers will come down quickly
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Thanks for your quick responses Greenae, notdoneyet, and meadow. I will avoid fatty foods, drink lots of water and pray that my levels come down. Notdoneyet, I appreciate you posting you had a similar experience.
I will try not to worry about it too much. Going to do homework with my 7 yr old. Let's see how this goes with chemo brain...
I am grateful I have you ladies in my life.
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@murphy - I don't know anything about liver counts, but I have to skip chemo this week because my white blood cells/neutrophils are too low. At first I was really bummed to get thrown off schedule and then I decided I was excited to have a week off and enjoy a pretty good weekend with my DH.
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