Calling all TNs
Comments
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Hi All,
It's been a while since I posted. It's great to hear from people like Navy Mom and Debra....I miss you both, but am delighted that you are doing great.
Kelly, I had the same diagnosis and treatment as you will be having. I didn't get a pCR, but I'm doing fine....Feb. 1 will be 2.5 years out for me. Wishing you the best. The beginning was terrifying for me, but it does get better. You can do this!
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LoveMyVizsla my wife's came in extremely curly, which it wasn't before chemo. Now, a couple of years later, it's exactly the same as it was.
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Thank you SimpleLife4real! It's so good to hear positive stories! I already feel a little better now that things are falling into place.
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Cocker - thanks for the laughs! We can always count on you to keep our spirits up and support us no matter what!
G - beautiful...inside and out!
Navymom - huge congrats to you on 6 years!!! Thanks so much for checking in and letting us know how you're doing!
Kelly - welcome from another fellow Michigander.
Welcome to the other newcomers as well. Very sorry you're joining us, but this is a wonderful group.
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Good one AL. Nothing like a good laugh to set up your day.
Ally has there been any improvement in your pain since taking the Omeprazole. Hope it worked for you.
NavyMom great to hear from you again. So sorry that young man of yours is being deployed again but is this a better area than he has been going to. Six years, well that will give us all a lot of hope. Went to the Navy Band Concert again this year and again thought of you and your boy. It's such a great evening with the music they play and there is always a tear in my eyes when they play music from America. So glad you are doing well. Whatever you have been doing, keep on doing it, it's working. Love you Hon. xxooxx
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Thanks for all the nice comments, ladies. This TN thread and my August 2009 chemo starter thread were absolute life savers. especially while going through treatment and then all the issues afterwards. We are so very lucky to have each other. I know I had many sleepless nights and could always rely on the "boards" to get me through and keep me company while I waited for the sun to come up.
DH and i are on our winter get away now to the warmer climates of Florida. Its a long drive from home but worth it to feel the sun on my face and the sand on my toes. Love and peace to all of you.
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My LDH level is 567 the normal range is 100-225). I'm currently undergoing chemo (had 4 rounds of AC, now on 2nd round of Taxol). Did any of you have such highly elevated LDH levels during chemo? I've read that this could be good (chemo is killing off cells that my liver is processing) or bad (cancer has spread). Have a call out to my doctor, but I have a feeling I won't get a call back for quite some time. Thank you!
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Ag23 I cut and pasted the following....
"A lactate dehydrogenase (LD or LDH) test is a non-specific test that may be used in the evaluation of a number of diseases and conditions. LD is an enzyme that is found in almost all of the body's cells (as well as in bacteria) and is released from cells into the fluid portion of blood (serum or plasma) when cells are damaged or destroyed."
Unless your MO tells you different...let's think positive and assume it's from cancer cells being destroyed!!!
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Cocker - yes! I've been taking the Omeprazole every day at 4:00 pm and it's made a huge difference. I've also stopped any and all NSAIDS I was taking. I'm very happy to say I haven't had any chest pain the last few days. I even forgot the Omeprazole yesterday without incident. I'm going to continue it for another week or so and try weaning off. Hopefully my esophegus and acid will have calmed down by then. Thanks so much for checking in on me and for suggesting I take it later in the day! Never did hear back from my onc about the nodule. I'll ask her at my next follow up, but I figure no news is good news. How are you guys doing over there? How's your Old Feller feeling?
Age23 - so sorry you're dealing with the scare of elevated levels. I had low blood counts and elevated liver enzymes towards the end. Everything went back to normal within a few months post final chemo. Wishing you all the best and please keep us posted.
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Ag23 like Ally I also had elevated levels during chemo. I was told it will take a bit of time after for the levels to go down.
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Ag, I like Al's post, very good information.
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Hi everyone,
It's been so long since I have posted, but I've finally caught up with the pages and am so glad to see sisters hitting new milestones of NED!
After my third AC treatment in October, I was diagnosed with a DVT in my internal jugular and then a raging ear infection right above it hospitalized me for a week. I finally got back on track only to wind up being admitted again the night of my daughter's birthday... for two weeks. UGH. Other than C diff. and a bladder infection that was quickly taken care of, they couldn't determine the cause of my ongoing fevers. They did every test on me imaginable, pulled out the port (which was fine), performed a bronchoscopy, and destroyed my veins trying to get bloodwork multiple times a day. It was pretty horrific.
I was so weak and ill by the time I came home that I couldn't take a shower without losing consciousness and needing to lie on the floor of the shower for several minutes before continuing. During that time I fell WAY behind on the handful of threads I keep up with here, and it felt too overwhelming to try to catch up. But things are more stable now. I'm done with Taxol #8, so I have only four more to go! I'm in the final stages of deciding between LX and BMX (probably doing BMX) and if so, which reconstruction. I just learned that I *am* a candidate for DIEP, and after reading about various complications with implants, I think I may go that route. My body reacted so badly to the port that I have some concerns about how it would accept implants.
Ally, I also wanted to say that during my hospitalization in November, a lung CT showed multiple 2mm 'foci' nodules. It also showed a 2cm x 3cm nodule in an area they could not biopsy without a terribly invasive procedure. None of this was on my staging CT back in August. I had to wait 30 days to have another one run, and I'll admit that was really not fun. But I learned on Christmas Eve that the little areas were gone and the large nodule had reduced in size by about half. It seems it was some kind of inflammatory process that was resolving on its own.
G, I'm sorry I missed the pictures; I would have loved to have seen them!
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Sorry I've been MIA for a few weeks, after the holidays I had to bust a move at work to get ready for my surgery I had this past Tuesday. I am home from the hospital, only had to stay 1 night. The pain has been manageable with the hydrocodone and Valium they gave me. I've even been able to take just regular Tylenol a few times today instead of the hard stuff. The drains have been easy just annoying, can't wait to get rid of them!
Got my pathology report call today and I got a PCR! No residual cancer anywhere and the 3 nodes they pulled during the SNB were clear! Maybe I can avoid radiation now, I have a follow up with my MO in a few weeks. So happy right now neo-adjuvant chemo worked for me!
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Julie! That's the best news of the day!!!!!!--😄
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Julie congrats on pcr. Amy good to hear from you here and on the sept chemo board.
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fantastic news Julie Aggie. So happy for you and your family X
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Julie! I am so happy for you having the PCR to chemo. And the fact you are managing so well post bmx. Made my day!
High five sister!!!
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Hell yeah Angie! Major high five and fist bump.
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yay Julie!!!! I'm so happy for you! Getting that call after surgery is such a good a feeling! I remember walking outside with my daughter looking up at the sky and being so thankful 🙏 the chemo worked!
Congrats!! I hope your healing well!
Amy, I'm sorry you've had a rough time
your almost done though! I hope the rest of chemo goes smooth! 0 -
Amy, so glad you are feeling better.
Julie, celebrating with you!
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julie
Most Excellent News! Now have a speedy and uneventful recovery.
Carolina, I am sorry you had such a rough time. I am glad to hear you are better!
Hugs to All
Arlene
Trying to keep a calm attitude. My first mammo and US on right since dx is scheduled for Monday morning. Fingers are crossed.
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I haven't caught up with everything yet. I've been crazy busy at the dobie rescue and when I get home. Anyway, three years ago today I was diagnosed. It doesn't seem that long ago.
Ally, so glad to hear your Onc wasn't too concerned with the CT. I'm glad you're doing better too!
Amy, wow, you've had a hard time but it's good to hear you're much better too! I can sympathize with the C Diff. Ugh. Nasty stuff!
Julie, congrats on PCR!! Happy dancing for you lady!!
Arlene we will be with you on Monday! I'll say a prayer and will be waiting for your update!
To those I missed, you're all in my prayers! Have a good weekend ladies and our men here too!! XOXOXO!!
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hi Luv
THREE YEARS!!! Woohooo! So glad to hear you are luvving your dobies
High Five and Hugs!!!
Arlene
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Yes thinking of you Arlene
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Thank you, Meadow!
I am going to try to stay positive.
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Arlene. Awesome!!!! 3 years. :-))). Congratulations to you. So so happy & thankful.
Hugs
G
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luvmydobies 3 years is really great, as a newbie I love hearing about thriving stories. I am having a down day today. Just feeling emotional about starting rads this past week when I am barely adjusting to life post chemo. It's just a lot right now. I know it gets better but I just gotta be patient.
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Shopgal, I'm so sorry you're having a down day. We all have those! I still have them.You'll adjust. It's hard in the beginning after treatment, or it was for me anyway, BUT it will get better. Just hang in there and we are here for you too! Congrats on finishing chemo! Radiation will be over before you know it! (((((HUGS)))))
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hugs to you Shopgal
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