Calling all TNs
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Mamiya it was only used as a term of endearment nothing else. Ally mean't no offence whatsoever. Mind you, are we not all God's angels here on earth cause I hope I am and that he is looking after me and all of you ladies on here. Not only that Meadow is one amazing angel whom we all love. Smile, it makes the day brighter.
Ally I am glad that things are now moving for you and hopefully you will get some answers. Great news that two people couldn't see the nodule and it wasn't causing your symptoms. I'm glad you are going for a scope it will put "my" mind at rest. And there is nothing wrong with taking a depressant. I had them and so did a lot of other ladies. You do what you have to, to get through and hopefully they will help. Make sure you give them a little time to work as sometimes you don't see much of an improvement for a week or two. You probably needed that heart to heart because what you are going through is a real struggle for you but on the up side something is being done about it. In your pocket for benign and excellent results and sending a huge, really huge, big hug. xx
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Ally, Cocker, Mamiya, you girls have made my heart warm, my eyes misty. Thanks for the kind words. You all are the angels, to me! I am SO BLESSED by you all.
Carolina, good news to have a MX date. I encourage you to enjoy the natural beauty of your own boobies from now till then, I do miss my perky little girls, but happy to be healthy instead. I would jokingly say to the Spouse, "Have you seen my boobs today?" then lift my shirt. Or I would randomly take his hand and place it on my breast, ( lol, he "gets" me) we kind of prepared ourselves ...me...for surgery day, a big transition day. So when it actually was here, I was calm, I was ready to say farewell to them, a fair trade to live longer. I miss them but I don't either...it is weird. Anyone else know what I am saying?
Redrock, welcome! Hoping you find tons of info and support here. I am glad you and Carolina can support each other with the same situations at home...that means so much!
Ally, that is great news! I am always so impressed with the care you get from your team, thank God for them. They did go above what many places would do, to give you peace of mind. And great news it was! And I am totally onboard for the anti depressants. You can get great relief, great benefits from this type of help. So glad for everything in that post!
Jlstacey, hugs to you, we are here with you, FIGHTER!
Hugs to all
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Welcome Redrock! This is a wonderful group. (((HUGS)))
Ally, I'm so glad you got some good news! What a relief! Keep us posted on how the scope goes. Still praying! I'm sure it'll go fine.
I have my four month checkup Monday. Please pray for me. I always hate going to those.
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Luvie, in your pocket for Monday
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LUV in your pocket for Monday. All will be well I'm sure. How is the building of your new home going. I bet you are excited now, I would be.
Redrock welcome but so sorry you had to find us. This is the place where you can let your hair down and everybody gets it.
Meadow I always have to laugh at my little grandson if he arrives before I am dressed. If my boob is sitting on the side he will look at it, then at my chest and then something clicks and off he happily goes.
It's my eldest daughters birthday today and as it's so hot we thought we would do a surprise BBQ for her. Mind you the old feller has brought so much food it's more like a banquet. Still at least there will be enough for everyone, rather that than not enough.
Have a good day ladies. Hugs to you all. xx
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Cocker, so funny about your grandson and your foob. My granddaughters were 3 and 7 when I was in treatment. They knew "Nonny had surgery" and have never cared a bit. They live close by, so they saw me going thru the dreaded drains phase, and knew climbing on my lap meant being extra gentle for awhile. Carolina, I am thinking of you and your little ones, and Redrock our newbie.
So Cocker, seems like the old feller bought enough food for us all to come to the BBQ, hearing you say it is hot...wish we were there!
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Amy glad you got a date set for your bmx. Luvmydobies Sending you prayers. welcome redrock! Sucks that you have to be here but as a recent newbie I can attest that the ladies here are great, warm, kind, and empathetic.
Allydp whew! Yay for clear scans finally! I'm very happy you got peace of mind and good for you for insisting on second opinions. I hope the antidepressant brings you calmness. I actually thought about asking for a script.
I'm having a harder time mentally during rads. I know part of it is from the stress of my job being in limbo. I did start back this week at a lesser position but same salary. Its strange being back. I'm just not sure the job is me anymore. Today I am 7 weeks pfc and am not feeling good about the reflection in the mirror. I look grey (haired) and old. I look at pics pre bc and was pretty. Now I feel like I'm beaten up and tired I'm scared of being back at work and going back to my bad habits of not eating right, not getting enough sleep, and letting stress rule my life. Sad to say that bc made me wake up and realize I need take care of me before others. I am trying to be calm and got to say Xanax is my friend again and it's ok
Cocker love the food story, made me smile.
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Hello everyone, was sifting through the flood of information on here and seen your discussion board. Things have moved at a very fast pace for me and I am not really sure what or how I am feeling yet. First I think I was in shock but denied it. And now after surgery and pre chemo I find myself angry one minute and sobbing the next. I go today to have my port placed and know I should be in bed but here I am again scouring the internet for hope, instructions, teaching, bonds, and whatever else I can find related to this Triple negative diagnosis. I know that two negatives make a positive in math so I am choosing to make this triple negative Extra Positive. Hope to be able to find and share hope, compassion, knowledge and friendships here!
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Shopgal, I HATED rads. Found it much harder mentally/emotionally than chemo, even though it was much easier physically.
Sweet emotion, welcome, but of course so sorry you wound up here. It's very normal to feel numb, angry, terrified, etc., either in rapid succession or really sometimes even all at once. Cancer definitely sucks. But, one nice thing you'll see on this thread, in addition to fabulous support, is that there are lots of folks who are many years out from diagnosis. Some are regular posters and others will check in from time to time. So, TN is not all doom and gloom! I like your view that it's actually Extra Positive! Good luck with the port today!!
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redrock, welcome to our little group over here
definitely a great support! So just when I thought I was about to be stress free since rads ended last Tuesday, my mother had to be admitted to the hospital the very next day and is still there. She's always had heart issues and her heart rate is sky high and they're trying to control it with drugs but the combinations they're using are dropping her blood pressure too, which makes them stop the heart rate drugs. Not to mention she has dementia and being out of her normal surroundings is making her mind exponentially worse.
Now she can't remember that we moved to FL two years ago and asks constantly when she's going home and getting out of the hospital. Luckily the hospital has an aide in her room 24 hours a day so that I don't have to be there non stop. I just want a few days where I don't have to worry about anything bad, where my stress level isn't sky high, and where I can just forget about 'life' for a little bit. 
Ok, rant over *sigh*
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Ally! Whew!!!!!
I know I don't post much here, but thinking good thoughts for everyone!
Angel----good fairy? Lucky charm? Helpful kobold? Mmmm....guardian totem? Lol
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Alright...I'm a man in a room full of women talking about Breast Cancer. Since someone mentioned looking for alternative terms for "angel", I want you all on notice that if anybody calls me a "fairy" I'm not going to take it well. LOL!
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AlHusband, hahahha. I was liking good fairy as an alternative to angel!
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Sweet_emotion, welcome!
We hate that you're here, but really glad you found us. This group is an incredible source of support and knowledge!
We hope you continue to let us know how you're doing -- we're all here for you.
--The Mods
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AL....hmmm. Would you be OK with "elf"??? Or....hmmm. Other male supernatural benevolent being?
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maybe we should all be supernatural benevolents, SBs for short
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Sweet Emotion, yes welcome!
Al, I was thinking of you as I was typing the other day, how I would flash The Spouse my boobies .Afterward I thought, "Hope Al is not embarrassed"....but then I know you must LOVE BOOBIES, lol, as you are here. Seriously, I know you love your wife, that is what brought you here. You found us and we are so glad!
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Mike you made me laugh so much. I PROMISE never, ever to call you a fairy.
Sweet emotion welcome to our supportive group of ladies and our F...... I mean Mike lol. They are all a great source of helpful information.
Meadow there was enough food to feed an army at the BBQ but my old feller always cooks too much which is just as well as someone usually calls in and is hungry.
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Something to brighten your day.
What did the patient say to the surgeon and his team just before they gave him anaesthetic?
Anyone want anything while I'm out.
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Hi all,
I saw my oncologist the other day and I asked about having a scan when I am done with treatment. In the beginning, he told me I would have one but now he is saying I won't be getting one. I had a lumpectomy with 2 positive nodes removed in October and started chemo in December. He said that the scans give a lot of false positives and we are just trying to kill off any rogue cells at this point which a scan would not pick up. He said they will test my blood and do a scan if I start having any symptoms. I have been thinking about this and this worries me! I have met several people on this journey who went in for other procedures or were in some type of accident and found they had Stage 4 cancer with no symptoms! Have you all had scans? I am so paranoid now that if something has spread it will be too late. Are the blood tests enough?
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lou, my oncologist told me the same exact thing. I had a lumpectomy and nodes removed (1 positive) and then chemo. after chemo they wanted to do another lumpectomy due to iffy margins and i demanded another scan for that surgery. after radiation i asked about more scans and thats when they said no. they said they only did the scan after chemo to check the lymph nodes, which they removed more of. frustrating, I know!
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I intend to ask my MO about follow up imaging. My tumor couldn't be seen on the mammogram, even though it was easily felt, so what good is it for me to have them? MRI is what I'll be pushing for.
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I am betting that this is an insurance issue! Mammograms don't do much for me as I have dense breasts and end up getting an ultrasound anyway. I asked if I could just get the ultrasound and skip the mammo next time. I'm mostly afraid of the cancer that was found in my lymph nodes. One of the nodes had a tumor twice the size of the one in my breast. I'm afraid of this moving elsewhere. What are we supposed to do?
Stef, did they find cancer in your lymph nodes after chemo?
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I was told the same thing. We just have to be hypervigilant. Until recently, I didn't know exactly how to do that, because I'm one that often just brushes things under the rug (and rightly so, most of the time). I've been having headaches, a change in taste and some weird feelings in my head. Again, I would normally shrug it off. I have MO appointment on Monday as a follow-up anyway, so I plan to as for a brain MRI. When it comes time to get the results, I'm going to be so scared.
I totally get wanting to have the scans regularly. I sort of want that, but also don't. If I let myself, I would get obsessed with it all and spend way too much time reading worst case scenarios (not intending to, though. Those medical journal articles don't paint pretty pictures) but I have taken a huge step back becase I have to.
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Ladies I think you will find its universal on here, no scans unless you have symptoms. I have an ultrasound with my yearly mammo but other than that no scans. I had cancer in four nodes and one was encapsulated which means the cancer was coming out of the nodes
jlstacey chemo can give you headaches and a change in taste. Even after four years I still cannot taste food as I used to.
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This is so frustrating! I feel like I will be living on pins and needles. Hope the blood tests are a good indication of anything going on..
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Thanks for the prayers and well wishes for my appointment Monday! I'm getting really nervous because I've had pain in my upper right side for awhile. Sometimes I don't notice it too much if I'm busy. It hurts more when something hits it like my dogs paw or something. I'm REALLY scared it's liver mets since the pain is in that area!I haven't googled in months and I made the mistake of doing that today which is fueling my anxiety. Ugh! I've also been having heartburn more often but I do notice that's worse if I eat something I shouldn't. Also, this will be the first appointment where I'll be by myself. My husband will be out of town and I'm scared I'll get bad news without him with me! Yikes! I know I've missed some posts and I'm sorry. I'm just a bit of a mess today!
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I cut my hair bob/chin length and it has red, purple and green chunks in the front on both sides....figure if it's gonna fall out in 4-6 weeks I'm gonna have fun. My Kids say I looks like a rock star! I need to get on the laptop so I can upload a picture to my profile!
MRI Sunday morning.
And I got a good name on a 3rd opinion should I still be undecided after my multidisciplinary clinic on Wednesday. Dr Lisa Newman (new to Henry Ford hospital) not as convenient as my current hospital but 45 mins is still reasonable.
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LUV will be thinking of you on Monday. Try not to panic until there is something to panic for and in all probability everything will be ok. I feel sure you will be fine. How is your house build coming on are you near to moving in. In your pocket with hugs xxooxx
HausfrauMi you rock already just doing that to your hair. I bet it looks great. I always wanted to do something drastic and out of character to mine but never did so good on yer girl. On the subject of doctor's go with the one you feel more comfortable with.
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Thanks for the encouragement and hugs Cocker. You're so sweet!! I just have a scary feeling because of the location of the pain. I'm trying not to panic but I woke up a lot last night with that doomed feeling. Ugh!! Anyway the house stuff is slow. They have finally got all the permits finished and should start laying the foundation this coming week. We are stuck in the rental for longer than what we wanted. Last night when I kept waking up I kept thinking what if it's a sign that our new house is so delayed? Like what if this checkup isn't going to bode well and that's why God hasn't let the new house be done. I know He doesn't work that way supposedly but He does work in mysterious ways. Sorry for being so down but I'm really struggling. I've been stress eating a lot and haven't excercised in awhile so I'm hoping If this is mets that it's not my fault. Ugh, crazy thoughts!!!
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