Calling all TNs
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So meeting went well today! It was agreed upon by the big group of doctors to have me start chemo first (I'm in the gray area tumor size wise). Then surgery then radiation. They offer such wonderful services thru the cancer clinic free of charge and will help with transportation and assistance if we need it--like house keeping! I met with the social worker to talk about our son and his emotions which was very helpful. She will see any of us for free counseling if needed. I picked out a cute soft aqua head wrap that ties in the back! Gotta make the best of this situation.
AND I figured out how to post my profile pic! Got hubby away from the computer for a bit.
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Haus, nice pic. And, I think a good attitude is everything so glad to hear that you are making the most of a lousy deal.
I lived in Heidelberg briefly, then Mannheim, then Bamberg. I also lived in Fayetteville, NC. Now I live in Illinois and miss the mountains (Smokies, Alps, They were all great)!
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Jenjen
Love Charleston. Lived there for 3 years. I'm proud of you for "living". Prayers that your home sells quickly. Please keep us posted on the process.
We are going to move to the country instead of waiting. I am also in the mind set of moving forward. We are not guaranteed tomorrow & I really want to unpack all these boxes that have been waiting for me. (Moved to Texas when I was 35 weeks pregnant then found out I had cancer. Been renting the past year and a half until I was well enough to purchase a home again.). We are going to do a scavenger hunt for the children to surprise them.
Welcome Haus. Summerville is lovely. How neat that we all share some Charleston time.
Luv I am so glad to hear you are well.
On the topic of stopping treatment early I did not receive my last taxol due to neuropathy so I received 3 out of 4 treatments. I was bi-weekly dose dense. Had a scan after treatment and still showed I had 1 cm left of mass. When I received pathology back though it was all dead. I got a PCR.
Cass so great to hear that you are doing good and enjoying life after that long stint of treatment and surgeries. Glad you are moving forward.
Sending you lots of love & prayers. Sorry I did not list everyone on here on this post. You guys are in my thoughts.
Much love
G
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Haus, love this picture and I am so glad today went well. You are off to a great start.
Jen, congrats on the move to Charleston. Did you choose it because you have vacatione there, and fell in love with it? I have visited twice, yes, so wonderful.
(((Another)))
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Do they give everyone Neulasta/neupogen during Paclitaxel, or is it just for AC?
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HausFrauMi - great hair. I'm glad you persevered with the photo!
Jenjenl - good luck with the move. What an new exciting (non cancer) chapter in your life.
SA8PG - I hope you're feeling good after your Diep and you're happy with the results.
Lovely ViZsla - I had Neulasta whilst on AC and Neupogena whilst on Paclitaxel
x
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hausFrau good luck. I did act & it's tough but take it 1 treatment at a time.
Luv I did dd and had neulesta body injector after every chemo except the last.
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HausFrau- we have no family in MI either. DH is English and I'm from Indiana. Where are you getting treatment? I did neoadjuvent chemo, 4 dose dense AC and 12 weekly Taxol. I finished 6/18/15. So welcome to Michigan. It was so nice of Gov. Snyder to give you a welcoming gift of TNBC. He gave Flint lead poisoning, so I don't which is worse. 😟
Jen- that is so awesome you are moving to NC! DH and I have been talking about doing that for over ten years. I'm afraid that isn't going to happen now as he got a job at Ford and loves it. So, I think we will get a lake property instead. Good luck on your move!
Viszla- I had neulasta During AC but not T.
I have my DIEP flap surgery in two weeks. I'm so ready to get these TE out
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Hi everyone- thank you for welcoming me. Thank you Meadow for letting me know about this thread
Mamiya- is also friend of mine through the IBC thread. Please don't say that you are not a great example because you are. Both you and Meadow have helped me a lot. I don’t know what I would have done without you guys. I hope that Taxol works for me. So far WBC's have been good. My 14 year old son has been battle bad cold close to a week now. I have been trying so hard not to get sick. I'm glad I am on the TN board with all you supportive ladies and bros. Hugs to you all. Best of wishes to all.
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Thanks again ladies!! Feeling much better today, but think I may be getting a cold. I have that tickle in the throat. That's elementary stuff though! Wow I really need to catch up on everyone's post! Cassylou, congrats on your recovery! Sounds like you're doing well. So great to hear!
Jen, have a blast in Hawaii and Charleston is beautiful! Congrats!
HausFrauMi, the comedian Jon Reep is from Hickory!! He's hilarious! Hubby and I saw him perform in Raleigh. Have you heard of him?We are in Greensboro. Love NC!! Don't get too hung up on the horror stories about chemo. I did and I was scared but I never got sick from chemo. I did get C Diff but it was from antibiotics. Take the meds they prescribe and you should be ok. Everyone is different. Drink plenty of fluids and get plenty of rest!
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Well, thanks to low counts, the doc reduced my AC dosage by 20% today. She also said she plans on giving me neupogen for a couple of days after the taxol, but that is nine weeks away.
Sitting here on my infusion bed, waiting for the cytoxan to finish. I feel a nap coming on during the trip home.
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Good FRIDAY morning everyone!
I told the kids that I choose to be happy and smiling despite this diagnosis. I will not allow cancer to turn me into a sad miserable person--its not me!!!!! Will I have crappy days where I feel like total bleh-sure but even then I can still make a joke about it! I keep telling them I am hoping for some super powers
jlstacey-I am going to Troy Beaumont (Dr Gold-BS, Dr Hanna-MO and Dr Nandular-radiation). conveniently only 20 mins away
peabrain- At the moment from what I can tell---I don't meet the carboplatin requirements but I meet with the nurse from oncology to learn "all about chemo" and will ask about it.
mamiya-I lived in Fayetteville for a year of hell!! My first stepmom was from there which was how I ended up in Fayette-nam. Left for Raleigh after that and better job opportunities then met my husband and headed to the Charlotte area. My family is from Hickory
Luvmydobies-I have a few friends and relatives in Hickory that are personal friends of Jon Reep. My old coworker is very close friends in fact! They hung out when he had a show in Charlotte and any time he is in town.
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HausFrauMi- Happy Friday! That's the spirit!! I have done the same. I refuse to let this diagnosis get the best of me nor will I let it define me. Nothing but laughter in our household and a sense of humor. I have my crappy days, but my family always manages to crack jokes and make me laugh. I already feel like I have some super powers. The kids (teens) were calling me Yoda this week because I only had patches of hair with strings of hair coming down. Finally, shaved my hair today and my head feels so much better. May the force be with you!
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Hello Fellow TNs. Recently had surgery January 12, 2016 as Oncologist recommended a break from the chemo since I ended up in the hospital 12-11-2016 to 12-19-2016 (oncologist doesn't think it was because of the chemo). Had lumpectomy and axillary dissection in left arm and have not regained full range of motion of my left arm. The recovery from the axillary dissection is much longer and more painful than I had imagined it would be.
Anyone have any idea how long the recovery period is? I have been recommended to begin physical therapy but not sure how that will work during chemo as I am restarting and won't know what side effects I will be dealing with as . . .
I will be restarting Taxol on Wednesday, February 10 on a weekly basis (for 9 weeks) which will be a lower dose than the biweekly Taxol of which I had one round on Dec. 2, 2015.
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I want to say I noticed much less node incision pain in weeks 3-4 post-surgery. Good luck.
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DO the PT, it helps tremendously! I found it to get great during chemo. Got me out of the house and moving. I couldn't lift my arm above my shoulder than 3 weeks later all good. I still have pain here and there but i think its more from scar tissue.
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Geeper, Loved your happy post. Makes me happy that you and your family are doing so good. Yoda! lol
Bethdawn, Hang in there. And yes I agree 100% with Jen, do the PT. It helps so much! You will not believe how much better you will be. It will get better, I promise!
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jenjenl, I'm insanely jealous of moving to Charleston. I met my husband when he was stationed there as a squadron commander, and we got to live there for a year after we were married. I think I left part of my heart there and have told hubby many times that I still want to go back someday. It's one of my favorite places on earth.
HausFrau... I think we're living twin lives somehow. I'm originally from Pennsylvania, husband went to Carnegie-Mellon and is a rabid Steelers fan; we got married and lived in Charleston, SC; then we lived in Germany for two years while he was stationed at Ramstein (our daughter was born in the German hospital there and has dual citizenship); now we're settled in Charlotte! We must have passed each other on the road somewhere as we moved around, LOL.
Thank you all for reassuring me about possibly having to cut treatment short. I really hate this but understand why. Oddly, while the neuropathy hasn't worsened in the last several days, the joint pain in my hips and knees is VICIOUS! I'm having a terrible time getting around the house and hope this is just passing. My husband seems to have a strong opinion that I should stop chemo now, which I find odd. Either he's trying to kill me off early or he has reached his limit of watching me struggle.
I'll have to wait until Tuesday and see what my MO says. It's a little anticlimactic because I wanted to celebrate a bit on my last day! I'd been making plans to bring gourmet cupcakes in for the infusion center nurses, flowers for my MO, and something quite special (I haven't landed on it yet) for my MO's nurse, who has been my rock all through this. *sigh*0 -
ACK!!
I meant to say hello and welcome to Geeper! I'm sorry you had to find us, but this group of women is fabulous.
cassylou, I'm heading in for a DIEP on March 18. Are you happy with how things have gone so far?
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bethdawn - Wishing you well and a speedy recovery. I am on a weekly dose of Taxol for a total of 12 weeks and so far I've been doing okay. I hope you have minimal SE's from Taxol.
Meadow - I am glad I made you laugh. Laughter is good for the soul.
CarolinaAmy - I am sorry to hear that you are in pain, I am certain this will soon pass. Your DH loves you and I think it pains him to see you suffer, he just wants to take the pain away. Please don’t beat yourself down if you don’t complete the full round of chemo. I think that you should still continue with your plans of celebration.
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Hi All just new here. I was diagnosed last August after I found a lump. I had two surgeries, one to remove lump and margin. The margin came back positive for invasive cells so I had a second surgery to remove more margin and 4 lymphnodes. Second surgery came back with all negative results. I just finished 4 rounds of chemo. I was on Cyclophosphamide and docetaxel every 3 weeks. In March I will start radiation. 16 treatments and 4 boosters. I live in Canada with my husband and 5 children.
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Geeper, love your positive attitude so much! I'm so sorry for your diagnosis and that you have to join us, but sending you a warm welcome.
Cass - sending you hugs. All those surgeries aren't easy I know. I'm so glad to hear you're doing well!
Haus - Beautiful picture! I agree with others, don't let the AC stories scare you. Everyone has a different experience and there are many who do very, very well. Also, my husband and I lived in Charlotte for a short time and enjoyed it very much.
Jenjen - good for you for going after the life you want and taking that leap of faith! I'm sure you will love Charleston and have no regrets! I hope your company cooperates and allows you to work remotely. And have a wonderful, wonderful time in Hawaii! You deserve it!
Beth - welcome. I can't say enough good things about PT! It helped me gain full range of motion back and she even worked on my neck, as I was very tense.
Amy - I think you could still do something special for your team if you'd like. I gave all my infusion nurses angel wing keychains. I still pop in to visit them every now and then and some of them actually do have them on their keychains. I think they appreciate the thought and won't mind that it's not on your actual "last" day of chemo. And so sorry to hear about the joint pain! I hope it subsides very soon!
Polar - so sorry for your diagnosis, but welcome. This is a wonderful group.
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I had a 6 month check up on Friday with my gyn onc who did my prophylactic BSO/hyst. They always do a CA-125 ovarian cancer tumor marker check and physical exam. CA-125 is good, but she found a palpable node just above my left breast (cancer side) in the upper outer quadrant. It's small...the size of a pea. It's tender though because when she pressed there I winced a little, which is how she eventually found it. I'm trying so hard to stay positive and move on with my life, but these scares are too much! I was supposed to call my breast surgeon as soon as I left the appointment, but I couldn't do it. (My gyn onc is at a different hospital from my breast cancer team.) I don't think anyone will do much at this point and I don't think I can bear to call with yet another complaint. My husband is adamant I call in the morning, but I might give it a week and pray it goes down. I did find out though that the hospital (University of Michigan) has an entire pysch onc practice on campus - psychologists and psychiatrists who solely see cancer patients. I got a referral and I'm hoping to get an appointment soon.
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((Ally)) Hope it goes down
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Polarpegs, welcome, though I'm so sorry you have to join us. Get this--I have a good friend who is actually from Kelowna, BC! She has lived in California for quite a few years due to her husband's job, but I remember this being her hometown.
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Ally, first. ....well crap! Ok, now that is out of the way, you are just outside of a year from end of treatment, we are monitored closely during the first year and even for 3 years for just this reason. ...to find areas of change and suspicion. So do not feel embarrassed or timid about making an appointment next week. You are following the advice of your team. This is exactly what you should be doing. Of course you are weary and frustrated. Your body takes monitoring right now. You have been through so much, I am so sorry. And wish so much for you to be able to forget BC. And I believe that you can one day, just not yet. Time will pass and you will not be monitored so closely. So check out this new lump, do what that sweet hubby says. Keep us posted and do something you enjoy today. Are you watching the Super Bowl with friends? We are having wings and dip. ..Yes! Sending much love to you.
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Ally, - hope you see the dr and get the 'all clear' asap so that you have peace of mind!
A giant superbowl get together would have been fun!! (Although I am not a football fan, - I saw a quote that said "My idea of a super bowl is a toilet that cleans itself!" THAT i can relate to!
Hugs to all here!
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Vizsla - thank you!
Meadow - thank you so much. I'm 2 years out from dx almost to the day. My husband and I ran errands around town yesterday and had some lunch while out. It was a really nice day. We're heading to our friend's Super Bowl party tonight so that should be fun too. I haven't even told my closest friends about the node. It's embarrassing at this point. I might just call and see if I can talk to a PA next week and ask what she wants me to do. Maybe she'll say wait anyway. Wings and dip sound awesome! I'm making mexican pinwheels and mac and cheese bites to take tonight!
Sending much love to you as well. Thanks again for your unwavering support. xo0 -
Oh Ally, I'm sorry to hear of your node scare. Maybe it's not a bad sign since it's painful! This cancer business is BS! I hate the fear it brings after treatment! I remind myself when I have an issue that if I never had cancer I wouldn't be so anxious about it and probably wouldn't even call the doctor for these pains I experience off and on. So I'm hoping and praying this is just something simple that will clear up for you. You're in my thoughts and prayers. (((((HUGS)))))
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