Calling all TNs
Comments
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HAPPY EASTER
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Happy Easter, Friends!
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Hello all you nice ladies,
I am just popping in to wish you all a Happy Easter and a Happy Springtime.
Fond thoughts from the UK.
Sylvia
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Happy Easter from the Easter Vizsla
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LoveMyVizsla...beautiful and looking very cool in his bunnie ears
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happy easter to all ladies here.
I found out today after my surgery that I had CPR. So good news.. but going through Google I found out it wasn't that significant because if you had a high ki76 - from the biopsy mine was 80%. I should be expecting a recurrence? Any knowledge on this topic at all?
I am recovering from my surgery now and getting ready for radiation may b mid April.
Will we ever relax?
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From what I have read, pCR makes quite a significant difference in lowering odds of recurrence. Ki67/high proliferation cells generally respond well to chemo (ie those that are not chemo-resistant). I did not have a pcr, but ki67 of original tumor was 70 and much higher than the residual tumor, so I'm hoping that anything that got "out" was taken care of by chemo
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4everstrong
hope you don't mind my 2 cents worth.
there will always be a caviet (forgive my spelling) to any good news we get because it is BC and has no cure. I say hooray for your good news.
On this board and other threads, you will see long term survivors with the worst of odds: lots of nodes, no pcr, poor response to chemo, stage 3 etc, and they are here 5, 10 plus years NED. Then you will see and know of others, low stage diagnosis, great odds (no nodes seen etc) and they have a recurrence with a vengeance. We just never know, but they now have guides for us to speculate and sort of 'know'.
. 24 years ago when I had my first BC (and was in complete remission, this is a new cancer in the other breast) You did not have all the tests, studies etc, in some ways I feel it was better. To this day, don't know if it was TN, etc. I had a lumpectomy and radiation and was sent on my way. Had check ups every 6 months, mammo's and US 2 x's a year for 5 years. Then on my way.
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4 ever strong, I am SO GLAD for your complete response! Very good news!
Thanks everyone for the Easter wishes, same to you all.
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Happy Easter to all of you strong ladies and our few awesome, strong gents as well!
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Happy Easter to all of you gals any guys!! God Bless
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hello!
Took time out yesterday and read several recent pages of this thread. Lovely bunch of ladies.
Just wanted to pop in this Easter Morning to send you all my very best wishes and lots of happy moments this Holiday weekend, and always.
Have added your thread to my ' farourites' and will pop back in to follow your successes!
Happy Easter!
Shiny
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I took some time today and visited this thread today. I was diagnosed at the age of 46. My children were 5 and 7 years old. Friday, I celebrated my 51st birthday and my children are now 10 and 12. They make me smile so much! I really was not very hopeful four years ago that I would see this day.
Time goes on and before you know it you have moved on, not forgotten, just moved on to other things. Take care everyone and be grateful for the good days. They will occur more and more often! Happy Easter everyone
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Kayrem
Thanks so much for posting. It gives those of us early in this journey so much hope. Especially us TN's.
Val
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Shiny, so very glad you are here! Hoping you find tons of information and support. Happy Easter!
Kayrem, I echo Val, thank you so much for popping in. I am grateful for your post.
I am reflective today, thinking about Easters of my childhood.....coloring eggs with my brothers and the simple joy of finding those same eggs. We did not have the plastic ones filled with money and candy, but they would have been a treat and treasure too. Also thinking about Jesus and the cross, that sacrifice for all, and what love is all about. HUGGING YOU ALL.
My sweet Spouse started giving me a bunny at Easter when I was a teenager. ..he has continued to give me one every year since, and I am now in my 50's. I am currently holding this year's stuffed version, a charmer for sure. Thank you Spouse, for everything.
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Kayrem...what a pleasure to read your encouraging post. I was devastated when I was diagnosed TN. I'm still doing Chemo and lave a long way to go with my treatment. Most days I'm fine, looking ahead to the future. Other days I think I won't be here two years from now. It's great reading stories like yours. They give so much needed hope and support. Thanks so much for taking the time to post
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meadow, love your bunnie story! Your husband sounds like an awesome guy!
I am 8 years out from my chemo ( FEC-T ) and can honestly say, I am gratefull each day to God and feel blessed by my kiddos and surrounded by treasured moments daily, in the little things.
Btw: for those of you doung chemo..in case helpful..fresh celeri was a real help to my stomac. Seemed to soothe it when nothing else would! I later found out that celeri had ' numbing like' properties.. Well you never know..worth a try if your tummy sore.
Take care, be good to yourself.
Shiny
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Shiney, thanks so much for giving us hope and the helpful tip. Never thought about celery.
Meadow, as always such an inspiration and I love the bunny thing. Wonderful hubby
Cathytoo, I too am positive until I read about how aggressive my disease is being TN. Then I see these wonderful posts, and it gives me courage, no matter how my body chooses to go.
I was able to go to a wonderful wedding last night. Felt for the first time since DX 'normal'. If nothing else this DX has taught me to appreciate every moment. I appreciate you ladies.
val
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Valstim52...I know exactly what you mean. I was diagnosed two months before you. I went to a wedding March 5th and had the best time. I was on the dance floor A LOT‼️ I thought how can I have so much energy and still have BC and be on Chemo. But then, I was having such a good time the thought of BC left my mind altogether. I find that there are many days when BC never enters my mind. But, I think even years out, it probably creeps in. I'm wishing all of us what I wish for myself....years ahead to live a great healthy life.
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Shiny and Kayrem, thanks so much for posting. It's so encouraging to hear from long time TN survivors.
Happy spring, everyone! If you'd like an up-close-and-personal view of some spring magic, check out the DC EagleCam. Baby Eagles!! So cute!! Sometimes mom is just sitting on them, even though they've already hatched, but they're out more and more as they're getting bigger and it's getting warmer. I check in multiple times a day. Guaranteed to take your mind off cancer. http://www.eagles.org/dceaglecam/
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Damn, I don't know how to make that link live. Help?0
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Happy Spring Bluedog, I'm going to try and find those baby eagles.
Thanks Cathytoo. Glad to have found you and this thread. We will make it through. No matter the journey.
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Bluedog, thanks re Baby eagles..am sure if we google a while we will find them! Nothing like kiddies and babes of any kind, including Eagles for a little respite and lift.
I echo you Val, you'll get through this. And Cathytwo, lets hope you get invited to lots of weddings, or perhaps dont wait for that, sounds like you would be the ' belle of the ball' at any local social dance club!? Maybe there is one near you?
Be good to yourselves.
Back when I was doing chemo ( with two young kids) used to tell Mother's doing chemo too
.' Be as good a mother to yourself, kind, patient,loving ,generous,forgiving and flexible as you are to your kids, that is what is needed and if you do that, you' ll be doing enough! Be gentle with yourself.'
Shiny
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http://www.eagles.org/dceaglecam/
Did it! Baby Eagles!!
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thank you Bluedog!
I will be sharing it with my kids in the morning!
Shiny
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Ok, I am loving watching the eagles so thanks for posting! We've had a very lazy weekend, which we needed. Me and hubs have been sick - i think all the stress of selling a house and buying has caught up to us. I've had a noticeable increase in back pain so I am now watching the calendar to see how long it's been. My hubby says to not get a scan, we are obviously worried something could derail the plan. BUT i have told him I can't ignore something like this so we'll wait and monitor, then go from there. We will move either way but it sure does suck having to worry about it. The pain is in a new spot in addition to the usual right hip, right shoulder. It's mid back on both side of the spine. UGH.
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Curly - your dog is adorable!
Meadow - your husband sounds like an amazing man, just as you are an amazing woman. I'm so glad the two of you have each other. xo
Jenjen - man, I'm so sorry to hear you and your husband are both sick and you're dealing with a new pain. Many times I've had new pains creep in and try to steal my thunder, but as you know they've always been nothing. I'm sure it's a combination of being sick, the stress of moving, lifting boxes, etc. I'm sending you lots of hugs and prayers that the pain eases as you get well and recover.
Bluedog - I've also been checking in on that eagle cam! So cute!
Shiny - thank you so much for sharing your story and giving us so much hope!
Hi to everyone else! I hope you all had a lovely Easter!
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Hi everyone! I think I haven't posted here since January. Lot's of pages of reading to catch up. Life is good here. Welcome to everyone who has recently joined this thread. It's a great place for information and just knowing you are not alone.
I've been watching the eagle babies too. They are getting so cute. We have a duck that has made a nest in our back yard and is sitting on her eggs now. I'm hoping we will have our own version of baby birds to watch (through a telescope) in a few weeks.
Wishing everyone a great day.
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I don't post often, but wanted to give some hope for those in treatment about life returning to normal. My DH and I will be celebrating our 30th wedding anniversary in June in Bora Bora! We were lucky enough to go there for our 20th anniversary and promised we would go back for our 25th. Well, I was in the middle of my breast cancer fight at that time. So, here we are, 5 years later, and we booked our trip. To say we're excited is a huge understatement! Having been lucky enough to have been before, we know what to expect this time. However, this time will be so much sweeter, as only you all can understand! So keep on taking one day at a time. Life does get better. Hugs to all!!
Kathy
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Congratulations, Kathy, and thanks for posting!!0