Ladies in their 30s
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McKatherine - that's wonderful news. I was told that if I have the exchange early in the morning I could get home the same day. I have my fingers crossed that you will heal well! I bet it feels great to get rid of the tissue expanders just in time for summer.
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Hi ladies,
I am new here, I just started A/C last week. I am 34 and married with a 4 year old little girl.
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Hell Firkat I am also 34 years old married with six kids!
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I meant hello
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Firekat- Hola! 31 with 2 kids. We can do it. For them.
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For them!
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Hi
I am new here. I am 33 and was diagnosed about a month ago - multifocal IDC and DCIS - the area was over 5cm with multiple lumps. Had left mastectomy and ALND last tuesday. I was trying to get pregnant again (had a miscarriage november '13 - first pregnancy) when I discovered a lump on my left breast. I have a history of fibroadenoma but the area this time was larger and firmer. Also the weekend of my first wedding anniversary noticed that the nipple had gotten smaller. I knew it wasn't good and had a feeling that it would be BC.
Fast forward to today - drains were taken out yesterday and next week meeting with the surgeon and MO to find out more about my cancer and chemo treatment.
Currently going through fertility preservation (day 3 today) and I am hope to be able to have some good embryos.
This whole experience has been okay so far. I am okay with having one boob (doing reconstruction after the treatments - so possibly next year) but I cry like a little girl to the idea of not having a baby.
Has anyone gone through egg retrieval/IVF and had a natural pregnancy?
Thank you and sorry we have to go through this disease!!
Hugs!!
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Lolis - there's another thread - 'coming off tamoxifen early to have a baby' you should read. lots of encouraging, inspiring stories of women who have had babies after BC
I went through fertility treatment right before chemo. Are you ER/PR + or - ? I did the shots while on Femara 2.5 to help control estrogen levels. I know exactly how you feel about having a baby. My heart aches when I see little ones. I'm glad to hear you are doing fertility preservation. It gives you more options, and is kind of an "insurance." Good luck with every thing.
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Lolis - I have a friend whose diagnosis/ treatment was on almost the exact same timeline as me. She's a couple years younger than me (so 36), and is 20 weeks pregnant. She didn't do any fertility preservation - so this was a wonderful surprise for them!
Anything is possible!! But, yes check the boards for lots of friends who can help you through that journey!
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Hi Ladies - just wondering if there are any of you on Tamoxifen and if so how are the side effects for you? I'm still finishing up chemo, but will start Tamoxifen in a couple of months. Not looking forward to the side effects. We're in our 30's - these SE's are not supposed to hit us this early!
Hoping to hear of some better SE's stories. Maybe since we are younger, the SE's won't be as bad? I can handle the hot flashes and cramps, it's the sexual dysfunction that really bothers me! I still want to have a family and be somewhat normal! *sighhh*
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h0pe - I am a newbie to Tamoxifen too, only 1.5 months. So far my issue is the lovely Tamoxifen discharge, I'll spare you from TMI. But what I was not prepared for is the joint and muscle pain, The MO thinks it's from Taxol, I just hope it goes away some time soon.
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my MO, too has blamed most SE as being post chemo (or post-rads) rather than the tamoxifen. Honestly, my biggest SE from the tamoxifen is constipation/ feeling dehydrated. I feel like no matter how much water I drink I'm always *slightly* dehydrated. Extra water just adds extra trips to the bathroom.
Definitely noticed an increase in discharge, but otherwise my libido/ ability to enjoy sex seems to be about the same. Although after being on it for 4 months and having crazy cycles, I've now had two months of no cycles. In those two months I've had a handful of minor hot flashes - but NOTHING like the ones I had during chemo.
I'm kind of hoping my body will cycle / have a period while I'm on my tamoxifen vacation for my exchange surgery. Part of me can't believe I just said that.
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I am new to the site..scary how many of us are diagnosed so young!
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New to the site..scary how many of us are so young on here. WOW
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Do most people our age get recommended for chemo (im 36) even if node negative ER PR + HER2-? Does it depend on Oncotype?
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h0pe - if it helps, I've been on tamoxifen for just over a year now (hard to believe...) and I can't really say i've noticed any side effects. I do have the lovely discharge issue that others have noted. But other than that - I can't point to one single side effect. My libido is what it always was - with two little kids and a full-time job...
Don't believe all the type about it - go into it assuming the best. Remember - people who are struggling tend to be the vocal ones, and those who are sailing through don't have much to be vocal about. So we don't hear as much about the lack of SEs as we do about trouble with SEs. Good luck!Runnergirl3 - sorry you have to join, but welcome. If you are node negative, your decision about chemo will likely be based on your oncotype. Young women with any positive nodes are typically guided to do chemo. But I don't think young age overrides node negative when it comes to chemo. But your medical oncologist will be able to answer all those questions and more. Good luck!
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Runnergirl : yes it most likely will depend on the oncotype.
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Lolis - remind me later to share with you the story of my friend who had a unilateral mastectomy, (found a lump when her son was 11 months old) then exclusively nursed two more babies with her remaining breast. Our bodies can do amazing things!!
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New to the site, just diagnosed in April. I will get my first treatment on the 22nd for eight weeks and then go on a clinical trial for herceptin and perjeta/ T-DM1 and perjeta. Does anyone here have had the same treatment? How are you feeling now/ how is your treatment going?
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McKatherine… - would love to hear your story! Did you friend have more kids after BC?
Her2pos- I'm sorry about your dx. This is a great site to get info and support. Good luck with your treatment. I'm sure there are others on the trial too.
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sorry new to this and didn't know there was other 30 year olds. I'm here. Surgery on Tuesday bilateral masectomy
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koreangirl & Her2posmom - so sorry you have to be here, but glad you found us!
H0pe - yes! They waited about a year after her surgery (lucky girl didn't chemo or rads, though). Then they've had two more beautiful girls. I was amazed that she has been able to nurse both of them! She did say that making her foob look even has been a challenge - but she has a variety of prosthesis that she uses on top of her implant to make it match the size of her remaining breast (since it it ever-changing b/c of pregnancy and nursing).
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do u always lose your hair during chemotherapy. I have to do that after surgery and radiation and than reconstruction and than another surgery to take my ovaries out. This is disrupting my life
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Sorry to jump in, but we hope you don't mind us asking.....
We want to honor you, our young BCO members in our next Newsletter and on our website (http://www.breastcancer.org/community/members)!
If you were diagnosed with breast cancer under the age of 35- which we assume you are if you are here---, and wouldn’t mind us featuring you in our community and website, please private message us a few paragraphs with your story: e.g. your diagnosis, your challenges, your strengths, inspirations and anything else you would like to share. Also, we appreciate you including a high-quality photograph of yourself, either alone or with others. Thank you! Your stories will help encourage future young women facing breast cancer!
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koreangirl - unfortunately the most commonly used chemo treatments do make you lose your hair. There is a older regimen that is not as potent and sometimes only thins hair. Some people also use "cold caps" to save their hair, it's a hassle and is not a guarantee that the hair will not fall out. Try to do a search on Penguin Cold Caps for more info. For me losing my hair was not the end of the world and I consider it a small price to pay. I have nice new hair growing since 2 weeks from the end of chemo.
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Hi! I found the 30's board! I'm 36 but feel like I should be on the 20's board after reading about all your kids! I'm not married. I have no kids. I do have two master's degrees to show for the last 10 years of my life instead...lol.
I thought I still had time but I'm BRCA1 pos and will have chemo and lose my ovaries. I already had my mastectomy and a bunch of complications. I delayed chemo to June so I could harvest some eggs. The medication is here at my house along with all the tons of needles. I'm calling today to find out what I do next...
I am not looking forward to pumping myself full of hormones, then starting chemo to feel miserable for that. I want to keep options open, but I don't know if it's worth it for kids I might never even have.
It kills me the way you guys fight bc for your kids. I am looking for a reason to fight. In a way, it makes me wish I had done things differently but I should be happy I don't have anyone but myself to care for right now...
All of this just sucks!
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radical2squared - *hugs* It's hard no matter where you are.
Hang in there with the hormones/ egg harvesting.
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radical2squared - it is hard no matter where you are in life as McKatherine said. I am 32 - I also have no kids and went through fertility preservation (unsuccessfully). I have already started getting my period back though, I know that is not a guarantee that I am still fertile, but gives me hope. If you want to discuss more you can PM me.
I don't think any of us should have regrets about how we lived our lives - how were we to know that this would happen to us. Like you have spent my time getting degrees. I wouldn't take any of it back. All you need to fight for is yourself!
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Hi ladies, I'm having crying spells on fertility, hair and possible neuropathy and i haven't even start chemo (or decide on the regime)! No egg extraction and preservation for me.. would cost a bomb and i'm not sure i want to have kids (being single at this point in time), though can't help feeling a bit mournful that i might have no say in it should i want to, post-chemo!
arhghghgh!!!0 -
Radical-I'm 37 and am BRCA 1 positive also and yes, all of this sucks!!!! I am married, but I don't have kids. I just wanted to tell you that I do think it's great that so many women fight bc's ass for their kids, but that doesn't have to be the only reason to fight. Fight for your friends, family, your future, your career that you invested so much energy into, and fight for yourself! Some days this diagnosis will try to ruin you, but you do have reasons to fight it and you will succeed!
Any ladies done with chemo for a few months or more and their bodies feel sore, achey, and have lost muscle tone? I'm 3 months pfc and am feeling like an 80 yr old woman!
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