Calling all triple negative breast cancer patients in the UK
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Hello MoreShoes,
I was so sorry to read all that you have been through. I agree with what Michael has told you. When I first read your post I thought of the Royal Marsden hospital as the best hospital in the UK to get a second opinion. It is supposed to be excellent. I do not think we have centres as such in the UK but the Christie Hospital in Manchester also has a good reputation. I do not know if there are centres of excellence in Europe, similar to those in the US, but I have read that Germany and France have a very good reputation for cancer treatment..
I was wondering what kind of treatment you have had in the past in the way of surgery, chemotherapy, radiotherapy etc. and where you are with the third lot of treatment.
Since you say you want to get a second opinion, is it about treatment for this third diagnosis or are you seeking an answer to why all this has happened three times?
I noticed that you had IDC twice and had tubular in addition. Can you explain the significance of tubular? I noticed that with this third bout you have now been diagnosed with IBC.
Please stay with us and let us know how you get on, so that we can see if we can help you more.
Were you tested for the BRCA 1 or 2 faulty genes?
Wishing you all the very best and hoping to hear from you.
Fond thoughts.
Sylvia xxxx
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Hello Mary,
Thank you for posting that information. I think if we sum it up drugs are being pushed again. I would not like to be a patient with hormonal breast cancer facing ten years of tamoxifen/aromatase inhibitors with all their awful side effects. Goodness knows what they are doing inside the body.
I am really glad that I was not HER2+ and having to go on Herceptin, a monoclonal antibody with terrible side effects, or a variety of other monoclonal antibodies. I saw what all this did to my slim, fit, healthy neighbour. She went through the initial treatment, the cancer came back quite quickly and all the drugs they tried did not seem to help. She was dead within about six years of diagnosis and was not free of drugs in all that time. She was 59 when she died.
My motto is be positive about being negative!
Hope all is well with you.
Sylvia xxxx
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Hi Sylvia and all,
Congratulations on your 10-year and 10-month mark, you are an inspiration to us all! For myself, I am trying to keep postitive, eat as well as I can, and be as active as I can. I think where I get hung up is on the activity part; I want to be as active as I was before all this came into my life, and my body will just not cooperate. If I am active for a couple of days, such as working outside, or having a busy day in town, I will have to do a lot of resting on the next day. It's very frustrating to me, it's hard to plan things and I am not a good rest-er. I resent it, when there is so much I want to do. I find that many of the people in my life expect me to be as before too, I have to remind them I am not the same, not yet anyway. I suppose this is normal? I am also 2 years older than I was before, 63 now.
Yes, I am on Ty Bollinger's list and I have been getting constant reminders about TTAC running again. I think it is well worth watching if one is interested. Watching it everyday is almost too much information though.
In our state I have just been hearing that a bill is going to be introduced to the legislators about legalizing marijuana for terminally ill cancer patients. Not sure how it will do, our state as a whole is pretty conservative. I think medical marijuana should be legal, especially since all the states are cracking down on opiod prescriptions. It will probably get to where one will have to go black market to get pain medication, sad. I had not heard before about its' anti-cancer properties. Maybe it makes one not care if they have cancer! I sometimes think that we are becoming an increasingly drugged country.
I haven't been following our presidential election race news too closely lately. It was becoming too much too, it has been going on so long. I am impressed with all the candidates' energy levels, how do they keep up with the pace of traveling constantly, giving speeches, having to have cameras in their faces constantly. They are not young people either; Hilary Clinton is almost 70, Trump is 70, and Sanders is 74. Ted Cruz is young, in his 40s.
I think your "leaving the EU" election is coming up in June, is that right? Good luck on the EXIT!
We'll talk soon,
Mary
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Hello Sylvia and all,
Thank you for your answer. I guess you're right that with the globalization, the hospitals are doing the same things more or less.
I've tried to change my signature, so maybe you can see more information. First time cancer, surgery, rads, chemo. Second time, the same. Now it's IBC TN and I've started with chemo. It responds quite well but the doctors are talking about double mastectomy. I guess I was hoping someone will say that I don't have to do it. I do have an unknown mutation in BRCA1. As they say, it might be unknown but after 3 times cancer, it's just waiting for the mutation to become officially known.
All the information I find online says exactly the same thing in my case. It's a truth I don't want to face, of course.
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Hi Sylvia/ all
Congratulations Sylvia on your 10 years 10 months, you are my inspiration . I wish you many more healthy happy years.
You asked how my full time hours are going. I am finding it quite tiring but while I am at work my mind is active and not going to the dark side.
I am still waiting for the results of my mammogram, they said about 6 weeks. I think this seems quite a long time and wondered if this was the same for other areas? The radiographer said this is the first of five, after five years you will be on three year reminders .... a bit scary I think!
Hope everyone is keeping well ...sending lots of love
Amanda
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Hello Hanieh,
I was looking back at your last post and do think the best thing you can do is to keep your mind busy with your teaching and with enjoying life with your family. This will help to stop you dwelling on cancer. You are doing all you can to help yourself keep this disease at bay.
Try to settle down and just to keep your regular appointments for check ups. Your surgeon cannot give you a relaxed mind, only you can do that. Having more appointments than necessary will just give you anxiety, waiting for them and then waiting for the results. As Amanda said, returning to her full time work is tiring, but it keeps her mind occupied. Time is the great healer and the further you progress away from the diagnosis and treatment, the less space cancer will take in your life.
Things can only get better.
Take care. Fond thoughts.
Sylvia xxxx
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Hello Michael,
It is quite a difficult task to come up with the objectives for the Janette Collins Foundation. I think it is probably still a good objective to raise awareness of breast cancer with triple negative receptors. I think that there is still probably a lot of ignorance about breast cancer in general in the UK. People need to know that breast cancer is a very general term and that there are different kinds of breast cancer and they need to ask which one they have. They need to know whether they have DCIS or LCIS, IDC (invasive ductal carcinoma) the most common, or one of the less common, such as inflammatory, lobular, metaplastic etc.
They need to know the receptor status, ER, PR and HER2. If they are triple negative and young they need to ask about genetic testing for BRCA 1 or 2 or possibly others. They need to know the proposed treatment plan and whether chemotherapy is necessary, which drugs and why. I was wondering whether all the old chemotherapy regimens are now necessary.
These are just my own thoughts and ideas. I hope this helps. I have still not been able to read link 12, but I am hoping to go through it today or during the weekend.
Best wishes
Sylvia
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Hello Mary,
Thank you for your congratulations.
I think for the activity part of your life, you just need to focus on what you can do with your present energy levels, and not focus on what you cannot do. If you overdo things one day, it is only natural you will have less energy the next, so just pace yourself. You are right, too, that as the years go by from diagnosis, we are all ageing and we do not have as much energy. Remember, also, that our treatment, surgery, chemotherapy and radiotherapy, will all have compromised our bodies, and we may never get complete recovery. Like you, I have always been a bundle of energy but I find I get tired more easily now, but I still think I have energy levels of which others might only dream!
I agree with you about Ty Bollinger. That series was truly useful and I think there is no harm in getting alternative views and having an open mind. There is nothing worse than a closed mind. I think we are lucky to have him and all the work he has done. Chris Woollams is another one for whom we should be extremely grateful. I do not think that more and more lethal drugs, harmful radiotherapy and drastic surgery is the future for cancer treatment. It is just too awful.
I shall be interested to know what happens in your State about the legalisation of medical marijuana for terminal patients.
I definitely agree with you about a drugged country. It is the same here. I think the medical profession wants everybody on pills!
I do wonder who will win the Presidential nomination in your country. Neither in the UK nor the US does the process seem truly democratic.
The build up to the EU Referendum is truly horrendous with scaremongering. Today we have President Obama telling us that we should vote to remain. I feel strongly that the people of this country should be left alone to make this decision. The date for the referendum is June 23rd and I shall be glad when it is all over. I think the more the establishment tells us to remain, the more the people should vote to leave.
Tomorrow is St. George's Day in England, but it is all meaningless. It is also Shakespeare's birthday and 400 years since his death.
That is all for now. Have a good weekend.
Sylvia xxxx
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Hello MoreShoes,
Thank you for your post. Thank you for giving us some more details in your post. You might like to know they have not yet appeared in your signature.
I assume in the past that you had lumpectomies, since the doctors are now talking about a double mastectomy (bilateral mastectomy). I am assuming that you are a young woman, as TNBC seems to be more common in young women. I can understand your reservations about having a double mastectomy and I think you are quite right to feel you would like a second opinion about this. Can you tell us a bit more about inflammatory breast cancer?
What drugs are you now having for the IBC? Are you having Taxotere or Taxol?
As these are common for TNBC, I was wondering whether you have already had them and cannot have them again. Have you been offered different drugs and are there any that are particularly beneficial for IBC? How long will you be on chemotherapy? At least going through chemotherapy gives you time to think about the surgery and get a second opinion.
We can all imagine, here, what you must be going through, so stay with us and say anything you like that will help you.
Sending you fond thoughts.
Sylvia xxxx
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Hello Amanda
I am just going to take a break, and will talk to you later.
Best wishes
Sylvia xxxx
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Hello Amanda,
Thank you for your post and for your words of congratulations. I am so glad that I can be an inspiration to you and others.
I can understand that you are finding full time work tiring, but I am sure it will slowly get better. The good thing is that working keeps your mind off cancer. You will find over the years that cancer will occupy a smaller and smaller part of your mind.
I cannot believe that you have been told that it will take about six weeks to get the result of your mammogram. This is not acceptable and will leave patients in a state of anxiety. As I have said before, at my hospital the RD&E in Exeter, I was given my result straight away. Do you have your mammograms done at the breast cancer unit in the hospital?
I do not know how long people wait if they are not cancer patients and go to the mobile units.
I also find that having a mammogram every year seems a lot, as it is exposing you to radiation. I had my mammograms every three years.
I do wish all hospitals kept to the same routine, and also that they thought more about what they are putting patients through. We do not want long waits.
Wishing you all the best.
Fond thoughts.
Sylvia xxxx
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Hello Michael,
I have just read link 12 and found it a bit difficult to understand, especially as this is all being carried out on mice. I must admit that I do like the idea of treating tumours with less aggressive chemotherapy treatment if it works.
Am I to assume that with this treatment, which is being called living with cancer, you do not have surgery and you live with the tumour having shrunk a bit from the first full chemotherapy treatment and then the rest is monitored with chemo sensitive cells controlling non-sensitive ones. Would it be a frightening experience for a patient to know the tumour is still there? I would not like the idea of repeated MRI scans to monitor what is happening, but that is personal. Would there still be radiotherapy?
Sending you best wishes.
Sylvia.
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Hi Sylvia, Mary and all
Sylvia, congratulations on your 10 years and 10 months cancerfree. Thanks for being here through all these years to be so much inspiration to all of us newly diagnosed.
I completely agree with you that I am the only one who can help me. I should pass this phase of my life too. I'm sure everything will get better.
I'm extremely busy with my classes, badminton and family , yet I don't know where all the anxieties find their way to my mind.
Lots of love
Hanieh
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HI, Sylvia
Just wanted to say I am sorry for our President sticking his nose into the Brexit affair, I don't think it's any of his business. I would say he should be over here trying to fix our own problems, but he's had 7 years and things have only gotten worse. Enough of that.
I wanted to thank you again for all the time and wisdom you put into this board, it means a lot to me!
For curiosity's sake I looked up St. George's Day. Turns out he was never in England, but was born near Tel Aviv and was a Christian martyr. I think I knew that part. And he is the same St. George who supposedly slew a dragon, a metaphorical one I suppose. The writer of the article was not sure why England adopted him as a patron saint.
Happy weekend to all,
Mary
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Hello Mary,
Thank you for your post. I do agree with you that the EU Referendum is nothing to do with the American President, but he has so obviously been pushed into it by our Prime Minister. It has caused a lot of ill feeling here and your President is being accused of hypocrisy. The American Government would never allow open borders in their own country so that Canada, Mexico, Central and South America could just let their citizens wander in at will. In all of this the TTIP deal is being kept hushed up by the Remain side. TTIP stands for Transatlantic Trade and Investment Partnership, which will allow 'free trade' between the US and Europe, but will allow big corporations to sue governments. I do believe in independent countries and democracy. The EU is a big bureaucratic dictatorship. It is now pushing for Turkey and Albania to become part of the EU, which means the population of those two countries can just walk into ours.
I think we should just become the small island that we are and stop acting as if we are still an Empire, which we should never have been in the first place.
You are quite right about St. George. It is just a load of nonsense.
I am finding it increasingly difficult to listen or watch the media. I find it exhausting and increasingly feel the need just to sit quietly.
Apparently in the UK two proton beam centres are being built, but they will not be ready until 2018 in Manchester at the Christie Hospital, and 2019 for one in London. It is about time. I wonder how Hungary has been able to have one for some time.
There is an article about the UK machines at:
http://eandt.theiet.org/magazine/2016/04/proton-therapy.cfm
There is more on TTIP at:
http://www.independent.co.uk/news/world/americas/t...
http://www.independent.co.uk/news/world/europe/tho...
Sending you best wishes.
Sylvia xxxx
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HI Sylvia,
In regards to the TTIP, it is a good bet that if millions of people are against something, our president and also seemingly your prime minister, will be for it. It seems our wishes don't matter much these days. I think we have to keep our voices heard as best we can. As far as our US borders being tightly closed, that is debatable. There are a lot of people coming in illegally over our southern border, and it has become a big political football in the coming election.
The article on the proton beam therapy centers they are building in the UK is quite interesting. It is incredible what massive buildings they must be, and it will be 3 years before they are finished. I hope it lives up to its' reputation. I checked out the USA's centers, there are dozens of them scattered around that have it, so apparently it's somewhat common here. I have not checked out the actual operation of the beam itself versus standard radiation therapy, but I assume it must be much safer. I don't know of anyone that has used it, but that doesn't mean anything. I find a few people that don't know a lot about their own treatment, they do as the doctor says and just go along with it.
I saw my oncologist yesterday for my 6-month checkup, she did a blood draw and my labs were ok. All was well except my sodium level was low, which seems the norm for me. I drink a lot of water and don't eat a lot of salt. Docs are often telling me to eat more salt. Before I had my mastectomy the anesthesiologist came in and said if you don't raise your sodium level, I can't give you drugs tomorrow before surgery. So I bought a bag of potato chips on the way home and ate half of it, it raised my levels just enough.
Back to the onc visit; she felt for lumps and asked how I felt. I told her my main complaint was the weakness in my legs and the lack of stamina, and I told her all the tests I had done; she said she did not think it was cancer-related and she really had no answers for me. I told her none of the other docs did either, and that the neurologist had surmised it was because of the neuropathy from the chemo. She also said I could have my port removed! I am glad about that, I am tired of it being there. It's been there over 2 years, the nurse said they usually leave them in at least a year. To end the visit, she told me I looked great, that is nice to hear from one's cancer doctor!! I will see her again in 6 months, and I will have a mammogram at that time.
I hope all here are well, and weather is good. Here we have had a few days of rain and storms, everything is violently green. I can't keep up with the asparagus in my bed, I am eating what I can and giving a lot away. Most people are glad to get it, sometimes I am presented with a dozen fresh eggs in return. Many people are raising their own chickens these days, it started when the egg price got so high a couple of years ago.
I will talk to you soon,
Love, Mary
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Hi Mary
I'm so happy to hear all your check ups are OK. What a relief it really is. I hope, like Sylvia , you experience many years NED and enjoy a long , happy life.
Here, we are experiencing so hot days,that they mainly resemble summery days rather than springy ones. I have got a bad cold with a sever headache, and as I'm working full time and have no time to rest , my Gp prescribed 4 injections, 3 of which done today. I felt better enough to attend my evening classes. Now it's 10:40 pm and I am waiting for my husband to come back from his business trip. Actually his flight is delayed due to bad weather there.
Love
Hanieh
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Hi, Hanieh
It is so nice to hear from you, but I am sorry you are having a bad cold. What kind of injections are you getting? I was told I had a virus a couple weeks ago; I had sore throat, headache, lots of sinus drainage. I think it was more of an allergy, we have tons of green pollen in the air, everything has a coat of powdery green gunk on it from the trees.
It is nice to have my oncologist say she thinks I am doing well, I only wish I could do something about this weakness in legs. I may have to go to the big city to a real specialist to figure it out, and in the end it may be something I will just have to live with.
I am going out of town for a couple of days with some women friends, will be nice to get away. When I am home there are always jobs that need doing that stare me in the face.
Hope you are feeling better soon. Do you get a break from school soon?
Talk to you soon,
Love, Mary
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Hi Mary,
Today I had one more injection that came to 4 injections in 24 hours! But I'm unbelievably better than this time yesterday. I had a so a terrible headache that I could hardly raise my eyes. The Gp said it was sinus infection. I had two antibiotics injections, plus one dexa, and one vitamin B-complex . I ,also, should take oral antibiotics for six days.
Like what you said about the weakness in your legs , I have such weakness in my left arm and occasional pains in my ankles and also that strange heaviness in my head. My gynaecologist ordered a blood test when I went for a checkup and that showed high level of cholesterol in my blood. Yet my LDL and LDH were within normal ranges. I don't know what that really means. I exercise regularly and avoid fatty food except the weekeneds that I go to my MIL's house. She usually makes more fatty and of course more delicious foods than me and that 's what I can do nothing with, as it may disturb her emotionally. Next Monday I will see my gynaecologist. Maybe this heaviness in head comes from the high level of cholesterol.
I will have a ten day break in a month between the two terms of spring and summer. I'm planning to take a trip. Maybe to Thiland or China or somewhere else. I'm not sure yet.
Love
Hanieh
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Hi Sylvia
We haven't heard from you lately. I hope everything is OK with you.
Love
Hanieh
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Hi Hanieh,
I just have time for a quick post. i was reading about your cholesterol, and that your (bad) cholesterol, the LDH, is a low, normal number. That must mean your (good) cholesterol, the HDL, is high. Which is good. That makes your total number higher, but it is still good because your good, protective cholesterol is at higher levels. I have had that happen and my doc said it is fine and nothing to worry about. Do find out what your HDL level is, and your triglycerides.
Glad you are feeling better. Probably the dexa is smoothing things out right now. Sorry about the weak arm. My neuropathy was caused by the taxotere, (I think), and you did not have that so I am not sure why you have it. I also have pains in my ankles, sometimes very sharp and sometimes not at all. Very strange, I don't know my body anymore!
Have to close, talk soon,
Love, Mary
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Hi Mary,
Thank you so much for your reply. I think if I send you my results, you can share your experience more.
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I think I've not gone through menopause. What do you think? Am I right?
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Hanieh,
I recently had the same tests, so I was looking at yours and mine. My total is 186, my HDL (good) is high at 107, and my LDL (bad) is at 65. I am not absolutely sure how they arrive at the total. Your individual numbers are all within normal range, and yet your total is high. I bet your doctor is not overly worried about it, since the individual numbers are normal. You could try to increase your good cholesterol levels with diet, (Mom's cooking might not be the best for you, but probably delicious). That would probably also decrease the LDL. You know, the good Rainbow Diet, with lots of vegetables and some fruits, olive oil, fish, some meats (nonfatty). You can still eat mom's cooking sometimes. If your doc tells you that you should take drugs to lower the levels, you could ask about trying to lower it with diet first.
And you understand, this is only my opinion, I am not a doctor. Cholesterol levels can fluctuate, and some people are more prone to high levels than others. I just dealt with my husband's and my issues for so many years that I have seen a lot of blood test results!
Your other numbers look good, let us know what else your gynecologist has to say. Take the blood test results along and ask her/him about it.
Talk soon, Hanieh!
Love, Mary
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Hello Mary,
Thank you for your posts. I do agree with you that there seems to be a constant battle between ordinary people and the people I call the power elite or the establishment. As you say, with TTIP, the powerful and the privileged are in favour of it, so for me that means it is not good for ordinary people. As you say, somehow we have to make our voices heard. Life is a constant struggle for justice, equality and democracy.
I do know that you have a lot of illegal immigrants in your country and it is the same here. We are told that our borders are controlled, but that is rubbish. Nobody in government even knows how many illegal immigrants there are milling around the UK.
Your President has come in for a lot of criticism here and it is even being said that he is really Kenyan and that he hates the British because of our awful history in the past with this country. Apparently the British beat up his grandfather way back when there was fighting between Kenya and the UK. I cannot think the Brits would win many popularity contests with our awful history of Empire.
As for the proton beams, the fact that you have so many of them scattered around your country shows just how backward we are here, when it comes to cancer care.
I find that so many people here do not seem to take control of their care when they are ill. I wonder just how much interest they have in what is being done to them. Their attitude seems to be it is up to the doctor to get me better. I am quite shocked by this because from the moment I was diagnosed with breast cancer I was on my case. I remember buying the Cancer Directory new in 2005 by Dr Rosie Daniel and reading it from cover to cover and making notes. I was very afraid at the time of what might happen to me, but I was armed to the teeth with questions and information when I went for that first big appointment. I do not play the game of just doing what the doctor tells me.
I was glad to know that all was well at your oncology appointment and that you managed to get your sodium levels back up. When I read your post the other night and you mentioned potato chips, I suddenly had this terrible desire to eat some! I have not had them for years, probably since 2005. Raymond said that he thought we might have a junk food deficiency!!! The next day I had some olives to compensate.
I have a friend in hospital at the moment and they will not let him out because his sodium levels are too high!
I do hope you manage to get to the bottom of what is causing you to have weakness in the legs. Have you thought of Googling Chris Woollams?
I do hope you get your port removed soon. I do not think it is good to keep these things inside us. They are foreign objects.
It must have felt great to be told you looked good.
The weather is very variable here, but on the whole, unusually cold for April. I did do four hours of gardening in the grounds here today. I felt much better for it.
That is about all for now. I was glad to see that you and Hanieh have been having a good old chat. I think both of your countries must measure cholesterol levels in a different way to here. I know that here 5 and under is considered normal and that the HDL has to be higher than the LDL. My information is that cholesterol in the diet has very little effect on the level in the body and that most cholesterol is made in the liver.
Fond thoughts.
Sylvia xxxx
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Hello Hanieh,
I have not posted for a couple of days because I have been very busy, but I always look at the thread and I was so glad to see that and Mary have been having a good chat.
I was sorry to read that you have not been feeling very well and I do hope your sinus infection will clear soon and that you will start to feel better.
What is the dexa injection that you had?
I was puzzled to read that you had a blood test that showed high levels of cholesterol in the blood and yet your LDL and HDL were within the normal ranges. I have just looked in the Merck Manual – Home Health Handbook, which is American, and it says that the desirable lipid levels in adults are as follows:
Total cholesterol less than 200 mg/dL
LDL less than 100 mg/dL
HDL more than 40 mg/dL
Triglycerides less than 150 mg/dL
I would think you need to ask your doctor why your total cholesterol is high when all the rest is normal, including the ratio.
If you are having your periods regularly, then you are not post-menopausal. Often breast cancer treatment stops a woman's periods but they often come back after a time. This happened to a young friend of mine, diagnosed with TNBC at the same time as me in 2005 when she was 38. after some time her periods started again. By the way, that young friend is still alive, so that is another long term survivor.
You might want to ask your doctor what those injections you were having might have done to your body.
Keep posting Hanieh and let us know how you get on. Banish negative thoughts from your mind and fill your mind with enjoyable plans about the trip you are planning to go on.
Tomorrow I shall copy and post a page of Merck with a chart of a low cholesterol low saturated fat diet. I do not know how valid this kind of diet is any more. Over here we read negative things about low fat diets. If you follow the Rainbow diet you will not go far wrong.
Thinking of you and sending fond thoughts your way.
Sylvia xxxx
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Hello Hanieh,
Here is a copy of the chart in the Merck book I promised.
Fond thoughts.
Sylvia xxxx
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Hello Hanieh,
I need to emphasise once again that low fat diets no longer seem to be in favour. As you know, I do not eat meat or dairy products and follow the Rainbow Diet. I do eat organic soy yoghurt (Sojade or Provamol coconut yoghurt, both with live cultures). I also eat free-from Tesco soy yoghurt enriched with calcium and with live cultures. I drink Alpro almond drink enriched with calcium. Dairy products have growth hormones in them, as does meat and they are implicated in breast cancer.
This chart should have fruit and vegetables, nuts, seeds, pulses and beans at the top of its chart and the main emphasis, in my humble opinion.
Wishing you all the very best.
Sylvia xxxx
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Hello everyone,
I thought you might be interested in the following article in yesterday's Daily Express, about a new pill to replace statins. At last someone is admitting that statins have bad side effects, such as headaches and muscle pain in the legs.
http://www.express.co.uk/life-style/health/664669/...
I was wondering what you think of this article. This pill sounds remarkably like a pro-biotic. If so, why not just take a good natural pro-biotic such as sauerkraut or yoghurt with live culture?
Best wishes
Sylvia xxxx
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Hi Sylvia/ everyone
I hope everyone is well. Sylvia the new pill to replace statins does sound like a pro biotic, I agree with you it's best to try something natural than replace one pill with another. My mum has high cholesterol and finds cider vinegar very good .
I do not have a problem at the moment with high cholesterol but certainly wouldn't want to take statins. A number of people I know have tried them and have not been well at all. Side effects such as muscle pain, severe headache and one patient we have at work said they made her very depressed .
With regards to diet I try to follow the rainbow diet as much as possible , no dairy products ( I ate a lot of cheese before) and also do not drink any alcohol at all. Alternate days I will have green juice and then carrot juice and try to have a shot of tea pigs matcha tea each day. Not sure if all this will help me as I ate very healthy before and was really fit but we will try anything to help ourselves won't we?
wishing everyone a lovely weekend, the weather is rotten in the uk at the moment but at least with the bank holiday we get an extra day off work
Amanda
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