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Comments

  • honeytagh
    honeytagh Member Posts: 447

    Hi Sylvia

    Thanks a million for posting all the information. I will go through it in details later as now it's late at night and I should wake up at 5:30 am. I just wanted to express my deep appreciation of all your kindness as well as Mary 's care and concern.

    By the way, I should mention that during my chemo and before the beginning of all these injections I used to have my regular periods but it's been a year and a half that they have been stopped. My gynaecologist was concerned about my going through menopause. Any way, she will see my blood test results on Saturday.


    Love

    Hanieh

  • honeytagh
    honeytagh Member Posts: 447

    Hi Sylvia

    Thanks a million for posting all the information. I will go through it in details later as now it's late at night and I should wake up at 5:30 am. I just wanted to express my deep appreciation of all your kindness as well as Mary 's care and concern.

    By the way, I should mention that during my chemo and before the beginning of all these injections I used to have my regular periods but it's been a year and a half that they have been stopped. My gynaecologist was concerned about my going through menopause. Any way, she will see my blood test results on Monday.


    Love

    Hanieh

  • chatterbox2012
    chatterbox2012 Member Posts: 270

    Good afternoon from a chilly Ireland, here is link 13

    http://www.standardmedia.co.ke/health/article/2000...

    Michael

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Hanieh,

    You are quite welcome to any information I can find that may be of help. Just go through the information at your own pace and use what you can. If you are following the Rainbow diet, you cannot go far wrong.

    I noticed that you said you were up late. Are you a night owl? I am also waking up at 5:30am because it is so light. I try to be in bed at 10:00 pm, but often listen to the news from the radio, which goes off at 10:45 pm. I have often read that the two hours of sleep before midnight are very important and that it is also important to sleep in a darkened room so that melatonin can form while you sleep. Apparently it kicks in about an hour after you have gone to sleep.

    I would not worry too much about not having your periods at the moment. I understand that it is quite common for them to cease during chemotherapy treatment, but they do come back. You might want to ask your oncologist about this.

    I have been trying to read through all the latest information that I have received from Chris Woollams. His latest newsletter is dated April 26th. He mentions in this that he is going to have a cancer prevention feature in each newsletter from now on. I was glad to know that his magazine, icon, is still going strong.

    Apparently "Even Harvard are in on the 'imitation act'. Their new DASH diet – it is just the Rainbow diet by another name".

    I picked up on the following items as of particular interest.

    1. Extra speech in Bracknell.

    2. Top cancer news items from the last six months.

    3. Everything you need to know to help you beat cancer.

    4. Live clean. This one is very important and you can click on the underlined heading beneath – Toxic toiletries and chemicals of concern.

    5. It is not your sweet tooth – it is your gut bacteria.

    6. Sono Photodynamic Therapy (SPDT).

    7. HIFU – the non-invasive treatment breakthrough.

    8. Harvard launch a copy diet.

    This is DASH.

    9. Downloadable prevention leaflets.

    10. Chemotherapy? Take curcumin and probiotics.

    I do hope you will be able to look at the newsletter, and go into the important underlined headings beneath each main heading.

    By the way, the DASH diet is explained as Dietary Approaches to Stop Hypertension, and the Harvard newsletter quotes the following. "A plant-focussed diet that emphasises fruits, vegetables, whole grains, low-fat dairy products, poultry, fish and nuts".

    Apparently, the diet lowers blood pressure and the risk of stroke.

    As Chris says, yes we knew all that and that is why we wrote a book called The Rainbow Diet in 2006.

    Let me know if you get to read some of this.

    Keep well ans stop worrying.

    Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Amanda,

    It was nice to hear from you. It is good we agree that the new miracle pill is a probiotic. I was interested to know that your mum finds cider vinegar good for high cholesterol.

    I think that the powers that be are finally revealing the truth about the bad side effects of statins. Lots of truths seem to be coming out lately, especially about high carbohydrate diets and how they have caused a huge increase in diabetes 2, not to mention the change of mind about low fat and low dairy products and how they are not good for us. It gets quite bewildering.

    I am sure you are doing your very best and that we cannot go far wrong with the Rainbow diet. It sounds as though you are on a very good diet. We just have to hope that our efforts will keep cancer from returning, but we know there are no guarantees. I am still drinking Clipper green tea, leaf and decaffeinated, along with fruit and vegetables, oily fish, almond drink, soy yoghurt and coconut yoghurt with live cultures, nuts, seeds, beans and pulses, healthy bread and bitter apricot kernels – no meat, no dairy products, little sugar, no alcohol and no junk food.

    I have just bought the latest edition of What Doctors Don't Tell You and have to read it in more detail. The titles on the cover are Reverse your allergies and how to switch on your immune system. I shall post more as I read in more detail, but I did notice one title, Omega-3s lower breast cancer risk in older women.

    On Saturday I saw a book-magazine entitled TIME, 100 New Health Discoveries, How the Latest Breakthroughs Affect Your Health and Wellness. It is a Time Inc. publication.

    I found the article on nutrition very interesting, as well as the one on cancer and personal care. I shall try to post more details as I find the time.

    It is a cold, dull day here for May 1st. I am sure we are all longing for some warmth and sunshine.

    Take care. Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Michael,

    Thank you for sending link 13, which I am going to print off and read.

    I remember you were not very well last time you posted, so I just want to say that I hope you are feeling better. Did you make it to Essex?

    The other night Raymond and I watched a programme on the television about the countryside around Belfast. It all looked so beautiful, quiet and serene.

    Sending you best wishes.

    Sylvia

  • honeytagh
    honeytagh Member Posts: 447

    Hi Sylvia

    Thanks for sending some titles of Chris Woollams newsletter . To be honest with you, I have not yet been able go through them but on my first free time I will go through them carefully If I get the access to them through the Internet .

    I'm not a night owl, but I have sleep difficulties, that sometimes makes me take sleeping pills. But I try to avoid them as much as possible.

    Love

    Hanieh

  • maryna8
    maryna8 Member Posts: 1,832

    To all:

    https://thetruthaboutcancer.com/america-worst-food-quality-safety/

    This shows that UK has better food safety reglations than we do here!

    Mary

  • 4everStrong
    4everStrong Member Posts: 88

    Hi Michael, thank you for posting the link-- could this be true? i will follow this one closely.

  • chatterbox2012
    chatterbox2012 Member Posts: 270

    Hi 4everStrong

    It would be nice to think it is true but I see from reading the article again that it says "in mice." I would normally decide against posting that kind of material because we have been curing cancer in mice for decades, hardly any of which translates to humans.

    Michael



  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Mary,

    Thank you for posting the link to the article about the food industry in the US. I shall be reading it today and shall let you know what I think. Have you read the latest newsletter from Chris Woollams. I am going to read more details today.

    I hope all is well with you.

    What did you think about the latest link from Michael?

    There was more news on the radio this week about genes and a possible cure in the making. I found it hard to take it all in. I still think the cure lies in prevention and the causes in our western life style.

    Fond thoughts,

    Sylvia xxx.

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Michael,

    I have been reading link 13. I do wonder about a common abortion drug being used and being found to have an anti-tumour effect in triple negative breast cancer. I am wondering what this kind of pill would do to the body, since its main purpose is to abort a foetus and why would this pill be specific to triple negative breast cancer. Is it just a case of finding another use for this pill and for triple negative breast cancer because there are no existing pills? I am getting quite concerned about other uses be found for pills that have been in common use for specific illnesses. These pills come to the fore when they are off patent.

    As you say, they have only tried them in mice.

    This KLF5 protein is it not in other breast cancers then?

    Hope all is well with you.

    Best wishes

    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Mary,

    I wanted to say thank you for posting that link. I have just read through the article and I think it is one of the most important articles I have read in a long time. I do hope others on the thread will read it with care. If they find it too long to read, then I think they should at least read the article summary.

    The heading Mycotoxins: A Major Toxic Threat Hiding in Your Food is a beginning of a very important article and makes fascinating reading. Having read all that information from Chris Woollams on the body's microbiome and how an unhealthy gut leads to chronic illness, it was fascinating to read that "planet Earth is a lot like the human body. It is a living, breathing organism dependent upon an immensely complex and unfathomably large microbiome that populates its upper crust. Much like our own intestinal tract the earth's soils contain hordes of beneficial bacteria......." Please have a look at this paragraph if you have not already done so.

    It looks as though the food industry is messing everything up on our planet by toxic products, much like we are messing up our own bodies by taking in these toxic products.

    I can see what you mean about how bad food quality and safety is in the US, and that it is better in the UK and Europe. I doubt that it is that much better.

    Reading this article makes you wonder how on earth you can be healthy when no food stuff seems to escape it, not even vitamins, and I have begun to have doubt about them recently.

    How did you manage to find this link?

    I do hope to hear from you soon.

    Thinking of you.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello everyone,

    I am posting the summary part of the link that Mary so kindly posted to all of us.

    Article Summary

    America is a great country. But when it comes to the foods we eat every day, the U.S. is arguably

    at the bottom of the pile in terms of food quality and safety. The unfortunate truth is that our

    increasingly tainted food supply is taking a major toll on public health.

    We face constant exposure to unlabeled genetically­modified organisms (GMOs), pesticide and

    herbicide residues, and perhaps the biggest threat of all that you've probably never even heard of

    − mycotoxins.

    Mycotoxins form from yeast and fungi that develop on foods grown in microbe­deficient soils,

    which are more the norm than the exception these days. Mycotoxins can lead to nervous system

    damage, hormone imbalances, and cancer. Processed, non­organic foods in general tend to be

    prone to mycotoxin formation.

    Not only is American food a mycotoxic nightmare, but it's also a chemical nightmare. This is

    because of all the additives, preservatives, and colorful food dyes used in much of what you'll find

    on grocery store shelves today. There are a number of common food chemicals used in the U.S.

    that are banned elsewhere due to their questionable safety profile. These include:

    rBHG/rBST artificial growth hormones added to milk

    Antibiotics in meat, poultry, and fish

    Propylene glycol in food and alcohol

    Arsenic in chicken

    Popular food brands often use completely different ingredients in the United Kingdom and

    elsewhere than they do here in the U.S. to make similar, but vastly different, products.

    The American regulatory system has been whittled away by special interests that have convinced

    our legislators that all these toxic food chemicals are safe. Europe tends to take a much more

    precautionary approach with food additives, approving only those shown to be safe. The U.S.

    takes a more reactionary approach − unless you can prove a chemical is unsafe, then it's fair

    game.

    To avoid genetically­modified foods, looking for a certified organic label is your safest bet, as the

    National Organic Program prohibits the use of GMOs in any organic product. Source out local

    farmers and partner with those who've made a commitment to using and growing only clean food

    products. Or best of all, grow your own organic garden with non­GMO seeds.

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello everyone,

    I thought I would post a few photos that I took in our grounds yesterday.

    Best wishes

    Sylvia

    image

    Peiris


    image

    Peiris


    image

    Skimmia


    image

    Broom


    image

    Peiris


    image

    Choisya


    image

    Peiris


  • maryna8
    maryna8 Member Posts: 1,832

    Hi, Sylvia

    The flowers on your grounds are beautiful! It must make you very happy just to look at them and work with them.

    The article on food safety came from Ty Bollinger's website. If you go to thetruthaboutcancer.com I'm sure there is a place to go to get his newsletter there. He sends out a weekly newsletter the same as does Chris Woollams. There are always articles on the website too, they are nice large print and easy to read.

    As for the "microbiome of the earth", I can easily see how that can be damaged by all the pesticides and herbicides that are put on it to maximize crop yield. I grew up and live in a rural area, and am familiar with farms and farming practices. When I was a child, there were not all the products that are widely used now. I can remember my dad and brothers down in the corn field with hoes and shovels digging out thistles and other weeds. Now most things get sprayed with herbicide, and sometimes the crop seeds come already implanted with resistance to the spray so that you can spray the plant with herbicide and only kill the weeds around it. My brother recently told me that he and some of his neighbors are attempting to grow Non-GMO corn. The only problem is that one of the neighbors would not join them. Since corn cross-pollinates, there is no guarantee that their crop will turn out to be non-GMO! It does get tested at harvest, so they will not know till then if they are successful. I do think that as more and more people become educated, there will be more and more demand for these products and more profit in raising them. There we are back to the nub of the problem, back when we became the "breadbasket of the world", it was so much more profitable to raise larger crops with less labor because of spraying the bugs and weeds. Now I think we are beginning to realize it may not have been in our best interest after all.

    Well, all we can do is the best we can do. There does seem to be so much more cancer these days though, I would surmise this is one of the reasons. The rural areas around here are beautiful and serene, how ironic if it were more dangerous to live here than in the noisy crowded cities!

    Hope you are well, and weather is good. Right now we are having lots of tree pollen in the air, I live right on the edge of a very large wooded area, and when I step outside I can see it floating in the air, and I have to vacuum it off my patio often. Everything outside has a coating of fine green particles.

    I will talk to you soon,

    Mary

  • adagio
    adagio Member Posts: 713

    Hi Sylvia,

    I had my bone density done and went to the doctor yesterday to go over the results. There is minimal change from when it was done 3 years ago. The Z-score in the spine has gone from -3.7 to -3.9, and the amount of calcium in the bone has gone from 0.737 to 0.718 - so I fell this is only marginally worse. The Z-score in the femur has improved - it was -1.9 and it is now -1.7, and the amount of calcium in the bone has gone from o.748 to 0.771 - I am certain that this is due to all my walking. Too bad I cannot walk on my spine haha!! Overall, I am happy with the results and do not feel discouraged about them at all. Of course, I had to listen (all over again) to the lecture on the drugs and building up the bone etc. etc. This time the doctor (GP) suggested a drug called Prolia which is an injection given twice a year. He said that the side effects were minimal. I have yet to research this drug, but I am almost certain that I will not take it.

    I am finding that there is information overload on all of the new drugs and treatments out there, so I am steering clear of all of that for now. Thanks be to God I feel well and I will continue with the rainbow diet, grass fed (and finished) beef, organic vegetables when possible, and keep walking. Of course I will continue with my supplements of Turmeric with black pepper, Medicinal mushroom complex, Vitamin D (4000 units) and Fish Oil. I may try adding a calcium supplement regularly - something which I haven't paid much attention to for a few years.

    I got a requisition for blood tests - hemoglobin and white cell count, cholesterol, blood sugar, vitamin D levels. Will most likely go for them in a month or so. My doctor did not suggest these tests, I asked for them - I particularly like to know how my immune system is doing?

    Your grounds look beautiful, and it looks like Spring has arrived in the UK. It certainly has here - rhododenrons in full bloom, peonies, roses, lilac - all lovely and colourful. Now to focus on my vegetable garden - perhaps this weekend.

    It is so great to read about everyone - I still read, but don't write much. I am going on a trip at the end of the month to visit my son and his family in Mt St Hillaire in Quebec, and then off to Ann Arbor to see my youngest daughter.

    Take care everyone!

  • chatterbox2012
    chatterbox2012 Member Posts: 270

    Hi Sylvia

    I am a bit behind this week. I am getting ready for a trip to Brentwood and then onto Warsaw. I have never been to Poland before.

    My cold has gone but I think I have a touch of hayfever. Sine my last chemo I seem to have become sensitive to lots of things. 😯

    Here is link 14:

    http://www.medscape.com/viewarticle/859411

    Michael

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Mary,

    Thank you for your kind words about the flowers and shrubs. I do get a lot of pleasure out of watching everything come into bloom.

    I think I used to have the newsletter from Ty Bollinger but found the weekly newsletters too much to keep up with. I just about manage with the monthly one from Chris Woollams. I definitely think we are suffering from information overload and it is very difficult, if not impossible, to retain it all, and there is the danger of getting the information muddled. My own personal belief that the cure for cancer is to prevent it, but that does not make money for those involved in it all.

    I agree with what you said about how the microbiome of the earth is being destroyed by pesticides and herbicides that are used for maximum crop yield. I was interested in your information about the changes you have seen in farming, having been brought up in a rural area. I think that this business with GMO corn and soy is really frightening. Of course this will all spread and contaminate everything. I suppose this must hold for organic products as well. I think this is all going to end in tears.

    I do agree with you, too, that there is more and more cancer and that it will get worse and worse. I was recently reading about the following statistics in the UK concerning breast cancer. They are as follows:

    1 in 8 women will develop breast cancer in their life time.

    60,000 people are diagnosed with breast cancer in the UK every year. That is the equivalent of one person every ten minutes.

    Breast cancer is the 2nd most common cause of death from cancer in women in the UK.

    8 out of 10 women with breast cancer survive beyond 5 years compared to 5 in 10 in the 1970s.

    11,600 people die from breast cancer in the UK every year.

    340 men are diagnosed with breast cancer in the UK every year.

    5% of people diagnosed with breast cancer have inherited a faulty BRCA1 or BRCA2 gene (I think that all the emphasis on these inherited genes is out of proportion to the number of women diagnosed with breast cancer. This means 95% do not have it! However there is a lot of money to be made out of testing for it. I think it is over £3,000 in the UK).

    80% of breast cancers occur in women over the age of 50. Most men who get breast cancer are aged over 60 (I do wonder whether that statistic is changing, because I recently read that 40% of women with breast cancer are under the age of 50.).

    I found these statistics alongside an article in the i paper, Wednesday May 4th, under News and then Science entitled Unlocking of breast cancer's genetic code prompts call for targeted treatment, and then underneath that title Huge study could lead to new drugs to attack mutated genes reports Paul Gallagher.

    I read the article and wondered what to make of it, especially the following:

    "There are about 20,000 genes in the human genome. It turns out, now we have this complete view of breast cancer, that there are 93 of those genes that, if mutated, will convert a normal breast cell into a breast cancer cell. That is an important piece of information."

    Another piece that caught my eye was "We would like to profile individual cancer genomes so we can identify the treatment most likely to be successful". If you can find this article on line I would be interested in your thoughts. There is a lot of information on line about this subject.

    That is about all for today, as I need to catch up on other posts.

    Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello adagio and Michael,

    Thank you for your posts. I am going to take a break now but I shall get back to you during the course of the day.

    Best wishes

    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello adagio,

    I was interested to know that you had been for a bone density scan to check up on your osteoporosis. It looks as though you are at least holding your own, so that is good and all your walking is obviously helping. I think you are right to feel happy with those results. My oncologist did tell me years ago that osteoporosis deteriorated very slowly.

    I was not surprised that you got the same old lecture about going on medication and how wonderful it all is. It is a familiar tune to me, but I take no notice. I have heard of Prolia and it is a monoclonal antibody known as denosumab. I cannot believe your GP told you that the side effects were minimal. He must be joking. Have a look on line and you will see that side effects are dreadful. Look at this link:

    http://www.drugs.com/prolia.html

    I still think we need to steer clear of bisphosphonates and other such drugs.

    I do not have any recent results to compare your with. It is very hard to get bone density tests (DEXA scan) on a regular basis here in the UK.

    It is hard to know how to help yourself, apart from walking and a healthy diet. I read recently that taking calcium supplements did not help the bones and that it just increased calcium levels in the blood, which is harmful and associated with causing problems with the heart. I also read that you should not be overdoing calcium in the diet. It is all very confusing.

    I am still taking Doctors Best Strontium Bone Maker just one a day (340 mg) instead of the recommended two, but I do not know if I am doing the right thing. It says on the bottle "Studies indicate that strontium positively affects bone metabolism to promote bone formation rather than resorption, helping maintain bone density". However, in bold it says "Helps maintain strong, healthy bones*". When I look up under the * it says "These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease". The strontium I am taking is strontium citrate and I do not think it has anything to do with the synthetic strontium ranelate that GPs prescribe to osteoporosis patients who cannot or will not take bisphosphonates. By the way, that Prolia has, as a side effect, jaw necrosis, the same as bisphosphonates.

    I am not sure I am doing the right thing in taking this supplement as I have no way of knowing it is helping. It also says on the bottle that you should make sure you are taking at least the RDA of calcium and vitamin D3. I am taking Solgar Vitamin D3 softgel 4,000 iu. and just one supplement of Solgar Ultimate Bone Support (Advanced Calcium Complex with vitamins D3, K2, zinc and boron). The instructions tell you to take four a day but I do not want to do that. I take one a day.

    Sometimes, because of what I read, I think I should just take the vitamin D3.

    What do you think of what I am taking? I respect your opinion.

    I have even read recently that you should not overdo the calcium intake in your food.

    I cannot find any bad side effects from strontium citrate, but who know?

    I do know that strontium is a trace element in the body and some think osteoporosis is caused by a strontium deficiency. My own belief is that my cancer treatment especially chemotherapy caused my osteoporosis and this may have been compounded by the fact that in 2005 I was also diagnosed with an overactive parathyroid gland, cured through surgery in 2009. As you know, some research shows that an overactive parathyroid gland may cause breast cancer.

    I am trying to avoid all supplements, because I have read they have toxic things in them that are not listed, so I am just taking a multivit/mineral supplement. I continue to drink a lot of green tea and eat ten to fifteen bitter apricot kernels daily, try to keep active and eat the rainbow diet.

    I shall be interested to know the results of your blood tests.

    Thank you for your kind words about the grounds. It sounds as though Spring has arrived in Vancouver. Good luck with your vegetable garden. We all feel so much better when Spring arrives.

    I do hope you have a good time in Quebec and Michigan. Try to post some photographs if you can.

    Finally, I have just read in one of the papers here that mangoes can help fight cancer and destroy fat cells. It says that eating mangoes can cut the risk of cancer and obesity-related diseases, according to researchers. It is stated that an antioxidant in mangoes, called pyrogallol suppressed the growth of breast cancer in mice. This is according to toxicologist Matt Nemec at Texas A&M University also said that a diet rich in the fruit "may prevent the advancement of breast cancer".

    This fruit would be part of a rainbow diet anyway. This fruit also seems to help with boosting the metabolism of fat and so suggests that it might be helpful in the prevention of obesity and obesity-related diseases. I am sure that anyone interested will find more information on line.

    Post as often as you can, since we are just a small group of posters with a lot of viewers.

    Take care. Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Michael,

    Thank you for posting link 14. I shall have a look at it later on today or tomorrow.

    I do hope you have a good trip to Brentwood and that you have an enjoyable time in Warsaw. Going to a new country is always an experience so be sure to post to let us know what you think of Warsaw and how it compares to London and other big cities in the UK.

    What do you think of the results from the local council elections, police commissioners, and two by-elections, not to mention the mayoral race in London and the other cities like Bristol?

    Wishing you all the best.

    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello everyone,

    You will have seen that adagio and I have been posting about osteoporosis. It made me think that all of you newly-diagnosed should get a DEXA scan to confirm the state of your bones before and after treatment. Do not mix up a simple DEXA scan with a bone nuclide scan that is used to ascertain whether cancer has spread to the bones.

    Sending best wishes to everyone.

    Sylvia

  • maryna8
    maryna8 Member Posts: 1,832

    Hi, Sylvia and all,

    I did find the article by Paul Gallagher. It sounds like they have put a lot of effort into discovering these 93 sets of genes that can cause mutations. That is all admirable, and hopeful for the future. I still agree with you, if we could only figure out how to ward off the mutations that would be something. The way the article reads the authors seem to conclude that breast cancer occurs as a woman ages and the gene mutations break through defenses. That does not answer to all the younger women getting breast cancer, does it? I do continue to be impressed by the information that is coming out about all the studies being done on TNBC, I am glad the powers-that-be have taken notice.

    My father had 10 brothers and sisters; out of those, one of his sisters had breast cancer when she was probably in her 60's. I do not believe she had chemo, but did have a mastectomy; there was no other cancer in the family. My mother had 2 sisters and one brother, no cancer in the family. As I was growing up I knew of one other woman in our small rural community with breast cancer. Now I know so many it's just crazy. I will add I was rather self-absorbed and oblivious to my surroundings in my pre-teens and early teens, there may have been more cases that I am not aware of. There also seems to be a rash of bladder cancer in men around here now, and multiple cases of prostate cancer as well.

    The BRCA test was done on me because I have a sister 10 years younger, I believe the cost was about $2000(!) The insurance company covered it, and I did not have that gene. I agree with you, it seems to be a small percentage (5%) of women that have this gene. I do know a family here affected by it: The mother got cancer at about age 50, she was found to have the BRCA gene. She died of it, and her children, one son and two daughters were tested and found positive also. The daughters had preventive mastectomies and complete hysterectomies, since they had already had children. I think the son is assumed to be a carrier of the gene, and he has a daughter.

    Adagio, good to hear about your DEXA scan having stable results. I do get those tests regularly, and so far have received notice that results were normal. I have never seen all the numbers such as you were quoting. I suppose one has to ask for that information? I agree with you that the drugs given for increasing bone density have some alarming side effects. Good luck with your blood tests. I also have been concerned about my immune system. When I had my heart tests a Complete Blood Count was done, my white and red cell counts were low, below normal. When I asked about it, the cardiologist said it was only slightly low, probably fine. When I saw my oncologist for 6-month checkup a couple of weeks ago, she did the same tests and the white cells came back high-normal. She said that these numbers can fluctuate quite a bit. I just remember when I was hospitalized during chemo with neutropenia, my white count was 0.03%, almost in the negative. The red cell count was not much better. I have never in my life felt so weak, could barely lift an arm or leg until the counts began to build again. So I am rather paranoid of these low numbers! Only later in my cancer journey did I learn that cancer can proliferate because of low immune system, I was woefully ignorant when said journey began. I am taking many of the same supplements you are, the medicinal mushrooms, the D3, the Turmeric/Curcumin/Piperine etc.

    Hanieh, Adagio, we here in USA celebrated Mother's Day yesterday, so I wish you a happy belated Mother's Day. My mother died long ago, I had no children, so it was a quiet day for me and I battled weeds at the farm. My step-daughter did call and wish me a good Mother's Day, she always remembers me even though she is entertaining her own mother.

    Talk to you soon,

    Mary


  • honeytagh
    honeytagh Member Posts: 447

    image

    Hi Sylvia, Mary and all

    Mary, happy Mother's day to you. I am sure motherhood is in your nature and you are a good step mother to her.

    Sylvia, I love all your flowers. Thank you for posting their pictures. You are very lucky to have the chance to garden.

    Last week was teacher's day here in Iran and we celebrated it the whole week. I try to post some pictures here.

    Love

    This is a picture of me and my students.

    image

    This is a picture of me and my colleagues

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Hanieh

    Thank you for your kind words about my photographs and thank you for the lovely ones you have sent of you and your students. What a lovely gesture to have a teachers' week.

    Sadly, I think that in our country education has become taken for granted and there are many problems to be resolved. There has been too much interference from the government and too many changes in the way schools are run. The government keeps changing the administration of the schools and the names. We have gone from grammar schools, technical schools and secondary moderns, to all of these being changed to comprehensive and now trying to force all schools to become academies. Standards have gone down and I would not like to be teaching today.

    Take care.

    Fond thoughts

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Mary,

    As always, I appreciate your posts. I am very busy right now, but will reply in more detail later.

    Fond thoughts.

    Sylvia xxxx

  • maryna8
    maryna8 Member Posts: 1,832

    Hello Hanieh,

    I love the pictures of you and your smiling students, and by the way, you look like one of the students, you look so young and pretty. It looks as if you have a rather large staff, how large is your school? Glad they had an appreciation day for you! I think teachers have a hard job, your worktime goes far beyond the classroom.

    I hope you are feeling well, you look like the picture of health. It also appears your students are very fond of you!

    I am trying to get ready to make a trip to Texas to visit my brother, I am going to drive so will be able to take along extra things. Like some asparagus from my garden, and some homemade bread and pickles. Books, and maybe my guitar if I feel brave! I am making a list to get somewhat organized.

    I shall talk to you soon,

    Mary

  • maryna8
    maryna8 Member Posts: 1,832

    A picture of my very large yellow shrub rosebush, I don't think my pic does it justice.

    imagemy water irises in bloom with a potted petunia in foreground

    imagewater irises need a brutal thinning!

    Mary

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Mary,

    Thank you for posting the photographs of your beautiful flowers. I find it cheers up the thread and makes you feel good to look at beautiful flowers and scenes.

    I was interested to know you had found the article by Paul Gallagher. As you say, a lot of effort has been put into all this, but we need to find out why there are these mutations and not emphasise all the time about finding new drugs. I like the saying an ounce of prevention is better than a pound of cure. I also think the powers that be have to stop saying that cancer is a disease of the elderly when so many young women are getting it.

    There is no doubt in my mind that there are more and more cases of cancer than in the past. I think it has got worse in the generations that are post World War II and I attribute it to lifestyle and environment. I do not think the big supermarkets with all their refined and processed foods and all their household cleaning products have helped, not to mention all the lethal gardening products.

    You are quite right about prostate cancer and bladder cancer. Prostate cancer in men is up there with breast cancer in women.

    I think the experts also need to find out what causes the BRCA 1 & 2 genes.

    I must wish you and adagio a belated Happy Mothers Day. Like you, I have no children, but I always think of my mother on Mothers Day and how much I miss her.

    It is a fine warm and sunny day here after a few days of rain, so it is much appreciated. I can say that I am sick to death of hearing about the Referendum, and we still have 44 days to go! The scaremongering is unbelievable. The latest from the Remain camp is that we shall probably have WWW III if we exit. Nothing will stop me from voting to exit.

    It looks as though Donald Trump will get the Republican nomination, unless something untoward happens to him. I do not think Hillary Clinton will be any great asset to the Democrats.

    That is about all for now.

    Fond thoughts.

    Sylvia xxxx