Calling all triple negative breast cancer patients in the UK
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Hello adagio, Michael, Joliel, and moreshoes,
I hope all is well with you and that you will keep in touch.
Many thanks to those of you that keep the thread alive and active.
Best wishes.
Sylvia xxxx
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Hello Mary,
I thought I would just let you know that Chris Woollams' email has just arrived. There are some very interesting headlines on it. I shall have a good read and get back to you on it. Let me know if you have receive it.
Fond thoughts.
Sylvia xxxx
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Hi Sylvia
I am a bit behind this week.
I was in Brentwood last week. Looking at the aged population there, I would guess 60% of the people are over 60 got me thinking about the immigration debate. If the UK tightly controls immigration in the way that the leavers wish who on earth are going to be paying the tax and National insurance to provide for the elderly? On other note who is going to be providing the care in the hospitals and homes? Just thoughts. The issue of leaving or staying in the EU has never been about immigration. I don't have a problem with it.
Anyway, here is link 19:
http://www.oncologynurseadvisor.com/web-exclusives...
Michael
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Hello Michael,
Thank you for your post. I hope you enjoyed your visit to Brentwood. I am not surprised that Brentwood has a population of older people. What we are seeing in places like East London and other parts of London and going into Essex are the last remnants of the white population. This is what came out in the documentary on Newham. The traditional generations are disappearing. We are suffering from over-population, which is getting worse and there is a loss of quality of life and identity, not to mention feeling alienated in their own country. I think the referendum for ordinary people is about immigration, and the squeeze on housing, schools, the NHS etc. This referendum is about the Establishment versus ordinary people. It is also about lack of democracy, sovereignty and the right to run our own country. The EU is an unelected oligarchy and heading towards a European super state headed by Germany.
England is definitely over-populated and life may be better in other parts of the UK with much smaller populations.
Thank you for posting link 19, which I shall try to read today, along with all the details from Chris Woollams of Cancer Active from his latest email.
We have just had a lot of rain and cool temperatures, but the tourists still walk around in their shorts and flip-flops.
Best wishes
Sylvia
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Hello Sylvia,
I did get my Woollams email, haven't had time to get through it all yet. Looks like their website got a change-up while he was off.
Will get back to you soon!
Thanks, Mary
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Hello Sylvia, Maryna, Haniah and everyone else,
I am doing fine. I have been travelling to visit my children and grandchildren - one in Quebec and the other in Ann Arbor, Michigan - now I am home for a few weeks before heading off to Newfoundland.
I have been busy with my vegetable garden and flowers, along with pruning of rhododendrons, lilac, and clematis. They so easily get overgrown and I do like pruning since I find that it helps tremendously with the health and growth of the plants. I do not consider myself a gardener by any means, but I do enjoy puttering around in the backyard.
We have had a cold spell here the last few days dropping down to 12 degrees at night, but I heard that it is going to warm up next week.
Summer is going to be rather busy for me with house guests from the end of June and most of July. I have also been busy working on our itinerary for Australia since it is coming up fast - we leave on September 19th - there is a lot of planning when leaving one's home country for 3 whole months.
I have been reading the posts even though I do not write very often. Unfortunately I have not been reading any of the research at all - just too busy. Cancer does not enter my mind much at all these days (very grateful for this). It is almost 4 years since I had my diagnosis and it all seems like one bad dream. However, one of my best friends is currently going through chemo for breast cancer, so I am walking along side her as it were, and it is good to be able to give her a heads up on many issues. I would be willing to sit with her throughout her infusions, but I think it would be quite challenging for me - she has not called on me yet, though, and I am not disappointed, although I would do it for her.
I continue to be filled with gratitude for my health and am still able to embrace each day with an open heart. I never take my health for granted!!
Wishing everyone of us comfort for the days ahead and the energy to enjoy each day to the best of our ability.
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Michael,
Thanks for posting link 19. I looked over it and learned that there are differences between individual cases of TNBC, epigenetic differences. It would be wonderful indeed if we patients could be targeted better with our treatments. I'm sure this makes all of us wonder if we had the best treatment for ourselves. Once again I am amazed and grateful at the amount of research going on into TNBC.
Thanks! Mary
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Hello, Sylvia and all,
I have had a very busy week, the weeks are flying by and I feel like I am not keeping up.
I have been looking over Chris Woollam's emails, when I came to the one about Mamaprint; I wonder if that is in the same vein as is discussed in MIchael's Link 19. This seems like a wonderful improvement, and well worth the money if indeed it could save people from unnecessary chemo.
He talks a lot this month about the benefits of sunshine and Vitamin D. I have heard nothing but good things about Vitamin D, but sunshine is something else. Some docs will tell us to slather with sunscreen, wear hats and long sleeves, cover up at all costs. I personally think some sunshine is great, if I am out for very long I will add sunscreen at some point, I don't want any more sun-induced skin damage than I already have; although by reading on in his email I learned that some sunscreens may actually cause cancer! Arghh, we just can't win! In any case, we have had such hot weather lately that standing in the sun for very long is not something I want to do!
The article on reversing Type 2 Diabetes is illuminating, I wonder how many people would have the will to follow the strict diet. And I wonder about the patients who are already thin? I know several of those, although they are perhaps thin and eating small amounts of the wrong food.
I will move on with his article later, he really put a lot of info in it, I guess since there hadn't been one for a while.
I wanted to tell you I went to a cancer support group meeting. A friend asked me to go several times, and I finally did, I had never been to one. She thought it would be a help to some of the people there. This board has been the only support group I have taken part in till now. There were about 15 people there; 3 had Stage IV cancers, another had a recurrent cancer that was unrelated to her first one. 6 of them were actively in treatment at the time, most of the rest were 10 to 20 years out from their diagnosis. I was the closest to diagnosis that was not under treatment. I found myself very depressed and anxious later that night and into the next day, I don't think I am ready for this and will probably not go back soon. I felt as though I had become a sponge, soaking up all the emotions around. This makes me doubly grateful for your UK thread because it allows me to voice my feelings and and listen to others, without so much negative stress. And we all do talk about things other than cancer!
The big UK vote comes next week, the world will be watching.
I must close now, will talk more later!
Mary
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Hello adagio,
Thank you for your post. I thought you might be travelling in Quebec and Michigan as I remember your mentioning it in a previous post. I was interested to know that you are soon heading off to Newfoundland. It is a part of Canada that I did not get to visit. I did get to Prince Edward Island and the Maritimes (Nova Scotia and New Brunswick). It was all very full of history.
It is good we all enjoy a bit of gardening. I find it very therapeutic.
It looks as though you are in far a very busy summer, and the time will go quickly before you leave for Australia on September 19th. I do hope we shall hear from you when you can, as I am trying very hard to keep the thread going, but we seem to have a lot of views but not enough posts compared to in the past. We always had groups going through treatment, but I suppose there is so much more information around now, although if I speak to English people they seem to know very little.
I was interested to know that you are helping a friend through cancer treatment. This is so important. I have done this in the past with a couple of people and they have told me what a great help it is. I do hope she will get through all this. I would think sitting with someone going through chemotherapy would help tremendously. It is the hardest part of cancer treatment.
It is good to know that you are getting on with your life. Congratulations on reaching those four years since diagnosis.
I shall reach eleven years since diagnosis tomorrow June 20th.
Please try to keep in touch.
Fond thoughts.
Sylvia xxxx
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Hello Mary,
Thank you for your post. I think you are doing a tremendous job in keeping our thread going and I do appreciate it.
I have been reading through the latest email from Chris Woollams and I am impressed with all the information. I have not yet read Michael's link, but I shall do it today and then shall be able to comment.
I was very impressed about the information on type 2 diabetes and how it can be reversed. This is such a dreadful disease that I think it would be well worth trying to follow the diet. A few months ago I read a book about reversing diabetes. It is still on the best sellers list and is by a Dr Mosley who reversed his own diabetes. He also has programmes on the television. I have a cousin with diabetes 2 and he is having terrible trouble with feet problems but does not look after himself. I would think you can control your diabetes by losing weight and following an anti-diabetes diet of low carbohydrates. One of my neighbours here keeps his diabetes under control through a sensible diet and is on no medication. However, it does frighten me that you can be thin or of normal weight and still have diabetes. It must be diet related.
I think we all know the importance of vitamin D and also that the best way to get it is through sunshine.
We just have to remember that we do not need to lie out in the sun for hours and hours or overdo it when on holiday in hot countries. I think the advice is about fifteen minutes exposure daily. The important thing is not to stay out so long that you burn. Of course, in climates like the one in the UK we need to take supplements of vitamin D because for most of the year we do not get enough sunshine. In the latest email it says that sunshine reduces stroke, heart attack and cardiovascular disease. We all know that there seems to be a connection between breast cancer and vitamin D deficiency. I take 5,000 IU of Solgar soft gel vitamin D on most days.
I was very interested to read that avoiding the sun is as bad for you as smoking, according to research from the Karolinska Institute in Sweden.
I have never believed in using sun block. It is a product full of chemicals.
We are all familiar with the benefits of the rainbow diet, which is number 3 on the email.
Like you, I am reading my way through this latest email. I usually go through it, read the headlines to each article and then click on the sub headings, so I have read and re-read 1, Type 2 Diabetes can now be reversed, 2, Sunshine essential for lowering heart attack and stroke risk. 3, Rainbow diet – now in two flavours.
It is good to know that the Rainbow diet is now available in the UK, USA, and Australia.
I now have to read in more detail number 4 Practise Safe Sun. I shall be writing more about all this later.
I wonder if anyone will get in touch with us to let us know whether they are joining any clinical trials for type 2 diabetes sufferers.
I was interested to know that you had been to a cancer support group meeting. These meetings are probably more useful when you are going through treatment than when you have finished treatment and are trying to move on. I can understand how this meeting made you feel anxious and depressed. I went to one such meeting not long after I had finished treatment and I knew it was not for me. I did not go to any more. In all of my breast cancer experience the most important question that I wanted answered was what caused it and how to prevent it. This was not mentioned in the meeting I went to.
I was so glad to read that you find the thread beneficial and that it does not cause so much negative stress. The most important therapy is that we talk about all sorts of things and we do not identify ourselves solely through cancer.
I recently went through a feeling of anxiety when I got to know someone who has been through breast cancer and it has come back after fourteen years of being free of it. It has now been metastatic for a year. It was not triple negative. On the other hand I have a neighbour who has been free of her breast cancer for about thirty years and I know from what she has said that it was triple negative and not hormonal. She was 29 at diagnosis and is now 59. That makes me feel better.
I am waiting for Thursday to get out and vote Brexit. The campaign has been truly awful. I am voting Brexit because the EU is anti-democratic, is run by an oligarchy of unelected rich and powerful men and is out of control. I think the idea of the free movement of the people of the 28 countries across Europe and five more to come, lacks common sense. England is over-populated, there is strain on the NHS, housing, and schooling. We are losing our quality of life and our identity. I like nation states and I think we should be standing on our own two feet. We have MPs whom we elect and can throw out at elections. We cannot throw out the oligarchs who waste our money. As far as I am concerned, the Remain lot represent the establishment and Brexit (Leave) speaks for the ordinary people who are suffering the most from the EU.
That is about all for now. Thank you for everything you do for this thread. Together we shall gradually cover the latest email which goes from 1 to 13. You will be interested in 12 in which Chris makes his views clear on the EU.
Fond thoughts.
Sylvia xxxx
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Hello Michael,
I am just popping in to say that I have just read link 19 and found it most interesting. Some of this information started ringing bells in my head.
When I was first diagnosed in 2005 and going through treatment from then to 2006, what I really wanted to know was what had caused my cancer. I was having a routine check up and I asked the consultant. She said something about it could be gene p53 being turned on or off through a process known as methylation. This latest link reminded me of that conversation. It did not mean that much to me at the time, but it has always stayed in my head.
As I have said before on the thread, at a certain point I did ask about getting genetically tested and had a long interview on the NHS with a genetic nurse. After that interview she told me that she would not be referring me to a genetic consultant because of my age at diagnosis and not enough breast cancer in the family. She said it would cost at that time £3,000 to get it done privately. I decided just to forget it.
It seems it would be useful to test TNBC patients genetically to see what is happening with their DNA, although I cannot see how at the moment you would differentiate the treatment. I think I would still want chemotherapy, surgery and radiotherapy rather than risk not having it and having the cancer come back.
I was a bit confused about the two categories of TNBC. First of all they seem to differentiate two groups and then say there is no reliable way to stratify these two groups. I was interested to read that the outcome of TNBC is less associated with cancer stage than other breast cancers. I had a large tumour, 6+cms, and was told the prognosis was poor because there was no medication post-treatment. Tomorrow June 20th it will be 11 years since diagnosis. I suppose it makes me think that, sooner or later, it will come back.
Thank you for posting all these links. They are most interesting. The latest information from Chris Woollams on reversing type 2 diabetes is worth looking at, both on the Cancer Active email and the general health section as it is said that this special regime can work for other chronic illnesses. The diet is quite a challenge. You might be interested in this link.
http://www.dailymail.co.uk/health/article-2385179/...
How are you getting on these days? I have been feeling quite tired and not feeling like doing anything. I shall be glad when the referendum is over. I must admit I am disillusioned with all the political parties. I see them as part of the Establishment. I am disappointed that Jeremy Corbyn went for the Remain side. I have not renewed my membership of the Labour Party, as I feel members are like lemmings when going with the party's line, such as going to war. My gut feeling is that Jeremy is really for Brexit and that he should have given MPs freedom of conscience on the Referendum. I stood up and made my speech at the local party in support of Jeremy and now feel disappointed. The EU is anti-democratic and a big wasteful institution.
I do hope all is well with you.
Best wishes.
Sylvia
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Hi Sylvia, Mary, Amanda, adagio and all
Sorry I don't post too often but this thread and all the great people I got to know here are always deep in my heart.
Sylvia, you are such a great help to all newly diagnosed and all your care and concern is deeply appreciated in my heart.
Mary , we should get as far away as we can from these kinds of groups as they can just lead to more anxiety.
Amanda, adagio, I'm really happy to hear from you and I hope you always come here with your great news of health, wealth and happiness.
As I said before, now I m in Georgia, Tbilisi. Today was our first day here but so far I've enjoyed it so much that I want not to let this vacation finish soon.
Tbilisi is a very small mountainous city with beautiful scenery. It's got lots of orthodox churches with really beautiful paintings and architecture. Today we visited some of them and also some historical monuments. There are many tourists here and they are mainly Europeans. I talked to a Canadian husband and wife and the thing that was interesting about them was that the minute the wife learned I was Iranian, she was the least inclined to talk to me. I wish people would differentiate between people and governments. Yet, the husband was really interested in exchanging our ideas about different issues. Tonight, we are going to a Georgian night gathering in which we can see the local Georgia dances and have the local foods and drinks. It should be amazing. I will try to post as much as I can about my trip here with pictures.
Lots of love
Hanieh
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Hello Hanieh,
Thank you so much for your post and beautiful pictures. I am glad you are enjoying yourself.
Today, June 20th, I finally reached 11 years since diagnosis!!!
Will post more tomorrow.
Love
Sylvia xxxx
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Sylvia - many congratulations on your 11 years since diagnosis - that is so wonderful/
Hanieh - your little daughter is almost as tall as you - you both look beautiful and that is fabulous architecture in Georgia - so glad that you are enjoying your vacation. I am so sorry that the Canadian woman you met was not interested in sharing in other cultures - I really do not think that is the norm - it certainly is not the case in our family since all of our children except one has married into another culture. Acceptance of everyone as a person of great human worth surely has to be the key to peace in our world.
Mary - sorry to hear that your cancer support group experience was not a positive one. I think that if something does not raise us up and give us hope, then we should stay away. Although, I am sure that some people in the group get a lot out of it. Isn't it interesting how we are all so different? I am also of the opinion that cancer should not define who we are as a person, and unfortunately some people do let it consume their whole life for a very long time. Having said that, getting a cancer diagnosis is certainly all consuming in the beginning for us all, and is always on the back burner as it were - but I think it is good to keep up with other interests and ideas in addition to our health concerns.
Have a good week!
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Sylvia, that's absolutely wonderful!!!!! Congratulations!
Hanleh, I'm so glad that it wasn't malignant. Have a great time in Georgia.
The op went well, I'm not in pain but have to take it easy and not lift heavy things cause it still hurts. In July I start with rads (don't want to, but what else can I do?) I eat my broccoli, turmeric and green tea but I guess I have to listen to science too.
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Hello MoreShoes, adagio, Mary and Hanieh,
I have been very, very busy these past few days, but I shall try to settle down tomorrow and concentrate on our thread, but I will vote in the referendum first!
To Michael, do you feel exhausted with all this referendum warfare that has been going on for months and months. The politicians have not come out of this in a good light. Raymond and I are suffering from Referendum fatigue and with me it has caused 'readers block'. I feel so unsettled.
To Linalii (Lindsay), PeterandLiz, InspiredbyDolce, Tom, and any others who have contributed to our thread, I do hope you are all doing well and it would be lovely to have you pop in, if only to say hello and let us know how you are getting on.
Best wishes, also, to Amanda and Jolliel.
I hope I have not missed out anybody, but if I have, please let me know.
Fond thoughts.
Sylvia
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Hi moreshoes
I'm really happy that you are getting better. Wish you long healthy, happy life.
Thank you so much for your kind words
Love
Hanieh
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Hi Sylvia, Mary, Amanda, adagio and all
Sylvia, Congratulationson your 11th years cancerfree. I'm sure you will be disease free for ever.
I hope we all reach the milestone you have reached.
Today we moved to Batumi. It's a 6 hour drive from Tbilisi. At first when we arrived I thought it doesn't seem to be that interesting but after we went to city tour at night, I saw it an amazing city. It's a really lively city with many historical statues. It is really beautiful at night. We will be here for 4 days before going back to Tehran.
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Hi adagio
Thank you so much for all your words of kindness.
Actually, as you said, my daughter is now almost as tall as me. Unfortunately, I m not tall but happily my daughter is taking after my husband and his family.
adagio, you and your family seem to be so nice that all people around you should be really lucky to have you as their friends or relatives. I'm so glad to have a great friend like you
Best wishes for you
Hanieh
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Hi Adagio and all,
I have been absent for a little while, I noticed that you are very busy with many wonderful things. Lots of travel, lots of guests, it is so great that you are back in a full life and sounds like you are loving it. Can I be nosey and ask about the 3-month trip to Australia? Is it strictly for pleasure? My husband wanted to go there, I would always comment on the long flight to get there! Sounds fabulous, that should be long enough to get acquainted with the country, or maybe you have been there before?
It's okay about my support group experience. It was suggested to me that I go to be supportive of the other people who had active cancer; I just found that it was still too fresh an experience for me to be of any use. I hope I helped in some small way, but found it too depressing to go back anytime soon. Memories haven't faded that much yet!
I am also left with an unfortunate problem; I saw my family doc today and asked him about the weakness in my legs, which leads to general fatigue. He has ordered a couple of tests, a lumbar MRI and an EMG. He suspects my peripheral neuropathy has spread to my legs, and the EMG test should tell him what's going on there. He is doing the MRI to rule out nerve impingement. I have had a lot of those, but not for a while. He also suspects I may have fibromyalgia to some degree, but that is hard to diagnose. These are things that are hard to treat as well, I told him I do not want to be drugged. He thinks, and I agree, that it would be nice to have some kind of diagnosis so I can quit wondering what's going on when my legs give out. The neuropathy came after chemo, I remember my foot going numb during my first dose of Taxotere. I seem to have also become super-sensitive to many things, smells, sounds etc. I would love to be physically my old self, and completely move on from the whole experience. My body is just not cooperating. At least when I do feel well, I feel very well. The doc said it will perhaps get better with time, but no guarantees.
Meanwhile, you are preparing for guests, and a very long trip to down under. I think it's wonderful, and I think it's wonderful that you and your husband can share your experiences together. That is a great blessing!
Talk to you soon, be well,
Mary
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Hi, Hanieh,
I am so glad you are having a great time in Georgia, it sounds great and the pictures are beautiful. I like the pics of Batumi and Tbilisi. How great to see a Roman Neptune fountain there, it looks like Tbilisi as well is a beautiful city.
I agree with you about the support group, but I think they are probably great if one is going through the treatment. I was supposed to just go and offer support, but found doing so caused me to be anxious and depressed. That's no good, maybe later.
So how do you like the food there? Do they have good local dishes?
I have found I love to travel, within my limitations. And I love to read about my friends' travels!
Talk to you soon, enjoy!
Mary
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Hi Mary,
So sorry to hear what you are going through. I can really understand what it means when our bodies do not cooperate well to let us forget everything and go on with our lives and enjoy surviving, especially when you always live in an state of uncertainty. Each pain and ache can be a frightening reminder of what we have gone through and all the fears we may have about the future. Add all these to being diagnosed at a young age and all the years that you expect to live hopefully without any disease. Even in the middle of a pleasure ,a sudden unexpected, and unknown pain can ruin all your pleasure.
Mary, you have gone through lots of hardships during recent years and now your body is responding to all your mental and physical hardships. When you said how you had to take care of your sick husband when you where in the middle of hard days of treatment, and then his death, it's no wonder your body is still responding back. But I think you should give it some time to recover and be sure everything WILL get better. Just try to be kind to all parts of your body and especially your legs because they seem to have carried all these burdens along with you. Sometimes just spend some time alone to relax all your mussels and think of your legs as a baby you should caress.
In fact, I think what you really need is some mental and emotional comfort and you should try to find some good ways to help you relax. If I were you, I would try to get lots of travels. Seeing other people and other cultures can be an emotional break.
Thinking of you and wishing you better days ,
Hanieh
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Hi everyone again
I forgot to tell you that after about one and a half years my period returned the first day of my trip and I have double feelings about it. After stopping on dipherline injections against my oncologist opinion, it can can be a blessing to return to my old self of feeling young again. Yet, I'm somewhat scared too. I have heard of a lot who had their periods back and lived their normal lives after that. Should I be happy or not? Can it be a blessing or a threat?
Now it's early in the morning here and the weather is excellent but because my daughter is asleep, I couldn't go out of the hotel with my husband for a walk. So all sorts of thoughts is just occurring to me.
By the way, I don't feel that thyroid nodule any more after taking the steroid pills for about 10 days and everything seems normal. But my doctor had told me to take them for 3 months. He won't be in a Iran in 3 months to ask for a visit. I hate taking any kind of drugs and I really don't know what to do. What would you do if you were in my shoes. I always suffer from insomnia and these pills are adding up to my problem.
Love
Hanieh
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Hello Sylvia and all,
I thought I would pop in and say hi.
Liz is still ok, she still cannot walk for over a mile without very painful muscle ache the next day, she gets headaches and suffers from insomnia from the HRT but her life would be so much worse without it. She has tried most of the different types of HRT available to her but she is very sensitive to any drugs either natural or commercial.
Taylor our 16 year old disabled son that has been radically home schooled for the last 2 years seems ok. He spends ALL his day on the computer mainly playing games and watching "YouTube" We worried over nothing as he seems to know a lot more than we give him credit for and he knows a lot more big words than me. He can even do Suduko's quicker than me which I never thought I would see.
Being type 2 diabetic I cannot put on weight what ever I eat I am 6ft tall and I'm down to 11 stone 10 pound and getting lighter every month. I eat a lot throughout the day especially bread, crisps, nuts fruit all things high in calories.
I do still read the thread but never feel I have anything to say concerning the topics that are discussed. Until now.
As I am diabetic type 2 and have been for about 12 years I read with interest the article you posted that was on the Mail online.
I have to say it is complete rubbish, completely untrue in so many ways.
If only things were as simple as " my Pancreas is blocked up with fat lets diet and unblock it and I will not be diabetic any more"
If anyone put up a statement saying if you are " BRCA1 or BRCA2" don't worry you can beat it by eating healthily and exercising we would all say that was a completely false statement as its in our genetic makeup or hereditary so cannot be changed.
Diabetes is no different. If its in your DNA or hereditary it cannot be stopped and that is one of the main reasons people are diabetic. Its not helped by over eating and can be delayed by cutting out sugar, eating healthily but chances are you will get it at some stage unless you starve yourself of anything nice.
Anyone putting there name to or endorsing these claims are doing it for their own "minute of fame" for "profit" or are just gullible? Headlines sells papers, sell emails and books.
Rant over.
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Hello Hanieh,
Thank you for all your posts and all your lovely photographs.
I was so glad to know that you are enjoying your holiday and these different travels.
Raymond and I have been to cast our vote for the Referendum. We had to join a long queue of people waiting to vote. We cast our votes with great pride to leave the EU. We believe in democracy and nation states and we do not want to be part of an unelected and wasteful bureaucracy that cares nothing for ordinary people.
Keep posting your photographs. You have a lovely daughter and it looks as though she will be very tall.
Fond thoughts.
Sylvia xxxx
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Hello adagio,
Thank you for your kind words. I do hope you will keep in touch, if you can, while you are away.
Fond thoughts.
Sylvia xxxx
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Hello MoreShoes,
Thank you for your kind words.
I was so glad to know that your surgery went well and I hope you will make a speedy recovery. Remember to take it easy. You will soon be through this and we shall be with you all the way. You can get through this like the rest of us did.
You are doing the right thing eating broccoli and do not forget that all members of the cabbage family are important too, so eat up your greens, Brussels sprouts and cauliflower. You cannot go wrong with turmeric. I usually mix mine with black pepper and organic hummus. Green tea is very important, too, because it contains polyphenols and cachetins. I love Clipper leaf green tea. I have been drinking it daily for eleven years. I also eat bitter apricot kernels and have been doing so for eleven years. Remember to eat that rainbow diet.
Wishing you all the very best.
Fond thoughts.
Sylvia xxxx
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Hello Mary,
I do hope you will have good news from your tests, your lumbar MRI and EMG. I did not know that peripheral neuropathy could spread to the legs. I shall be very interested to know what the EMG test reveals. I do hope you will get some peace of mind after all this. It is better to know what you are dealing with rather than wondering and worrying.
Wishing you all the very best.
Fond thoughts.
Sylvia xxxx
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Hello Hanieh,
I was just reading your last post. You mentioned that your period had returned after about one and a half years. I would tend to think that is good news and that it shows your body is slowly returning to a normal and natural state. I remember someone I know who was diagnosed with TNBC at the same time as me, had her period disappear and then after a certain time they came back. Of course, if you have any concerns you should talk it over with your doctor. You are just a young woman and I would feel that having your periods is a natural process. I think you should be happy.
I was glad to read that your thyroid nodule can no longer be felt, after taking steroid pills for about ten days. As you know, steroid pills have lots of nasty side effects and the sooner you can get off them the better, I would think. For both of these matters, the return of your periods and steroids to treat a thyroid nodule, you should talk these things over with your doctor. In the UK, if a person has concerns about their health, the first port of call is to make an appointment with your GP to discuss things. If the GP thinks she cannot deal with the matters she will refer you to a consultant. Are you seeing different consultants? You need to know whether the doctor who prescribed the steroids decided on three months because you needed them or whether it was because he was going to be away for three months. It seems odd to me, as an English person, that a doctor can be practising in two different countries. I noticed you said that the steroids are adding to your problem of insomnia. It is well known that steroids keep you awake at night when you need to be sleeping. As I said before, they make you hyperactive, cause weight problems, affect your blood glucose level and long term cause diabetes, not to mention osteoporosis. It is only my opinion, but I would not take them myself. Perhaps others will post with different opinions.
Try to enjoy your holiday and fill your days with positive thoughts and not negative ones.
Thinking of you.
Best wishes.
Sylvia xxxx
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Hello peterandliz,
It was so nice to see you back on the thread. You always send interesting posts.
I was glad to know that Liz is still OK, but sorry that she cannot walk over a mile without suffering painful muscle ache the next day. Do the doctors have any explanation? As for HRT, it seems that it affects people differently but there are always side effects to everything we take. It cannot be much fun having headaches and insomnia but I suppose the saving grace is that her quality of life would be worse without it.
I was most interested in what you said about your son, Taylor, as I do remember his name from some of your previous posts. It is hard to believe he is now 16. I think a lot of young people spend a lot of time on their computers, not to mention their tablets and smartphones. It is a way of life for them. It seems that he is educating himself, as he seems to be literate and numerate. I do not know too much about Youtube but I have looked up links from time to time and listened to and viewed some most interesting videos.
I was most interested, as well, about what you said concerning type 2 diabetes. I would think that 11 stone 10 pounds and six foot tall would be an ideal weight for a man. You seem to be one of those people that can eat without putting on weight. I read that it is something to do with metabolism and whether a person's metabolism is fast or slow. I have also read that although nuts are high in calories, eating them does not equate with weight gain. I suppose everything also depends on how active a person is. You also seem to be doing the right thing for someone with diabetes 2 which is having small snacks throughout the day instead of two or three large meals.
There is so much information flying around, so much so-called research and theories that a person does not know what to believe. In the end you have to make up your own mind and do what you think is right for you, and hope for the best.
Diabetes 2 has been very much in the news because so many people are being diagnosed with it and I think the NHS is getting in a panic. I do not really know what to think about that article in the Daily Mail, which was all about a very drastic diet that is claimed to clear out fat from the pancreas and liver and thus unblocks them and allows them to function properly again. I suppose you would have to talk to people who say they have been able to reverse their diabetes through this.
There was a book by a Dr Mosley about reversing your diabetes through an eight week diet. It has been on the best-sellers list for some time, but I do not think the diet was as drastic as the one mentioned in the Mail. Dr Mosley has programmes on the television and claims to have reversed his own diabetes 2. I would think it might be easier to reverse diabetes in the early days. I have a neighbour here who is keeping his diabetes stable through diet and walking. He is not overweight and has been a rambler all his life, but he ended up with diabetes. He does not take any medication. There are a few others here in my complex who appear to be keeping their diabetes under control by medication. On the other hand, I have a cousin who was diagnosed about fourteen years ago, does not take care of himself, goes without meals and then eats a big meal once a day. He went on insulin sometime ago and now has all sorts of problems with his eyes, feet, legs etc. At the moment he has joined a trial at Moorfields Hospital and is having injections in the eye to bring down pressure in the eye. He is at Royal London with leg problems and has had vascular surgery to open up the arteries in one leg. He goes regularly to a foot clinic because of diabetic ulcers under one foot and now has to wear a special boot. I do not know if he understands what a serious illness diabetes is.
The experts seem to keep changing their mind about what constitutes an anti-diabetic diet.
I think in life you have to make your own decisions.
Wishing you and Liz all the best.
Sylvia
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