Calling all triple negative breast cancer patients in the UK
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Hello JanetCO,
I would like to add to the words of the Moderators and say I am sorry that you find yourself here, but would like to give you a warm welcome and let you know that we shall all support and help you in any way we can. We have all done or are doing this journey and we shall help you through yours.
You say that you have just been diagnosed, so I do not know just how much your medical team has told you about breast cancer and its treatment. Just take your time with everything and tackle things as they arise.
I was wondering what kind of breast cancer you have. The most common one is invasive ductal carcinoma (IDC). Do you know whether you have this or some other kind?
With negative receptors for oestrogen, progesterone and HER2, this is known as non-hormonal breast cancer.
The standard treatment is surgery, chemotherapy and radiotherapy. Your medical team will offer you what they think is best for you. If they have not done so, they should be telling you the size of the tumour, whether lymph nodes are affected, the grade and the stage.
The size of the tumour defines the stage which goes from I to IV. Most of the tumours with TNBC are grade 3, but some are 2. If the tumour is large, 6+cms, you will usually be offered chemotherapy before surgery in order to shrink the tumour. For surgery there is lumpectomy or mastectomy and finally radiotherapy to mop up any stray cells.
I do hope you will stay with us and let us help and support you. If you have any questions please ask. We have some very compassionate and informed women on thread.
Sending you very best wishes and letting you know that you will get through this.
Sylvia xxxx
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Hi, Sylvia and all here,
I am glad you liked the article on Stess and Cancer; I also noted that in the article it said that often when there is a high-stress period of life, a cancer could follow in 5-7 years. If I take that verbatim then my cancer was actually caused by stress that happened years ago. I did have a very high-stress time 5 1/2 years before my tumor appeared, but I don't want to believe in that cause and effect; because then I would have to believe that I may have another in 5-7 more years from the time of my cancer diagnosis! Since that was a very high-stress time for/with my husband too. Guess I will have to depend on clean living/luck to ward it off!
Wow, there is a lot going on in your UK politics. I heard Boris Johnson was out, but didn't hear the details, just thought it strange since the Leave side won and he was the ringleader of that. I also thought it odd that Cameron stepped down, sort of like stamping his little foot because he lost. Doesn't sound like anyone misses him, but now you will have another drama to go through while another leader is chosen. Our politics is nasty now too, as we get closer to the Presidential Election the dirt is flying. So strange to have one candidate (Hilary Clinton) being investigated by the FBI during her campaign! The media is on her side however, so everything bad is played down or just flat-out whitewashed. TV News and most newspapers are no longer news, just political spin and fabrication. One has to go elsewhere to get the rest of the story, like to the original reports which apparently most of the media never look at. They have their stories and they stick to them.
In response to your question about overweight and TNBC diagnosis: I only know one woman personally here that also has TNBC, she was over-weight at the time of diagnosis, but became very thin. Her cancer was already spread to her lungs at the time of diagnosis, but that was 4 or 5 years ago. She did the usual treatment, and has been on some form of chemo pill or infusion ever since. That reminds me, I have not spoken to her in quite a while, I need to check up on her. So as far as the incidence of TNBC and too much weight around the middle, I mostly just know the women on this forum, and they seem to be normal weight as far as I know, but I don't know about at the time of diagnosis. I know personally at least a dozen women who have had the E+ breast cancer, I probably know more, it seems way too common around here. Many of the E+ women I know were overweight. I was not overweight, speaking for myself.
Love seeing the pictures of your flowers, they must love the cool weather. We have finally had rain, this is the third day of it. It spoiled a lot of plans for people for the holiday weekend, but we needed it very badly. We are just now entering the time of year that is usually quite dry, so this rain is really necessary to get us through that.
I had better go, I have one more get-together to attend today. I have been with family for 2 days, today am supposed to go to neighbor's place for more food and fireworks. Then in a couple days will go with sis-in-law a few states away West for a scenic getaway to the Mt. Rushmore area in the Black Hills area of S. Dakota.
Talk to you soon,
Mary
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Janet CO,
Sorry you have reason to be here, but welcome to you. Did you find your tumor yourself, or in a mammogram?
We will offer support in any way we can.
Best to you, Mary
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Hello Mary,
Thank you for your post.
There seem to be lots of theories going around about cancer and other diseases, but I think it is very difficult to generalise. All the women around me that have had cancer are all slim, definitely not overweight, and are all physically active. Of course, I cannot see it makes any sense to be overweight and think it will cause health problems. We all need to have a sensible attitude to lifestyle and to take responsibility as far as we can for our health. Too many people prefer to swallow a pill rather than make a personal effort. We should take pills only when it is absolutely necessary and we are in a life threatening situation.
The chaos continues here but it is all unnecessary. It is mainly sour grapes from the Remain side and the politicians on that side are doing all that they can to hype up the situation as catastrophic. I fear these politicians are going to create the problems they 'predicted' with the help of their establishment cronies. They are making a joke of the will of the people.
Today we have the Chilcot report and I hope it is not yet another whitewash by the establishment.
That is about all for today as I am working through a list of things to be done. That list never seems to get shorter!
Thinking of you.
Sylvia xxxx
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Hi Sylvia, Mary and all
I think I m too behind all the posts. But I should say I come here every now and then to have a look. But I m sorry not to be able to post.
Sylvia, your flowers are so beautiful and they areally great sources of energy to you.
Mary I'm happy no cancer was seen in your scans. What a stress it could have been to you.
From the time I came Back from Georgia, I have been extremely busy. I'm busy every day from 8 am to 8 pm because of my daughter s classes added to my own classes. I have hired a teacher to help her with math, as she, in two years, will have to make herself ready for the entrance exam of the high rank high schools in Tehran. Both of us are still going to badminton classes 3 times a week and the class observations are also added to my time of work.
I have translated a third of The Rainbow Diet, but my father's oncologist is going to continue it as I don't have any time to finish it.
Here, in Iran Language Institude, they have high demands of observing grammar rules but as you said the native speakers don't fallow them themselves. Poor our students and teachers who should be more correct than English native speakers!
By the way , after a week of not taking steroids for my thyroid, the pain returned. So now I'm taking them for the three months my doctor prescribed. I'm really sorry for myself for losing my trust in doctors.
Wish all of you the best
Love
Hanieh
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Hello Hanieh,
Thank you for your post.
Do not worry if you have got too behind with all the posts. Just go back to where you last posted and go forward from there. Like this, you will not miss out on possibly important information. A newly diagnosed patient called Janet did post in, but we have not heard back from her.
It is very important to try to post because without them the thread would come to an end.
I was glad to know you appreciate the flowers and I have just posted a lot more. So many shrubs and plants are blooming at this time of year that there is a lot of colour. The ones that I have posted are a mixture of hebes, hydrangeas, fuchsias and my favourite the large peace rose. The shrub with the red furry blooms is known popularly as a bottle brush.
I can see that you are extremely busy. Working from 8am to 8pm is a long time to be active, so take care of yourself and get some rest. Your body will still be in a state of recovery so do not ask too much of it.
I do hope your daughter will make good progress with her maths and that she will eventually do well in her entrance exams for the high rank high schools.
Playing badminton will be a good release from your hectic days.
I was interested to know that you had translated a third of the Rainbow Diet and I am impressed that your father's oncologist is going to finish it for you.
I was most interested in the Iran language Institute and was glad to know that this Institute is demanding about observing grammar rules. As I said, grammar and the English language in general is very poor compared to when I was at school and university. There seems to be little distinction between spoken and written English nowadays. Grammar is very loose.
I was sorry to read that your pain returned after a week of not taking steroids. I have read that, when you have been on steroids long term, you have to come off them gradually. I spoke with a cousin of mine who was on them long term, came off them of her own volition and is doing fine. I think she has been off them a year now.
The thread is very quiet now but I suppose in some countries people are taking advantage of the summer weather to spend time outside. Mary is a very strong and faithful poster and always has something of interest to say.
These are interesting times in the US and the UK. I think in both countries ordinary people are fed up with the status quo and want to give the establishment a run for their money. Here our country is very disunited. Leaving the EU won the referendum and there are a lot of sour grapes from the Remain side. I think everything will sort itself out and there is too much hype from the media.
I do hope we shall soon hear from our other friends, adagio, Amanda, Michael, Moreshoes, Joliel and others.
Many thanks to you, Mary, for keeping things going.
I shall probably watch the news channels tonight, as I am not interested in football or tennis, which has taken over the channels.
Take care, Hanieh. What are you doing for Eid? I understand Ramadan finished yesterday.
Sending you fond thoughts.
Sylvia xxxx
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Hi Sylvia
Your pictures are really refreshing. The beauty of these flowers are comparable to nothing in the world. It's as if they are sending messages of happiness and hope to the observers in this world of uncertainties. Lucky you and Mary for being in touch with natural beauties. That's why I always long for the day we could live somewhere out of the hectic life of Tehran, in close contact with nature. Of course, along side the highways, and in boulevards, as well as the parks here, we have so many of them, yet there is no time to watch . All people here are just rushing to do their tasks.
Fortunately, because of Eid , we had a 3-day vacation. Yet, because of the heavy traffic on the roads, we couldn't take a trip .But we managed to get a good rest and visit some places in Tehran, especially the Milad Tower which has been the symbol of Tehran in recent years. We went there with my brother's family. It s the third time I have gone there. There were some open -air concerts and a whole view of Tehran.
As for political matters, I hope everything goes for the benefit of the people in the UK and US. We ,ordinary people, are really tired of all these policies that are just leading to ruins and poverties .As I said before, I really can't stand watching or hearing the gloomy news and all the terrorism , fears, politician quarrels,their not sticking to their promises, nation wars inside and outside their countries and all the brutality of the terriosm. I wish this world were a better place to live. Yet not to mention the political system of our own country.
Just a picture of the Milad Tower
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Hi Sylvia
I am way behind with my postings so here is link 21:
https://www.sciencedaily.com/releases/2016/06/1606...
Weather hShas been iffy in NI over the past couple of weeks. There seems to be a theme here where spring and autumn are beautiful and summer is non existent.
Michael
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Hello Michael,
It was nice to have you back on the thread again, as it has not been very active.
Thank you for posting link 21, which I shall have a look at tomorrow.
You seem to have been getting a lot of rain in Northern Ireland, and we could do with a lot of it here in the South West of England. The gardens are really dry, but the rain often misses Exmouth. It is not very summer-like here either.
I am wondering how to take this thread forward. It has kept going, along with Calling all TNs for nearly six years. It will be six years on September 12th. Calling all TNs hit six years in May, but Titan, who started it, rarely posts these days. She inspired me to start this one for Brits but it has turned out to be worldwide. Calling all TNs is a much larger thread, but mainly Americans, though certainly not exclusively. I keep wondering whether Brits are still kept rather in the dark when diagnosed with breast cancer, although there must be more information than when I was diagnosed back in 2005.
Have you any ideas about what we should be discussing six years on? I must say that some of the breast cancer patients that I talk to here (not on-line) still do not seem to be that informed. They just want to get through their treatment without really knowing what is going on. They should give serious thought to their options about lumpectomy versus mastectomy, chemotherapy or not and how they want it delivered, ports etc., weekly or three weekly, as well as radiotherapy and reconstruction. You need to be an active participant in your treatment. I think, when I was going through treatment, my brain was in overdrive.
If you have any ideas, please let me know.
Sending you best wishes.
Sylvia
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Hello Hanieh,
Thank you for your kind words about the flowers. I do look round the grounds here and pick out any shrub of flower that is in full bloom. I feel great peace of mind when I look at all these lovely colours.
I can understand that a big city like Tehran would be a hectic place in which to live. I am a Londoner by birth and spent the first twenty years of my life there, but I certainly could not live there now. I really think that Devon is a nice county in which to live in this country. Exmouth has a population of 40,000 but it is surrounded by countryside. Raymond and I have been here for over 14 years now.
Do you have house plants in your apartment or a balcony with pots?
I was glad to know that you had three days off for Eid and that you found time for a bit of a rest and to a bit of visiting in Tehran. The Milad Tower looks very interesting. That was a clever photograph that you posted!
We are living strange times in the UK. After the Prime Minister stood down, a leadership contest began in the Conservative government to replace him. There were five in the race to begin with and the MPs on the Conservative benches were the only ones who could vote. That race has ended with two women in the lead. The Conservative Members now have to vote for one of these, but we shall not know the result until September 9th. The most likely winner, Theresa May, did not even vote for Brexit in the People's Referendum, so I cannot see how she can be trusted to carry the people's wishes. I think we need a General Election, so we can all vote for the poitical party of our choice and get to have a say in the next Prime Minister.
The world, as you say, is in a terrible state and there is such a lot of suffering. It has also gone bonkers!
It is awful to know that there are 3.50 million children living in poverty in the UK and 13.50 million people in all, including the children, living in poverty in the UK. This is out of a population of 65 million. Will it ever change?
You are a thinking young woman, so please let me know if you have any ideas about carrying our cancer support thread forward.
The other day I saw this quotation which I thought was very profound.
Tears are the silent language of grief (Voltaire).
I remember studying him at university as part of my French degree.
Take care and remember not to overdo things.
Love.
Sylvia xxxx
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Hello everyone,
I just wanted to thank all you posters for taking the time and making the effort to post,
Thank you Moreshoes, peterandliz, adagio,Amanda10, Michael, Mary, and Hanieh. I hope that I have not forgotten anyone.
Please post with any ideas that you think we might discuss with reference to TNBC and that journey.
Best wishes
Sylvia
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hi Sylvia,
I don't find the triple negative type of BC to be commun but I have noticed the treatment regimen ends up with radiation ( not always does the person skip this stage). Any thoughts?
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Hello Clauclau,
Thank you for your post. I do hope you are recovering nicely from your surgery.
It is true that triple negative breast cancer is not as common as hormonal breast cancer, but it does affect mainly younger women.
I think that the decision on how to deal with treatment depends mainly on a patient's oncologist. Often the treatment depends on the size of the tumour and whether any lymph nodes have been affected. If the tumour is large, chemotherapy is often used to shrink it to make it easier and probably safer to carry out surgery. Often, because TNBC is considered aggressive, and often Grade 3, there is chemotherapy and radiotherapy. I would think a patient would be told quite soon after diagnosis what the treatment will be for them. Have you been told whether you will have chemotherapy and or radiotherapy? The chemotherapy is useful because it is systemic, that is it treats the whole body. It is the longest of the treatment and the one that patients find the most challenging, but it can be done and we are all living proof of that on the thread.
As for radiotherapy, my oncologist explained it to me as being done to mop up any stray cancer cells. Radiotherapy seems less arduous than chemotherapy, but it does have side effects and the patient can feel very tired. I think, on the whole, that patients with TNBC will have radiotherapy.
You should ask your oncologist, if you do not already know, what the plan is for your treatment.
At the moment, since it is very recent that you had surgery and reconstruction, you will need time to recover from this and to heal.
I had a large tumour, 6+cms and had six months of chemotherapy before having a mastectomy of the right breast. I had about three weeks rest before having the surgery after finishing chemotherapy. I had a few weeks rest before radiotherapy after surgery. The radiotherapy was three weeks and the tiring thing was that you have to go for treatment every day for five days with a rest at the weekend. The actual treatment on the radiotherapy machine does not last more than a few minutes at a time.
I do hope this helps and that you will let us know how you get on. Above all, do not be shy about asking your medical team any questions that will help you through treatment and give you peace of mind.
Wishing you all the very best.
Sylvia xxxx
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Hello JanetCO,
We have not heard from you since you posted to say you had just been diagnosed with triple negative breast cancer. I hope you saw our replies to your post, that is Mary and Sylvia (me). There was also a post of comfort from the Moderators.
I do hope all is going well and if there is anything we can do please let us know.
Take care.
Sylvia xxxx
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Hello to all,
I have been gone on a little trip to the West, had a great time and got out of the heat and humidity for a little while. While I was gone we got a lot of rain here and everything is once again violently green. We have also had an invasion of Japanese beetles, they are eating everything in sight, will be glad when their life span is over! It is dark and gloomy again this morning, it might rain again.
I have not been thinking much about cancer this last week, I found myself feeling better in the drier higher altitude we were in. Had more energy, that's for sure. I will post some pictures later.
Talk to you soon, Mary
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Hello Clauclau
I wanted to chime in and add my personal experience to Sylvia's good description of what happens when a TNBC diagnosis happens.
I did not have radiation. My original oncologist said I didn't need it, but then he retired from doctoring on my last day of chemo. The radiation oncologist on staff studied my case and thought perhaps I should have it. I was quite resistant because at the time I was having a lot of arm pain, which turned out to be a torn rotator cuff that was causing me great flaring pain. He consulted further with the team, and they decided that in my case the benefits didn't outweigh the possible added issues. From reading the posts here, and from personal experience, it seems that the great percentage of TNBC patients do have radiation.
Wishing you all the best!
Mary
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Hello Sylvia, pic of Mt. Rushmore
and the BadlandsMary
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somehow lost Badlands pic above.
again.
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Hello Mary,
Thank you for posting those amazing photographs. Thank you for coming in to support Clauclau. It is strange on the thread these days. We have patients posting, asking questions etc., we post back but there is no reply. I find it frustrating.
How are you these days? I have been feeling tired and low in spirits. I am finding it hard to motivate myself.
The UK seems to be going through strange times. We now find ourselves with a new Prime Minister who has not even been elected. She got into power on majority votes from members of parliament. Not even Tory members were given a chance to vote. Really, she should now call a general election and get a mandate at least from the people of this country. I am not sure that she would win an election.
Not much progress on the Brexit front. So much for the people speaking in a referendum!
The Labour party is in turmoil and the leader, Jeremy Corbyn, who was elected on a 60% majority last September, is slowly being ousted. He is a good man.
Did you by any chance read link 21 from Science Daily? It is about aa phase 2 study testing the combination of two drugs, sorafenib and pemetrexed, in patients with recurrent or metastatic triple negative breast cancer and is open at VCU Massey Cancer Center. Apparently this therapy was found to be particularly active in breast cancer patients.
Another part of the article was talking about a third drug in the class of drugs known as ERBB1/2/inhibitors which apparently enhanced the sorafenib and pemetrexed combination. I think the inhibitors are lapatinib and vandetanib.
I suppose we should be glad about these new drugs but i still wonder about all the toxicity on the body and what it is doing. there seems to be no end to the drugs that researchers can come up with. I still prevention is better than cure.
i do hope all is well with you. Sadly the thread seems to be asleep at the moment.
Sending you best wishes.
Sylvia xxxx
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Hi Sylvia/all
Hope you are all well. I love to see the photos of your beautiful garden Sylvia. The photo of Mount Rushmore is spectacular Mary and Hanieh the photo of Milad Tower is brilliant , you have a lovely family. It nice that everything is not just about cancer. I'm so fed up of turning the tv on or opening a magazine and seeing something to do with cancer,awareness is important but I find it all too much.
I have recently had a body ct scan and a brain scan. I was having a lot of headaches also a pain in my side. Both scans have come back clear I'm so relieved. I never had a ct scan at any time during treatment so this for the time being has given me peace of mind.
I'm sorry to here you are tired and low in spirit Sylvia. I hope you will be feeling better soon you are an amazing lady for starting/ continuing this thread you have given me a lot of hope. I think what we all need in the UK right now is a bit of sunshine ☀️I thought this was going to be one of the hottest summers 😂. I'm sure we would all feel a bit better.
Lots of love to everyone
Amanda
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Hello Amanda,
It was so nice to see you back on the thread. I was happy to know that you enjoyed all the photographs.
I do believe that on the thread that talking about things other than cancer is very therapeutic. We must not allow ourselves to become identified by our cancer. It is important to talk about our characters, our families and friends, our interests and hobbies and so on.
I can understand how you get fed up with cancer being in the media all the time. It does get depressing. If we think about it, despite all the headlines about miracle drugs and a cure perhaps being on the way, progress is very slow. Patients are still getting the same old treatments that we all know so well, surgery, chemotherapy, radiotherapy and medication if the cancer is hormonal and Herceptin if it is HER2+. Yes, we get the names of more drugs, but they are all toxic. I still firmly believe that prevention is better than cure.
Amanda, just live each day and get on with your life with optimism. Put cancer away in a dark, little corner and just enjoy the small things, such as sunrises and sunsets, the birds, flowers and trees, a good book, a kind word and so on.
I was interested to know that you had a body CT scan and a brain scan. That was very brave of you. I am so glad that the scans have come back clear and can feel your sense of relief. It was strange that you had no scans during treatment. I had a CT scan and a bone nuclide scan before and at the end of treatment. Enjoy that peace of mind that you have now. The headaches could well be to do with stress. Have you had any explanation about the pain in your side?
I am feeling much better today. I had a very quiet day yesterday, keeping myself peaceful inside of me and today I spent five hours in the grounds of our apartment complex doing gardening and I always find that therapeutic. It was strange today because my usual little companion robin was nowhere to be seen, but a cat did come along. I am not really an animal person but this cat seemed lonely. It had a good look at me, found a nice spot in the flowerbed where I was working and sat and quietly watched me, before going into a nice snooze.
Thank you for your very kind words. It is true that this has been a very sun-deficient summer. It feels very autumnal now. Here in Exmouth we desperately need some rain. The soil is so dry.
That is about all for now. Take care of yourself and live life to the full.
Fond thoughts.
Sylvia xxxx
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Hello Sylvia and all,
I have to say I share your frustration with our "drive-by" posters, I think it may be because of the way we communicate these days. People are used to texting, or tweeting, facebooking, etc. and getting almost instant responses. We here may take hours or days to answer, because we are busy. By that time, I suspect they have gone elsewhere for information. That's just my theory.
You say UK is going through strange times, I think it's global. People are getting killed just for going out to celebrate with their family, it's horrible and it's got to be stopped. I did read about your new PM, sorry about Corbyn, politics is a fickle business. I think they are all suspect, and i think that is why Donald Trump has done well here, because he is not a politician; people are just sick of them.
I think Link 21 is another one that I couldn't open for some reason. But I agree with you, that the best defense seems to be to never develop cancer! I just wonder how much we can actually do about it. We can lessen our chances, by not smoking and not being overweight and so on, but the truth is we all know people who smoke like a chimney and seem fine, and there are exercisers who drop dead on the sidewalk. I think the advice you gave Amanda is the best, put cancer in a small, dark place, and do everything you can to enjoy your life.
Glad you feel better, I am lacking some motivation myself. It seems all I want to do is go on trips! There are quite a few things around here I should take care of, but it just seems so troublesome. Need to buckle down somehow.
Glad to see Amanda back, and glad all tests came back well! Amanda, I have the radio on anytime I am home, and there is an somewhat local oncologist that is constantly advertising. I find myself turning her off when the commercial starts, I just find it depressing to listen to. I suppose it will get better with time!
Talk with everyone soon,
Love, Mary
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Hi Sylvia, Mary, Amanda and all
Again, I found some time to come here to pay my dear friends a visit.
Mary, your pictures are amazing. Thank you so much for posting them.
Sylvia, I can't imagine you being low. Although we are all humans and so susceptible to periods of disappointment and low spirits , you have always been a great source of energy and inspiration to all of us. As you said, we can all be here to support each other and continue this thread by exchanging our viewpoints about different aspects of our lives as well as the latest news on cancer research, though I am not really into discussions of cancer very much.
Amanda, congratulations on your clear scan. I always consider these clear scans as a rebirth. We can enjoy our lives again without worrying.
I'm putting on some weight because of the thyroid steroid pills and that's really depressing. In fact, I have had a bad appetite for eating recently which I should try to stop.
I'm really sorry for all that is happening in France and Turkey. All people here are are really concerned about what is going on in these countries. The news these days are more and more disappointing and heartbreaking. I really don't know what to say, but I hope the poor people in all the areas of terrorism find some peace. It's really horrible to live in terror of being killed or seeing your loved ones being killed innocently and all the destructions that terrorism cause. It's all the politicians dirty policies outcomes and the extremeties who have always been people's sources of misery. I hope in near future, the world gets rid of such wars and cruelties.
Lots of love
Hanieh
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Hello Hanieh and Mary,
It was with great interest that I read your posts. You always have something of interest to say and you are so faithful to this thread. I have had another busy day, So I shall answer in more detail tomorrow and make it my first priority.
Love to you both,
Sylvia.xxx
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Hello Mary,
I do love your description of 'drive-by' posters! I think you are probably right about the way people communicate today. I do not do texting, tweeting or Facebooking. I do understand that it is a way of life for younger generations, but it is not for me. I am quite concerned about what texting is doing to spelling and grammar. At school we were taught everything so well that it is in your head for ever. We were taught never to write in spoken English, but that is done all the time these days and I am always surprised at the very casual English used in formal business letters, not to mention the spoken English used in books. I think the way society is today makes for an inability to concentrate for very long, to be restless and to have spontaneous, poorly thought out opinions. Everything seems to be like a flashbulb going off.
I am very proud of our thread. We are at least giving proper thought to everything.
I am not sure where we are going in the UK. Everything is in such a muddle. I feel so strongly that we should have a general election as soon as possible. It is so wrong to have a Prime Minister who has been put in place by a bunch of members of Parliament. That is not much different to our hereditary monarchy and the House of Lords that now has about a thousand members. That is more than the number of MPs in Parliament (650) and that is too many!
I do not know where Brexit is going. To get started Article 50 needs to be put in motion and no one will do it. We are told it will take two years for this country to leave the EU and yet, apparently, there is a 1972 Act that could be revoked immediately which would get us out of the EU, but it looks as though no one is willing to revoke it. I suspect the Establishment will try to keep us in the EU.
As you say, it is dreadful that we ordinary people can now be crushed to death by a fanatic driving a lorry. Somehow things have to be brought to a halt but instead we keep getting retaliation on all sides.
I do not know where we are going with cancer, but I feel the answer is not more and more drugs. I feel that healthy living must help in some way. There has got to be something wrong that all these women are getting breast cancer. I am shocked at the number of young women getting TNBC. I did read one post where one woman had been told that alcohol was one of the biggest risk factors for developing breast cancer. I also feel that the birth control pill may be a big factor, especially if women are taking it at a younger and younger age. Will the people making money on it ever admit it?
In the Guardian this week I was not impressed by an article on Friday, by Sarah Bosely, Health Editor, entitled Breast cancer study finds no link to divorce, grief or stress. It says that new research has ruled out traumatic events as a cause of breast cancer. I just do not believe this. You might like to have a look at it if you can find it on line.
The other part of the article is about a survey from Breast Cancer Care about how our health service is failing women with secondary breast cancer (metastatic). Apparently they are not being diagnosed and treated properly. It goes on to say that the care for people with this incurable cancer is very inadequate. I find this appalling.
Take care of yourself.
Fond thoughts.
Sylvia xxxx
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Hello Hanieh,
Thank you for finding the time to come to the thread. I know you are very busy.
Thank you for your kind words.
It is good that we can all come together here and discuss anything we like.
I do hope that you will be able to get off the steroids as soon as you can, because of the well known side effects from long term use of them, putting on weight is one of the problems.
It is truly shocking what is going on in France and Turkey and it is always ordinary people that suffer. If leaders and politicians had to go around in their daily lives as ordinary people do, they would not be so eager to start all this trouble. It is so easy to make speeches about how sorry they are and then they go back to their comfortable lives. They do not mind using other people's children as cannon fodder in wars, but they do not send their own children. War should be declared a criminal act. It just causes more wars. We have only to consider Tony Blair and the illegal war in Iraq to know war is wrong.
That is all for today. Take care.
Sylvia xxxx
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Hi Sylvia
As I said before activity seems to be moving away from these discussion groups and on to Facebook. The worldwide lymphoma group that I belong to sees one or two posts a day whereas ten years ago it would have been dozens. The UK group is down to one or two posts per month, if that. Having never really used Facebook I don't know what the experience is like and what makes it better. Perhaps it is less formal and more chatty.
Here is link 22:
http://www.targetedonc.com/conference/asco-ovarian...
Michael
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Hello
So glad to have found this thread. Was dx 12/15 have finished chemo, surgery and #17/33 rads. I seem to be having a hard time with worrying about recurrence etc. Now that i'm towards the end of treatment rather than celebrating I'm dreading the end of treatment.
It's so good to read about others that have walked in my shoes
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