Calling all triple negative breast cancer patients in the UK
Comments
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hi sylvia & everyone ((hugs))
the lovely verse reminded you of your childhood days in that hospital and when you said about the collars it reminded me of my beautiful mother, mum is a 20 year breast cancer survivor & was raised by 3 aunties, spinsters till the day they died. my mothers mother had died of breast cancer when she was only 3..mum tells me stories of how strict those aunties were, she never had much love by them or her father but was very well taken care of. you just reminded me of mum's father who mum says always had his shirts and collars starched and the shiniest shoes you could imagine.
as far as eating healthy i do 90% of the time. i bake up a huge batch of vegetables and tiny bit of heart foundation lean meat, not a big eater of meat.
this keeps me on the straight and narrow and not go off the rails and pig out on junk. usually cook up about 40 servings.
im still eating this batch, got about 2 weeks left, lucky for me i can eat the same thing as long as it tastes nice and is healthy, it does me, like a car that has to have fuel and oil.
carrots, peas, cauliflower, broccoli, Brussels sprouts, beans
the sauce is mixed with chillies, onions, garlic sanitarium peanut paste no salt or sugar.
the meat this time was pork, no fat heart foundation approved.
the rice is basmati, its a low carb/gi rice from india.
and to try and get more protein in i have a shake daily with 30grams protein. thats a thought trip negs dont have to worry about proteins with soy, a point for us!
vitamins>
cats claw
curcumin
vit d
b6
b12
iodine/selenium
complex b
potas vit k
vit e
vit c
iron
magnesium
calcium
and my latest venture bicarb and maple syrup
heres the link to the thread. community.breastcancer.org/for...
yes i was born in australia in kalgoorlie a gold mining town.
think we australians are all a bit bitzy, convicts, have welsh, scottish and french ancestors.
anyone else got some tips 'of a must' in vitamins or diet?
take care
xxx
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Hi Sylvia
I couldn't agree with you more regarding the level of scrutiny given to breast cancer patients post treatment. I think a yearly chest x-ray is warranted. The exposure to radiation is fairly low and I think it could provide a early warning to any changes to the body. As far as blood tests are concerned I don't understand why they monitor some cancers but not others. My couisen who had bowel cancer was always having her tumour markers measured but so far, despite blood tests at every visit, have never heard it mentioned.
Thank you for your wishes for tomorrow
Michael
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Hello Liv.
Thank you for your posts.
I was very interested to know that your mum is a twenty year breast cancer survivor. That will give a lot of hope to many people. Do you know what kind of breast cancer she had? I do not know when people in different countries started to be told about receptor status. I think that when Tamoxifen first became available that all patients were given it and I suppose they could then start getting statistics about those who responded to Tamoxifen and those who did not. It would be interesting to know whether Tamoxifen was available in Australia twenty years ago. I do not know when it became available here in the UK. How old was your mother when she was diagnosed with it?
I was interested to know that your mother's mother also had breast cancer and died from it. Do you know how old your grandmother was when she was diagnosed with it and how old she was when she died from it?
I hope you will not mind my asking all these questions, but I know from my medical team and my own reading, that the age at which you develop breast cancer is very important, and that the younger you are when you develop it, and with a family history in addition, the more likely it is to be genetic, so I would have thought that you would have been offered genetic testing to see if you are positive for BRCA1 or BRCA2.
Is there any cancer on your father's side, as it can come down through the male as well.
What a sad story about your mother and her upbringing. To have lost her mother at age three must have been really traumatic for her. How sad to have been taken care of by three spinster aunts but not to have been shown love, especially by her father.
The days of starched collars and shirts, not to mention shiny shoes, have long vanished, but I do think that in the hospitals hygiene is now too lax and this is why we have norovirus and superbugs. The hospitals are also too big.
Thank you for showing us all your healthy food. It all looked very colourful. You cannot go far wrong if you are eating all those vegetables. I do the same and sometimes have basmati rice but I get the brown whole grain version.
I am sure we are all interested in what vitamins everyone is taking. I try to keep mine to a minimum as I think it is better to get all we need from our food if we can. I do take Solgar calcium which has the other things required for absorption in it, a magnesium supplement, Solgar vitamin D capsules, a multivitamin and mineral supplement and an iron with vitamin C supplement.
I put turmeric powder (curcumin) into hummous dip and put it on vegetables. Anything else I get from food. Brazil nuts are a very good source of selenium. In fact all nuts are packed full of vitamins and minerals.
Thank you for the link. Having read it I would not think it advisable for any of us to be taking it unless under strict medical supervision. I have taken a little from time to time but having read the link I shall not be taking any more. I was a bit wary of it because I had read that it was the equivalent of a teaspoon of salt if you took a teaspoon of sodium bicarbonate in water.
With reference to maple syrup, it is not something that I would want to take, because it is sugar and anything sugary is not recommended if we want to keep cancer at bay as apparently cancer cells feed on sugar.
I was interested in your family history. I think all of us have a mixture in us.
Keep well.
Sylvia xxxx
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Hello Michael.
Thank you for your post. You always have something interesting to say. I wonder whether anything will change in the hospital environment so that a more careful watch will be kept on cancer patients. I think everything comes down to cost and those that control the purse are very short sighted. Prevention must be less costly than waiting for something to become full blown and then trying to treat it. I think I would prefer regular blood tests for cancer markers or any other irregularities, rather than exposure to any kind of radiation, because we all know radiation causes cancer. It could be that our radiation treatment causes metastases. I so long for the day when cancer can be treated without chemotherapy and radiation.
In my January copy of What Doctors Don't Tell You on page 18 there is an article entitled Transparent dangers.
“Even a once-a-year bitewing dental x-ray can increase the risk of brain and thyroid cancer, the latest research shows”.
There is information about meningiomas, the most frequently reported brain tumour in the US and the UK. Apparently it is up to three times more common in people who have received once-a-year doses of dental x-rays. These dental x-rays increase the risk of tumours by at least 50% and the biggest culprit is the panorex dental x-ray which displays the upper and lower jaws and teeth in the same film.
There is a lot more information in this article, including how to avoid too much radiation from dental x-rays.
I think it is best to avoid them altogether.
I have always been very wary of doctors and I think I am now very wary of dentists. I hope you will be able to read this article and let me know what you think.
Good luck tomorrow.
Best wishes.
Sylvia
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In my "neck of the woods" [a/k/a in the U.S.A., with great but expensive health insurance], as pertains to follow up after surgery, after chemotherapy . . . I was informed that I will see the oncologist every three months for the first 2 years post chemotherapy - at which time a blood test will be done (with cancer markers) and then I will be "interviewed" regarding symptomology of potential recurrence . . . since I had BMX, the recurrence won't be my breasts. I had an inclusive CT scan with contrast, both iodine contrast in the vein (x2) and I drank about 36 ounces of fluid and waited an hour. Oncologist said this was my "baseline" CT scan to have something to measure by in the future. (I also have every 9 month CT scans for an ongoing heart valve/aneurysm condition, so the oncologist and cardiologist have agreed to use this ONE test, instead of repeating them for each individual condition.) I am attending my 6-month follow up with the surgeon this week. I can't for the life of me figure out what HE wants to see me about . . tee hee . . I'll let you know if it's anything other than "I can charge a fee, so you will come see me" type thing.
Thanks for all the healthy information, you all!
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fernmf - sounds like they have it under control and you can breath a sigh of relief..
my onc today was telling me he had a conference in the states and was told some horrific tales about insurance,
one was a male who had lost 3 fingers only had enough insurance to put 1 back on. his insurance did not cover the other 2 so they left them off.
another lady with cancer had mortgaged her home and car to have treatment and over here in aus i hear people whinge all the time about our public system, its free for every bit of treatment.
even heard one lady waiting for her chemo today say, aww ive got get my own coffee, usually there are volunteers that serve coffee and a biscuit. you guys should come here for free for a year and we should go there then we might appreciate what we have.
michael - what i hear about markers most doctors dont hold them in much regard, where as i do as since i was diagnosed they have been pretty true to what has been happening with my cancer.
first diagnosis they were really high, then dropped during chemo, then rose when chemo wasnt working, after mast dropped, up again with recurrence of nodes in chest, last bloods dropped in accordance with what ct scan had shown. its hard to find many that will vouch with consistency to their accuracy.
sylvia and everyone
today i had my follow up bloods and ct scan results.
all good, large nodes on chest shrunk by 80% and the mass of small nodes almost invisible.
the surprising thing was my bloods were excellent and he was surprised that they were as good as they were. so for today im a very happy Vegemite.
sylvia in regards to mum, back then they didnt know of positive or negative hormone receptors and what we gather some were put on hormone therapy and some were not. mums cancer was 5mil invasive no nodes. her specialist gave her the option of radiation or a lumpectomy, mum decided to have a full mastectomy which they took 7 nodes which were all clear. not sure what type of hormone therapy if it was tamoxifen or what?
mums mother was 41 when she died of bc.
currently im waiting on the results of brca1 - 2 which they say im highly likely to be positive but for some strange reason i dont think i am even with the family history, will let you know when tests back, it takes up to 6 months for test results, had them done 4 months ago.
fathers side, dad had prostrate cancer and had a really bad time with treatment, they fried his left kidney whilst having chemo for prostrate and now he only has one kidney and no prostate cancer.
yes it was sad that mum never felt loved as a child but she's a warrior and we have made up for what she didnt get as a child, we all love her death.
speaking to onc today about immune system and health in general, he said that the immune system being very strange and that some part of the immune system should not be too strong as we need not the entire immune system to be peaked to fight the cancer.. - think its a bit like when your training hard and competitively,ive heard its good to go off the rails and eat some junk or bad carbs to shock the body to work harder when you get back on the rails..everything is so complex!
think we all agree curcumin does some good.
yes agree about the bicarb maple and would never endorse it as a cancer treatment, wouldnt advice anyone to do anything out of mainstream until they consult with gp or onc first and even then be wary.
lets keep talking and any news of any kind is interesting.
luvs
xxx
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Hello FernMF
Thank you for posting a detailed account of your check ups after treatment. Here in the UK we also have check ups every three months for the first two years post surgery, chemotherapy and radiotherapy. We also have mammograms every two years. After two years we have check ups every six months, alternating between the oncologist and the breast cancer consultant surgeon. These check ups just consist of a physical breast check or check on the place where the breast would have been if you had not had mastectomies. These check ups do not last very long and are much the same as the kind of breast check you would do yourself. You usually have a little chat and I try to make a point of asking questions, as I do! I am still having these check ups every six months after seven and a half years. I was told that often you are discharged from the breast cancer consultant surgeon's check ups after five years, but with the oncologist you sometimes remain for ten years. I am still having mammograms every two years, but I sometimes wonder if this is too often because of the radiation.
What I feel is lacking is these blood cancer marker tests. I cannot understand why they are not routine. No one at any time has ever mentioned blood cancer markers to me.
I cannot speak for everyone obviously in the UK but I had a CT scan and a bone nucleide scan on diagnosis and after treatment. I had an ECG during chemotherapy. Since then I have had nothing.
I hope all goes well when you see your surgeon this week for your six month follow up. Please let all of us know what happens so that we can all compare our treatments. We do so want this thread to be useful.
Best wishes
Sylvia xxxx
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Hello Liv
Thank you for your post. I found those stories about patients in the US horrific. It made me think that perhaps you get treatment according to how high an insurance premium you pay. This would be a bit like car or home insurance. The more you pay the more you are covered for. I believe in state funded medicine and of course it is important to point out that IT IS NOT FREE. It is FREE AT THE POINT OF DELIVERY, but it is funded through taxation or national insurance contributions. Because of this we should expect the very best quality health care and we should also treat our system with respect and not abuse it. I cannot speak for Australia but there is quite a lot of abuse here in the UK. People go to their doctor for the least little thing and hoard medication because they do not pay for it when they are given it, so they tend to think it costs nothing!!!
It looks as though those of us posting would like to have blood tests to show cancer markers, because we can all feel well and yet something could be going seriously wrong in our bodies. It looks as though cancer markers worked well for you and showed what was going on.
I am sure all of us are very glad that everything is going well for you. I can say hello to a comrade of Vegemite. Here in the UK we call it Marmite, as you probably know, but I get the impression that a lot of people hate the taste. I actually buy Natex, which is a low salt version of Marmite. We also have Vegemite.
It looks as though your Mum made the right decision to have a mastectomy. I had no choice, but I would have insisted on a mastectomy anyway. Here in the UK I have a friend who had a lumpectomy and the margins were not clear enough, so she had to have another lumpectomy. She told me that me if two lumpectomies fail, generally you have to have a mastectomy. I felt safer knowing that the breast had been removed, but I know it does not necessarily prevent recurrence and you can get a recurrence along the scar of the mastectomy. The first sign of this is a rash, so I am always on the look out for that.
Your mum's mother was very young when she died of BC.
Let us know when you get your BRCA1 -2 results. Six months seems a long time to wait for results.
I was interested to know that your father had prostate cancer, because from what I have read there seems to be a connection between breast cancer and prostate cancer.
It is good that you have an oncologist with whom you can discuss things. I am not a doctor but I do not think I agree with what he said about the immune system. I remember my breast cancer surgeon saying that women like me who had never been ill before breast cancer could be at a disadvantage in that their immune system becomes lazy because of not having had to fight illness. As a child I had had just measles and whooping cough and had never been ill since. She told me that I should not have had cancer. I think it is prudent to avoid junk food, but that does not mean we cannot have treats from time to time. My best treat is 90% dark chocolate, which I tend to have when I feel stressed. Quite honestly I do not crave the things that others seem to need. I have no desire for alcohol or cakes or chips etc. If I need something sweet I have some organic raisins, currants or sultanas.
Look after yourself.
Sylvia xxxx
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Hello jenn-uk
Welcome back. I was glad to know that the link I gave you was of interest. I found it very interesting, informative and easy to read.
That was a good move to go on two clinical trials. Do you know what drugs are being trialled? I am sure we would all be interested to know.
I hope you manage to have a good night's sleep tonight and that you can go to your appointment feeling refreshed.
It is just a thought, and I cannot speak from my own experience, but I have heard women on these threads talk about having a seroma. I think this is a kind of large swelling. Look at the following link:
http://en.wikipedia.org/wiki/Seroma
If anyone has any information that can help jenn-uk, please post.
For any of you who might be wondering what link I gave to jenn-uk for some of her problems you might like to look at:
http://www.gihealth.com/html/education/fattyLiver.html
Best wishes
Sylvia xxxx
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jenn uk good luck for tomorrow.
hope you dont me asking but im curious to know what treatments you had. dx with a stage2 - grade 3 in june 2011, finished chemo and it appears you had a mx and no nodes removed or were they removed and were all clean as it does not show you had radiation. so im guessing this is the one year after mx follow up.
and wow thats amazing no follow ups at all with a grade 3, seems bizarre, no wonder you have signed up for trials... i would be searching for anything.
like sylvia, i too would be so interested to hear about your trials. how many trials are you allowed to go on at once. did you find them or were they suggested by an oncologist.
you will be fine once your there and biopsied, the worst bit is thinking the worst before the scans and tests.
we all forget because this dreaded disease makes us so paranoid and every little bit of anything we feel we are always thinking the worse but do try to remember before we had cancer, we had swollen bits bac then.
ive had swollen glands through teeth, through a nasal infection etc.
try and not stress too much, easy to say i know..
im crossing everything i have and wishing you have a huge tooth infection & they give you some antibiotics and it goes away..
edit__just seen your post above, i was on the phone in the middle of this post so we have crossed over..
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jen i dont know about nodes coming back after taken out, perhaps is lymphoma and by the sounds of it you had a bit going on during surgery with all the nodes removed. i had little bits of funny things happening up my arm and in the armpit 4 weeks after surgery and again after radiation which i found out later that it was cording and jen with the radiation it can leave so much scar tissue and damaged nerves and muscles around that area. could be just a build up of left over tissue.
its a good question though and would love to hear from anyone that could shed some light on it.
just horrible waiting the mind goes crazy with so many thoughts.
im sure soon someone will come with the answers, hang in there.
xx
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Hello Sylvia
Just a very quick post; I queried tumor markers with my bc oncologist friend in Sweden, and he told me that for cancer that is not active, they are not useful as they often give false readings. However, for cancer that has progressed, they are used to gauge how the chemo treatment is working, and therefore used extensively in that context.
I am happy with that scenario, and would actually prefer not to have continuous monitoring in the form of blood tests which are not accurate and certainly not lots of scans with the high levels of radiation.As far as I am concerned, symptom reporting is a good way to ascertain whether further investigation is needed.
It seems that in the UK, every hospital/ health authority has differing guidelines when it comes to follow-up of bc; it can also depend on the individual's situation - so that maybe someone with more aggressive disease will be followed up more frequently and for longer.
There are many things wrong with the NHS currently, but I am so glad I am not in the US where your treatment is dependent on your ability to pay/insurance coverage.
With love,
Sam xx
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Hello jen-uk
When they say they have done a 'full axillary dissection/removal', actually they have usually only removed levels one and two. There is still a further, higher level of nodes(supra-clavicular nodes) which are left intact,so it is perfectly possible for them to become swollen for whatever reason.
If you had radiation to your axilla, it is my understanding that strange effects can manifest themselves much later down the line.A friend of mine had Mondor's disease (cording) diagnosed a couple of years after she had finished treatment.
Hope all goes well tomorrow.
Sam xx
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Hello jenn-uk
Thank you for your information about the trials you are in. It will be interesting to see what conclusions are drawn from the trials.
Let us hope that all your questions will be answered today and that you will get some kind of peace of mind. It is difficult to generalise with breast cancer because we are all different and react differently to the same treatments and a lot of what happens to us during treatment and post-treatment may largely depend on what our health was like before we were diagnosed with breast cancer and had the treatment. It may be more difficult for women who had health problems, especially chronic ones, when they were diagnosed with breast cancer.
You will not have had all your lymph nodes removed, as sam52 explained.
Thinking of you today.
Best wishes.
Sylvia xxxx
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Hello sam52.
It was nice to hear from you. Thank you for your information, which is always useful. I do understand what your oncologist in Sweden said about the problem with blood tests for cancer markers and the fact they are not useful for cancer that is not active because they often give false readings. My own oncologist said they were only good for that particular day.
What I am thinking is that we are all living post-treatment in “remission” and that we all know that cancer can be developing in our bodies for a long time before it manifests itself in a visible tumour. Most of the time we may have no symptoms and may not feel unwell, so we may have invisible symptomless signs in our body that we have active cancer that could show up in a blood test before a tumour can be detected. Perhaps it could then be treated at that time without the drastic treatment that tumours required. I do not know if my reasoning is valid or not but we do have to remember cancer is a systemic disease that chooses a particular site in the body to manifest itself in the shape of a tumour.
If these tumour marker blood tests are only valid when a patient is undergoing treatment for a diagnosed specific cancer, are we to understand that in the US the insurance companies are performing them regularly post-treatment just to be seen to be doing something in exchange for premiums that have been paid?
I do agree with you that there is no point in having blood tests which are not accurate.
I also agree with you about scans, because of the radiation and I do believe that this treatment is part of the problem and may be at the root of new primaries, recurrence and metastases. We all know that radiation causes cancer. I know that I was terrified when I had CAT scans and bone nucleide scans. Before being diagnosed I was not having mammograms and have had them since diagnosis because I felt I had no option. I hope that I do not have to continue long term with mammograms every two years.
I do agree about symptom reporting. I feel that as much as we can, we have to read our own bodies and report anything that we feel is abnormal.
I think you are right about different hospitals having different guidelines. As you know I have no complaints about my own treatment for breast cancer at the RD&E here in Devon. I was looked after by two exceptional women, my breast cancer surgeon and my oncologist, who were always prepared to go that extra mile. My breast cancer surgeon is also my endocrinologist and I have no complaints about the way she treated my hyperparathyroidism.
I think you know me well enough to know that I believe in state-funded health care and I can see many problems with insurance based health care. I agree that the NHS is going through a bad time at the moment and I hope things will improve and that this government will not destroy it. I know from my friend, a dedicated senior nurse at Barts in London, how difficult times are in the hospital. She is totally dedicated and works flat out every day. The NHS has become too bureaucratic and hospitals are too big.
I hope this year will be a good one for you.
Love
Sylvia xxxx
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Hello Gillyone,
Thank you for your kind words. I shall keep going for as long as I think I am helping people. I do hope all is well with you. I would love you to pop into this thread when you can and keep us up to date on what is happening with breast cancer treatment in the US. I think we need to try to link it all up, especially between countries such as the US, Canada, Australia, New Zealand and the UK. It is a pity that we do not have much input from Europe, especially Germany and France as they seem to have a good reputation for the treatment of breast cancer.
How is your work going? I do look at the TNS from time to time but find it too big to cope with in the way that I like.
Best wishes,
Sylvia. xxxx
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Hello BernieEllen
I have not heard from you in a while and there have been no jokes from you so I am just posting to say that I hope all is well, especially with your health.
Best wishes
Sylvia xxxx
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well sylvia thats mean you will be here forever cos every time i read your posts you help me.
xxxx
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Hello Liv
Thank you for your post and I am so glad that I can be of help. None of us knows everything, but on the thread we have all experienced breast cancer, so we can express our own personal experience and relate how we got through our journey. It is good to keep everything as simple as possible, because we have to bear in mind that we have newly diagnosed patients viewing and they will be in shock and afraid. I am a great believer in repeating the various stages of a cancer journey and telling the newly diagnosed to take each stage one at a atime. We have discovery of a lump, through mammogram or finding it yourself, first consultations, fine needle aspiration, mammograms if not done, ultrasound, core biopsy, etc. We then go on to proposed treatments, surgery, lumpectomy or mastectomy or bilateral mastectomy, dealing with lymph nodes, chemotherapy, before or after surgery, discussion of chemotherapy drugs, radiotherapy and then, if wanted, reconstructive surgery. After treatment, regular check ups and getting on with your life so that cancer is not the main pre-occupation. If necessary, dealing with a new primary, local recurrence or metastases. That is a whole lot of stuff to take in. You have to take it one stage at a time, otherwise it is overwhelming.
I have been looking at a map of Australia as i have been looking at images on the television about all the bush fires in Tasmania and New South Wales. It all looks very frightening. I have looked at Western Australia where you are and located Perth, so I am posting a map of Australia for all to see so that we can learn some geography, which I have always enjoyed. I have some neighbours who are going to Australia in a few weeks to visit an elderly aunt. They will be there until mid March, so I must ask them where exactly they are going.
Have you been to the UK? Are you into foreign travel? My long lost cousin in Australia spent a year in Papua New Guinea and apparently wrote a book on native art there.
That is all for today.
Best wishes.
Sylvia xxxx
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Hello Liv
I cannot seem to post the map of Australia I found. The link is:
http://maps.google.co.uk/maps?hl=en&tab=wl
Do you know how to post it on? If so could you do it please?
Thank you.
Sylvia xxxx
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Have found this one.
Sylvia
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lol just saw you map too, maps everywhere, same as you couldnt do your original one..
sylvia do you want me to delete mine?
xx
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Hello Liv,
Thank you for posting the map. Please keep it there because it shows different things. I do not know why the other one would not work. What have you been doing today? What do you watch on the television?What do you like to read?
Best Wishes,
Sylvia.xxxx
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Hello Linali(Lindsay),
We have not heard from you in a while, so I just wanted to say that I hope all is fine with you and your family.
Thinking of you, Sylvia.xxx
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Sylvia, and others: I had a pre-existing heart condition that the cardiologist and I have been "following" prior to BC diagnosis, surgery, chemotherapy. I attended my normal follow up appt. with the cardiologist today - my only question to him after hearing that the diagnostic tests recently taken show results of "stable" and no change - was "did chemotherapy in any way effect my heart." The answer was no... Thank goodness.
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fern - great that you are stable & loved to hear that chemo didnt effect your heart.
remember when i was on that horrid chemo i could feel the pressure on my heart, my bp dropped so low a few times.
thx
xx
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hello sylvia today mum & i went into city to do some exchanging of sizes given at xmas.
then i did my daily power walk, then went to gym to do light weights, trying to get arm and breast side mast ready for reconstruction in 8 months.
home, not much tv just the news and weather to see whats happening with the fires around aust.
havent had time lately to do much reading but love biographies of all sorts, especially our prime ministers.
just recently read hillary clintons bio and thoroughly enjoyed it.
what im doing now is having a look at the clinical trials to take with me in 3 weeks when meet up with onc to get him on the same mind frame as me that trials are the direction i want to go on within the next 10 months.
what about you what have you been up to? how is hubby? what have you been watching and what apart from bc are you into?
im off to bed now, if its day, have a great day you all and if night, nite nite.
xx
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I have just found out that 3/3/13cwill be the initial TNBC day
I am glad because that gives me a target date around which to fund raise.
My appoinment yesterday went pretty much as I expected. CT scan and biopsy's are being ordered and I see the heamatologist on 4/2 to discuss treatment.
One thing spooked me yesterday, when I arrived at the cancer centre (it was the first time I had been back since Janette died) the first thing I heard was a nurse coming into the waiting area and shouting "Janette....." I almost passed out.
Michael
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Hi Jenn
Sorry to hear your news. Hopefully it is fat necrosis but whatever ever it is your team seem on the ball.
I know what a blow to morale relapse is. Having been through a battle once it seems incredibly unfair to have to face a setback. Through Janette I got to know of so many women who go on for years with several setbacks.
Enjoy the week with your son and spoil yourself
Best wishes
Michael
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