GRRRRRRRRR I HATE LE..........
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Musical, I tried to soak mine off with olive oil, coconut oil and soaked in the tub but that Ktape wouldn't come off and when I got help taking it off by slowly gently working it off I ended up with a tape burn. I believe it was the spray adhesive that was the culprit that was sprayed on before the tape was stuck on.grrrrrr
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Wow hugz thats horrible
. I forgot to say I did mine bit by bit very slowly with a combo of oil and warm water. It worked really well for me and boy my skin is so sensitive I get itchy lumps galore at the drop of a hat. Was the "tape burn" itchy or like a raised welt or was it just plain red and maybe sore? There seems to be so many of us that are sensitive to adhesives and it makes you wonder exactly whats in them.0 -
Musicall, It was a huge welt the shape of the Ktape, identical. Was not itchy, but red. I just know it was the spray.
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I've been using KT Tape that I bought at CVS and they are pre-cut strips. All I do for my breast LE is cut the strip into half and then another half while leaving about 3 inches of the tape uncut. I am able to fan it out over the breast and move fluid in the same direction. I have not had any problems taking this tape off. Not sure what kind of adhesive is on there, but it seems to stay on for 3 days and then it begins to peel away.
I only wish I knew about the tape last year when I was first dealing with this. Hopefully each type of tape is different and perhaps one type is better for your skin then another. I'm lucky in that I have skin that seems to withstand a lot. I even use an alcohol type astringent for my face sometimes and no problem.
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Ladies, 2 questions.
How do you tell if swell is from "water retention" or LE?
I have LE in upper torso but since i started Lyrica i notice my ankle is swelling. I did stubb my toe a few days ago and yesterday on our trip it caused major swell in my left ankle. i've been elevating and drinking water. Looks a bit better this morning but need to work now.
Question 2 could this been caused by a stubbed toe? Or is it the med?0 -
GMA, I had retention issues before BC and so it is unclear but suspected that I have LE in my Prophy side. (arm). Not sure about getting LE at the lower extremity if you havent had nodes taken from lower area. Someone will know this here for sure.
I asked my LEist your 1st Question. The answer was that they can't unless they do proper tests and I don't think the equipment necessary is available in my jurisdiction. You don't say what your "trip" entailed, (travelling, walking, etc) so hard to join the dots. From what youve described it sounds like it could be from your stubbed toe. If a med is going to cause retention issues, I would think it would involve both extremities, but because of the stubbed toe it may have tipped that balance. I would get a professional to look at it if it doesn't settle.
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Here is my ankle tonight. I used to be able to see the ankle bone sticking out and the puffiness underneath it hasn't been there until the last few days.
Ouside of the same ankle
so what ya all think - is this a start of something bigger in the making?
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Looks like your shin has got a dent in it too from the top of your sock/stocking. I take it it is nothing like your other leg? Maybe you need to ask yourself these questions....How painful is the stubbed toe? Is it getting worse or staying the same? Is it harder to walk on?
Seeing that it looks like something else (additionally??) is going on here. I would get it checked out for sure.
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you could temporally stop the Lyrica just to see if it improves. I stopped Lyrica for that reason. If those marks are from socks...keep them off. Praying it is not LE in your legs now.
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kittydog - i'm in a catch 22 i think - if I stop taking the lyrica - the breast pain is so bad and I get withdrawl - got to taper off and get on something else - can't do it without my doc and he isn't in until tomorrow.
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I am sorry GMA.. I wasn't on but the low dose so I could just quit. I just recently went on Neurotin ? the spelling for the neuropathy pain. So far just sleeping more than I normally do. I am just on 300 for now but they would like me to work up to taking it at least twice a day. She wrote it for 3 times a day...I would never be awake.
Hope you figure it out. I go Wed. to the LE clinic to be evaluated again. I am hoping for a simple fix to the new issues.
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KittyDog it's Neurontin. Has it helped with your neuropathy? Im on the lowest dose possible. GP put me on it to hopefully help with PN (peripheral neuropathy ) and SE's from Arimidex. For a while it seemed to help enough to take the edge off burning pain and joint issues. Recently I started getting these back. DOnt want to ramp up neurontin (Gabapentin sp??).
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Kitty and Musical - I have been on 1800mg of neurontin for 2 years - it gets better as you progress - in the beginning I slept alot so just took it a bedtime then was slowly added up - But I do have what I call Brain Fog and they though Lyrica might be better. But so far, the balance is off, swelling is up and I am noticing a short term memory problem.. So will be talking to the docs office tomorrow.
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I was having the lighting strikes every night. Last week none. They started back the last few days but we are currently having storms and high humdity. I feel like humidty and changes in weather effect the neuropathy. Mine was caused by chemo. Three and half years later and my finger tips are still numb, my feet and the sides of my legs are also still numb.
I can deal with it fine in the cooler months but the heat just makes them throb..of course at night it's worse.
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I have LE in both arms. This seems like a good place to vent and say hot flashes from Tamoxifen and wearing sleeves/gauntlets = crabby me! Add warm weather and you really want to avoid me.
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Welcome Jeannie. Sorry you have the need to be here but yes, it's a great place to vent and to find answers to (m)any questions. We are a 'swell' bunch.
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Jeannie I so feel you - You can vent anythime you want!!! my MO took me off all the AIs then tried me on tamoxifen and decided I was better off not taking anything - so I'm on no estrogen diet - Made up by my ONC nutritionist.. I just have to read alot of labels.
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Thanks, ladies. I did the elliptical with 2 fans blowing on me today. Thank goodness it's drizzly here today. Never thought I'd say that! I have DIEP surgery coming up and I'm wondering about the whole sleeve/gauntlet thing then. I'll be in no shape to put them on. And I hear they make the room hot and put warm blankets on you to make sure the flap takes! Aargh. I'm sure it will work out. I'll be too drugged up to care.
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Jeannine... I had diep in Nov. I was never covered with warm blankets...where are you having it done? My doc wraps the arms before surgery to insure you do not swell out of control and has a therapist come in and do mld while in hospital.
Maggie0 -
GMA. I would love to know what your no estrogen diet consists off. Could you let me know?
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Jeannie, Welcome and don't forget to get a mens oversize wickaway tee shirt for when you hot flash in bed. It drys much quicker than cotton and you are more comfy.
Also I put a towel on my pillow case and would switch it once it got wet. A thin tea towel would work or better still if you can get a hold of wick away fabric and sew a pillowcase or lay the material over your pillow. Alternately you could get the mens wickaway in extra large and slip it over your pillow inside out so you have the wicking material next to head... I would know this because I would have 40 hot flashes a night and this was the closest thing that came to keeping me dry.
Costco has mens tees and you can get one under 20 bucks.
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Hugz - here is the short version:
This is my "anti cancer foods without the ones that produce estrogen:
Avocado, Broccoli, cabbage cauliflower (and other cruciferous veggies), carrots, Chili Peppers, jalapenos, figs, flax (in small doses), garlic, citrus fruits, red grapes, green and yellow veggies, Kale, Mushrooms, nuts (in small doses because of the fat), Papayas, raspberries, Red wine, rosemary, seawead, sweet potatoes, tapioca, tomatoes and tumeric.
Now for the estrogen producing foods to avoid:
Note: for me, i have to be more cautious because of no meds to help with this.
Soy proteins, Soy protein isolates -(for me anything with soy I stay away from), beer (the hops is the problem), meat that has been treated with hormones or antibiotics.
I got a call from the doc btw - No more Lyrica for me -
back on the gabapentin0 -
Gma thx for the list,
What exactly are sweet potatoes? I think I've heard yams called that and I it rings a bell that these may be oestrogen producing, but may be wrong on this. Much to my dismay, apparently prunes are as well.
+1 on soy. If I can help it I wont touch soy with a barge pole not the least of which for the most part is GE. It is in sooo many things its a nightmare to avoid it.
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I was just telling GMA how bad the processing of soy is. I tried to prove to my ND that studys now say it is ok to eat as far as estrogen but he gave me an article on how it is processed and it is bad....Oh here, I Just found the phamplet on it.... They process it in aluminum vats which had high leaching. Let me quote."Nitrites, potent carcinogens are formed during spray-drying and toxic lysinoalanine is formed during alkaline processing. Artificial flavoring, particularly MSG and added to SPI and textuted vegetable protein (TVP) products to mask their strong "beany" taste and to impart the flavour of meat.
Then it goes on to talk about cancer and DNA damage, brain and learning disablities and soy formula for baby.
Granted this phamlet was taken from 2004 you may have to take this quote lightly. They may have changed there processing practices etc. This phamlet was compiled by Health, Action, network Society
I am addicted to soy with a earl grey teabag three times a week. I just gotta stop but this has been my crutch since I quiet coffee last OCT.
Sweet potatoes are much like Yams but less sweet to me.
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Well hugz when it comes to our crutches we just gotta do what we gotta do until we can do better (if that makes sense) ...
That said...I would trust EVERY word you quoted about soy. It is BAD BAD BAD and people have died for exposing this "darling of the food industry". Why? follow the money trail. When you research something long enough, eventually you get enough info in which you can join the dots and come to a logical conclusion and thats how it is for me... the more I look into it the more I can smell a rat.
People will do what people want to do and that is their right. IF I can dissuade someone from ingesting soy whether by noting it is largely GE or how it's processed or proving that indeed it IS an eostrogen producing food it doesnt matter. At the end of the day, if I can wise up just ONE person about this insidious toxin called soy Id consider it a job well worth while.
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Sweet potatoes vs. yams...short of it is technically, in the U.S., yams and sweet potatoes are the same thing. Real yams are from Africa and very difficult to find:
http://www.ncsweetpotatoes.com/sweet-potatoes-101/difference-between-yam-and-sweet-potato/
http://www.loc.gov/rr/scitech/mysteries/sweetpotato.html
http://m.youtube.com/#/watch?v=DIwhIiJ5h3I&desktop_uri=/watch?v=DIwhIiJ5h3I0 -
Dawn Thanks...How interesting! None of those youve linked to look like our yams in NZ but in fact look much more like our Kumeras.
Have you seen any yams like these?
http://www.garden-nz.co.nz/grow-your-own/grow-your-own/yams-grow-your-own.html
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Musical - No. I've never seen anything like that. What do they taste like?
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Soy - I had consumed over 5,000 protein shakes in 5 years on a hospital supervised diet - main ingredient - soy protein isolate. When I was diagnosed with a 6 cm tumor Stage 3, the FIRST WORDS out of my highly credentialed major university breast cancer surgeon's mouth were
"From this day forward absolutely no processed soy - especially no soy protein isolate." She had no idea of my history.
Heart sank as I KNEW why I might have gotten BC. So it bothered me so, I sought an expert from a HUGE RESPECTED UNIVERSITY who had written alot about soy. He would not write me only talk to me on the phone. He said he could not say with certainty that soy protein isolate caused my BC, but it certainly contributed to its size and growth.
No soy for me...
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The more I read about genetically modified food, the more it scares me.
Since diagnosed 3+ years ago, I've done a lot of research on soy. The way it is processed is a key as well as if it has been genetically modified. It's one of the reasons why the soy in Asian countries is not nearly as bad for you as the soy processed and grown in the U.S. The studies done on why Asian women don't have the high rates of breast cancer that U.S. women do ... Some researchers say, hey, well, Asian women eat a lot of soy so soy must be good for you...they ignore the fact that the soy Asian women eat is way different than the soy women eat in the U.S. Whole different beast, the gmo's.0
