GRRRRRRRRR I HATE LE..........
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@scottiemom1 I'm very happy with the Yummie brand compression cami The compression is strong and the length is good ( I'm tall) I bought those at VonMaur, Although this summer in 90 degree temps I was wearing a Bali lace cami that I altered by removing the thin straps and replaced with lace straps I fashioned. This cami is lighter compression. I also have a couple of Genie cami's that were very inexpensive. They provide good compression, they are the thickest, not good for summer and aren't as long as the Yummie's but keep me warm at an outdoor event during the late fall and have lasted much longer than the price would indicate.
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I have had good success with these Franato camisoles.
https://www.amazon.com/Franato-Womens-Shapewear-Co...
They come up high iin back and under arms and are long enough and made to not roll up at bottom.
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I tried the "Cami Shaper" and it fits well (they run small, get a couple sizes bigger than the chart says), it's reasonably comfortable, light compression, has pockets for a foob if you want. And the price is right.
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kareenie. . .thanks so much. I just ordered two of those. The one that I got from Amazon today is not going to work. So sending it back. The beauty of prime.
Scottie
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I bought a LympheDivas glove back in January, and the fingers extended past the moons at the base of my nails, to my fingertips. I couldn’t pick up anything, much less attempt to play guitar. When I called them to ask about what to do, they said I had no choice but to return it—folding the ends back would result in double compression and trimming them would cause the fingers to unravel and run. They apologized and said they had no plans to offer them in a shorter finger length. They were very good about returning it, no questions asked. And unlike Juzo gauntlets, theirs cover my hand knuckles completely and I’ve never gotten finger swelling with them on.
Perhaps enough women found the fingers to be too long that they quietly decided to shorten their templates.
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Hi, it's being a while...thought I would check in to say I still hate LE more than a thousand hot pokers stabbed in my eyeballs. Got cocky and overdid it in the garden this summer and so LE progressed more into my trunk and breast. Yup it's the pits
alright but I'm just gonna plug along and march forward! At least I have nice flowers as a reward for stinky LE getting in the way of my gardening0 -
how awful for you hugz!!
So sorry.
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Astrid thanks,it's ok though I'm managing quite well and staying on top of it.
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Hugz - Yup - those gardens are killers. Sorry to hear about your progression. I have had more issues with truncal after doing lots of digging in the spring. And yes, I did wear a sleeve. Hmmm. So far I haven't been able to alleviate the constant ache/pain with MLD, but it hasn't moved to my arm.
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I can't give up my gardening,, so it's manage, manage, manage,,,,,, And compression is SO HOT,, and FL is hot for so long,,,, That's my whining for today!
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I hear you glennie. I like to rebel myself. stuff it!!!
then after i wonder why I did it. ;D!
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Hugz, the flowers are spectacular! Brava! I too have overdone it with gardening this year, but you sit down to a great meal of home-grown veggies, with a centerpiece of garden flowers--aaaaaaah!!
I'm back to the Lebed opening on a daily basis--best control I have. It only takes about 15 minutes and I can squeeze it in any time throughout the day. So why is it still so hard to keep on doing it regularly?!!!
Happy gardening, and may the plant pests all curl up and die!
Binney0 -
I'm about to test the limits of my LE. Fall yardwork, here I come.
Post yard update - Note to Self. . .just say no. I am now swollen and in pain. Even with electric shears and less than an hour of work. I will be directing DH in the trimming from now on. LE Bites!
Scottie
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The flowers are beautiful! So many green thumbs amongst us LE sufferers (not me, personally, although I totally appreciate garden fresh flowers and veggies).
My rant is over my insurance. They'll cover my sleeves, once I figure out where they will let me buy from. There isn't anywhere in network, so I need to go through pre-approval first, and wouldn't it just figure, I got a snag in one of my sleeves yesterday. I foresee me needing lots of sleeves considering I work with animals all day. Grrr!
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What do we do about snags? Do you cut them , tie them, leave them be? I got a snag in one of my gauntlets this week. Uuggggh
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My understanding is that sleeves that get snags need to be replaced because it messes with the integrity of the compression levels. If others understand differently, please chime in. I would hate to have to replace sleeves that are practically brand new just because an animal got a claw stuck into one.
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1step - I am amazed that you found insurance that might cover sleeves. I gave up trying long ago. Since you are in Houston, I will add that the PT I went to at MD Anderson after radiation did provide initial sleeves & gauntlets. I take my sleeves with snags & convert them to water aerobics use.
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SNAGS are my specialty.
In fact when I get new sleeves I can't even leave my house without baptizing my new le gear with a snag within the first week. Happens every time. I've been wearing small snags for years and still feel I have good compression. I get new ones every six months as recommended anyway. If I get a snag that's pulled up into a biggish loop I try to work it back into place with my fingers but sometimes it stays into a small loop the new I just leave it. If I get a thread sticking up out of my glove or break a thread I tie it gently so as not to tighten the compression and leave it.
When all else fails I have the product called Fray Check that works like when you put clear nail polish on your nylons to stop a run except it's for fabric. It's probably not meant for compression material but I just can't afford to throw out my good sleeves because of a small run. I have put it on a hole on my old gardening compression gloves and I didn't see any deterioration of material.
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Hugz, yes! I've used Fray Check on my garments for years, especially around the seam areas where they seem to wear first--saves a whole lot of trouble and expense. You can buy it at fabric stores, and sometimes in hobby sections of Walmart-type stores. (Word of caution: do not store it anywhere near your eye drops--very painful and it takes a ton of water to wash it out. That is the voice of sad experience!)
Sigh!
Binney0 -
Thanks for the tip about Fray Check. I hear the eye drop warning. I used concentrated breath sweetener drops one time instead of eye drops when I was stopped at a red light. I will NEVER forget it.
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Susan, maybe some other person answered you but I can't pass the question. Antibiotics should be given only when there is an infection caused by a bacterium susceptible for that kind of antibiotics. They cannot be given lightly or for prevention. The constant use may cause bacteria to become resistant to the antibiotic and that is a big problem.
Here in PR the hospitals have problem with two superbugs: MRSA and Escherichia coli. To avoid OR contamination, the patients are asked to bathe with special antiseptic lotion. Doctors use antibiotics while operating to avoid the entrance of bacteria while the body is cut.Sometimes they prescribe oral antibiotics after the surgery.
But all antibiotics should be given with caution because they can have serious side effects. When I was little, the antibiotic was penicillin, error from the child doctor, they shot me with penicillin when I had asthma. Now I can't have it; I faint because I have a sudden drop in blood pressure with penicillin. Sulfa also causes me a serious esophageal stomach reaction w/ blisters and sores. Another antibiotic I can't use. So if you don't have an infection, don't use antibiotics.
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Carol 57: I am starting a new treatment/therapy program this coming week, and I showed her my Go shirts, and she said they looked great! No compression shirt I have found so far fit me like this one. I am going to order a 3rd one this week.
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I may get released from my LE ther apt next month. I've been on the LE diet (gluten-free anti-inflammatory) for 10 weeks now and it's doing wonders for my swelling, nerve pain and stomach issues. It's not an easy or cheap diet but worth it for me at least.
I still need a good compression shirt though. Can someone please repost the links to the good ones. I've tried 3 from Amazon and none give good compression under the arms where I need it most.
Scottie
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http://www.gotravelwear.com/shop/womens-compression-shirt-1
I just ordered one today! Not sure why it took me so long. I'll let everyone know how it is.
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Scottie, what is the LE diet? Sorry to ask a stupid question!! I justhave arm lymphedema, primarily from my wrist to just above my elbow now, not the truncal lymphedema many of you are talking about. My arm has also improved fairly dramatically in the past year or so. It's been bugging me more than usual lately though, and I thought I'd see if you're talking about something specific. Thanks.
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Kay, thanks for the link. That's the one I need.
Goldie, this is the Lymphedema diet book that was recommended to me. I have the Kindle version. I follow the gluten-free, preservative free and no artificial sweetners guidelines. I went vegetarian 18 years ago due to preservative issues with meat so I'm not surprised that I got more sensative due to post BC issues.
Scottie
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Thanks lots for the info, Scottie, I'm going to check it out!
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paintthesky, I am so happy that the compression shirt works so well for you!!! I don't drop into BCO very often these days (and I will try harder to correct that!), so I didn't see your post until today.
For anyone who is not familiar with the shirts we're talking about, a lovely lady named Margaret (who designs and produces a line of clothing under the moniker Go Travelwear) designed a compression tee shirt to help with lymphedema needs. She worked with about ten of the women in this forum, who tried shirts on, sent in comments, and in some cases tried a revised version on for follow-up comments. None of us has any connection to Go Travelwear, so this is not a commercial so much as just offering some information that might be helpful. The shirts were designed to provide something with a scoopier neckline than the men's Under Armour that many of us use, and with somewhat shorter sleeves to better hide under wardrobe items. They won't hide under every wardrobe item, but in my experience the shirts work well with many of my shirts and blouses and dresses. For information: Go Travelwear compression tee
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Just FYI, everyone is different, but I got one of those Go shirts, and it doesn't even touch the skin in the exact spot where my LE is..... front of armpit..... although it's nice and snug everywhere else, maybe almost too tight in the upper arms, and it's slippery so it rolls up from the bottom no matter how you tuck it in.
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hey gals
Anyone here with breast lymphedema?
Im talking those that got it not immediately post mast or rads. What were your symptoms?
How did they diagnose it? How do you manage it? Did anything in particular bring it on?
I have bad itching and swelling and discolored breast.kind of purply color. This morning I noticed a thickening developing from outer beeast into axilla area. Have had 2 courses of antibiotics and tried dermal creams with no luck. Am being watched to see if IBC but drs suspect lymph.I notice there is not much info on this but one site says pitting is common..which kind of sucks cos it is also a symptom of IBC. I have a very mild patch of it in one area.
Thanks in advance.
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