Australian Sisters
Comments
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I haven't meant to be quiet - just boring with not much worth writing about. But I am on here everyday keeping tabs on everyone!
I think Paul has whooping cough. Poor guys been coughing since late March!! been to a couple of Dr's, had a chest x-ray which was clear, so tonight we are going to a new Dr's clinic and I'm going with him to state how bad he is. I swear if he doesn't cough for 30 seconds once he's gone to bed then I think he's died. He's such a trooper,never complains, hence I think he is a bit too passive when he see's a Dr. I'm waaaay more aggresive. So I want him tested for Whooping Cough which is apparently 'rampant' here according to the Dr's receptionist when I called to insist I wanted the best Dr they had. We'll see.
Back out into the garden I go... lovely day here with a high of nearly 20 expected. Just perfect.
xxxxxx
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I took DS on bus to radio today. He was great and the bus driver sat in the waiting room with him while I had radio.
We came back and had Thai for lunch with DD, yum.
I slipped on the floor in the early hours of this morning and went A over T; so my butt is even more sore, plus I hurt my arm and leg. Takes my mind of the boob which is progressively getting more painful.
Jenn - hoping for good results.
Midnight it will be good to get your results sorted. Would your DH be able to read it more clearly?
Kate - that's not good news about hubby's cough. Hopefully it will all be clear by the time he is ready to go to his new job. x
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Kate, my nieces bf has just been dx with whopping cough. 21 and vaccinated as a kid but that doesnt seem to help 20 odd years later. Do get him checked out soon.
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Has anyone read on the BCNA site that data is not routinely collected in Australia about secondary breast cancer. They have made submissions to try and rectify this, but it makes me wonder where our statistics come from and how accurate they are without this information. Kylie x
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Hi girls!
I'm loving having my GS's with me but I am now starting to get very tired......lol......and I have them until Sunday. I will take them home when I go to the city for my 6mth checkup which is on Monday and then on Tuesday I will pick up the youngest of my GSs and bring him home for the last week of holidays. I think I'm going to have to have a holiday myself when school goes back.......lol.
They really are no trouble but it's the extra conversation and late nights that are beginning to take their toll ............... I've just realised that I'm not as young as I used to be.
Oooo Kylie your poor rear end! Sure hope it's not too bruised. What are yoiu using on your boob for the radiation damage? I have heard from others on the boards that emu oil works wonders for both the healing properties and the moisturising properties.
Jenn how are you doing today? sure hope you are getting some answers.
Kate hope your DH is okay. That cough would be real worry and yeah you are right, men are never as forthcopming when they go to the docs as they tend to downplay just how bad they feel about things.
Midnight did you not get a photo copy of your pathology report? It would be much easier to read as it is typed and you only need to ask your doc for it.
Sue are you back into the swing of work yet?
Trish sounds like you are getting a lot of business with your photography. You never know, it may take over and you will end up doing it full time.
I've almost finished the jumper for my DH that I started five weeks ago. Just the side seems to sew and I'm done! Yahoo! It was a bit slow this time as I can usually get one done in about three to four weeks...........oh well, maybe the next one will be quicker!
Love n hugs all! Chrissy
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psst Chrissy. I didnt do rads
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I would love to be able to knit but I'm not very dexterous.
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Hey... Lyndal - positive node and no rads? Did they try and get you to do them?
8 of 28 today. It's all actually hurting less today than yesterday...
Hubby and son are off skiing this weekend so looking forward to a quiet one...
Gynae appt tomorrow morning. Will try and hook in from work afterwards and let you guys know how it goes.
Jenn (from the treadmill!)0 -
Oooo sorry Lyndal, I was thinking Kylie and typed you.........a sign of age and tiredness.....lol......just my story and I'm sticking with it......lol.
I have edited the mistook!
I am on the very last seam....another five minutes and it will be completed! I take a pic to show you.
Love n hugs! Chrissy
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Chrissy, yes i did get a photo copy, i just can't read it, the typed writing is very small and light blue, i am getting blind in my old age, i will have to write the main stuff out and then i can tell you, but i need a magnifying glass to read it, gosh. but will have a go tomorrow and see how i do. the text size is extremely tiny. thanks.
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Here we go! The finished article!........tada!
I'm about to start on another one.............I cannot just sit I have to be doing something and knitting when it is cold is good for my arthritic hands........stops them from getting stiff.
Love n hugs all! Chrissy
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Nah Jenn, rads was never in the equation. Initial dx was just dcis, but grade 3 er+(100% I think) pr+(9% or so which is basically negative) and in 3 huge clusters in different areas of the breast. Tx was gonna be just the masectomy and a hormonal. When they did the blue dye thing during the masectomy they took the nodes that lit up plus clearance, and the pathology found that one of the nodes in the clearance area had idc (along with from memory 2 micro's in the breast tissue), so they went back in a week later and took another 10 or 11 as greater clearance. They all came back negative and due to my age at the time (42) and that it was caught so early (presumably just after the dcis had transformed and busted through the walls into invasive) no family history of any cancer, combined with the masectomy and 18 nodes removed, he and the onc figured the chemo would blast any suckers floating around. Ive always been comfortable with that assessment and dont feel Im in any danger from not having rads.
Editted to say, Wow Chrissy that is beautiful.
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Chrissy, that is lovely. i love the colour, is it cable stitch, what ever you call that kind of knitting, i am afraid, i was not a knitter. did not have enough patience. do you do crochet as well. my grandma used to make tablecloths and dressing table thingys, cotton, she made a big crochet of the Lords prayer, once, one of my mums sisters got that. she told me i could have it, they used to live with my mum and i till they both died at 96 and 98. but she was great at her crochet, she did it til abot 90 and then her hands and fingers got too bad and could not hold the little needle. it was quite fine, anyway that is lovely. well done.
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Thanks Lyndal.
Midnight it is indeed a type of cable, for a non knitter you did well to recognize it.
Yes I do crochet as well both with fine cotton and wool. When my brother married some years ago I crocheted a multitude of doilies as my gift. I know he still has them but he is on his third wife. ........lol
When my DD was married I crocheted all the little bags for the sugared almonds. I like making things and it really doesn't matter what the medium is.
Love n hugs. Chrissy0 -
Chrissy, you are so talented. Your knitting is lovely. Do you knit for your grandchildren?
Midnight, perhaps you should ring the pathology lab or specialist to ask them to decipher your report.0 -
Racy I would if they would wear wool. They are like my DD and she is allergic to wearing wool on her skin. She can't even sleep with a wool blanket on the bed.
I'm happy to knit for anyone who asks.
Love n hugs. Chrissy0 -
Chrissy - your knittig is great. I can knit and crochet very well but haven't bothered for years - cross stitch is my thing these days.
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Morning all
Yes Chrissy knitting is great for the hands.
Finished a vest for DD last night, well I have to sew in ends, great pattern knitted all in one and actually very easy and it does need a press, something I don't often do. Will take picture later so I can show off. My sister and I have been on a knitting binge and next week we will take all our things out to one of the local hospitals where knitted items for littlies are welcomed. It is an area of great need.
DD has just rung to say she will be here in a few minutes with DGS so i had better get dressed.
Have a good day every one
Big hugs
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Hi Girls
Well I'm starting to knit a shawl for my goddaughter's first baby! Seems quite a few of us are knitting. I used to knit a lot, did jumpers for hubby and myself and then stopped. I will probably start a jumper for me soon, I need some new ones. I love your jumper Chrissy - lovely colour :-)
Kylie - ouch for your rear end - take care. One thing I noticed for quite a few months after chemo was that I lost my balance very easily. I had three falls and two of them really hurt (and were embarrasing as they were in public!). So be aware your balance is still compromised and take extra care.
Jenn - I didn't have rads either. Usually if you have a mx and have clear margins then rads aren't reccomended.
Another busy day at work, better get some done.
Trishxoxo
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Kylie, I know my balance is "off" after chemo as well. Can't figure out why since I have no discernible neuropathy in my feet, but I "list" to the right easily.
My treadmill walking has been helping and I have been doing "stork standing" (on one foot) when I think of it to try and balance up again.
Jenn0 -
Alyson, my aunty, now departed from us, used to knit those black gollywogs for the Auckland Childrens hospital ward, til it bacame a racial issue and she was told she was not allowed to make those anymore, she started on making dolls for girls and boys and that went well. she said the kids used to love those gollywogs and they were easy to make, she used also do crochet blankets for other wards, like the geriatric etc, she loved making them.
DX 8/12/2011, IDC, 1cm, Stage Ia, Grade 3, PR+, HER2+
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Wow, I'm very impressed with the knitting Chrissy. I have a scarf somewhere that I started to knit when Sarah went to UK for a year .... back in 2005... never finished it. I am a hopeless knitter.
Well I have a wonderful head and chest cold and just laid low yesterday. Suddenly lost any oomph I had. Bloody mouth was like the bottom of a birdcage this morning as nose was all blocked up and I'd obviously been just beathing through my mouth. It was drier than the Sahara desert.
Paul is now on anit-biotics, steriods and a ventolin puffer and has to go back to his Dr (this was an after hours GP clinic we went to last night) to get his blood pressure medication changed, as one of it's main side effects is a cough. I'm not impressed with any Dr yet, I mean he went to this initial Dr about his cough as he'd had it for 2 months already and so what does he do? prescribes the worst medication for adding a cough. The Dr said last night there are other medications he can take to lower his blood pressure without that nasty side effect. Paul did have a much better night last night but has the same head chesty cold I've got so lots of sneezing and wheezing. I said to him at about 4.00am this morning 'gee, we're a healthy pair aren't we?'.
Supposed to have my MIL around for lunch today but am going to ring and tell her not to come. She's 80 and frail and doesn't need to catch my lurgie. Sarah and Neil have postponed their wedding until 2014 which is a huge relief. They need to time to iron out some kinks in their relationship and not have a wedding distract them from that and it takes the pressure financial pressure off everyone and gives us time to save for a decent event the following year.
Oh just a last thing. The Dr asked me last night if I was in recession? I actually don't know. Am I? I mean I don't have BC in me anymore as they got it at surgery.
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Wow Kate - you'd think drs would at least read the se's of medication before rx to patients! And lol @ the dr asking if you were in recession. I guess if you aren't out earning any money at the moment you are in recession! But if he meant were you in remission then he obviously doesn't know very much about bc. All they can say to us is we are NED - no evidence of disease. If it doesn't come back then that's great, if it does then all the treatments and surgeries didn't work.
Hope you and Paul get over your colds, it's a particularly nasty one that's going round at the moment. Rest up and drink lots of water.
Trish
xoxo
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ha ha Freudian slip up there. See I have the brain foggies today.... it's going to be a nice quiet one, i'll re-light the fire and just stay nice and quiet and warm here.
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So the ovaries need to come out...
Gynae said the cyst is probably not cancer but it's not normal and it should be removed. There are two new clear cysts on the other ovary so his opinion is to take out the ovaries.
He would like to take the uterus as well "since I'll be in there" but I don't believe in removing something for no good reason and the uterus is a good "placeholder" in the abdomen ie: it holds a lot of other stuff in place. So I said no to the full hysterectomy.
Can't do the keyhole surgery (10 day recovery he said?) until about 6 weeks after rads are done. Supposed to finish those on 6 August and then have an appt back with the gynae on the 7th of Sept to set a surgery date in the next few weeks after that.
Better keep on my treadmill and get fit. And got to hope that the rads don't give me the pneumonitis back again...
Jenn0 -
ok. i will try and type what i see here on pathology report, it says the cut surface shows a hard white tumour, 14x13x11mm laying adjacent to the inferior margin, 11mm from themedial margin and 8mm form the lateral margin and the tumour is 12mm from the posterior margin and 8mm from the superior margin. it is a 1.5cm idc grade 3, this is the hormone status. oestrogen receptors H SCORE (180) RANGE 0-300, positive-20, oestrogen receptor status- positive, progesterone receptors, status, positive-20, range 0-300, score150., C -erhB-2, overexpression: Indeterminate, no adjacent normal tissue for assessment. it said also i had a added component dcis, but minor. the invasive component has large rounded nests of mark pleomorhic tumour cells showing poor acinous formation and a mitotic count in prvious biopsy, counted over 10 high power feilds noted, higher mitosis features consistant with grade 3.,
that is not all of it,as i am now getting a headache trying to read it , but hope you are able to get the gist of it. it said also dcis is of high grade , but minor, i don't get that at all, if its high grade, how us it minor, perhaps one of you can sus that out.
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Im not that good at reading path reports and I think theres a lot of important information that you havent been able to copy over as yet.
Was wondering if you have a printer that has a photocopy and scanner Midnight? If you do, maybe its worthwhile taking a photocopy of your entire report, then copy again cutting off your name and address if its shown and then scanning it and emailing it to whichever of us turns out to be the best at interpreting path reports. So long as you remove your personal details, it might even be possible to scan it to this site so that we can all help you interpret the report. Dont know if copy and paste works here though as ive never tried it.
Offhand, without being an expert, Id say the dcis is minor because its contained in the ducts while the IDC is of the most importance. I too had grade 3 dcis which is why they were in a hurry to do the masectomy, but had no need for anything other than arimidex or tamox if they hadnt found idc when they opened me up, just like they did with you.
Also, just while your wanting us to help you with this, perhaps if you could make sure your treatment in your profile is complete and make it public in your profile for a few days, so we can compare the report to the treatment you have received and hopefully give you peace of mind that your tx is and has been correct.
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my bil is a microbiologist and genetics phd. but he worked in milk factory, Fonterra lab. i think he would be able to read the microbiology, whether he can interpret the human one. he did go in to be a vet too at one stage, but changed course and went and did microbiolgy and genetics and is a qualified professor and teacher of it. whether he could understand that, should have some idea tho.
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Theres a lady here at BCO I have a lot of faith in (Beesie) who interpreted my path report for me not long after I discovered the BCO site. I just typed everything in the report into the post and she clarified it brilliantly for me. I was hoping someone could do that for you, but in view of your sight issues, I thought scanning it in could help. If your bil can do the interpreting for you, then thats great. So long as someone does it so you can fully understand what you were dx with, and how the tx has worked, what your current status is and what your prognosis is, thats the important stuff. Peace of mind is so hard to come by, personally I found that once my path report was explained to me, I felt heaps better and suddenly every ache wasnt a met lolz.
Hope everyone is feeling well heading into the weekend. I had today off, spent it snuggled into my dressing gown, reading and playing computer games, pure heaven haha. Funny in the last few years it seems rare to get a day off when I dont have a dr's appointment or some other crud to do with BC. I enjoyed doing nothing all day so much.
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Jenn, so good news and bad news. Ae you satisfied with the advice you got from the doc?
Kate, hope you're feeling better soon. Be kind to yourself.
Midnight, that path report is hard to interpret. Perhaps you need to ask your specialist to explain it.
Have a good weekend everyone!0
