Bonfire of the Goddesses

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  • jo1955
    jo1955 Member Posts: 7,545
    edited April 2014

    Slow - Congrats on finishing rads.  Now let the healing begin.  What can you throw in the fire?  The long drive - you may want to keep the car - it will come in handy later for shopping.  LOL!  How about the entire experience?   Love the decision maker!  I would't mind if it had stopped on golf.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Goddesses.................our prayers were answered........we found out today.......Grayson was one of the 500.......her Upsee has been shipped...........I am in tears...........thank you so much for your prayers.......you ladies are the best.............will send piictures.............she is going to stand and see the world as she should.........

  • sandpiper1
    sandpiper1 Member Posts: 508
    edited June 2014

    image

    YEAH!!!!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Piper....thank you............just found out it will be here Monday April 14th.........so we should have pictures by at least Monday night or Tuesday..........cant' wait..........

  • Tomboy
    Tomboy Member Posts: 2,700
    edited April 2014

    omg, ducky!!! it workd so well, with Veggy & prayer! cant wait to see her with it! she is a special little girl!

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2014

    just jumpin for joy for our Grayson

    Doin the happy dance even tho I'm a slight bit tipsy from the drugs they gave me for the endoscopy

    Happy,happy for u and the rest of the family

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Thanks so much......Damn I love you ladies............sniff, sniff.........here is one for you...Grayson is on right side.....you can see her Mom's hand holding her up in the chair......

    first haircuts,,Isabella is the one looking like she thinks she is being murdered.........image

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited April 2014

    Ducky, I am so happy for you and for Grayson! Yippeee!!!!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    There are no words to describe the joy in this family tonight.......God is good............

    I told my grandaughter.......the BCO Goddesses adopted Grayson........

    image

  • hollander
    hollander Member Posts: 93
    edited April 2014

    Ducky, so happy for you, Grayson and your whole family.  Can't wait to see pictures of that little angel when she's up and on the go!! (((hugs)))

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Hollander.....thank you.........the prayers of all of you have brought Grayson to this point....we will be ever grateful.......hugs........I promise pictures

  • valjean
    valjean Member Posts: 1,110
    edited April 2014

    Wonderful, wonderful news D. Very happy for the entire family.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Thanks Val............it is coming Monday..........can't wait

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2014

    hey I just went throu some old pics of ppl who turn my stomach

    How about a bonefire

    Not here cause it's snowing

    Anyone have some things they wanna burn?

  • 4sewwhat
    4sewwhat Member Posts: 1,895
    edited April 2014

    I'm back from out of town. Count me in on the fire, Fire!  Can we start with the damn weathermen and this friggin' winter?  Enough already!

    Missed you girls!  I will ketchup soon!  Had sitter troubles and been trying to get things back on track since we got home. And by troubles I mean my married friend that stayed here had her boyfriend sleep over, in my bed, and my kids told me about it.  Twice she forgot to pick them up from school, one day they were late, and she didn't bother to cook them dinner at all.  Plus the money I left for food and movies is, of course, gone.  So is most of my bottle of OxyC. 

    There, that shit should get the fire roaring!

    Thank heavens my SIL helped the kids out and my kids have good heads on their shoulders. 9yo girl child got everyone up and ready in the mornings. 14 yo brother says he thinks she was the most responsible one that was here. My reply....."that comes as no shock to me!"

    Bus leaves on Monday Goddesses!

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited April 2014

    4SewWhat, thanks for the warning - I had nearly forgotten and was going to ask what the departure date is!!!! I gotta get busy and get packed! And do a little homework! Yikes!  Winking

    And holy, moly, let's definitely toss in your sitter!!!! and all her party buddies!!! You think you know and can trust someone, and they can really surprise you!  Next time you need a sitter, let me know - with kids as responsible as yours, I could take care of them! (well, I think I could ... none of my sibs ever let me sit with their kids except once for a few days - they all SAY it is because they didn't want to stress me with their kids .... hmmm .... but I guarantee no wild parties! and I have my OWN meds!)

    I had some stuff to toss in earlier this week, but things seem to have simmered down a bit here. Last week a very well-meaning friend called me up to talk for an hour and a half about all the cancer cures out there that worked for all these other advanced stage prostate, lung, kidney cancers .... like I want to spend my life researching this stuff - I would much prefer to sit by the fire watching those flames leap into the night, hugging friends who don't try to make me feel like I am a failure because I am not searching out every potential "cure" when what I really want to do is live my life TODAY and enjoy TODAY!!!!! and another friend sent me some diet cure info - ketogenic diet - did read about it - can also be a very dangerous diet if you put yourself into ketoacidosis as this diet suggests .... arrgh. And another who tells me to pray harder, like my faith isn't "strong enough." So into the fire with ppl (as FK calls them) who try to suggest all this stuff instead of just talking about the important things in life, like how their kids are doing, what types of beauty and grace they have encountered that day, how their gardens are doing, etc.

    Also lost one of my best BCO buddies - FK  I really understand how hard it is to keep coming back after so many losses. And yet, we have chosen to be friends with people who may or may not be here in a week, a month, a year, a decade. We just are here in love and support, regardless of how much time we have together.

    I need to toss in greed. I realized how greedy I am - I had such a good day yesterday, and I realized that I want so many many many more of those good days, and then I realized that it doesn't matter HOW MANY of them I get, I will still WANT MORE, and that is greed, pure and simple. And so I am trying to change my attitude from one of greed to one of gratitude - how wonderful it was to have had such a beautiful day, and I have had several of them recently, even though physically my body is not working as well as I would like.

    And so, today, I am hanging out by the fire in gratitude, letting all the hate go up in smoke, letting all the warmth from the flames touch my heart and soul. And may it touch yours as well.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2014

    oh Linda,that was really a great post

    Except

    U r not greedy,u wanna live like all of us who r fighting this beast

    Don't be so. Hard on urself

    Live,love and laugh and more and more

    And most of all be happy

    It's very sad when we lose one of our BCO buddies,,,very very sad and I'm sorry it happened to u

    I have my memories of veggy along with pictures...can't get anything else but damnit I wish I could

    I'm thankful to all the sistas who come visit her thread that's been goin since November ...

    The fire is nice and hot now,sit down with me and have a cup of anything u want

    We can watch the flames and chat

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Linda..........greedy.......not you........you are a warm, loving, and compassionate person.....never think less then that of yourself..............why should we not want more of the beautiful days..........it makes up for all the down, and physically ill ones we encounter from week to week..........all our days are not beautiful, so when we are fortunate enough to get a couple in a row, of course we want more......that is not greed, that is wanted a quality of life.......

    It is hard losing anyone, but to lose a BCO friend is more then hard......you gain those friendships, and tell some of them your deepest thoughts and secrets.....things you don't even share with family......they are our ship in the night, our light in the storm........and when they are gone it is like a part of us has left, but still parts are left here to grieve...........

    Your a wonderful friend, and never forget that.............love you......and you to my little FK......

  • sandpiper1
    sandpiper1 Member Posts: 508
    edited June 2014

    4!?!? I am so sorry you had such a disappointment. UGH!

    Linda that was a lovely post. TY

    Hi to all....

    Been busy working.

    sending tons of 

    xoxoxoxoxoxox

    piper

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Ladies you can go to Utube......search Kira Charlton......that is my grandaughter...........a video of Grayson in her Upsee standing is there...............

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    image

    Grayson in her Upsee.....the video on Utube shows her actually walking with assistance of her Dad.

  • RedReading
    RedReading Member Posts: 1,262
    edited April 2014

    Omg Ducky. It's wonderful!!!!!

    I am living with sadness today. My cousins grandson is 6 and tomorrow they will do a final CT and pull the plug and all breathing apparatus. They are living thru so much pain right now. Please pray for healing and ease of mind for Barb, Hammy and especially Kim as she watches her son pass.

    I'm sorry. Don't mean to be a downer but I needed to share with ladies who would understand.

    Nite nite - bye Gage.


  • valjean
    valjean Member Posts: 1,110
    edited April 2014

    Aw, RedReading, I am so sorry for your cousin's family. I wish them peace....

    D, omg, what a beautiful picture & I will look at the uTube video as soon as my data plan enters its new month. (I have dial-up for the computer & have to remain aware of how much data I use on my iPhone. But I'm closer to getting high speed internet & then I can get Wi-Fi. Last Friday a company began inserting a fiber line on the roadside edge of my property & when my DH asked what it was for, they gave us a card for a High Speed Internet company north of us that is expanding. Since I live in what I call a No Man's Land, I am not eligible for other internet services & I do not want to bundle with my current telephone company. So, I still have that ole crappy dial-up!) I am so happy for your little Grayson & love the pictures you share of all your family, you know I do.

    Linda-n3 ...... You are a wonderful friend here & I will tell you something that another BCO sister told me not long ago: I appreciate you.

    Deb- love the shower pictures! I am very happy for you.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Val, thanks, we are so happy, but even more.....Grayson is happy....she adapted beautifully to her Upsee without any fuss.........standing upright is completely foreign to her she cannot stand alone, so we thought she might be scared to do it.........but again she proved to be the fighter she is, which has gotten her this far.........she is not there yet as anyone can see by watching her "twin", but she with the help of God one day will be.............

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited April 2014

    Ducky, I have tears of joy in my eyes seeing Grayson!!!! Thank you for sharing!

    RedR, I have tears of sorrow in my heart for you and your family.

    Thanks for all the positive comments from you ladies. My greediness is a true thing, I am speaking of it in the Buddhist sense that all suffering comes from wanting too much or hating too much. I hate pain and I love great days. I don't want pain, I want more great days. But if I spend my time wanting and hating, then I miss the NOW and the enjoyment RIGHT NOW! So I should say, gee, what a great day I am having, rather than, gee, I wish I could have more of these, because then I realize that the future will hold some days that will not be so great, thus sets in the "suffering." So when I say I am greedy, that is what I mean. I truly have all I need for life, I just need to recognize that and appreciate it each moment and not focus on the fear of the future.

    Valjean, I have seen you here and there, never really got to know you all that well, but have always been impressed with your choice of screen name! Love it! And it's nice to be appreciated, even when I have no idea for what! Thanks!

    Now about that bus that leaves Monday .... When is the transporter set? I have some complicating factors that popped up - thought I had all this crap taken care of, but oh, no, I now get to add a thoracentesis to pull fluid off my lungs again on Monday,  Devil then have chemo on Tuesday,  Scared so do you think it would be too much to ask Scotty to beam me back and forth a couple of times, or should I join the group a day or two late? Please please please see if he will be lamb and help me out - I don't want to miss even a couple of hours of this wonderful trip!!! Winking

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2014

    Linda..............we will postpone the trip till you can be there for everyday..............so ladies.........we will set a future date for the trip...............

    Is that ok with you FK.........some of the ladies are having problems too.......its one for all, and all for one...............so enjoy your Easter knowing you don't have to go crazy this weekend packing..........a later date will be decided............be patient.........things happen........we will do it......promise........but not without each other...

    Ok FK...................

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2014

    good job Ducky

    Couldn't have said it betta

  • jo1955
    jo1955 Member Posts: 7,545
    edited April 2014

    Hi Pinkies!  I haven't posted in quite some time but rest assured I do read everyday.

    Bonfire has been quiet lately.  Nothing to throw in???  Tha'ts okay too.  Casual conversations are always welcome.

    On a good note, it was 2 years ago today that I had my breast recon surgery.  Best decision I made in this journey.  Can't believe it how time has flown.  

    Happy Easter to everyone.

    image

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2014

    wow JOJO 2 yrs.

    Time flys when ur havin fun,lol

    It seems like just yesterday u were tellin me about it

    Congrats on it.

    Maybe we should have a party at the bonefire for U OUR FEARLESS LEADER.

    How about that?

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited April 2014

    Oh, yes!!! PARTAAAYYYY at the bonfire for Jo!!!!!! Jo, I am so glad you are happy with your decisions and that you are DONE and it has been 2 years! I know what you went through there for a while, and am so glad it was all worthwhile! 

    I am throwing in pleural effusions today. I have had increasing shortness of breath AGAIN, so called the MO and they got me on the schedule to get the fluid drained off on Monday. The way things are going today, Monday just can't get here soon enough! And I don't know if they scheduled me with my favorite NP or if it is the other one - oh well, both are OK, I just like one better than the other - she is gentler.

    I will be MIA for a few days as my mom is coming for a visit and it is difficult to get on BCO when I have company. So I will share my beautiful columbines with you all for a very Happy Easter weekend, and see you next week, hopefully breathing easier by then!

    image