TRIPLE POSITIVE GROUP
Comments
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Christean just an FYI. I used to have chronic yeast infections in my 20's for a couple of years. It finally resolved but antibiotics can still give them to me. I find most of the OTC medications very irritating. What I do is get acidophilus in capsules from the health food store. I remove half the capsule and place it in my vagina at night. Depending how bad and how fast you caught it will depend on how long you need to do this. I also wear a panty liner but it's not as messy as the OTC stuff.
My old gyno that retired told me to try this back in the 80's.
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Thanks so much Lago. Everyone here is so great. I will be heading to the health food store tomorrow!. You are so right about the OTC stuff being messy. Thanks again!
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Lago, I am saving that treatment! I get one every time I take an antibiotic now.
I thought I had one recently with no antibiotic, but I think it might be something related to tamoxifen because I really don't have any of the usually symptoms. Going to ask my OB/GYN when I see him in a week or so.
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Fluff if you are having any discharge on tamox you need to talk to your OB/GYN. I would call and give him/her the heads up before you go.0
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Hi Ladies
Was wondering if anyone here is suffering from frequent urination at night..... I usually have to go to the bathroom at least 3 times through the night. Is this normal??? Don't know if its from the menapause, sleeping pills ect ect. This is so annoying and uncomfortable as my bladder feels full so much through the night. I did read that menapause can cause these issues.Should I be concerned?? Thanks for your help.
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Christean I would probably just go the doc for your own peace of mine. Our minds wander so much with cancer. Some reassurance is a nice feeling
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kennylynne I did notice that for a while after chemo. I also notice it for a while after surgery too. I'm fine now but if I drink something before I go to bed I will wake up in the middle of the night and have to pee, maybe more than once. I too heard frequent urination can be a problem after menopause. I wouldn't dismiss it but your body had been through a lot. Mention it to one of your doctors… we have so many now it's hard to choose which one
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Kennylynne, lago et al....
This is one I can actually help you all with since I'm 63 and went thru menopause @50.
Yes frequent urination is very common during and after menopause. Limiting fluids after dinner and completely emptying your bladder before bed may help some . This frequent urination adds to the exhaustion that waking to hot flashes causes.
But like the other ladies have said...because we are fighting cancer....talk to your md about it.0 -
I think their might be a correlation between the frequent urination and hot flashes. I have noticed that if I can stay asleep at night, I have no night sweats or hot flashes. However, if I get up to use the restroom, the kids wake me up, or hubby gets up at night, the hot flashes start and then I have trouble getting back to sleep. I find that when I have wine in the evenings I almost always have both.
Not really willing to give up wine though . . . .
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I don't really get hot flashes, once in a while but when I do get a warm flash usually red wine is the culprit or my chili. It's spicy.
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kennylynne -
are you taking tamoxifen yet? i have had the bad bladder since i started and i read someone else's post that they had this as a side effect
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Rozem I don't know about bladder infections but urinary infections are quite common in post menopausal women. So far, know on wood, I haven't had an issue.0
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I have been getting up frequently at night to pee ever since menopause. It is definitely related to hot flashes. I still get mini ones now and then and the first sign is thirst, the second is the urge to pee. I wake up thirsty, get up to pee and by the time I lay back down I'm a teeny bit 'flashy'. You do get used to it. I would say, before chemo, that I would get up at least 3 times between bedtime and 4 AM and probably once more after 4. Luckily I go right back to sleep and don't feel any more tired during the day than I did when I slept through. I think G-d makes us able to tolerate less sleep. Attitude helps. don't get all bent out of shape in the night when you wake up. Just stagger to the john and stagger back to sleep. ;-).
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Thanks ladies, actually only had to get up once last night and yes I really do think its linked to the hotflashes as well.......... either a hotflash and then the need to pee or vise versa. I think I will mention to the Dr just to keep my mind at peace.
Rozem I have been on Tamoxifen since Dec 5 I didn't know it effected the bladder. What symptons are you experiencing????
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I'm going to ask again about LE since I know we have so here who are experienced with it. I don't have LE but I'm flying to CA 1 March and my onc thinks I should go ahead and wear a sleeve. Not sure that is the right??? Let me know your thoughts please.
Arlene
PS - Herceptin stopped completely due to the low EF. Oh, well, made it through #10.
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Arlene I decided on my 4 node (no LE) ride home not to wear my sleeve. It did feel a bit heavy afterwards. Won't do that again BUT I do have LE in the other arm and I had 4 nodes not 2 nodes taken in my non LE arm so I might be a bit more at risk given my history and number of nodes. There are people that don't wear them. It's controversial.
You can read about some studies here. Not sure if there are updated ones. Just if you are going to wear something be sure it's the sleeves and not some alternative. The alternative might not fit properly and cause LE.
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Hi Ladies...... speaking of LE...... I had nodes removed and just finished rads, I have pain and heaviness in my arm but no swelling this has been going on for awhile now...... its driving me nuts I did start excercising last week but that has not helped. Any advise? Is this normal? How long is my arm gong to bother me?
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Thanks Lago. I knew you'd come through. What is it that causes the LE...lack of flow. I know my profile shows 2 because that is what BS originally told me but it was 2 main and 6 grainlike nodes so a total of 8 which puts me at higher risk. My friend who had all her treatments at MAYO was told anything under 10 and doubtful you'd get LE but I've seen different.
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kennylynne - I developed cording and mild LE during rads. I saw a therapist who was able to resolve the cording for me. The cords were not visible at first, my arm hurt all the way down to my wrist. After a while the cords became visible especially at the inside of the elbow. the cords are damaged lymph vessels. See axillary web syndrome.0
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My Onc is sending me to a medical supply place for my sleeve??? Shouldn't I be going to a specialist? Need to research that.
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kennylynne go get this looked at. That's how mine started. I swear if I had addressed it earlier it might not have happened. My other arm has heaviness at times but no LE.
Arlene if the medical supply place has someone good to measure then that's fine. My BS sent me to one and they were bad. The sleeve was too short. My gut feeling is they didn't have a long sleeve in stock so that's w hy I didn't get one. They also gave me ones with silicone on them to prevent rolling. Well that's needed if you have large arms (my PT calls them Oprah arms) but I don't. It was very irrigating.
If you want to read about LE go here: http://www.stepup-speakout.org/ I'm on my way out so I can't get too wordy right now.
I had cording in my non LE arm… and still don't have LE in that arm or if I do then it's a stage 0
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Arlene - My sleeve was too short as well and it gave me wrist swelling which was hard to get rid of. Get them to explain to you how they do the sizing and show you where your measurements fit into the range for the garmet they order for you.0
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Do you all think I even need one for flying since I don't have LE?
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I don't know - I have read recommendations on both sides, wear and not wear.
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My first time on this site. I was diagnosed with stage 11A on Aug. 3, 2011. Had bilateral mastectomies, followed by AC Chemo and then T with Herceptin. Will continue with herceptin until end of November. Now 11 sessions into 25 of radiation. I was doing great until a few weeks ago. The end of chemo has made me feel very insecure and anxiety ridden. I don't know how to calm down. Thank goodness for my kids who keep me smiling but terrified I won't see them grow up....
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Welcome danielle! Herceptin is still your watchdog! Have you started any anti-estrogen med yet - tamoxifen or aromatse inhibitor? I started the tam after I finished rads. Glad you found us and welcome again.0
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Arlene - my friend is a lymphedema specialist and I asked her about wearing a sleeve to prevent LE. She said yes it is controversial as to whether you should wear one or not if you don't already have LE. She said she leans towards telling patients no...but if you decide to get one, make absolutely sure it is measured and fitted by a professional and WEAR A FITTED GLOVE, too. She said what happens is pts get an ill-fitted sleeve and/or wear it without a glove and it causes swelling to actually pool in hand...causing LE in some cases.
I have opted thus far to skip the sleeve, but I have only had 3 nodes taken. It's a tough call.
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I have mild LE in the arm from which more nodes were removed, but I had a bi-lat SNB. I wore sleeves/gauntlets on both sides when I flew in December. My sleeves came from a medical supply company and they had a very good fitter who did the measurements, but the level of compression was dictated by my LE physical therapist. They ordered the sleeves for me according to the measurements, they do not stock any sleeves on site so I did not need to worry about being sold something that was not properly fitted. The initial sets of sleeves were too tight - turned my hands purple. They returned those sleeves and ordered sets from another manufacturer - same compression. Love the new ones. All of their sleeves are the same price, except for custom ones, so there was no problem with trying to find the right ones. Ask about that if you get some - not all places have very good return policies.
Arlene - you can roll the dice with no sleeves, but there are also some exercises to do while flying, walking around and getting out of your seat, hydrating, etc. that are also precautions. Check the LE threads for that specific info.
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My LE therapists advise not to wear one if you don't have LE. They liken it to wearing glasses if you don't need them. They say it can actually make your arm worse and cause LE. However, there are a lot of therapists out there who do recommend it. They really don't know.
Welcome Danielle! This site and hearing others with the same feelings and anxieties has helped me lots. I think it will help you too. It's normal to feel that way. There are meds the doc will give you if you need it. I would talk to them about it.0 -
Arlene - the "flying and lymphedema risk" thread just popped up in Active topics
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