TRIPLE POSITIVE GROUP
Comments
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Oh, gotcha dragonfly, you had rads going on too. So many variable for all of us. Im going to exercise thru my pain - maybe it'll help. Kids are getting me zumba for the wii & I wont let herceptin or tamoxifen stop me
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I definitely notice that the stiffness is better with movement. I'm not usually too bad after Herceptin, but #15 has been the worst one for me, nothing huge though, just more stiffness than usual. I wonder if the difference is that my latest Tamoxifen came from Mylan labs, otherwise I've always had Teva. The Mylan ones are definitely a tad bigger and much chalkier.
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Shore....my se's are worse on dose dense herceptin than they were when combined with chemo weekly. Slowing helped. My onc said I could continue it weekly or evene very two weeks also. I stuck with every three just so i didnt have to be there all the time, but joints hurt....im a little queasy the first 48 hours and wiped out.
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shore1--- I purchased this wig online @ Vogue Wigs The name of it is the "Jackson". It came out of the box and on my head. No trimming, shaping, etc.... Very easy
I bought the color the "model" is wearing. I believe it is called "java frost" Good Luck to you!! I have a human hair wig also, this one is so much easier
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Yes, so queasy this morning after Herceptin/TDM1 that I (almost) threw up.
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shore-- I am also very stiff on the Herceptin/Arimidex, esp. in the am or if I am sitting too long. Otherwise, I really can't complain. I too am hoping that when I am finished in April that the joint pains get better. My fingernails are very thin and weak too.
Question..... Has anyone noticed a stinging/itching sensation on your skin when you sweat? Whenever I do cardio and work up a sweat this happens to me. After I wipe it off, I am fine. My thought was that it could be the Herceptin. Anyone have or had this?
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ashla - your recipe sounds HEALTHY and DELICIOUS!! I am going to make this!! 0
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Oh dear. My bs said herceptin only was much easier than chemo..That there weren't many ses and they usually resolved well after treatment ended.
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Bucky317.
I hope you enjoy it. It's easy even when you're not feeling well, includes many nutrient rich ingredients and at least for me...went down easily even during those days when the thought of eating even favorite foods was hard to conceive. I have that awful taste in my mouth for the first 10 days after chemo.
Great recipe for barbeques when we finish this torture trip.0 -
ashla - Herceptin alone is much easier. The SE's are much milder by comparison to chemo. These are usually body aches that are handled by Advil, runny nose, a continuation of nail issues if you had them with chemo, etc. - don't worry!
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bucky317 I get that itchy/stinging sensation like pin-pricks all over my skin whenever I start to get hot for any reason-whether I'm trying to work up a sweat or not:) For me, it's become an early warning system and means that a hot flash or "warm" flash is on the way! I think it's part of the wacky temperature dysregulation from chemopause...0
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Yep, chemopause has it's own climate! I had to fan away about 4 times during a 2 hour meeting today.
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ashla Herceptin has been "a walk in the park" for me. I get the infusion in a 1/2 hour and I am out the door. The achy joints are not debilitating by any means. It just takes me a little longer to get going when I get out of bed and get my feet on the floor. Exercise definitely helps!! I believe it is the Anastrazole ?sp. sucking the estrogen out of me that causes most of the aches
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Missy - I am 2 years out from diagnosis. During chemo I saw the onc at every AC - every 2 weeks. And then during TH and then Herceptin alone I saw the onc at the ones with Herceptin - every 3 weeks. After finishing treatment, I started seeing my onc every 3-4 months - sometimes more if there are issues - like when my platelets were low in December I was back weekly for a bit doing bloodwork. I see the surgeon every 6 months. I have a mammogram every June and a breast MRI every December. My rad onc had initially told me to see him yearly, but I don't do that - I feel like I'm seeing enough doctors.
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dragonfly you took the words right out of my mouth.. that is EXACTLY what I am experiencing! and when I think about it , It does happen right before a "hotflash" LOL!!!0
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Hey all - when you have a port, are there any restrictions on arm movement? I do aggressive dance with full range arm motion at high speed...wondering if I end up having treatment if I have to give this up for a year...?
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dance - my port is subclavian - right up by the hollow of my throat - no arm restrictions. I am not aware of anyone having any issues except for those that have their port kind of on their side - and then, yu would just have to be careful.
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Dancetrancer aggressive dance with full range arm motion at high speed? sounds awesome! You might need to post a video:) I can't imagine that the port would stop you once it heals-I was sore for a week or so when it was first put in but otherwise no problems. Mine has never restricted me in any way. I shocked my vascular surgeon when I asked him if I would be allowed to go skydiving with a port and then he said, I don't see why not (see video link below). If I can fly, you can dance...Keep on dancing Dancetrancer!
Omaz you summed it up-chemopause certainly does have it's own climate:)
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Thanks you guys! Dragonfly, I DO have videos!!! It is so, so much fun!!! We put on performances now and again. Makes me feel young. I miss it so much!
BTW, watched your video - love it!
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Hi Omaz, it went well. I am tired especially if i exert even a little bit but otherwise, quite fast (8 minute infusion) and I was done in about 90 minutes all told. I did get a few premeds but no steroids! all is well! When are we going to meet for breakfast??? q
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Dancetrancer...mine is on my right side and no problems, however, it is also right about where a bra strap goes, so if it rubs across it, it is a little tender and gets irritated. I notice it sometimes when exercising and have to shift the strap. Just a thought if you are crazy dancing
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Good to know fluffqueen - if I do this, I need to make sure I discuss placement/issues with the surgeon.
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Dancetrancer Wow! Love the video. You should polish up a routine and head for America's Got Talent...0
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Dance - My surgeon asked me to draw an area on my chest that was a good place for the port so my bra strap wouldn't hit it. I actually drew a box area in sharpie.0
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my port gets bumped by the truck safety belt! it can a be a pain sometimes, especially right after chemo it seems a bit more sensitive. Gee I wonder why???? LOL
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Thanks everyone for the feedback and tips. I will have to pick a favorite sports bra and draw where it DOESN'T cross. So glad I asked you all!
Does it leave much of a scar? It seems like it would be in an area which would limit the kinds of shirts you could wear.
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My onc nurse told me to restrict some of my movements and to limit how much weight I lifted only when they could not access my port at the first few infusions. After my port started working, no restrictions but it does get sensitive after infusions. The scar from my port is by far my worst one - hoping he will fix it when I get the port removed. It's on the left side about 3 inches below my collarbone. The actual port sits about 2 inches under the scar and you cannot see the port at all - however, my port is deep and tilted and they have a hard time accessing it almost every time. I use emla cream covered with tegaderm adhesive to numb it to some degree before they go digging.
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thank you, saralmom!
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dance - When I picked my spot I also made sure it was to the side of a shirt opening. I have about a 4cm scar from the port.0
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I barely see my scar. It is small. However, when wearing summery clothes like skinny strap stuff, i can see the bump where the port is. I notice it most on those shirts that cut into a high neck, leaving outer arm area open.
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