TRIPLE POSITIVE GROUP
Comments
-
hi ladies
just droping in to say "hi"
trying to catch up...lago hope its a cyst? sorry didnt catch where this cyst is - im sure you are fine!
nurse - i had all the same things as Jenn in australia when i was on fec - BIGGEST complaint was the nausea for me. Take the meds!!!!!!
i find it interesting that FEC is being used more and more outside of australia and canada. i believe at MD Anderson it has done really well in neoadjuvant trials (the most pcr rates). The FEC protocol was actually created in Canada! (thats what my onc told me anyway)
0 -
I was told no more scans. Just blood tests, Herceptin, and pill?, and office visits after rad is done
Having my 5th chemo. So far so good it's by Wednesday after neulasta that the fatigue kicks in
Good luck everyone0 -
rozem,
I was dx'd and tx'd in the period of time just prior to the changeover here in the US to more emphasis on the taxanes, and had CAF, a cousin to CEF (alternatively FAC and FEC). My large-cancer-center MO favored CAFx6 for my HER2+++ cancer, whereas the onc at Cancer Center of America favored CEF, which is somewhat gentler to tolerate, and I'm not clear on whether one is more effective than the other or not. (With CAF and only ondansetron and Compazine available at the time along with anti-anxiety meds, I had hours of projectile vomiting and several days of recovery all 6 times.)
It isn't just Australia and Canada but also Europe that favors CEF over CAF from what I've seen online. The US uses the NCCN guidelines where the rest of the world uses more often St. Gallen recommendations, I think.
A.A.
0 -
Hi RozeM...I think you may remember that I did FEC as well, with 12 Taxols..all with Herceptin. Mine was absolutely the MD Anderson protocol that was tested in a trial a few years back. And I'm in Texas, so I guess it makes sense that my MO would push for that protocol. I am happy I did it. I acheived PCR and I feel like the FEC did a good job of mopping up anything that was left after I finished my 12 Taxols.
0 -
For those who haven't read on the THC thread this here's my update:
My Hobbit ear. ENT drained it. Testing for infection and cells although he doesn't think there will be any cells. Will see him again Friday. He hopes it won't fill again but if it does it will have to be removed. My gut says just cyst but it's gonna fill again. I hope I'm wrong.
0 -
lago - is it hurting you less now that it is drained? Or does it hurt because he drained it, lol! Hoping nothing shows up in the testing and it doesn't fill again.
0 -
lago, glad you were able to get it drained. Hopefully it is feeling better.
0 -
Lago,
My experiencewith cysts is that if they don't remove the sac it eventually fills up again.Hope that is not the case.
Did he do it with aneedle or did he cut into it and drain it? Hope the pain is better now.0 -
Discomfort is almost gone. And I do believe by now the lydercaine has worn off.
0 -
lago - mine too! I spent 4 hours in the dentist's chair this morning - my mouth is a bit hurting. I had to put off some major work during chemo and subsequent surgeries, etc., then had to time it with my Prolia injections, as any dental work has to be done right at the half-way point between the 6 month injections - work on the upper right molars, lower right side, one molar with a crown, and two re-do's of fillings on the back of my two front teeth. Alarmingly, he said every area looked worse once he got in there, as compared to the x-ray. He thinks it is chemo damage - his wife was treated for stage III ovarian cancer at the same time as I was for BC, so I know he is familiar. Chemo - the gift that keeps on giving, lol!
0 -
Lago....hope you keep getting relief and praying no refill....or you can cut your ear off and beome a famous artist ....lol...please keep smiling♥
0 -
ashla you jinxed me. It filled up a little again. He did it with a needle mainly to test whats in there. He said sometimes they fill up a little bit and you can drain again and be fine. Other times the just keep filling up and have to be removed. It's a wait and see. I see him again on Friday.
0 -
Lago I'm glad he drained it but if it's starting ever so slightly now--good thing u'r seeing him Friday. Well we know U'r right on top of it so hopefully it will all be fine
0 -
lago- hope it gets resolved real soon
0 -
Lago, I hope your ear remains fluid free!!
0 -
lago, ditto to what cgesq posted!
0 -
I had an echo cardio on Friday, TCH today. My oncologist said the echo showed that my platelets were low and she will be doing my echo every 2 months. I'm not sure what that means and where to research this.
Any info??
Thx
0 -
I don't have any info on echocardiograms and platelets but I just found out today (Monday) that my platelet count is too low to have surgery tomorrow (I was supposed to have my tissue expanders replaced with new tissue expanders prior to radiation). I am almost five weeks PFC (post final chemo).
0 -
Lee, good to see you. I was wondering where you were since you haven’t posted in a while. Thought perhaps you were on vacation – I hope you had a great time – definitely you earned a vacation!
Nurse, you sound like you have a great attitude, I think that will really help you!
Dizzy, rads basically gave me a temporary mood disorder. However I think that’s unusual. Just wanted you to know you’re not alone if you do find yourself feeling really, really sad for 5 weeks….
Shasha, I pestered them for a bone scan and a CT scan. I didn’t have any at the front end. I think it’s probably good to have them at some point but perhaps no need to have them right when you’re finished, unless you’re having symptoms of some kind. I was, but thankfully the scans were all clear. There were many other possible explanations for the symptoms I was having.
Also I think the echo is to check your heart functioning, like instead of a muga, but I don't know the link between that and the low platelet count.
0 -
Very interesting info that yet again points to the benefit of a Mediterranean diet....http://www.sciencedaily.com/releases/2013/05/130520154303.htm
0 -
Lago...
So sorry to hear that. Respect the fact that he went conservatively and is trying to drain it first.I had a small one at the very top of my ear years ago that opened spontaneously and drained on its on but every few years it seems to fill a bit and then drain on its own.
Have thought of having it removed completely but then it gets better.
Good luck!0 -
Lee u'r surgery is posponed now--they have to get u'r platelets up? OMG I would imagine they wouldn't do surgery if u'r blood is not up to par for blood loss in surgery. What r they going to do give u an IV? or don't u know yet.
Sasha sometimes platelets run low when all these things are happening, but they'll keep an eye on them so it's good that they know about it. It usually does make u feel more tired (most people) depending on the range of being low.
0 -
Lee, Sorry you have to postpose your surgery. Are they going to do anything to bring up the level or do you just have to wait for it to recover on it's own?
0 -
Sorry Lee..My post chemo lumpectomy was delayed because of a bad ekg and I was despondent. ...
0 -
LeeA it sometimes takes a bit to recover. I know I was scheduled for exchange 8 weeks post but had to reschedule due to shingles. I know how dissappointed you are. I've been there. Cancer is suck a time suck. At times it doesn't keep up with the schedule.
0 -
Lago-- sorry about your ear hope it's better.
LeeA-- sorry to here about no surgery
ashla-- good info on diet the salad actually looked good
0 -
I am actually going to do the survivor lap at my local American cancer society relay for life.
Last year I was asked and I said no I was mentally and physically just not ready to do that.
So my teenage daughter and I are going:) This year. Last year they raised $89,000 in just one weekend. Real good for small town in michigan.
0 -
lago - I'm not as disappointed about the wait as I am concerned about my counts. I'm also worried about how this will affect the radiation schedule. Right now, I'm months away from the final implants. This was a surgery for new tissue expanders. On both sides. On another note, I hope that cyst doesn't fill back up!
ang - congratulations on doing the survivor lap this year! You've come such a long way and I love the new avatar photo. You look great and your hair has really come in nicely!
cypher - yes, we went on vacation for a week to our "happy place," (the north shore of Kauai). I hope all is going well for you.
bren58 - I'm not sure what can be done to bring up the counts other than just wait it out. There are platelet transfers but I don't think my count is low enough to warrant that (7.3).
camillegal - I have been pretty sleepy lately but I've attributed that to traveling and a little bit of jet lag. Fortunately, I've been able to keep up with the 30 minutes of walking per day and one day I walked about 3-4 miles (in the sand) on vacation (separated into two walks). When my hemoglobin was lower my legs burned but I think acupuncture has really helped that part of it.
ashla - Dr. Attai is mentioned five times in this NY Times article posted yesterday. Not sure if you've seen it.
No Easy Choices on Breast Reconstruction
http://well.blogs.nytimes.com/2013/05/20/no-easy-choices-on-breast-reconstruction/?smid=tw-nytimes
0 -
LeeA,
I saw that article and I have all kinds of alerts and she is everywhere. There was a major Washington Post article as well among others. Wonder if she ever sleeps. She is very social media savvy and very accessible. I like that. Ihttp://articles.washingtonpost.com/2013-05-14/national/39237932_1_breast-cancer-breast-surgeons-breast-conserving-operationi n writing anyway she's one of the girls .0 -
Hair issues.... Since my hair regrew I have had very little noticeable hair loss. In fact it was kind of unusual never seeing natural hair loss. Now...suddenly... 15 mos post chemo and 9 mos on anastrozole I 'm noticing much more loss. I have chemo curls ...my hair was stick straight before...and it is very , very fine but was much thicker post chemo. I think someone here said they lost most of the original growth and had a different texture and color regrowth.
The gift that keeps on giving. Think I'm gonna buzz it .0
