TRIPLE POSITIVE GROUP

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  • debiann
    debiann Posts: 447

     Good luck and let the se be mild efcjax. 12 days till #5 for me, and dreading it already. I get a muga scan on Monday, anxious about that too and I also meet with the bs to dicuss surgery, I think I've settled on the umx with diep recon. BC feels like the neverending story.

  • Tomboy
    Tomboy Posts: 2,700

    you guys, for me, the 5th one was the easiest,i dont know why, but i was soooo happy about it. maybe by then i was just getting used to it.

    thats a pretty funny story up there, linda... i had to tell my man, and he got the same look he gets on his face when he finds the butter in his sock drawer.

  • GIGIF
    GIGIF Posts: 36

    Linda, that hot water story have me a good laugh.  My hubby says I do crap like that all the time. Happy I'm sure we all have, I'm just glad we have a good excuse.  LOL

  • GIGIF
    GIGIF Posts: 36

    Linda, that hot water story have me a good laugh.  My hubby says I do crap like that all the time. Happy I'm sure we all have, I'm just glad we have a good excuse.  LOL

  • linda505
    linda505 Posts: 395

    Kathec - LOL - butter in the sock drawer - now please tell me you REALLY didn't do that?? LOLOL

  • Tomboy
    Tomboy Posts: 2,700

    i did! we have a 2000 ft studio that we live in upstairs, and 2000ft downstairs, that is our woodworking/painting/art/metal studio down stairs. so, sometimes i stat up so late watching a movie or whatever, that i have neglected fine tuning the house. even thogh i seriously dislike waking up to a mess! so, i will pick up an arm full of stuff, and wander around the house putting it in the right place, and sometimes, i will get distracted.

    the one thing i do over and over, is have to use his phone to call my phone, so i can find it! and i am just now getting reallly good at putting the house keys and my car key in the very same place! no setting them down at the table when i come in with grocery bags, i have finally trained myself to put them in a basket by the door. not in a pocket, not on the shelf where i put my driving and watching tv glasses. otherwise, i spend an inordinate amount of time, just looking for stuff. have a new bag just for all lymphedema stuff, too, other wise sleeves are everywhere, but not the one i want. (4)

    the one thing i still do over and over, is when i make dinner, is to stare into the fridge, wondering what i was looking for. i actually have to walk balk to the cutting board or prep area, to go look to see where i was.... i am only 54!!! and maybe only did things like that once in a while. i am several years behind on house work, tho, so i will blame it on the clutter, too!

  • linda505
    linda505 Posts: 395

    LOL kathec - I can relate on the car keys and phone issue and I only have about 1100 ft to get things lost in.  I am forever looking for my glasses also - and sometimes they are on my face!!  The worst thing I do though is be talking on my phone and then start looking for it and panicking cause it isn't where it should be and then being crazy enough to say to the person I am talking to "I can't find my phone can you call me on it"  ughh!!   thankfully it is usually my daughter or husband that I say that too and they just laugh and say ummm - you are talking to me on it right now!!

  • GG2
    GG2 Posts: 14

    Linda, chemo brain is for life, you can use that excuse forever and then dare anyone to challenge it!

  • Tomboy
    Tomboy Posts: 2,700

    you win!

  • Tomboy
    Tomboy Posts: 2,700

    : )

  • Mommato3
    Mommato3 Posts: 468

    You guys are funny stuff!!  So this is what I have to look forward to when I turn 50!?!

  • debiann
    debiann Posts: 447

    You really don't want to know what you have to look forward to after 50.

  • linda505
    linda505 Posts: 395

    agree with Debiann LOL - this is the nice stuff to look forward to! 

  • debiann
    debiann Posts: 447

    Getting out of the car tonight to run into McD, DH says "I'll take a coke".  I buy the food, we eat, when we're finished I say."Hey you wanted coke and I got you a sweet tea". "I know" he answers, "that's ok". That's why they're our DEAR husbands. :)

  • ang7894
    ang7894 Posts: 427


    Lol you gals are cracking me up. We all need laughter.  

  • fluffqueen01
    fluffqueen01 Posts: 1,801

    In the last month, I have made my husband turn around and drive back to a store three times so that I could find my cell phone that I left. I walk all over the store, only to find it in my purse stuck in a corner. I have taken to carrying a smaller purse and keeping the phone turned up full blast. lol. He just rolls his eyes now. I still am blaming it on chemo.

    And PBrain, seriously, there is nothing I like better than a tank top and my extra push up bra! I just put those new girls right out there for everyone. I am all about stripper foobs! If I hadn't put fifteen pounds back on, and having hot flashes, I would be in fitted dresses showing off everything! And I will be 59 in December!

  • soriya123
    soriya123 Posts: 383

    funny story ladies.  lolzz  about reading glasses my mom did the same thing.  she was looking for her glasses, but her glasses was on top of her head.  hahahaha but my mom is 68.  

  • susanhg123
    susanhg123 Posts: 257

    The nose bleeds. Bleed hither and yon. And do not know how since the major peaks were when my HgB was about 7. I never got blood-but had a True Blood T-shirt ready to go if I did. I have always been anemic-still am. But it is worse on chemo. Except one time it dropped to just below 7 and I was pregant. Actually-just found out I was pregnant and was breast feeding a 5 month old exclusively. And I had an IUD. And it was hunting season. In Texas. Some of you will get the irony. 

    Deb. My keloid scars are purple and thick. I have a appendectomy scar from when I was about 12 that is almost an inch wide and 1/2 thick and deep purple. Very attractive! My MX scars are thin so far in areas-thicker in others and itchy.

    I did not realize how low my LVEF had gotten-but my friends and peers did. The people I work with all have initials behind their names and finally someone actually spoke with my cardiologist. Said I could not walk down the hallway without stopping to lean against the wall to breath. My resting heart rate is always high and I have had an inverted T wave on ECG since ECGs were invented and a mitral valve prolapse. I am a nice standardized patient for some of our SIM labs. Remember-I have been the exception to almost every rule. Or I am exceptional.

    Much love to all.

  • ashla
    ashla Posts: 1,566

    susanHG123

    You are exceptional:)

    In the nicest possible way.

  • linda505
    linda505 Posts: 395

    In a few more years....

    Three sisters age 92, 94 and 96 live in a house together.

    One night the 96 year old draws a bath, puts her foot in and pauses.
    She yells down the stairs, "Was I getting in or out of the bath?"
    The 94 year old yells back, "I don't know, I'll come up and see."
    She starts up the stairs and pauses, then she yells,
    "Was I going up the stairs or coming down?"
    The 92 year old was sitting at the kitchen table having tea
    listening to her sisters. She shakes her head and says,
    "I sure hope I never get that forgetful." She knocks
    on wood for good measure. She then yells,
    "I'll come up and help both of you as soon as I see
    who's at the door."

  • footballnut
    footballnut Posts: 449

    Linda good one!  Seeing as my mother is 91 I'll have to share this with her. She'll have a good laff!!!!

  • debiann
    debiann Posts: 447

    Funny one linda, but apparently we can't blame all our mental lapses on age or chemo. My DD is house sitting.  She called me this morning all upset because there a raccoon trapped in the garage and she doesn't know what to do. "Did you open the garage door?"  "No".  "Well the raccoon has the same goal as you, he wants out, you want him out, just open the door." Lol.

  • vettegirl
    vettegirl Posts: 136

    I too had a bloody nose on chemo/herceptin.

    I finished chemo April 4 and had surgery May 15.  My wbc was only 3.9 on day of surgery.  BS said if it was under 3, they would not operate.

    So-next step for me is rads.  Get my final mapping tomorrow and start on Tuesday-33 treatments.  Ready to get this party started and get this behind me.

  • princessrn
    princessrn Posts: 270

    I get CT for rads and marking tomorrow. I will find out Wednesday how many treatments. 

  • Tomboy
    Tomboy Posts: 2,700

    lucky you, vette and princess! some one to go thru it with you on almost the exactly same schedule!

  • moonflwr912
    moonflwr912 Posts: 5,945

    LOL @debiann

    Vette girl and princess, good luck on your start to rads. Hope it goes easy on you. 

    Much love to all. 

  • Tomboy
    Tomboy Posts: 2,700

    can someone answer this question? looking back in my med papers, i see they actually did test my estradiol levels before chemo, probably to make sure i was truly menopausal. so, it said less than .1. and a grown man has 8. and i see where they had repeated it a few months ago and it was unchanged after 5 months of arimidex, 4 months of tamoxifen, and now 5 months of femara. it couldnt possibly be any lower, could it? so what is the estrogen driven part of my bc living on? how does that work?

  • Pbrain
    Pbrain Posts: 773

    Kathec, estrogen and estradiol are two different chemicals.  Hopefully you don't have any cancer cells and they are no longer living because you aren't producing estrogen anymore ThumbsUp

  • Tomboy
    Tomboy Posts: 2,700

    thanks Pbrain! and i did mean to say.... WAS! and so i finally did get to do the pet scan. only fdg uptake was between the right clavical and the cortacoid process, "probably due to resolving inflammatory process"... but i think it must be due to inccreasing inflammatory process, because it ws the main reason i wanted to look and see what was going on in there. it was a weird report, it was just like a blanket statement, 'nothing going on here!' no mention of previous schlerotic lesions, bony islands, etc. and, they made me walk al the way across the campus, 5 minutes before the actual test, and then said on the report, that it might not be as good as possible, because of increased muscle activity.WTF? the only reason i am still there, is because i think if i am no longer their patient, then i would not be able to do the grievance process against the bs i dont see anymore. and, when i said i do want my port out, they said i have to do a physical/?? did you guys have to??? all their tests keep saying i am fine, i havent heard of any one doing that, have you?

  • camillegal
    camillegal Posts: 15,710

    I'm just popping in to say Hi, and hope everyone is doing OK with SE's and rads and hope fears are small.