TRIPLE POSITIVE GROUP
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Need some help understanding pathology....initially diagnosed as Grade 3. Went through neoadjuvant chemo then surgery. Very small residual found only in breast. Pathology now says Grade 2. Which is right? Is it possible for pathology to change? Any similar stories or input is greatly appreciated. Thanks
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good morning all
I meet with my onc tomorrow to discuss balance of my chemo and then wed back in the chair at 10am. 2 rounds left but if I have to go weekly I imagine that would be six weeks of infusions. Ugh!
This past weekend I was fortunate enough to meet my idol Scott weiland - Scott used to sing with the stone temple pilots and is now touring solo. I got up on stage to sing with him and he later introduced me to his drummer mike - a cancer survivor!!
Hot Scott made my night! He's the best and I'll never forget how he made me forget all about cancer and rocked my world as he's done several times in the past. 😊❤️
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football - awesome!
girlstrong - tumors are not homogenous, you can have variations of grading in the same mass. It is possible that the area looked at previously happened to be grade 3, and the residual area left after chemo is a 2.
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football!! Super cool. I love STP!
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princess hubby and I have been fortunate enough to see STP so many times with so many different Scott's! Drunk Scott, thin Scott, heavier Scott, wasted Scott, mad Scott, happy Scott, late Scott, forget the words Scott! Lol
He seems to be in a good place now. Healthy and inspired
We actually saw STP in Indianapolis a few years ago during the final 4 basketball series. It was a free concert. We must have been the only ones there for STP!!
If you can see him while he's touring this time around try to get out. He's doing STP, velvet revolver and 3 of his own new tunes
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Football:::: Awesome you look like you had a great time
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FBN, you look great! I'm glad you had a good time.
Girlstrong, like SK said the grade can be different in parts of the tumor.
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it was heaven!!!!
Now back to hell; I mean reality!! 😛
I think that I am more nervous about having to take tamoxifen after the chemo is over as I've heard nothing but horror stories about it
Does anyone have snything good to say or is it all bad stuff?
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Just poked in .
FBN what a fabulous night for u and u look so happy. Good feeling.
My cousin took Tammy and she was good with it, in fact I think she made us all feel like that was an easy peasy part. So don't think down on it yet.
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No tamoxifen horror story here. Seems to be the easiest part for me.
Ladies...my WBC dropped to 2.6 last week. My MO says radiation. My RO says Herceptin. RO says not a large enough area, not enough large bones with marrow, radiated to make that big a difference. I will have another CBC done on the 31st. MO did not seem too concerned, so I am not concerned, just like to know the "why."
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Robin you are probably low still from chemo. My HGb was less than 8 my last tx but my MO said I didn't need a transfusion because it would get better on its own since I was not getting more chemo. It took Months to get it up to 10 and it was almost 1 year PFC before it was finally almost normal at 11.9. So with everything added to the chemo remnants I think that's a big part of it! Good luck and keep eating liver.... LOL
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Hi ladies,
I just recently got DX and found out I was triple positive. I've been reading all the post on here and trying to soak in all the information I can. I start chemo next Monday. Dreading it, but I'm ready to get it over with. Got to go for now, but I'll be back checking things out.
Terrie
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Tadover, sorry about your dx, but you are in the right place to get all the info you need. I just finished 5 out of 6 rounds of chemo. It's not easy, but you'll get through it. God's blessings to you.
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Moon - normally I would blame it on the chemo! ( I love to blame chemo for everything!) My numbers bounced right up to normal before rads started. That is why I question the cause. Rads and tamoxifen started at same time. I switched recently from weekly Herceptin (continued weekly long after chemo stopped) to tri-weekly Herceptin, and it is within that time frame that my WBC dropped. I am 14 weeks PFC....
Tad - the ladies here are very knowledgable. Sorry a diagnosis had to bring you here though.
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FBN, I have not had any real issues with Tamoxifen. The only thing that I have experienced is a few leg and foot cramps. Nothing that I can't handle. It's not all the time, just sporadic. Ocne or twice a month. Good luck.
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good morning! Today I have bloodwork and meet with my onc in preparation for my next round of chemo tomorrow
I am so scared of the side effects this time around. I am just starting to feel so much better - tummy good, eyes good, taste buds good- no pain- ugh!
Was on treadmill for 40 min yesterday and did weights.
Will try to continue as it feels so good to workout!!
Can't wait for end of chemo!!
Have a good day all!!
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Question for my sisters - according to the Canadian breast cancer foundation - The following ingredients can increase risk of disease including breast cancer - phthalates, parabens, alkylphenols, fragrance or parfum and placental extracts.
Do you check products that you buy such as lotions, soaps, shampoos and cosmetics for these ingredients prior to purchasing?
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football. yes I do and changed to mostly organic fruits veges and meats
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football - I do as well. This is a good website to do some checking of the items you currently use - you can enter them by name, or to check for things you might want to switch to. You can also look by category, like mascara or shampoo, and it will list the least toxic up to the most by brand name. I also try to follow the "Clean 15" and "Dirty Dozen" rules for buying organic produce, follow the Virgin Diet, and eat lean organic/grass fed/pasture raised/wild caught protein.
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Mommato3 you never have to turn 50. I am currently 49+4
girlstrong I would ask your onc. Typically the path report from surgery is considered the more accurate over biopsy because a biopsy only gets a small portion. Since you did neoadjuvent and very little was left your biopsy might be more accurate. Also a tumor can have different types. My tumor was IDC & DCIS although both grade 3. I bet you had both but chemo got all the grade 3 stuff. Usually they go with the higher grade.
Footballnut I was more scared of hormone therapy than chemo too. I figured I would just try it. If Tamoxifen sucks for you then there might be other alternatives (surpress ovaries with drugs and take an AI or remove ovaries and take an AI). You don't know till you try. Granted I know women that had no, ZERO SE.
tadover the first chemo was not difficult for many of us. I was working out in the gym on the elliptical and treadmill for 70 minutes the next day! I highly recommend exercise through chemo even if it's only walking. It really does reduce SE for many of us especially the fatigue and stiffness.
Sorry I was MIA. Out east visiting my parents and my high school reunion. Also I landed a temp-perm job starting next Monday! Finally. This looks like an awesome fit.
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allright, lago!
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lago, Congrats!!! I'm so happy for you!
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lago... Congrats!
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yay lago
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Congrats Lago!! I guess I should have started that at 39+.
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lago so happy for you!
Met with my onc today. He is switching me from taxotere to taxol and I will have infusions for the next 6 weeks. No more neulasta. I will continue the herceptin on a 3 week cycle for 1 year
So hopefully my SEs will be minimal - this is what my onc expects. Minimal pain and tummy issues
I love him. He is so easy to talk to but it's funny how one can interpret things. He mentioned that he wants to get me through treatment with minimal SEs so that I can move on for months and years
I walked out telling my hubby that this means I don't have a long life expectancy. Hubby said that's not how he heard it given past things that my onc had said which included my onc previously saying that I have a good prognosis based on my type of cancer
Funny how we interpret things
So hopefully things will be better after tomorrow's infusion. Now instead of 2 more rounds and being done with chemo by mid august, I have 6 more rounds and will be done with chemo the week before Labor Day. I'm cool with that as long as I have a less SEs
I also got Tylenol 3 to take instead of percs just incase
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FB, may Taxol be the right tx for you with no or very small SEs! Here's to a new try. AND, I took that statement as your DH did. That you will have YEARS and more! My MO once told me when I asked if the lowered dose was going to be strong enough: "you have to be ALIVE for any of this to work !" LOL
Much love
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Congrats Lago! Good luck FBN!
Whats everyone doing dietary wise to reduce estrogren? I've eliminated milk & ice cream which was easy cause they bother my tummy. But I was just.reading real butter is on the no no list too. I eat cheese occasionally and lowfat yogurt. The studies on dairy are really conflicting, some suggest lowfat is ok.
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Lago - Congrats!!!! Hope you enjoy the job!
FBN - I hope the taxol treats you much nicer
Well with no fanfare at all - 3 weeks ago was my final chemo - Liver enzymes had really jumped again and with the MO's and PA's blessing the chemo portion of my treatment has ceased. I am relieved but nervous at the same time - wish my liver would have cooperated but they were at levels that the manufacturer of taxotere recommended that it be stopped. I am sad that I didn't get to have a final chemo sign and picture - shallow huh??
I was given prescription for Anastrozole today which the insurance company immediately denied without contact from the doctor to justify it. Ughh - why does everything have to be so hard. Oh well - we shall see....
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debiann I still have milk with cereal approx 4-5 times/ week and I love cheddar cheese which I eat once or twice a week
There are still benefits to dairy and I have no tummy issues. Hope that all works out for you!
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